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Tytuł:
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Social participation in young people with nonepileptic seizures (NES): A qualitative study of managing legitimacy in everyday life.
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Autorzy:
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Karterud HN; National Centre for Epilepsy, Division of Neuroscience, Oslo University Hospital, Norway; Department of General Practice, Institute of Health and Society, University of Oslo, Norway. Electronic address: .
Haavet OR; Department of General Practice, Institute of Health and Society, University of Oslo, Norway. Electronic address: .
Risør MB; General Practice Research Unit, Institute of Community Medicine, University of Tromsø, The Arctic University of Norway, Norway. Electronic address: .
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Źródło:
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Epilepsy & behavior : E&B [Epilepsy Behav] 2016 Apr; Vol. 57 (Pt A), pp. 23-28. Date of Electronic Publication: 2016 Feb 23.
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Typ publikacji:
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Journal Article
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Język:
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English
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Imprint Name(s):
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Original Publication: San Diego, CA : Academic Press, c2000-
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MeSH Terms:
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Health Knowledge, Attitudes, Practice*
Social Isolation*
Social Participation*
Seizures/*diagnosis
Seizures/*psychology
Adolescent ; Female ; Follow-Up Studies ; Humans ; Interviews as Topic ; Male ; Qualitative Research ; Young Adult
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Contributed Indexing:
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Keywords: Delegitimization; Illness perception; Medically unexplained symptoms; Nonepileptic seizures; Participation; Social isolation
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Entry Date(s):
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Date Created: 20160228 Date Completed: 20161213 Latest Revision: 20180306
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Update Code:
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20240104
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DOI:
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10.1016/j.yebeh.2016.01.009
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PMID:
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26921594
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This qualitative study explored social participation in young people with nonepileptic seizures (NES), particularly how legitimacy of illness is managed in everyday life. Young people with NES, all female and aged between 14 and 24 years (N=11), were interviewed and followed up over a 14-month period. The transcripts were analyzed using thematic analysis. Four main themes were elaborated: 1) Delegitimizing experiences from families, schoolteachers, colleagues, and employers were part of everyday life. 2) Fear of being exposed to delegitimizing events resulted in the young people trying to conceal the diagnosis; for some, this resulted in isolation from all social arenas, apart from their closest relationships. 3) Support from close relationships was protective against delegitimization and contributed towards greater social participation. 4) Perceiving NES as a legitimate disorder contributed to increased social participation. We found a relationship between legitimacy of illness experienced by the participants and the extent to which they either participated or retreated socially. Those who had an illness perception that was personally meaningful experienced their condition as being more legitimate and participated more socially.
(Copyright © 2016 Elsevier Inc. All rights reserved.)
