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Tytuł:
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Facilitating access to health research through a participatory research register: a feasibility study in outpatient clinics.
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Autorzy:
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Leach VA; NIHR CLAHRC West, University Hospitals Bristol NHS Foundation Trust, Whitefriars, Bristol, BS1 2NT UK.; School of Social and Community Medicine, University of Bristol, Bristol, UK.; Department of Genetic Medicine, St Mary's Hospital, Oxford Road, Manchester, M13 9WL UK.
McGeagh JD; NIHR CLAHRC West, University Hospitals Bristol NHS Foundation Trust, Whitefriars, Bristol, BS1 2NT UK.
Margelyte R; NIHR CLAHRC West, University Hospitals Bristol NHS Foundation Trust, Whitefriars, Bristol, BS1 2NT UK.
Redmond NM; NIHR CLAHRC West, University Hospitals Bristol NHS Foundation Trust, Whitefriars, Bristol, BS1 2NT UK.; School of Social and Community Medicine, University of Bristol, Bristol, UK.
Walther A; University Hospitals Bristol NHS Foundation Trust, Bristol, UK.
Redwood S; NIHR CLAHRC West, University Hospitals Bristol NHS Foundation Trust, Whitefriars, Bristol, BS1 2NT UK.; School of Social and Community Medicine, University of Bristol, Bristol, UK.
Martin RM; National Institute for Health Research Bristol Nutrition Biomedical Research Unit, Bristol, UK.; School of Social and Community Medicine, University of Bristol, Bristol, UK.
Donovan JL; NIHR CLAHRC West, University Hospitals Bristol NHS Foundation Trust, Whitefriars, Bristol, BS1 2NT UK.; School of Social and Community Medicine, University of Bristol, Bristol, UK.
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Źródło:
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Pilot and feasibility studies [Pilot Feasibility Stud] 2017 Jun 21; Vol. 4, pp. 6. Date of Electronic Publication: 2017 Jun 21 (Print Publication: 2018).
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Typ publikacji:
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Journal Article
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Język:
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English
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Imprint Name(s):
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Original Publication: London : BioMed Central, [2015]-
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References:
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Contributed Indexing:
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Keywords: Data linkage; Prospective consent; Research database; Research governance; Research participation; Research registers
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Entry Date(s):
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Date Created: 20170627 Latest Revision: 20200930
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Update Code:
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20240105
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PubMed Central ID:
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PMC5480169
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DOI:
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10.1186/s40814-017-0148-5
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PMID:
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28649418
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Background: A research register (Reach West) has been established to facilitate recruitment of people and patients to health-related research. We conducted a prospective feasibility study to investigate the practicality of recruiting through outpatient clinics.
Methods: Patients over 18 years of age attending dental, eye or oncology outpatient clinics in an acute hospital in the West of England were provided with the opportunity to participate in Reach West. In Phase I, recruitment packs were handed to clinic attendees who could place completed consent forms in secure drop-box or return them later on-line or by post. In Phase II, recruitment packs were posted directly to patients with consent forms to be returned by post or on-line. Response rates by age, sex, postcode (for level of deprivation), and clinic type were recorded for those agreeing to participate on paper or on-line.
Results: In Phase I, 2,314 of 4,500 (51.4%) of recruitment packs were handed out to clinic attendees, and 114 (5%) consented to join Reach West. In Phase II, 7,173 of 9000 packs were posted (79.7%), and 387 (5.4%) consented to participate. The overall consent rate was 6% (580), with the majority doing so on paper (87%) rather than on-line. The sample was balanced by sex, but mostly comprised people over 50 years located in less deprived postcodes. Non-staff costs for postal recruitment were lower than hand-outs in clinic (£6.84 compared with £8.05 per participant).
Conclusions: Recruiting participants to the Reach West register was feasible among those with oncology, dental or eye outpatient appointments by post or with packs given out in the clinic. Response rates were similar to those achieved for other registers. Recruitment of participants can be achieved through outpatient clinics but other strategies will also be required to attract large numbers of participants and more diverse populations.
Erratum in: Pilot Feasibility Stud. 2017 Oct 24;3:48. (PMID: 29123916)
