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Tytuł:
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White Paper for Global Palliative Care Advocacy: Recommendations from a PAL-LIFE Expert Advisory Group of the Pontifical Academy for Life, Vatican City.
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Autorzy:
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Centeno C; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 2 ATLANTES Research Programme, Institute for Culture and Society, University of Navarra , Pamplona, Spain .
Sitte T; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 3 Deutsche PalliativStiftung , Fulda, Germany .
de Lima L; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 4 International Association for Hospice and Palliative Care (IAHPC) , Houston, Texas.
Alsirafy S; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 5 Palliative Medicine Unit, Kasr Al-Ainy School of Medicine, Cairo University , Cairo, Egypt .
Bruera E; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 6 Department of Palliative Medicine and Supportive Care, UT MD Anderson Cancer Center , Houston, Texas.
Callaway M; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 4 International Association for Hospice and Palliative Care (IAHPC) , Houston, Texas.
Foley K; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 7 Memorial Sloan Kettering Cancer Center , New York, New York.
Luyirika E; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 8 African Palliative Care Association , Kampala, Uganda .
Mosoiu D; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 9 Casa Sperantei, Transylvania University , Brasov, Romania .
Pettus K; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 4 International Association for Hospice and Palliative Care (IAHPC) , Houston, Texas.
Puchalski C; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 10 The George Washington University's Institute for Spirituality and Health (GWish) , Washington, DC.
Rajagopal MR; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 11 WHO Collaborating Centre for Training and Policy on Access to Pain Relief , Pallium India, Trivandrum, Kerala, India .
Yong J; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 12 The Catholic University of Korea (CUK) , Seoul, Korea.
Garralda E; 1 PAL-LIFE Project-Pontifical Academy for Life, International Advisory Group for Global Palliative Care Advocacy , Vatican City.; 2 ATLANTES Research Programme, Institute for Culture and Society, University of Navarra , Pamplona, Spain .
Rhee JY; 13 Icahn School of Medicine at Mount Sinai , New York, New York.
Comoretto N; 14 Pontifical Academy for Life , Vatican City.
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Źródło:
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Journal of palliative medicine [J Palliat Med] 2018 Oct; Vol. 21 (10), pp. 1389-1397. Date of Electronic Publication: 2018 Sep 26.
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Typ publikacji:
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Journal Article; Research Support, Non-U.S. Gov't
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Język:
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English
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Imprint Name(s):
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Original Publication: Larchmont, NY : Mary Ann Liebert, Inc., c1998-
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MeSH Terms:
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Global Health*
Palliative Care/*organization & administration
Advisory Committees ; Attitude of Health Personnel ; Catholicism ; Certification ; Consensus ; Delphi Technique ; Health Services Accessibility ; Humans ; Palliative Medicine/education ; Vatican City
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References:
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Contributed Indexing:
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Keywords: advocacy; development; global; palliative care; position statement
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Entry Date(s):
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Date Created: 20180927 Date Completed: 20200303 Latest Revision: 20200303
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Update Code:
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20240105
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PubMed Central ID:
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PMC6201784
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DOI:
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10.1089/jpm.2018.0248
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PMID:
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30256135
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Background: The Pontifical Academy for Life (PAV) is an academic institution of the Holy See (Vatican), which aims to develop and promote Catholic teachings on questions of biomedical ethics. Palliative care (PC) experts from around the world professing different faiths were invited by the PAV to develop strategic recommendations for the global development of PC ("PAL-LIFE group").
Design: Thirteen experts in PC advocacy participated in an online Delphi process. In four iterative rounds, participants were asked to identify the most significant stakeholder groups and then propose for each, strategic recommendations to advance PC. Each round incorporated the feedback from previous rounds until consensus was achieved on the most important recommendations. In a last step, the ad hoc group was asked to rank the stakeholders' groups by order of importance on a 13-point scale and to propose suggestions for implementation. A cluster analysis provided a classification of the stakeholders in different levels of importance for PC development.
Results: Thirteen stakeholder groups and 43 recommendations resulted from the first round, and, of those, 13 recommendations were chosen as the most important (1 for each stakeholder group). Five groups had higher scores. The recommendation chosen for these top 5 groups were as follows: (1) Policy makers: Ensure universal access to PC; (2) Academia: Offer mandatory PC courses to undergraduates; (3) Healthcare workers: PC professionals should receive adequate certification; (4) Hospitals and healthcare centers: Every healthcare center should ensure access to PC medicines; and (5) PC associations: National Associations should be effective advocates and work with their governments in the process of implementing international policy framework. A recommendation for each of the remaining eight groups is also presented.
Discussion: This white paper represents a position statement of the PAV developed through a consensus process in regard to advocacy strategies for the advancement of PC in the world.
