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Tytuł:
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Family caregivers experiences of the pre-diagnostic stage in frontotemporal dementia.
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Autorzy:
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Rasmussen H; Clinic for Mental Health and Substance Abuse, Nord-Trndelag Hospital Trust, Namsos Hospital, Norway; Department of Mental Health, Norwegian University of Science and Technology, Norway. Electronic address: .
Hellzen O; Department of Nursing Scienses, Mid Sweden University, Sundsvall, Sweden.
Stordal E; Clinic for Mental Health and Substance Abuse, Nord-Trndelag Hospital Trust, Namsos Hospital, Norway; Department of Mental Health, Norwegian University of Science and Technology, Norway.
Enmarker I; Faculty of Health and Occupational Studies, University of Gvle, Sweden.
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Źródło:
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Geriatric nursing (New York, N.Y.) [Geriatr Nurs] 2019 May - Jun; Vol. 40 (3), pp. 246-251. Date of Electronic Publication: 2018 Nov 10.
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Typ publikacji:
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Journal Article; Research Support, Non-U.S. Gov't
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Język:
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English
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Imprint Name(s):
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Publication: St Louis Mo : Mosby-Yearbook
Original Publication: [New York : American Journal of Nursing Co.,
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MeSH Terms:
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Interviews as Topic*
Caregivers/*psychology
Frontotemporal Dementia/*psychology
Aged ; Female ; Frontotemporal Dementia/diagnosis ; Humans ; Male ; Middle Aged ; Qualitative Research
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Entry Date(s):
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Date Created: 20181115 Date Completed: 20191203 Latest Revision: 20191203
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Update Code:
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20240105
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DOI:
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10.1016/j.gerinurse.2018.10.006
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PMID:
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30424902
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Frontotemporal dementia (FTD) is a neurodegenerative disease with symptoms that differs from other dementias. Commonly early symptoms in FTD are changes in personality and behavior, which can be interpreted as psychiatric disease. The delay in FTD diagnosis contributes to the burden of family caregivers. Therefore, it is important to have more knowledge about the pre-diagnostic stage. In this qualitative interview study, we explored fourteen family caregiver's experiences of the pre-diagnostic stage of frontotemporal dementia (FTD). Our findings suggest that the family caregivers experienced the pre-diagnostic stage of FTD as changes in the interpersonal relationship with their loved one. These changes were often subtle and difficult for family caregivers to explain to others. The findings from our study illuminate the importance of medical staff paying attention when a next of kin is concerned about subtle changes in a loved one. The findings also illuminate that awareness of FTD should be raised.
(Copyright © 2018 The Authors. Published by Elsevier Inc. All rights reserved.)
