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Tytuł:
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Portrait of a Caregiver: Ethnodrama Development and Its Influence on Caregiver Well-Being.
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Autorzy:
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Eaton J; College of Nursing, University of Utah, Salt Lake City.; Utah Caregiver Support Program, Utah Division of Aging & Adult Services, Salt Lake City.
Madsen-Wilkerson N; Utah Caregiver Support Program, Utah Division of Aging & Adult Services, Salt Lake City.
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Źródło:
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The Gerontologist [Gerontologist] 2020 Aug 14; Vol. 60 (6), pp. 1169-1178.
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Typ publikacji:
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Journal Article; Research Support, Non-U.S. Gov't
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Język:
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English
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Imprint Name(s):
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Publication: 2009- : Cary, NC : Oxford University Press
Original Publication: St. Louis, Gerontological Society.
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MeSH Terms:
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Caregivers*
Family*
Humans ; Long-Term Care
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References:
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Grant Information:
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UL1 TR002538 United States TR NCATS NIH HHS
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Contributed Indexing:
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Keywords: Caregiver burden; Caregiver health; Informal caregiving; Positive aspects of caregiving
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Entry Date(s):
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Date Created: 20191025 Date Completed: 20210405 Latest Revision: 20211211
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Update Code:
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20240104
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PubMed Central ID:
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PMC8660552
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DOI:
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10.1093/geront/gnz137
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PMID:
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31647553
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Background and Objectives: The majority of long-term care needs are placed upon family members who often receive minimal support. In this study, we collaborate with family caregivers to create an ethnodrama about their experience and assess outcomes of participation, including caregiver well-being.
Methods: Participants met over 4 months to discuss their roles as informal caregivers. Discussions were analyzed in a two-phase process and themes were developed into a script. Member checks included script review and revisions, culminating in viewing a professional performance of the play followed by a post-performance discussion and reflection. Data were gathered at six timepoints to assess caregiver well-being and longitudinal analysis was used to assess change during the course of the intervention.
Results: Twenty-two caregivers completed intervention activities. Participant reactions to the process evolved overtime, from an initial hesitance about what individuals had to offer leading to an acknowledgement of feeling heard and a desire to help others. Caregivers had high levels of burden and positive perceptions towards caregiving. Those with high levels of self-rated health had the lowest levels of burden and the most positive perceptions of caregiving.
Discussion and Implications: Developing an ethnodrama in partnership with caregivers is a unique and feasible method of caregiver support, mentoring, reflexivity, and meaning making. Promoting caregiver health early in the caregiving trajectory has the potential of reducing burden and elevating positivity towards caregiving.
(© The Author(s) 2019. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.)