Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders.

Tytuł:: Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders.
Autorzy:: Zablotsky B; Centers for Disease Control and Prevention, National Center for Health Statistics, 3311 Toledo Road, Hyattsville, MD, 20782, USA. .
Rast J; A.J. Drexel Autism Institute, Drexel University, Philadelphia, PA, USA.
Bramlett MD; Centers for Disease Control and Prevention, National Center for Health Statistics, 3311 Toledo Road, Hyattsville, MD, 20782, USA.
Shattuck PT; A.J. Drexel Autism Institute, Drexel University, Philadelphia, PA, USA.
Źródło:: Maternal and child health journal [Matern Child Health J] 2020 Jun; Vol. 24 (6), pp. 796-804.
Typ publikacji:: Comparative Study; Journal Article
Język:: English
Imprint Name(s):: Publication: 1999- : New York, NY : Kluwer Academic/Plenum Publishers
Original Publication: New York : Plenum Press, c1997-
MeSH Terms:: Physician-Patient Relations*
Autism Spectrum Disorder/*psychology
Child Behavior Disorders/*psychology
Developmental Disabilities/*psychology
Transition to Adult Care/*statistics & numerical data
Adolescent ; Autism Spectrum Disorder/therapy ; Child ; Child Behavior Disorders/therapy ; Child Health ; Developmental Disabilities/therapy ; Female ; Humans ; Male ; Surveys and Questionnaires ; United States
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Grant Information:: CC999999 United States ImCDC Intramural CDC HHS; UJ2MC31073 United States HRSA HRSA HHS
Contributed Indexing:: Keywords: Autism spectrum disorder; Health care; NSCH; Transition
Entry Date(s):: Date Created: 20200104 Date Completed: 20210114 Latest Revision: 20210602
Update Code:: 20240104
PubMed Central ID:: PMC7202980
DOI:: 10.1007/s10995-019-02858-6
PMID:: 31897930
: Czasopismo naukowe

Pełny tekst

Objective: To estimate the prevalence of health care transition components among youth with autism spectrum disorder (ASD) aged 12-17 using the 2016 National Survey of Children's Health (NSCH), compared to youth with other mental, behavioral, or developmental disorders (MBDDs) or youth without MBDDs.
Methods: The 2016 NSCH is a nationally and state representative survey that explores issues of health and well-being among children ages 0-17. Within the NSCH, parents of a subset of youth, ages 12-17, are asked a series of questions about their youth's eventual transition into the adult health care system. The current study explores components of this transition, comparing youth diagnosed with ASD, youth with other mental, behavioral, or developmental disorders (MBDDs), and youth without MBDDs.
Results: Approximately 1-in-4 youth with ASD had actively worked with their doctor to understand future changes to their health care, significantly less than youth with other MBDDs and youth without MBDDs. Fewer than 2-in-5 youth with ASD had met with their doctor privately or had a parent who knew how their youth would be insured when they reached adulthood.
Conclusions: The current analysis of a nationally representative sample of youth reveals discrepancies in the proportion of youth with ASD receiving appropriate health care transition planning compared to youth with other MBDDs and youth without MBDDs. These findings suggest the potential for barriers among youth with ASD to effectively transitioning into the adult health care system.

Erratum in: Matern Child Health J. 2020 Mar 9;:. (PMID: 32152880)

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