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Tytuł pozycji:

Differences in Clinical Research Perceptions and Experiences by Age Subgroup.

Tytuł :
Differences in Clinical Research Perceptions and Experiences by Age Subgroup.
Autorzy :
Anderson A; The Center for Information and Study on Clinical Research Participation (CISCRP), One Liberty Square, Suite 510, Boston, MA, 02109, USA. .
Borfitz D; The Center for Information and Study on Clinical Research Participation (CISCRP), One Liberty Square, Suite 510, Boston, MA, 02109, USA.
Getz K; The Center for Information and Study on Clinical Research Participation (CISCRP), One Liberty Square, Suite 510, Boston, MA, 02109, USA.; Tufts University School of Medicine, Boston, MA, USA.
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Źródło :
Therapeutic innovation & regulatory science [Ther Innov Regul Sci] 2020 Jan; Vol. 54 (1), pp. 93-102. Date of Electronic Publication: 2020 Jan 06.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
Język :
English
Imprint Name(s) :
Publication: 2020- : Cham, Switzerland : Springer International Publishing
Original Publication: Thousand Oaks, CA : Sage Publications, [2013]-
MeSH Terms :
Age Factors*
Biomedical Research*
Communication*
Patient Education as Topic*
Public Opinion*
Social Media*
Adult ; Decision Making ; Humans ; Perception ; Surveys and Questionnaires ; Technology
Contributed Indexing :
Keywords: clinical research*; patient engagement*; perceptions*; trial experiences*
Entry Date(s) :
Date Created: 20200203 Date Completed: 20210518 Latest Revision: 20210518
Update Code :
20210623
DOI :
10.1007/s43441-019-00033-1
PMID :
32008250
Czasopismo naukowe
Background: (1) To assess the differing viewpoints of actual and potential adult clinical trial participants in 5 age cohorts, (2) identify misperceptions and opportunities to reduce unnecessary burdens on volunteers, and (3) provide age-specific feedback to study sponsors on their current engagement efforts.
Methods: Based on 12,427 responses to a global online survey collected between May and July 2017, we conducted a subgroup analysis by age of general clinical research impressions, the participation decision-making process, and experiences of study participants.
Results: Overall, younger people were the most misinformed and experienced the most difficulties, while older people had the most misgivings about studies and sponsoring pharmaceutical companies. In the middle years, the desire for compensation peaked. Social media and clinical participation conveniences were important at every life stage.
Conclusions: Effectively engaging the public and patients in conversations about clinical research could be achieved via targeted efforts addressing age-specific knowledge gaps, trial-searching behaviors, and displeasing aspects of trial participation. The altruistic benefits of participation, and involvement of patients' personal physicians, resonate particularly well across multiple age cohorts. Social media and other technologies are underutilized, especially among older populations.

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