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Tytuł pozycji:

Exploring health state utility values of parents of children with a serious illness.

Tytuł :
Exploring health state utility values of parents of children with a serious illness.
Autorzy :
Majmudar IK; Faculty of Health, School for Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia. .
Engel L; Faculty of Health, School for Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia.
Muscara F; Clinical Sciences, Murdoch Children's Research Institute, The Royal Children's Hospital, Flemington Road, Parkville, VIC, 3052, Australia.
Stevenson C; Faculty of Health, School of Health and Social Development, Institute for Health Transformation, Deakin University, Geelong, VIC, Australia.
McCarthy M; Clinical Sciences, Murdoch Children's Research Institute, The Royal Children's Hospital, Flemington Road, Parkville, VIC, 3052, Australia.
Anderson V; Clinical Sciences, Murdoch Children's Research Institute, The Royal Children's Hospital, Flemington Road, Parkville, VIC, 3052, Australia.
Mihalopoulos C; Faculty of Health, School for Health and Social Development, Institute for Health Transformation, Deakin Health Economics, Deakin University, Geelong, VIC, Australia.
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Źródło :
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2020 Jul; Vol. 29 (7), pp. 1947-1959. Date of Electronic Publication: 2020 Apr 25.
Typ publikacji :
Journal Article
Język :
English
Imprint Name(s) :
Publication: 2005- : Netherlands : Springer Netherlands
Original Publication: Oxford, UK : Rapid Communications of Oxford, Ltd, c1992-
MeSH Terms :
Health Status*
Quality-Adjusted Life Years*
Parents/*psychology
Psychometrics/*methods
Quality of Life/*psychology
Adult ; Australia ; Child ; Child, Preschool ; Cost-Benefit Analysis ; Depression/psychology ; Depressive Disorder/psychology ; Female ; Humans ; Length of Stay/statistics & numerical data ; Longitudinal Studies ; Male ; Regression Analysis ; Severity of Illness Index ; Surveys and Questionnaires
Contributed Indexing :
Keywords: AQoL-8D; Health state utility values; Paediatric illness; Parents
Entry Date(s) :
Date Created: 20200427 Date Completed: 20200727 Latest Revision: 20200727
Update Code :
20201023
DOI :
10.1007/s11136-020-02466-w
PMID :
32335816
Czasopismo naukowe
Purpose: In cost-utility analysis, outcomes are usually measured in terms of quality-adjusted life years, where length of life is adjusted by levels of health-related quality of life (HRQoL) using a single value, known as a health state utility value (HSUV). This study explores the HSUVs of parents of children with a serious illness admitted within three hospital departments (cardiology, oncology and paediatric intensive care) across four time points, compares HSUVs with Australian population norms and examines predictors of parental HSUVs.
Methods: Data were obtained from the Take a Breath study, where parental HSUVs were measured using the Assessment of Quality of Life-8 Dimensions (AQoL-8D). Descriptive statistics and t-tests compared the AQoL-8D scores with population norms, while repeated measures ANOVA was used to compare parental HSUVs of children treated across illness groups over time. Regression analysis was performed to determine predictors of parental HSUVs.
Results: Parental HSUVs were not significantly different from the general Australian population norms (p = 0.939), as measured by the AQoL-8D. However, statistically significant differences were observed in the psychosocial super-dimension (p < 0.01) and in all eight AQoL-8D dimensions, except for senses and self-worth. No significant differences were observed across illness groups. Parental HSUVs were associated with psychosocial risk factors of trait anxiety (p < 0.001), depression (p < 0.001) and family beliefs (p = 0.024).
Conclusion: Having a child with a severe illness has an impact on the psychosocial aspects of parental HRQoL regardless of the type of illness. Psychosocial health factors of trait anxiety, depression and family beliefs were important predictors of parental HSUV.

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