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Tytuł pozycji:

Returning Results of Stored Biological Samples and Biobanks: Perspectives of Saudi Arabian Biomedical Researchers.

Tytuł :
Returning Results of Stored Biological Samples and Biobanks: Perspectives of Saudi Arabian Biomedical Researchers.
Autorzy :
Alahmad G; King Abdullah International Medical Research Center (KAIMRC), Riyadh, Saudi Arabia.; King Saud bin Abdulaziz University for Health Sciences (KSAU-HS), Riyadh, Saudi Arabia.
Alzahrany H; King Abdullah International Medical Research Center (KAIMRC), Riyadh, Saudi Arabia.; King Saud bin Abdulaziz University for Health Sciences (KSAU-HS), Riyadh, Saudi Arabia.
Almutairi AF; King Abdullah International Medical Research Center (KAIMRC), Riyadh, Saudi Arabia.; King Saud bin Abdulaziz University for Health Sciences (KSAU-HS), Riyadh, Saudi Arabia.
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Źródło :
Biopreservation and biobanking [Biopreserv Biobank] 2020 Oct; Vol. 18 (5), pp. 395-402. Date of Electronic Publication: 2020 Jul 20.
Typ publikacji :
Journal Article
Język :
English
Imprint Name(s) :
Original Publication: New Rochelle, NY : Mary Ann Liebert
Contributed Indexing :
Keywords: actionable or nonactionable; incidental findings; informed consent; research results; return of results; right to know
Entry Date(s) :
Date Created: 20200725 Latest Revision: 20201002
Update Code :
20201218
DOI :
10.1089/bio.2020.0002
PMID :
32706976
Czasopismo naukowe
Scientific medical research involving human samples often leads to improved diagnosis, the discovery of treatment modalities, or the identification of possible risk factors for many diseases. Some findings, including incidental findings, may be important to donors, and some may require intervention. This study aimed to explore the perspectives of health care professionals in their use of stored biological samples for biomedical research regarding the concept of the research results and the challenges of informing donors regarding the results. This qualitative study involved 19 medical researchers doing research with stored biological samples and biobanks. The data were gathered during face-to-face interviews in English using a semistructured interview technique. The participants provided rich and illuminating experiences, framed in the following themes: the professional duty of researchers to return the research results and the right of donors to know; factors affecting informing donors of results (e.g., severity of disease; impact of the provided information; reliability of the research results; and donor approval); challenges to physically returning the results; and the nature of the informed consent, as well as the elements required in the informed consent documentation. Although the majority of researchers agree on the importance of returning research results, some have contradictory views such as that returning research results is not the researcher's responsibility. The study results also support the view that a number of elements should be included in the informed consent, such as the intention of informing the donors of the results as well as the benefits and risks.

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