The role of psychosocial support in the experiences of people living with advanced cancer: A qualitative exploration of patients' perspectives.

Tytuł:: The role of psychosocial support in the experiences of people living with advanced cancer: A qualitative exploration of patients' perspectives.
Autorzy:: Newton JC; School of Nursing, Midwifery and Paramedicine, Curtin University, Perth, Western Australia, Australia.
O'Connor M; WA Cancer Prevention Research Unit (WACPRU), School of Psychology, Faculty of Health Sciences, Curtin University, Perth, Western Australia, Australia.
Saunders C; Medical School, The University of Western Australia, Perth, Western Australia, Australia.
Moorin R; School of Public Health, Curtin University, Perth, Western Australia, Australia.; School of Population and Global Health, The University of Western Australia, Perth, Western Australia, Australia.
Ali S; Medical Oncology Department, St John of God Midland Public Hospital, Midland, Western Australia, Australia.
Nowak AK; Medical School, The University of Western Australia, Perth, Western Australia, Australia.; Department of Medical Oncology, Sir Charles Gairdner Hospital, Nedlands, Western Australia, Australia.
Halkett GKB; School of Nursing, Midwifery and Paramedicine, Curtin University, Perth, Western Australia, Australia.
Źródło:: Psycho-oncology [Psychooncology] 2021 Mar; Vol. 30 (3), pp. 287-295. Date of Electronic Publication: 2020 Oct 21.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
Język:: English
Imprint Name(s):: Original Publication: Chichester, W. Sussex, England : Wiley, c1992-
MeSH Terms:: Health Services Accessibility*
Psychosocial Support Systems*
Social Stigma*
Neoplasms/*psychology
Quality of Life/*psychology
Adult ; Aged ; Aged, 80 and over ; Female ; Health Personnel/psychology ; Humans ; Interviews as Topic ; Male ; Middle Aged ; Qualitative Research ; Severity of Illness Index ; Social Support
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Contributed Indexing:: Keywords: access to psychosocial support; advanced cancer; cancer; health service use; oncology; psychosocial needs; qualitative research; semi-structured interviews; supportive care
Entry Date(s):: Date Created: 20201010 Date Completed: 20210630 Latest Revision: 20210630
Update Code:: 20240105
DOI:: 10.1002/pon.5569
PMID:: 33037707
: Czasopismo naukowe

Pełny tekst

Background: People living with advanced cancer experience significant distress and reduced quality of life due to their symptom burden and life-limiting prognosis. Limited qualitative research has investigated their experiences accessing psychosocial supportive care, and how it meets their needs.
Aim: To explore patients' perspectives of the role of psychosocial support in their experiences of living with advanced cancer.
Methods: This study used an exploratory qualitative research design and drew upon a social constructionist interpretive framework. Semi-structured interviews were conducted with 23 participants. Participants were asked about their experiences accessing and using psychosocial support following their diagnosis. Audio-recorded interviews were transcribed and analysed using deductive thematic analysis.
Results: The following six themes can be used to describe participants' experiences with psychosocial support: (1) accessing different types of support, (2) appreciating support, (3) need, (4) difficulties accessing support, (5) knowing about support and (6) asking for support. Sources of psychosocial support included family and friends, health professionals, and psychosocial supportive care services. Not all participants were able to access care that met their needs; barriers included suitability of available support, accessibility and stigma surrounding support use.
Conclusion: Participants experienced broad variation in their awareness and access to psychosocial support services to meet their needs. Providers of psychosocial supportive care for advanced cancer patients need to consider service accessibility issues. Future psychosocial interventions targeting people living with advanced cancer should consider these issues during development and implementation.
(© 2020 John Wiley & Sons Ltd.)

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