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Tytuł pozycji:

Quality of Life Outcome and Support Disparities Among People With More Severe Impairments.

Tytuł:
Quality of Life Outcome and Support Disparities Among People With More Severe Impairments.
Autorzy:
Friedman C; Carli Friedman, CQL The Council on Quality and Leadership.
Źródło:
Intellectual and developmental disabilities [Intellect Dev Disabil] 2020 Dec 01; Vol. 58 (6), pp. 513-524.
Typ publikacji:
Journal Article
Język:
English
Imprint Name(s):
Original Publication: Washington, DC : American Association on Intellectual and Developmental Disabilities
MeSH Terms:
Disabled Persons*
Healthcare Disparities*
Intellectual Disability/*epidemiology
Adolescent ; Adult ; Aged ; Developmental Disabilities/epidemiology ; Female ; Humans ; Male ; Middle Aged ; Quality of Life ; Surveys and Questionnaires ; Young Adult
Contributed Indexing:
Keywords: disability service organizations; intellectual and developmental disabilities; people with severe impairments; quality of life
Entry Date(s):
Date Created: 20201208 Date Completed: 20211001 Latest Revision: 20211001
Update Code:
20240104
DOI:
10.1352/1934-9556-58.6.513
PMID:
33290537
Czasopismo naukowe
People with intellectual and developmental disabilities (IDD) with more severe impairments often face service disparities. The aim of this study was to explore not only disparities in quality of life outcomes for people with IDD with severe impairments, but also disparities in the supports they receive from disability service organizations. Our analysis of Personal Outcome Measures interviews from 1,300 people revealed people with severe impairments experienced quality of life disparities in most domains, attributed to the fact that they also received fewer organizational supports than people with less severe impairments. By paying attention to person-centered outcomes, including these disparities, organizations' roles can shift from just providing services to supporting people to achieve the outcomes that are truly important to them.
(©AAIDD.)

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