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Tytuł pozycji:

Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine.

Tytuł:
Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine.
Autorzy:
Lee SS; Columbia University.
Źródło:
The American journal of bioethics : AJOB [Am J Bioeth] 2021 Apr; Vol. 21 (4), pp. 57-66. Date of Electronic Publication: 2020 Dec 16.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural
Język:
English
Imprint Name(s):
Publication: <2008- > : Philadelphia, Pa. : Taylor & Francis
Original Publication: Cambridge, Mass. : MIT Press, c2001-
MeSH Terms:
Bioethics*
Precision Medicine*
Altruism ; Humans ; Moral Obligations ; Social Justice ; Social Responsibility
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Grant Information:
R03 HG010178 United States HG NHGRI NIH HHS
Contributed Indexing:
Keywords: Anthropology; genetic research; human subjects research; race and culture/ethnicity; research ethics; social science research
Entry Date(s):
Date Created: 20201216 Date Completed: 20210415 Latest Revision: 20220402
Update Code:
20240105
PubMed Central ID:
PMC8629351
DOI:
10.1080/15265161.2020.1851813
PMID:
33325811
Czasopismo naukowe
Precision medicine relies on data and biospecimens from participants who willingly offer their personal information on the promise that this act will ultimately result in knowledge that will improve human health. Drawing on anthropological framings of the "gift," this paper contextualizes participation in precision medicine as inextricable from social relationships and their ongoing ethical obligations. Going beyond altruism, reframing biospecimen and data collection in terms of socially regulated gift-giving recovers questions of responsibility and care. As opposed to conceiving participation in terms of donations that elide clinical labor critical to precision medicine, the gift metaphor underscores ethical commitments to reciprocity and responsibility. This demands confronting inequities in precision medicine, such as systemic bias and lack of affordability and access. A focus on justice in precision medicine that recognizes the sociality of the gift is a critical frontier for bioethics.
Comment in: Am J Bioeth. 2021 Apr;21(4):78-80. (PMID: 33825625)
Comment in: Am J Bioeth. 2021 Apr;21(4):72-75. (PMID: 33825628)
Comment in: Am J Bioeth. 2021 Apr;21(4):70-72. (PMID: 33825629)
Comment in: Am J Bioeth. 2021 Apr;21(4):80-83. (PMID: 33825631)
Comment in: Am J Bioeth. 2021 Apr;21(4):75-78. (PMID: 33825632)
Comment in: Am J Bioeth. 2021 Apr;21(4):83-85. (PMID: 33825633)
Comment in: Am J Bioeth. 2021 Apr;21(4):91-93. (PMID: 33825634)
Comment in: Am J Bioeth. 2021 Apr;21(4):94-97. (PMID: 33825638)
Comment in: Am J Bioeth. 2021 Apr;21(4):88-90. (PMID: 33825639)
Comment in: Am J Bioeth. 2021 Apr;21(4):67-69. (PMID: 33825648)
Comment in: Am J Bioeth. 2021 Apr;21(4):85-88. (PMID: 33825652)
Comment in: Am J Bioeth. 2021 Apr;21(4):W1-W3. (PMID: 33856287)

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