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Tytuł:
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"Managing uncertainty": Experiences of family members of burn patients from injury occurrence to the end-of-life period.
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Autorzy:
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Bayuo J; Department of Nursing, Faculty of Health and Medical Sciences, Presbyterian University College, Ghana; School of Nursing, The Hong Kong Polytechnic University, Hong Kong, PR China. Electronic address: .
Bristowe K; Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, Kings College, London, United Kingdom.
Harding R; Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, Kings College, London, United Kingdom.
Agbeko AE; Directorate of Surgery, Komfo Anokye Teaching Hospital, Kumasi, Ghana.
Baffour PK; Burns Intensive Care Unit, Plastics and Reconstructive Surgical Unit, Directorate of Surgery, Komfo Anokye Teaching Hospital, Kumasi, Ghana.
Agyei FB; Department of Nursing, Faculty of Health and Medical Sciences, Presbyterian University College, Ghana.
Wong FKY; School of Nursing, The Hong Kong Polytechnic University, Hong Kong, PR China.
Allotey G; Burns Intensive Care Unit, Plastics and Reconstructive Surgical Unit, Directorate of Surgery, Komfo Anokye Teaching Hospital, Kumasi, Ghana.
Agbenorku P; Plastics, Burns and Reconstructive Surgical Division, Directorate of Surgery, Komfo Anokye Teaching Hospital, Kumasi, Ghana; School of Medicine and Dentistry, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana.
Hoyte-Williams PE; Plastics, Burns and Reconstructive Surgical Division, Directorate of Surgery, Komfo Anokye Teaching Hospital, Kumasi, Ghana.
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Źródło:
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Burns : journal of the International Society for Burn Injuries [Burns] 2021 Nov; Vol. 47 (7), pp. 1647-1655. Date of Electronic Publication: 2021 Feb 23.
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Typ publikacji:
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Journal Article; Research Support, Non-U.S. Gov't
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Język:
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English
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Imprint Name(s):
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Publication: Amsterdam : Elsevier
Original Publication: [Guildford, Surrey, UK] : Butterworths, [c1989-
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MeSH Terms:
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Burns*/mortality
Burns*/psychology
Death*
Uncertainty*
Family/*psychology
Bereavement ; Humans ; Qualitative Research
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Contributed Indexing:
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Keywords: Burns; End of life care; Family members; Palliative Care
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Entry Date(s):
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Date Created: 20210409 Date Completed: 20211221 Latest Revision: 20211221
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Update Code:
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20240104
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DOI:
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10.1016/j.burns.2021.02.009
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PMID:
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33832797
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Background: Although mortality rates associated with burns have decreased, there is still a significant number of persons who may not survive severe forms of the injury and thus, undergo comfort/end of life care. The experiences of family members of persons whose injuries are deemed unsurvivable remain minimally explored and there is a general lack of practice guidelines and recommendations to support them at the end-of-life period.
Aim: To explore the experiences of family members whose relatives died in the burn unit to inform the development of practice recommendations.
Methods: Qualitative description was employed for this study. Convenience sampling was used to recruit 23 family members of injured persons who died in the burn unit. Face to face semi-structured interviews were conducted and followed up with telephone interviews. The interviews were audio-recorded, transcribed verbatim and thematic analysis performed inductively.
Results: Three themes emerged: reactions following injury occurrence, navigating through the experience, and managing uncertainties about survival. The sudden nature of the injury led to feelings of self-blame, guilt, helplessness, and grief and these escalated at the end of life. As the family members journeyed through their uncertainties regarding the outcomes of care, they had a feeling of being a part of the patient's suffering. Family members received little professional support in coming to terms with their loss in the post-bereavement period.
Conclusions: Family members experience distress following the occurrence of burns and at the endof-life period. Practice recommendations should focus on communication, bereavement, and post-bereavement support.
(Copyright © 2021 Elsevier Ltd and ISBI. All rights reserved.)
