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Tytuł:
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Data Management Plans in the genomics research revolution of Africa: Challenges and recommendations.
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Autorzy:
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Fadlelmola FM; Centre for Bioinformatics and Systems Biology, Faculty of Science, University of Khartoum, Al-Gamaa Ave, Khartoum 11115, Sudan. Electronic address: .
Zass L; Computational Biology Division, Department of Integrative Biomedical Sciences, IDM, CIDRI Africa Wellcome Trust Centre, University of Cape Town, South Africa.
Chaouch M; Laboratory of Bioinformatics Biomathematics and Biostatistics (LR16IPT09), Institut Pasteur de Tunis, 13 Place Pasteur, B.P. 74 1002 Tunis, Belvédère, Tunisia.
Samtal C; Laboratory of Biotechnology, Environment, Agri-food and Health, Faculty of Sciences Dhar El Mahraz-Sidi Mohammed Ben Abdellah University, Fez 30000, Morocco.
Ras V; Computational Biology Division, Department of Integrative Biomedical Sciences, IDM, CIDRI Africa Wellcome Trust Centre, University of Cape Town, South Africa.
Kumuthini J; South African Bioinformatics Institute (SANBI), University of Western Cape (UWC), Life Sciences Building, Bellville, Cape Town, South Africa.
Panji S; Computational Biology Division, Department of Integrative Biomedical Sciences, IDM, CIDRI Africa Wellcome Trust Centre, University of Cape Town, South Africa.
Mulder N; Computational Biology Division, Department of Integrative Biomedical Sciences, IDM, CIDRI Africa Wellcome Trust Centre, University of Cape Town, South Africa.
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Źródło:
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Journal of biomedical informatics [J Biomed Inform] 2021 Oct; Vol. 122, pp. 103900. Date of Electronic Publication: 2021 Sep 16.
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Typ publikacji:
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Journal Article; Research Support, N.I.H., Extramural; Review
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Język:
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English
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Imprint Name(s):
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Publication: Orlando : Elsevier
Original Publication: San Diego, CA : Academic Press, c2001-
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MeSH Terms:
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Biomedical Research*
Data Management*
Africa ; Genomics ; Humans ; Research Design
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References:
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Science. 2009 May 22;324(5930):1035-44. (PMID: 19407144)
BMC Bioinformatics. 2011 Sep 09;12:361. (PMID: 21906284)
J Am Med Inform Assoc. 2007 Jul-Aug;14(4):478-88. (PMID: 17460139)
J Biomed Inform. 2017 Jul;71:130-142. (PMID: 28499952)
Evol Med Public Health. 2013 Jan;2013(1):118-34. (PMID: 24481193)
Sci Data. 2016 Mar 15;3:160018. (PMID: 26978244)
Infect Dis Poverty. 2014 Aug 05;3:29. (PMID: 25120913)
PLoS Comput Biol. 2019 Mar 28;15(3):e1006750. (PMID: 30921316)
Cell Genom. 2022 Jan 12;2(1):. (PMID: 35199087)
Nat Genet. 2001 Dec;29(4):365-71. (PMID: 11726920)
Glob Heart. 2017 Jun;12(2):91-98. (PMID: 28302555)
PLoS Comput Biol. 2015 Oct 22;11(10):e1004525. (PMID: 26492633)
J Biomed Inform. 2009 Apr;42(2):377-81. (PMID: 18929686)
Source Code Biol Med. 2014 May 08;9:10. (PMID: 24829612)
Science. 2014 Jun 20;344(6190):1346-8. (PMID: 24948725)
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Grant Information:
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U24 HG006941 United States HG NHGRI NIH HHS
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Contributed Indexing:
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Keywords: Africa; Data Management Plan; Data sharing; FAIR; Funders; Genomics data management
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Entry Date(s):
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Date Created: 20210910 Date Completed: 20211020 Latest Revision: 20220716
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Update Code:
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20240105
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PubMed Central ID:
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PMC9123155
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DOI:
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10.1016/j.jbi.2021.103900
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PMID:
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34506960
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Drafting and writing a data management plan (DMP) is increasingly seen as a key part of the academic research process. A DMP is a document that describes how a researcher will collect, document, describe, share, and preserve the data that will be generated as part of a research project. The DMP illustrates the importance of utilizing best practices through all stages of working with data while ensuring accessibility, quality, and longevity of the data. The benefits of writing a DMP include compliance with funder and institutional mandates; making research more transparent (for reproduction and validation purposes); and FAIR (findable, accessible, interoperable, reusable); protecting data subjects and compliance with the General Data Protection Regulation (GDPR) and/or local data protection policies. In this review, we highlight the importance of a DMP in modern biomedical research, explaining both the rationale and current best practices associated with DMPs. In addition, we outline various funders' requirements concerning DMPs and discuss open-source tools that facilitate the development and implementation of a DMP. Finally, we discuss DMPs in the context of African research, and the considerations that need to be made in this regard.
(Copyright © 2021 The Authors. Published by Elsevier Inc. All rights reserved.)
