Parental presence at the bedside of critically ill children in the pediatric intensive care unit: A scoping review.

Tytuł:: Parental presence at the bedside of critically ill children in the pediatric intensive care unit: A scoping review.
Autorzy:: Miller L; Faculty of Medicine, Dalhousie University, Halifax, NS, Canada.
Richard M; Department of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.
Krmpotic K; Department of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.; Department of Critical Care, Faculty of Medicine, Dalhousie University, Halifax, NS, Canada.
Kennedy A; School of Education, Acadia University, Wolfville, NS, Canada.
Seabrook J; School of Food and Nutritional Sciences, Brescia University College at Western University, London, ON, Canada.; Department of Pediatrics and Department of Epidemiology & Biostatistics, Western University, London, ON, Canada.; Children's Health Research Institute and Lawson Health Research Institute, London, ON, Canada.
Slumkoski C; Department of Pediatric Critical Care Parent Partner, IWK Health, Halifax, NS, Canada.
Walls M; Department of Pediatric Critical Care Parent Partner, IWK Health, Halifax, NS, Canada.
Foster J; Department of Pediatric Critical Care, IWK Health, Halifax, NS, Canada. .; Department of Critical Care, Faculty of Medicine, Dalhousie University, Halifax, NS, Canada. .; Children's Health Research Institute and Lawson Health Research Institute, London, ON, Canada. .
Źródło:: European journal of pediatrics [Eur J Pediatr] 2022 Feb; Vol. 181 (2), pp. 823-831. Date of Electronic Publication: 2021 Oct 09.
Typ publikacji:: Journal Article; Review
Język:: English
Imprint Name(s):: Publication: Berlin : Springer Verlag
Original Publication: Berlin, New York, Springer-Verlag.
MeSH Terms:: Critical Illness*
Intensive Care Units, Pediatric*
Child ; Critical Care ; Humans ; Intensive Care Units ; Parents
References:: Carnevale FA, Gaudreault J (2013) The experience of critically ill children: A phenomenological study of discomfort and comfort. Dynamics 24:19–27. (PMID: 23691718)
UN Commission on Human Rights (46th session) Convention on the Rights of the Child. E/CN.4/RES/1990/74.
Just AC (2005) Parent participation in care: Bridging the gap in the pediatric ICU. Newborn Infant Nurs Rev 5:179–187. https://doi.org/10.1053/j.nainr.2005.08.002.
Franck LS, Callery P (2004) Re-thinking family-centred care across the continuum of children’s healthcare. Child Care Health Dev 30:265–277. https://doi.org/10.1111/j.1365-2214.2004.00412.x.
Shields L, Pratt J, Hunter J (2006) Family centred care: A review of qualitative studies. J Clin Nurs 15:1317–1323. https://doi.org/10.1111/j.1365-2702.2006.01433.x.
Kaye EC (2021) COVID-19 Caregiver Restrictions in Pediatrics. Hosp Pediatr 11:e12–e14. https://doi.org/10.1542/hpeds.2020-004291. (PMID: 10.1542/hpeds.2020-00429133144333)
Klompas M (2020) Coronavirus disease 2019 (COVID-19): Protecting hospitals from the invisible. Ann Intern Med 172: 619–620 https://doi.org/10.7326/M20-0751.
Hill C, Knafl KA, Santacroce SJ (2018) Family-Centered Care From the Perspective of Parents of Children Cared for in a Pediatric Intensive Care Unit: An Integrative Review. J Pediatr Nurs 41:22–33. https://doi.org/10.1016/j.pedn.2017.11.007.
Smith L, Medves J, Harrison MB, Tranmer J, Waytuck B (2009) The impact of hospital visiting hour policies on pediatric and adult patients and their visitors. JBI Libr Syst Rev 7:38–79. https://doi.org/10.11124/01938924-200907020-00001.
Sarah B, Mcalvin S, Carew-lyons A (2014) Family prescence during resuscitation and invasive procedures in pediatric critical care: A systematic review. Am J Crit Care 23:477–485. https://doi.org/10.4037/ajcc2014922.
Andrist E, Clarke R, Harding M (2020) Paved With Good Intentions: Hospital Visitation Restrictions in the Age of Coronavirus Disease 2019. Pediatr Crit Care Med 21:e924–926. https://doi.org/10.1097/PCC.0000000000002506.
Litmanovitz I, Silberstein D, Butler S, Vittner D (2021) Care of hospitalized infants and their families during the COVID-19 pandemic: An international survey. J Perinatol 41:981–987. https://doi.org/10.1038/s41372-021-00960-8.
Coats H, Bourget E, Starks H et al (2018) Nurses’ reflections on benefits and challenges of implementing family centered care in pediatric intensive care units. Am J Crit Care 27:52–58. https://doi.org/10.4037/ajcc2018353.
Foster J, AlOthmani F, Seabrook J, AlOfisam T, AlGarni Y, Sarpal A (2018) Parental Presence at the Bedside of Critically Ill Children in a Unit With Unrestricted Visitation. Pediatr Crit Care Med 19:e387–e393. https://doi.org/10.1097/PCC.0000000000001597.
Smith AB, Hefley GC, Anand KJS (2007) Parent bed spaces in the PICU: Effect on parental stress. Pediatr Nurs 33:215–221. (PMID: 17708180)
Knafl KA, Aamodt AM, Bowers JE, Holaday B (1985) How Families Manage a Pediatric Hospitalization. West J Nurs Res 7:151–176. https://doi.org/10.1177/0092055X8500700202.
Feudtner C, Walter JK, Faerber JA et al (2015) Good-parent beliefs of parents of seriously ill children. JAMA Pediatr 169:39–47. https://doi.org/10.1001/jamapediatrics.2014.2341.
Fumagalli S, Boncinelli L, Lo Nostro A et al (2007) Reduced cardiocirculatory complications with unrestrictive visiting policy in an intensive care unit: Results from a pilot, randomized trial. Circulation 113:946–952. https://doi.org/10.1161/CIRCULATIONAHA.105.572537.
Rosa RG, Tonietto TF, Da Silva DB et al (2017) Effectiveness and safety of an extended icu visitation model for delirium prevention: A before and after study. Crit Care Med 45:1660–1667. https://doi.org/10.1097/CCM.0000000000002588.
Bishop SM, Walker MD, Mark Spivak I (2013) Family presence in the adult burn intensive care unit during dressing changes. Crit Care Nurse 33:14–24. https://doi.org/10.4037/ccn2013116.
Arksey H, O’Malley L (2005) Scoping studies: Towards a methodological framework. Int J Soc Res Methodol Theory Pract 8:19–32. https://doi.org/10.1080/1364557032000119616.
Levac D, Colquhoun H, O’Brien KK (2010) Scoping studies: advancing the methodology. Implement Sci 5:69. https://doi.org/10.1186/1748-5908-5-69.
Frankel LR, Hsu BS, Yeh TS et al (2019) Criteria for critical care infants and children: PICU Admission, discharge, and triage practice statement and levels of care guidance. Pediatr Crit Care Med. 20:847–887. https://doi.org/10.1097/PCC.0000000000001963.
Evans R, Madsen B (2005) Culture clash: Transitioning from the neonatal intensive care unit to the pediatric intensive care unit. Newborn Infant Nurs Rev. 5:188–193. https://doi.org/10.1053/j.nainr.2005.08.005.
Michie S, van Stralen MM, West R (2011) The behaviour change wheel: A new method for characterising and designing behaviour change interventions. Implement Sci 6:42. https://doi.org/10.1186/1748-5908-6-42.
Tughan L (1992) Visiting in the PICU: A study of the perceptions of patients, parents, and staff members. Crit Care Nurs Q 15:57–68. https://doi.org/10.1097/00002727-199205000-00007.
Aronson PL, Yau J, Helfaer MA, Morrison W (2009) Impact of family presence during pediatric intensive care unit rounds on the family and medical team. Pediatrics 124:1119–1125. https://doi.org/10.1542/peds.2009-0369.
Turner EL, Nielsen KR, Jamal SM, von Saint André-von Arnim A, Musa NL (2016) A review of pediatric critical care in resource-limited settings: A look at past, present, and future directions. Front Pediatr 4:5. https://doi.org/10.3389/fped.2016.00005.
Allik J, Lauk K, Realo A (2020) Indicators of the scientific impact of nations revisited. Trames J Humanit Soc 24:231. https://doi.org/10.3176/tr.2020.2.07.
Epner DE, Baile WF (2012) Patient-centered care: The key to cultural competence. In: Annals of Oncology. 23 Suppl 3:33–42. https://doi.org/10.1093/annonc/mds086.
Terp K, Sjöström-Strand A (2017) Parents’ experiences and the effect on the family two years after their child was admitted to a PICU—An interview study. Intensive Crit Care Nurs 43:143–148. https://doi.org/10.1016/j.iccn.2017.06.003.
Jenkins TL, Landon C, de Almeida ML et al (2006) Impact of Pediatric Critical Illness and Injury on Families: A Systematic Literature Review. Pediatrics. 118:S203–S218. https://doi.org/10.1542/peds.2006-0951b.
Contributed Indexing:: Keywords: Child; Family presence; Parent; Pediatric intensive care unit; Scoping; Visitation
Entry Date(s):: Date Created: 20211009 Date Completed: 20220209 Latest Revision: 20220824
Update Code:: 20240104
PubMed Central ID:: PMC8501356
DOI:: 10.1007/s00431-021-04279-6
PMID:: 34626225
: Czasopismo naukowe

Pełny tekst

Parental presence at the bedside (PPB) of critically ill children in the pediatric intensive care unit (PICU) is necessary for operationalizing family-centred care. Previous evidence syntheses emphasize parent-healthcare provider interactions at rounds and resuscitation; our focus is the parent-child dyad. Prior to embarking on further study, we performed a scoping review to determine the breadth and scope of the literature addressing PPB of critically ill children in the PICU. We searched five online databases (MEDLINE, EMBASE, CINAHL, Cochrane Library, and PSYCHINFO) and the grey literature to identify English and French reports from January 1960 to June 2020 addressing physical parental presence with children (birth to 18 years) in intensive care units, without limitation by methodology. Screening, reference selection, and data extraction were performed by two independent reviewers. Data were extracted into a researcher-designed tool. We identified 204 publications (81 quantitative, 68 qualitative, 22 mixed methods, and 9 descriptive case or practice change studies, and a further 24 non-study reports). PPB was directly assessed in 78 (38%) reports, and was the primary objective in 64 (31%). Amount or quality of presence was addressed by 114 reports, barriers and enablers by 152 sources, and impacts and outcomes by 134 sources. While only 6 reports were published in the first two decades of our search (1960-1980), 17 reports were published in 2019 alone. Conclusions: A relatively large body of literature exists addressing PPB of critically ill children. Separate systematic evidence syntheses to assess each element of PPB are warranted. Scoping review protocol registration: Open science framework, protocol nx6v3, registered 9-September-2019. What is Known: • Parental presence at the bedside of critically ill children must be enabled to facilitate family centeredness in care. • Systematic evidence syntheses have focused on parental presence at rounds or resuscitation, rather than with the child throughout the intensive care journey. What is New: • Many reports (n=204) address parental presence at the bedside in the pediatric intensive care unit, though most do as incidental findings • Identifies studies addressing key elements of parental presence in the PICU including barriers and enablers to, amount and quality of, and impact and outcomes of parental presence, and demonstrates trends over time and geography.
(© 2021. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.)

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