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Tytuł:
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Fear, faith and finances: health literacy experiences of English and Swahili speaking women newly diagnosed with breast and cervical cancer.
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Autorzy:
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Kassaman D; School of Health and Society, University of Salford, Mary Seacole Building, Frederick Road, Salford M6 6PU, UK.; School of Nursing and Midwifery, Aga Khan University, Nairobi, Kenya.; https://orcid.org/0000-0001-6078-4626.
Mushani T; School of Nursing and Midwifery, Aga Khan University, Nairobi, Kenya.
Kiraithe P; School of Nursing and Midwifery, Aga Khan University, Nairobi, Kenya.
Brownie S; School of Nursing, Midwifery & Public Health, University of Canberra 11 Kirinari St, Bruce, ACT 2617, Australia.; School of Medicine and Dentistry, Faculty of Health, Griffith University, 1 Parklands Drive, Southport 4215, Australia.; Centre for Health & Social Practice, Gate 3 Tristam Street, Waikato Institute of Technology, Hamilton 3200, New Zealand.; https://orcid.org/0000-0001-7204-2451.
Barton-Burke M; Memorial Sloan Kettering Cancer Center, 1275 York Ave, New York, NY 10065, USA.; Rutgers Camden School of Nursing, 530 Federal St, Camden, NJ 08102, USA.; https://orcid.org/0000-0001-7816-5911.
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Źródło:
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Ecancermedicalscience [Ecancermedicalscience] 2022 Jan 27; Vol. 16, pp. 1350. Date of Electronic Publication: 2022 Jan 27 (Print Publication: 2022).
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Typ publikacji:
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Journal Article
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Język:
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English
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Imprint Name(s):
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Publication: Bristol, UK : ecancer
Original Publication: Bristol, UK : Cancer Intelligence
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Grant Information:
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P30 CA008748 United States CA NCI NIH HHS
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Contributed Indexing:
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Keywords: breast cancer; cervical cancer; health information; health literacy; newly diagnosed cancer
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Entry Date(s):
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Date Created: 20220304 Latest Revision: 20220512
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Update Code:
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20240105
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PubMed Central ID:
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PMC8831107
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DOI:
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10.3332/ecancer.2022.1350
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PMID:
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35242231
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Breast and cervical cancer are among the leading causes of cancer-related deaths globally. In Kenya, delayed presentation and diagnosis contribute to breast and cervical cancer mortality. The Kenyan government acknowledges the cancer burden with estimated 39,000 new cases diagnosed and 27,000 deaths per annum. Mortality can be reduced if cancer is diagnosed early and with appropriate treatment. Health Literacy (HL) about cancer screening, diagnosis and treatment is important in reducing mortality, but there is little understanding about HL levels, experiences of patients diagnosed with breast and cervical cancer and the contexts in which they make decisions. In this study, health literacy is defined as the degree to which individuals have the capacity to obtain, communicate, process and understand basic health information and services needed to make appropriate health decisions. This exploratory qualitative study investigated the HL experiences of accessing and using health information in women with any stage of breast or cervical cancer presenting at the Aga Khan University Hospital (private) or Kenyatta National Hospital (public) in Nairobi, Kenya. Data were gathered through semi-structured interviews from a purposive sample of 18 women. Interviews were transcribed verbatim, and the Consolidated criteria for reporting qualitative studies guidelines guided data analysis. The findings may aid development of patient education tools and determine effective ways of communicating cancer-related health information to improve the knowledge and health-seeking behaviours of Kenyan women. This project identified sociocultural beliefs and factors that influence how women understand information provided by healthcare professionals. Themes that arose included but were not limited to: fear, despair and agony at diagnosis, faith, social support, side effects, cancer-related stigma and financial burden of cancer as a barrier to getting information .
Competing Interests: None of the authors have conflicts of interest to declare.
(© the authors; licensee ecancermedicalscience.)
