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Tytuł:
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Design of an Integrated Clinical Research Informatics System for a Multi-Centre and Multi-Visit Prospective Birth Cohort Study.
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Autorzy:
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Sinitkul R; Department of Paediatrics, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand.; Mahidol-Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, Bangkok, Thailand.; Centre for Tropical Medicine and Global Health, Nuffield Department of Medicine, University of Oxford, Oxford, United Kingdom.; Toxicology Department, Centre for Radiation, Chemical and Environmental Hazards, Public Health England, Chilton, United Kingdom.
Maude RJ; Mahidol-Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, Bangkok, Thailand.; Centre for Tropical Medicine and Global Health, Nuffield Department of Medicine, University of Oxford, Oxford, United Kingdom.; Harvard T.H. Chan School of Public Health, Harvard University, Boston, MA, USA.
Nithirochananont U; Geo-Informatics and Space Technology Development Agency, Chonburi, Thailand.
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Źródło:
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Studies in health technology and informatics [Stud Health Technol Inform] 2022 Jun 06; Vol. 290, pp. 125-129.
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Typ publikacji:
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Journal Article; Multicenter Study
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Język:
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English
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Imprint Name(s):
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Original Publication: Amsterdam ; Washington, DC : IOS Press, 1991-
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MeSH Terms:
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Birth Cohort*
Medical Informatics*
Cohort Studies ; Humans ; Prospective Studies ; Surveys and Questionnaires
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References:
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Appl Clin Inform. 2016 Jul 13;7(3):672-81. (PMID: 27453034)
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J Am Med Inform Assoc. 2009 May-Jun;16(3):316-27. (PMID: 19261934)
Front Neuroinform. 2012 Jan 20;5:37. (PMID: 22319489)
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Grant Information:
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United Kingdom WT_ Wellcome Trust
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Contributed Indexing:
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Keywords: Clinical Research Informatics; Health Information Management; Medical Informatics
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Entry Date(s):
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Date Created: 20220608 Date Completed: 20220609 Latest Revision: 20240210
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Update Code:
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20240210
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PubMed Central ID:
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PMC7614911
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DOI:
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10.3233/SHTI220045
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PMID:
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35672984
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To conduct a multi-center prospective study over more than one year requires an efficient system that can synchronize collection of data from several sources in real-time and facilitate remote data management. This paper describes the design and use of an in-house data collection and sample information management system that was used in a prospective birth cohort study in Thailand. Participants were enrolled from three hospitals and were required to visit their respective hospital and complete self-administered questionnaires (SAQ) at every visit. The in-house informatics system required integration of the data collection streams that can handle three different types of data (SAQ, clinical record, and laboratory sample tracking). The system has been implemented in the pilot phase of a birth cohort study and has demonstrated its usability for further application to an expanded study.
