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Tytuł:
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Perceptions and expectations of parents regarding their position in a French NICU: quantitative and qualitative approaches.
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Autorzy:
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Thébaud V; LIEN, Université de Bretagne Occidentale UFR de Médecine et Sciences de la Santé, Brest, France .; LP3C, Université de Bretagne Occidentale UFR Lettres et Sciences Humaines à Brest, Brest, France.
Dargentas M; LP3C, Université de Bretagne Occidentale UFR Lettres et Sciences Humaines à Brest, Brest, France.
Sizun J; UFR de Médecine, Université de Bretagne Occidentale, Brest, France.
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Źródło:
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BMJ open [BMJ Open] 2022 Jul 08; Vol. 12 (7), pp. e052044. Date of Electronic Publication: 2022 Jul 08.
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Typ publikacji:
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Journal Article; Research Support, Non-U.S. Gov't
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Język:
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English
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Imprint Name(s):
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Original Publication: [London] : BMJ Publishing Group Ltd, 2011-
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MeSH Terms:
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Infant, Premature*
Intensive Care Units, Neonatal*
Humans ; Infant ; Infant, Newborn ; Motivation ; Parents ; Professional-Family Relations
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References:
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Contributed Indexing:
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Keywords: neonatal intensive & critical care; neonatology; qualitative research; quality in health care
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Entry Date(s):
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Date Created: 20220708 Date Completed: 20220712 Latest Revision: 20220729
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Update Code:
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20240105
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PubMed Central ID:
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PMC9272115
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DOI:
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10.1136/bmjopen-2021-052044
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PMID:
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35803617
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Objectives: To assess perceptions, expectations, and concerns of parents of preterm infants regarding their position during hospital admission in the neonatal intensive care unit.
Design: Data were analysed from two studies, using complementary methods (quantitative and qualitative). Study I surveyed parents via a questionnaire, and study II was a reanalysis of interviews with fathers, collected in a previous study.
Setting: Neonatology department in a French tertiary care university hospital that promotes the Newborn Individualised Care and Assessment Program (NIDCAP).
Participants: In both studies, participants had a premature child admitted for any level of care in the neonatal intensive care unit.
Results: For study I, about half (33) of eligible families participated in the questionnaire survey, and for study II, we reanalysed interviews with 20 fathers. In both analyses, parents were satisfied overall with their involvement in the care of their child. In both studies, however, they expressed that they had expected to be better informed about their child's condition and more involved in medical decision-making. Parents also reported relational issues with some healthcare practitioners who made them feel judged, unheard or not competent to discuss their child's case. These concerns were not reported for NIDCAP staff. Respondents in both studies also described insufficient contact with physicians and an inability to obtain rest in the room with their child.
Conclusion: Provision of training to healthcare practitioners regarding information that parents request and doing so respectfully might be keys to fulfilling parent-reported needs. Such improvements could facilitate parental empowerment and involvement.
Competing Interests: Competing interests: Dr. Thébaud reports grants from Fondation de France and from the French Ministry of Health during the conduct of the study. All authors declare no relationships or activities that could have influenced the submitted work.
(© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)