The Directiveness that Dare Not Speak Its Name. Views and Attitudes of Polish Clinical Geneticists toward the Nondirectiveness Principle.

Szczegóły
Abstrakt

Tytuł:: The Directiveness that Dare Not Speak Its Name. Views and Attitudes of Polish Clinical Geneticists toward the Nondirectiveness Principle.
Autorzy:: Chańska W; Department of Philosophy and Bioethics, Jagiellonian University Medical College, Michałowskiego 12, 31-126, Kraków, Poland. .
Grunt-Mejer K; Faculty of Psychology and Law in Poznań, SWPS University of Social Sciences and Humanities, Kutrzeby 10, 61-719, Poznań, Poland.
Źródło:: Journal of bioethical inquiry [J Bioeth Inq] 2022 Dec; Vol. 19 (4), pp. 557-569. Date of Electronic Publication: 2022 Sep 01.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
Język:: English
Imprint Name(s):: Publication: Dordrecht : Springer
Original Publication: Dunedin, N.Z. : Bioethics Centre, University of Otago
MeSH Terms:: Genetic Counseling*
Attitude*
Pregnancy ; Female ; Humans ; Poland ; Prenatal Diagnosis ; Paternalism
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Grant Information:: 2014/15/B/HS1/01651 Narodowe Centrum Nauki
Contributed Indexing:: Keywords: Attitudes; Beliefs; Clinical Ethics; Genetic Counselors; Nondirectiveness; Prenatal Diagnosis
Entry Date(s):: Date Created: 20220901 Date Completed: 20230210 Latest Revision: 20230221
Update Code:: 20240105
PubMed Central ID:: PMC9908632
DOI:: 10.1007/s11673-022-10202-x
PMID:: 36048301
: Czasopismo naukowe

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Nondirectiveness is widely regarded as an important principle of genetic counseling. However, numerous studies have indicated that the use of this principle and its content itself are subject to controversies. The present study aimed to verify how the nondirectiveness principle is defined by Polish geneticists, the extent to which it is considered the main principle in clinical practice, and the situations in which geneticists see the positive value of the directive action. Using quantitative and qualitative methods, the study compared the abstract declarations of the directiveness validity and the scope of this principle with the declaration of action in situations close to reality (case scenarios). The results showed that the high rank assigned to the nondirectiveness principle does not translate into the conviction about the absolute obligation to use it in clinical practice. Polish geneticists are inclined to restrict the scope of patients' choices when these are outside of their definition of medical standard. Strong medical paternalism manifests itself particularly in invasive prenatal diagnostics, where geneticists play the role of gatekeepers. In this study, we offer hypotheses about the sources of these attitudes by analyzing the current cultural and legal context of Poland.
(© 2022. The Author(s).)

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