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Title of the item:

Optimizing of a question prompt list to improve communication about the heart failure trajectory in patients, families, and health care professionals

Title :
Optimizing of a question prompt list to improve communication about the heart failure trajectory in patients, families, and health care professionals
Authors :
Lisa Hjelmfors
Martje H. L. van der Wal
Maria Friedrichsen
Anna Milberg
Jan Mårtensson
Anna Sandgren
Anna Strömberg
Tiny Jaarsma
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Subject Terms :
Heart failure
Illness trajectory
End-of-life care
Communication
Question prompt list
Special situations and conditions
RC952-1245
Source :
BMC Palliative Care, Vol 19, Iss 1, Pp 1-14 (2020)
Publisher :
BMC, 2020.
Publication Year :
2020
Collection :
LCC:Special situations and conditions
Document Type :
article
File Description :
electronic resource
Language :
English
ISSN :
1472-684X
Relation :
http://link.springer.com/article/10.1186/s12904-020-00665-3; https://doaj.org/toc/1472-684X
DOI :
10.1186/s12904-020-00665-3
Access URL :
https://doaj.org/article/cc8402656b1f4b0eaaa3864458a9fb08
Accession Number :
edsdoj.8402656b1f4b0eaaa3864458a9fb08
Academic Journal
Abstract Background The aim of this study was to optimize a Question Prompt List which is designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals. Methods Data were collected in a two-round Delphi survey and a cross-sectional survey, including patients with heart failure, their family members, and health care professionals working in heart failure care in Sweden and the Netherlands. Acceptability for and demand of the Question Prompt List were assessed. Results A total of 96 patients, 63 family members and 26 health care professionals participated in the study. Regarding acceptability, most of the original questions were found to be relevant by the participants for inclusion in the Question Prompt List but some cultural differences exist, which resulted in two versions of the list: a Swedish version including 33 questions and a Dutch version including 38 questions. Concerning demand, participants reported that they were interested in discussing the questions in the revised Question Prompt List with a physician or a nurse. Few patients and family members reported that they were worried by the questions in the Question Prompt List and hence did not want to discuss the questions. Conclusions This Question Prompt List has successfully been adapted into a Swedish version and a Dutch version and includes questions about the HF trajectory which patients, their families, and health care professionals perceived to be relevant for discussion in clinical practice. Overall, patients and family members were not worried about the content in the Question Prompt List and if used in accordance with patients’ and family members’ preferences, the Question Prompt List can help to improve communication about the heart failure trajectory.
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