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Tytuł pozycji:

Adapting a home telemonitoring intervention for underserved Hispanic/Latino patients with type 2 diabetes: an acceptability and feasibility study

Tytuł:
Adapting a home telemonitoring intervention for underserved Hispanic/Latino patients with type 2 diabetes: an acceptability and feasibility study
Autorzy:
Renee Pekmezaris
Myia S. Williams
Briana Pascarelli
Kayla D. Finuf
Yael T. Harris
Alyson K. Myers
Tonya Taylor
Myriam Kline
Vidhi H. Patel
Lawrence M. Murray
Samy I. McFarlane
Karalyn Pappas
Martin L. Lesser
Amgad N. Makaryus
Sabrina Martinez
Andrjez Kozikowski
Jennifer Polo
Josephine Guzman
Roman Zeltser
Jose Marino
Maria Pena
Ralph J. DiClemente
Dilcia Granville
Temat:
Home telemedicine
Type 2 diabetes
Hispanic/Latino population
ADAPT-ITT
Feasibility
Computer applications to medicine. Medical informatics
R858-859.7
Źródło:
BMC Medical Informatics and Decision Making, Vol 20, Iss 1, Pp 1-14 (2020)
Wydawca:
BMC, 2020.
Rok publikacji:
2020
Kolekcja:
LCC:Computer applications to medicine. Medical informatics
Typ dokumentu:
article
Opis pliku:
electronic resource
Język:
English
ISSN:
1472-6947
95694234
Relacje:
https://doaj.org/toc/1472-6947
DOI:
10.1186/s12911-020-01346-0
Dostęp URL:
https://doaj.org/article/bfecd956942343f8b84103a3df2e08e4  Link otwiera się w nowym oknie
Numer akcesji:
edsdoj.bfecd956942343f8b84103a3df2e08e4
Czasopismo naukowe
Abstract Background Home telemonitoring is a promising approach to optimizing outcomes for patients with Type 2 Diabetes; however, this care strategy has not been adapted for use with understudied and underserved Hispanic/Latinos (H/L) patients with Type 2 Diabetes. Methods A formative, Community-Based Participatory Research approach was used to adapt a home telemonitoring intervention to facilitate acceptability and feasibility for vulnerable H/L patients. Utilizing the ADAPT-ITT framework, key stakeholders were engaged over an 8-month iterative process using a combination of strategies, including focus groups and structured interviews. Nine Community Advisory Board, Patient Advisory, and Provider Panel Committee focus group discussions were conducted, in English and Spanish, to garner stakeholder input before intervention implementation. Focus groups and structured interviews were also conducted with 12 patients enrolled in a 1-month pilot study, to obtain feedback from patients in the home to further adapt the intervention. Focus groups and structured interviews were approximately 2 hours and 30 min, respectively. All focus groups and structured interviews were audio-recorded and professionally transcribed. Structural coding was used to mark responses to topical questions in the moderator and interview guides. Results Two major themes emerged from qualitative analyses of Community Advisory Board/subcommittee focus group data. The first major theme involved intervention components to maximize acceptance/usability. Subthemes included tablet screens (e.g., privacy/identity concerns; enlarging font sizes; lighter tablet to facilitate portability); cultural incongruence (e.g., language translation/literacy, foods, actors “who look like me”); nursing staff (e.g., ensuring accessibility; appointment flexibility); and, educational videos (e.g., the importance of information repetition). A second major theme involved suggested changes to the randomized control trial study structure to maximize participation, including a major restructuring of the consenting process and changes designed to optimize recruitment strategies. Themes from pilot participant focus group/structured interviews were similar to those of the Community Advisory Board such as the need to address and simplify a burdensome consenting process, the importance of assuring privacy, and an accessible, culturally congruent nurse. Conclusions These findings identify important adaptation recommendations from the stakeholder and potential user perspective that should be considered when implementing home telemonitoring for underserved patients with Type 2 Diabetes. Trial registration NCT03960424; ClinicalTrials.gov (US National Institutes of Health). Registered 23 May 2019. Registered prior to data collection. https://www.clinicaltrials.gov/ct2/show/NCT03960424?term=NCT03960424&draw=2&rank=1
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