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Tytuł:
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Facilitating the adherence journey of children, adolescents, and adults on long-term growth hormone therapy.
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Autorzy:
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Tollerfield, Sally
Criseno, Sherwin
Fallon, Miriam
Jennings, Carly
Jones, Julie
Marland, Anne
Martin, Lee
Ward, Stephanie
Whitehead, Amanda
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Temat:
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SOCIAL support
PHYSICIAN-patient relations
PEDIATRIC endocrinology
TREATMENT duration
MEDICAL care costs
HUMAN growth hormone
DRUGS
QUALITY of life
DECISION making
PEDIATRIC nursing
PATIENT compliance
GROWTH disorders
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Źródło:
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British Journal of Nursing. 10/22/2020, Vol. 29 Issue 19, p1118-1123. 6p.
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Growth hormone deficiency in children and adolescents is treated with recombinant growth hormone injections, with the aim of helping patients reach a final height that falls within their genetically predicted adult height. While this treatment is very successful, overcoming issues of patient adherence is a challenge at each stage of the treatment journey, from early childhood to adulthood. An advisory board of senior endocrine nurses convened to discuss what strategies and tools work well in achieving adherence, and the best practices they identified—including the key strategies of choice, information, teamwork, and support—were presented at the 2016 meeting of The Endocrine Society. The advisers agreed that key steps to improve adherence include: patient/carer-centric endocrine nursing services, good-quality education and support, patient autonomy (where possible), broader treatment choice (in terms of device and self-injection), optimal follow-up from childhood to adulthood, and sharing of best practices. [ABSTRACT FROM AUTHOR]
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