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Tytuł:
Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review.
Autorzy:
Zahir F; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
Hanman A; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
Yazdani N; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
La Rosa S; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
Sleik G; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
Sullivan B; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
Mehdipour A; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
Malouka S; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada.
Kuspinar A; School of Rehabilitation Science, McMaster University, 1400 Main St. W., IAHS, Hamilton, ON, L8S 1C7, Canada. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Sep; Vol. 32 (9), pp. 2447-2462. Date of Electronic Publication: 2023 Mar 07.
Typ publikacji:
Journal Article; Systematic Review
MeSH Terms:
Amyotrophic Lateral Sclerosis*
Quality of Life*/psychology
Adult ; Humans ; Patient Reported Outcome Measures ; Psychometrics/methods ; Reproducibility of Results
Czasopismo naukowe
Tytuł:
Religiosity in patients with amyotrophic lateral sclerosis, a cross-country comparison.
Autorzy:
Ciećwierska K; Department of Neurology, University Clinical Centre of the Medical University of Warsaw, Warsaw, Poland.
Lulé D; Department of Neurology, University of Ulm, Ulm, Germany.
Helczyk O; Department of Neurology, University of Ulm, Ulm, Germany.
Nieporęcki K; Department of Neurology, University Clinical Centre of the Medical University of Warsaw, Warsaw, Poland.; Department of Neurology, Medical University of Warsaw, Warsaw, Poland.
Bielecki M; Department of Psychology, SWPS University of Social Sciences and Humanities, Warsaw, Poland.
Baader S; Department of Neurology, University of Ulm, Ulm, Germany.
Ludolph AC; Department of Neurology, University of Ulm, Ulm, Germany.; German Center for Neurodegenerative Diseases, Ulm Site, Ulm, Germany.
Kuźma-Kozakiewicz M; Department of Neurology, University Clinical Centre of the Medical University of Warsaw, Warsaw, Poland. .; Department of Neurology, Medical University of Warsaw, Warsaw, Poland. .; Neurodegenerative Diseases Research Group, Medical University of Warsaw, Warsaw, Poland. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2235-2246. Date of Electronic Publication: 2023 Mar 16.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Amyotrophic Lateral Sclerosis*/psychology
Humans ; Religion ; Pain ; Disease Progression
Czasopismo naukowe
Tytuł:
Development and validation of a measure of adolescent and young adult goal-based quality of life (MAYA-GQOL).
Autorzy:
Darabos K; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA. .; Department of Health Behavior, Society, and Policy, Rutgers School of Public Health, 683 Hoes Lane West, Rm 327, Piscataway, NJ, 08854, USA. .
Tucker CA; The University of Texas Medical Branch, Galveston, TX, USA.
Brumley L; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Psychology, West Chester University, West Chester, PA, USA.
King-Dowling S; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Butler E; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Department of Psychology, Fairleigh Dickinson University, Madison, NJ, USA.
Stevens E; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
O'Hagan B; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Bristol Myers Squibb, New York, USA.
Henry-Moss D; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Independence Blue Cross, Philadelphia, USA.
Deatrick JA; School of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
Szalda D; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
Barakat LP; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
Schwartz LA; Division of Oncology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2305-2317. Date of Electronic Publication: 2023 Mar 23.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Neoplasms*/psychology
Humans ; Adolescent ; Young Adult ; Adult ; Goals ; Survivors ; Peer Group
Czasopismo naukowe
Tytuł:
Implications of the syntheses on definition, theory, and methods conducted by the Response Shift - in Sync Working Group.
Autorzy:
Sprangers MAG; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Meibergdreef 15, J3-211, 1105 AZ, Amsterdam, The Netherlands. .; Amsterdam Public Health, Mental Health, Amsterdam, The Netherlands. .
Sawatzky R; School of Nursing, Trinity Western University, Langley, BC, Canada.; Centre for Health Evaluation and Outcome Sciences, University of British Columbia, Vancouver, BC, Canada.
Vanier A; INSERM, methodS in Patient-centered outcomes and HEalth ResEarch, SPHERE, Nantes Université, Université de Tours, CHU Nantes, F-44000, Nantes, France.; Pharmaceutical Drugs Assessment Department, Assessment and Access to Innovation Direction, Haute Autorité de Santé, Saint-Denis, France.
Böhnke JR; School of Health Sciences, University of Dundee, Dundee, UK.
Sajobi T; Department of Community Health Sciences, University of Calgary, Calgary, AB, Canada.
Mayo NE; Center for Outcomes Research and Evaluation, McGill University, Montreal, QC, Canada.; Division of Clinical Epidemiology, Department of Medicine, McGill University Health Centre Research Institute, Montreal, QC, Canada.
Lix LM; Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, Canada.
Verdam MGE; Department of Medical Psychology, Amsterdam UMC, Location University of Amsterdam, Meibergdreef 15, J3-211, 1105 AZ, Amsterdam, The Netherlands.; Department of Methodology and Statistics, Institute of Psychology, Leiden University, Leiden, The Netherlands.
Oort FJ; Research Institute of Child Development and Education, University of Amsterdam, Amsterdam, The Netherlands.
Sébille V; INSERM, methodS in Patient-centered outcomes and HEalth ResEarch, SPHERE, Nantes Université, Université de Tours, CHU Nantes, F-44000, Nantes, France.
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Corporate Authors:
Response Shift – in Sync Working Group
Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2165-2178. Date of Electronic Publication: 2023 Feb 09.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Models, Theoretical*
Humans ; Research Design
Czasopismo naukowe
Tytuł:
Quality of life and psychological distress of patients with advanced cancer in the Philippines.
Autorzy:
Manalo MF; Supportive Oncology & Palliative Care, Augusto P. Sarmiento Cancer Institute, The Medical City, Pasig, Philippines. .; Far Eastern University-Dr. Nicanor Reyes Medical Foundation, Quezon City, Philippines. .
Ng S; Duke-NUS Medical School, Lien Centre for Palliative Care, Singapore, Singapore.; Duke-NUS Medical School, Programme for Health Services & Systems Research, Singapore, Singapore.
Ozdemir S; Duke-NUS Medical School, Lien Centre for Palliative Care, Singapore, Singapore.; Duke-NUS Medical School, Programme for Health Services & Systems Research, Singapore, Singapore.
Malhotra C; Duke-NUS Medical School, Lien Centre for Palliative Care, Singapore, Singapore.; Duke-NUS Medical School, Programme for Health Services & Systems Research, Singapore, Singapore.
Finkelstein EA; Duke-NUS Medical School, Lien Centre for Palliative Care, Singapore, Singapore.; Duke-NUS Medical School, Programme for Health Services & Systems Research, Singapore, Singapore.
Ong KD; Department of Psychiatry, The Medical City, Pasig, Philippines.
Teo I; Duke-NUS Medical School, Lien Centre for Palliative Care, Singapore, Singapore.; Duke-NUS Medical School, Programme for Health Services & Systems Research, Singapore, Singapore.; Department of Psychosocial Oncology, National Cancer Centre Singapore, Singapore, Singapore.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2271-2279. Date of Electronic Publication: 2023 Mar 23.
Typ publikacji:
Journal Article
MeSH Terms:
Neoplasms*/psychology
Psychological Distress*
Humans ; Quality of Life/psychology ; Philippines ; Adaptation, Psychological ; Anxiety/psychology ; Depression/therapy ; Surveys and Questionnaires
Czasopismo naukowe
Tytuł:
A qualitative study of lived experiences and needs of advanced cancer patients in Malaysia: Gaps and steps forward.
Autorzy:
Yong ASJ; School of Pharmacy, Monash University Malaysia, Subang Jaya, Selangor, Malaysia.
Cheong MWL; School of Pharmacy, Monash University Malaysia, Subang Jaya, Selangor, Malaysia.
Hamzah E; Hospis Malaysia, Kuala Lumpur, Malaysia.
Teoh SL; School of Pharmacy, Monash University Malaysia, Subang Jaya, Selangor, Malaysia. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2391-2402. Date of Electronic Publication: 2023 Mar 24.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Neoplasms*/psychology
Humans ; Malaysia ; Family ; Spirituality ; Qualitative Research
Czasopismo naukowe
Tytuł:
The current use of the EORTC QLQ-NMIBC24 and QLQ-BLM30 questionnaires for the assessment of health-related quality of life in bladder cancer patients: a systematic review.
Autorzy:
Rammant E; Department of Human Structure and Repair, Ghent University, Corneel Heymanslaan 10, 9000, Ghent, Ghent, Belgium. .; Translational Oncology & Urology Research, School of Cancer & Pharmaceutical Sciences, King's College London, London, UK. .
Fox L; Translational Oncology & Urology Research, School of Cancer & Pharmaceutical Sciences, King's College London, London, UK.
Beyer K; Translational Oncology & Urology Research, School of Cancer & Pharmaceutical Sciences, King's College London, London, UK.
Aaronson NK; Division of Psychosocial Research & Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.
Chaloner R; Translational Oncology & Urology Research, School of Cancer & Pharmaceutical Sciences, King's College London, London, UK.
De Padova S; Psycho-Oncology Unit, IRCCS Istituto Romagnolo Per Lo Studio Dei Tumori (IRST), Dino Amadori', 47014, Meldola, Italy.
Liedberg F; Institution of Translational Medicine, Lund University, Malmö, Sweden.
Wintner LM; Department of Psychiatry, Psychotherapy, Psychosomatics and Medical Psychology, University Hospital of Psychiatry II, Medical University of Innsbruck, Innsbruck, Austria.
Decaestecker K; Department of Human Structure and Repair, Ghent University, Corneel Heymanslaan 10, 9000, Ghent, Ghent, Belgium.
Fonteyne V; Department of Human Structure and Repair, Ghent University, Corneel Heymanslaan 10, 9000, Ghent, Ghent, Belgium.
Perdek N; Translational Oncology & Urology Research, School of Cancer & Pharmaceutical Sciences, King's College London, London, UK.
Wylie H; Translational Oncology & Urology Research, School of Cancer & Pharmaceutical Sciences, King's College London, London, UK.
Catto JWF; Academic Urology Unit, Department of Oncology and Metabolism, University of Sheffield, Sheffield, UK.
Ripping TM; Department of Research and Development, Netherlands Comprehensive Cancer Organisation, Utrecht, The Netherlands.
Holzner B; Department of Psychiatry, Psychotherapy, Psychosomatics and Medical Psychology, University Hospital of Psychiatry II, Medical University of Innsbruck, Innsbruck, Austria.
Van Leeuwen M; Division of Psychosocial Research & Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.
Van Hemelrijck M; Translational Oncology & Urology Research, School of Cancer & Pharmaceutical Sciences, King's College London, London, UK.
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Corporate Authors:
EORTC Quality of Life Group
Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2127-2135. Date of Electronic Publication: 2023 Jan 17.
Typ publikacji:
Systematic Review; Journal Article; Review
MeSH Terms:
Quality of Life*/psychology
Urinary Bladder Neoplasms*
Humans ; Reproducibility of Results ; Prospective Studies ; Surveys and Questionnaires ; Psychometrics
Czasopismo naukowe
Tytuł:
Psychometric validation of the celiac disease-specific quality of life survey (CD-QOL) in adults with celiac disease in the United States.
Autorzy:
Dochat C; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, 6363 Alvarado Court, San Diego, CA, 92120, USA. .
Afari N; VA San Diego Healthcare System, San Diego, CA, USA.; University of California San Diego, La Jolla, San Diego, CA, USA.
Arigo D; Rowan University, Glassboro, NJ, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2195-2208. Date of Electronic Publication: 2023 Mar 16.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Celiac Disease*/psychology
Adult ; Humans ; Female ; Male ; Psychometrics ; Reproducibility of Results ; Surveys and Questionnaires
Czasopismo naukowe
Tytuł:
Hungarian PROMIS-29+2: psychometric properties and population reference values.
Autorzy:
Jenei B; Department of Health Policy, Corvinus University of Budapest, 8 Fővám Tér, Budapest, 1093, Hungary.
Bató A; Department of Health Policy, Corvinus University of Budapest, 8 Fővám Tér, Budapest, 1093, Hungary.; Károly Rácz Doctoral School of Clinical Medicine, Semmelweis University, Budapest, Hungary.
Mitev AZ; Institute of Marketing and Communication Sciences, Corvinus University of Budapest, Budapest, Hungary.
Brodszky V; Department of Health Policy, Corvinus University of Budapest, 8 Fővám Tér, Budapest, 1093, Hungary.
Rencz F; Department of Health Policy, Corvinus University of Budapest, 8 Fővám Tér, Budapest, 1093, Hungary. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2179-2194. Date of Electronic Publication: 2023 Feb 15.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Patient Reported Outcome Measures*
Adult ; Male ; Female ; Humans ; Hungary ; Psychometrics ; Reference Values ; Surveys and Questionnaires ; Reproducibility of Results
Czasopismo naukowe
Tytuł:
Patient-reported outcome measures for uncomplicated urinary tract infections in women: a systematic review.
Autorzy:
Piontek K; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, 39120, Magdeburg, Germany.
Donhauser T; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, 39120, Magdeburg, Germany.
Kann G; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, 39120, Magdeburg, Germany.
Fechtner M; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, 39120, Magdeburg, Germany.
Apfelbacher C; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, 39120, Magdeburg, Germany. .
Gabes M; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, 39120, Magdeburg, Germany.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2137-2153. Date of Electronic Publication: 2023 Feb 16.
Typ publikacji:
Systematic Review; Journal Article
MeSH Terms:
Quality of Life*/psychology
Urinary Tract Infections*
Humans ; Female ; Patient Reported Outcome Measures ; Checklist/methods ; Surveys and Questionnaires
Czasopismo naukowe
Tytuł:
How to make PROMs work: qualitative insights from leaders at United States hospitals with successful PROMs programs.
Autorzy:
Hyland CJ; Harvard Medical School, Boston, MA, 02115, USA. .
Mou D; Department of Surgery, Emory University, Atlanta, Georgia.
Virji AZ; Harvard Medical School, Boston, MA, 02115, USA.
Sokas CM; Department of Surgery, Beth Israel Deaconess Medical Center, Boston, MA, USA.
Bokhour B; Department of Population and Quantitative Health Sciences, University of Massachusetts Chan Medical School, Worcester, MA, USA.
Pusic AL; Brigham and Women's Hospital, Boston, MA, USA.
Mjåset C; Harvard T.H. Chan School of Public Health, Boston, MA, USA.; The Commonwealth Fund, 1 E 75th St, New York City, NY, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2259-2269. Date of Electronic Publication: 2023 Mar 16.
Typ publikacji:
Journal Article
MeSH Terms:
Primary Health Care*
Quality of Life*/psychology
Humans ; United States ; Qualitative Research ; Delivery of Health Care ; Hospitals ; Patient Reported Outcome Measures
Czasopismo naukowe
Tytuł:
Urban/rural differences in preferences for EQ-5D-5L health states: a study of a multi-ethnic region in China.
Autorzy:
Liao M; Health Systems and Behavioural Sciences Domain, Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore.
Luo N; Health Systems and Behavioural Sciences Domain, Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore.
Rand K; Health Services Research Unit, Akershus University Hospital, Lørenskog, Norway.; Maths in Health B.V., Rotterdam, The Netherlands.
Yang Z; Health Services Management Department, Guizhou Medical University, Guiyang, China. zhihao_yang_.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2329-2339. Date of Electronic Publication: 2023 Mar 22.
Typ publikacji:
Journal Article
MeSH Terms:
Health Status*
Quality of Life*/psychology
Humans ; Rural Population ; Surveys and Questionnaires ; China
Czasopismo naukowe
Tytuł:
Measuring Frailty Using Patient-Reported Outcomes (PRO) Data: A Feasibility Study in Patients with Multiple Myeloma.
Autorzy:
Murugappan MN; Office of Oncologic Diseases, Center for Drug Evaluation and Research (CDER), U.S. Food and Drug Administration (U.S. FDA), Silver Spring, MD, USA. .; Department of Pharmaceutical Care and Health Systems, University of Minnesota - College of Pharmacy, Minneapolis, MN, USA. .; Oncology Center of Excellence, Food and Drug Administration, Building 22, 10903 New Hampshire Avenue, Silver Spring, MD, 20993, USA. .
King-Kallimanis BL; LUNGevity Foundation, Chicago, IL, USA.
Bhatnagar V; Oncology Center for Excellence (U.S. FDA), Silver Spring, MD, USA.
Kanapuru B; Center for Drug Evaluation and Research (CDER), U.S. Food and Drug Administration (U.S. FDA), Silver Spring, MD, USA.
Farley JF; Department of Pharmaceutical Care and Health Systems, University of Minnesota - College of Pharmacy, Minneapolis, MN, USA.
Seifert RD; Department of Pharmacy Practice and Pharmaceutical Sciences, University of Minnesota - College of Pharmacy, Minneapolis, MN, USA.
Stenehjem DD; Department of Pharmacy Practice and Pharmaceutical Sciences, University of Minnesota - College of Pharmacy, Minneapolis, MN, USA.
Chen TY; Office of Oncologic Diseases, Center for Drug Evaluation and Research (CDER), U.S. Food and Drug Administration (U.S. FDA), Silver Spring, MD, USA.
Horodniceanu EG; Oncology Center for Excellence (U.S. FDA), Silver Spring, MD, USA.
Kluetz PG; Oncology Center for Excellence (U.S. FDA), Silver Spring, MD, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2281-2292. Date of Electronic Publication: 2023 Mar 20.
Typ publikacji:
Journal Article
MeSH Terms:
Frailty*
Multiple Myeloma*
Humans ; Feasibility Studies ; Retrospective Studies ; Quality of Life/psychology ; Reproducibility of Results ; Patient Reported Outcome Measures ; Surveys and Questionnaires
Czasopismo naukowe
Tytuł:
Psychosocial health and quality of life in ICSI and naturally conceived adolescents: a cross-sectional comparison.
Autorzy:
Eisemann N; Institute of Social Medicine and Epidemiology, University of Luebeck, Ratzeburger Allee 160, 23562, Lübeck, Germany. .
Schnoor M; Institute of Social Medicine and Epidemiology, University of Luebeck, Ratzeburger Allee 160, 23562, Lübeck, Germany.
Rakusa E; German Center for Neurodegenerative Diseases (DZNE), Bonn, Germany.
Braren-von Stülpnagel CC; German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Katalinic A; Institute of Social Medicine and Epidemiology, University of Luebeck, Ratzeburger Allee 160, 23562, Lübeck, Germany.
Ludwig M; SYNLAB Holding Deutschland GmbH, Augsburg, Germany.
Sonntag B; amedes MVZ Hamburg GmbH, Facharztzentrum Für Kinderwunsch, Pränatale Medizin, Endokrinologie und Osteologie, Hamburg, Germany.
Ludwig AK; Praxis Für Frauengesundheit Und Pränatalmedizin, Hamburg, Germany.
Elsner SA; Institute of Social Medicine and Epidemiology, University of Luebeck, Ratzeburger Allee 160, 23562, Lübeck, Germany.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2223-2234. Date of Electronic Publication: 2023 Mar 16.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Sperm Injections, Intracytoplasmic*
Child ; Humans ; Male ; Adolescent ; Cross-Sectional Studies ; Semen ; Fertilization
Czasopismo naukowe
Tytuł:
A composite measure for patient-reported outcomes in orthopedic care: design principles and validity checks.
Autorzy:
Schöner L; Department of Health Care Management, Technical University Berlin, Straße des 17. Juni 135, 10623, Berlin, Germany. .
Kuklinski D; Department of Health Care Management, University of St. Gallen, St. Gallen, Switzerland.
Geissler A; Department of Health Care Management, University of St. Gallen, St. Gallen, Switzerland.
Busse R; Department of Health Care Management, Technical University Berlin, Straße des 17. Juni 135, 10623, Berlin, Germany.
Pross C; Department of Health Care Management, Technical University Berlin, Straße des 17. Juni 135, 10623, Berlin, Germany.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2341-2351. Date of Electronic Publication: 2023 Mar 24.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Patient Reported Outcome Measures*
Humans ; Quality of Health Care ; Reference Standards
Czasopismo naukowe
Tytuł:
Modifying the social responsiveness scale for adaptive administration.
Autorzy:
Kaat AJ; Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, 625 N. Michigan Avenue, Chicago, IL, 60611, USA. .
Croen LA; Kaiser Permanente Northern California, Oakland, USA.
Constantino J; Division of Child Psychology, Washington University School of Medicine in St. Louis, St. Louis, USA.
Newshaffer CJ; Department of Biobehavioral Health, Penn State University, State College, USA.
Lyall K; A.J. Drexel Autism Institute, Drexel University, Philadelphia, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2353-2360. Date of Electronic Publication: 2023 Mar 21.
Typ publikacji:
Journal Article
MeSH Terms:
Quality of Life*/psychology
Computers*
Male ; Female ; Humans ; Child, Preschool ; Outcome Assessment, Health Care ; Psychometrics/methods ; Computer Simulation ; Surveys and Questionnaires ; Reproducibility of Results
Czasopismo naukowe
Tytuł:
Exploring what matters to residents of Australian aged care facilities with the Happy Life Index: comparison of qualitative responses between pre- and mid-Covid-19 pandemic time points.
Autorzy:
Murray CM; International Centre for Allied Health Evidence, University of South Australia, Adelaide, Australia. .; Allied Health and Human Performance Unit, University of South Australia, Adelaide, Australia. .; IIMPACT in Health, University of South Australia, Adelaide, Australia. .
Milanese S; International Centre for Allied Health Evidence, University of South Australia, Adelaide, Australia.; Allied Health and Human Performance Unit, University of South Australia, Adelaide, Australia.
Guerin M; Allied Health and Human Performance Unit, University of South Australia, Adelaide, Australia.
Bilton R; International Centre for Allied Health Evidence, University of South Australia, Adelaide, Australia.; Allied Health and Human Performance Unit, University of South Australia, Adelaide, Australia.
Baldock KL; Allied Health and Human Performance Unit, University of South Australia, Adelaide, Australia.
Parfitt G; Allied Health and Human Performance Unit, University of South Australia, Adelaide, Australia.; Alliance for Research in Exercise, Nutrition and Activity, University of South Australia, Adelaide, Australia.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Aug; Vol. 32 (8), pp. 2247-2257. Date of Electronic Publication: 2023 Mar 16.
Typ publikacji:
Journal Article
MeSH Terms:
COVID-19*/epidemiology
Aged ; Humans ; Australia/epidemiology ; Pandemics ; Quality of Life/psychology ; Homes for the Aged
Czasopismo naukowe
Tytuł:
Describing the health-related quality of life of Māori adults in Aotearoa me Te Waipounamu (New Zealand).
Autorzy:
Sullivan T; Department of Preventive and Social Medicine, University of Otago, 18 Frederick Street, Dunedin, 9016, New Zealand. .
McCarty G; Ngāi Tahu Māori Health Research Unit, Division of Health Sciences, University of Otago, Dunedin, New Zealand.
Wyeth E; Ngāi Tahu Māori Health Research Unit, Division of Health Sciences, University of Otago, Dunedin, New Zealand.
Turner RM; Biostatistics Centre, Division of Health Sciences, University of Otago, Dunedin, New Zealand.
Derrett S; Ngāi Tahu Māori Health Research Unit, Division of Health Sciences, University of Otago, Dunedin, New Zealand.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Jul; Vol. 32 (7), pp. 2117-2126. Date of Electronic Publication: 2023 Mar 16.
Typ publikacji:
Journal Article
MeSH Terms:
Health Status*
Maori People*
Quality of Life*/psychology
Health Status Disparities*
Adult ; Humans ; Chronic Disease ; New Zealand ; Surveys and Questionnaires
Czasopismo naukowe
Tytuł:
Quality of life of patients and caregivers affected by bronchopulmonary dysplasia: a systematic review.
Autorzy:
Lee DMX; Dean's Office, Lee Kong Chian School of Medicine, Nanyang Technological University (Novena Campus), Headquarters & Clinical Sciences Building, 11 Mandalay Road, Singapore, 308232, Singapore.
Tan AKS; Dean's Office, Lee Kong Chian School of Medicine, Nanyang Technological University (Novena Campus), Headquarters & Clinical Sciences Building, 11 Mandalay Road, Singapore, 308232, Singapore.
Ng YPM; Department of Neonatology, Khoo Teck Puat-National University Children's Medical Institute, 1E Kent Ridge Road, Level 12 NUHS Tower Block, Singapore, 119228, Singapore. .; Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, 1E Kent Ridge Road, Level 12 NUHS Tower Block, Singapore, 119228, Singapore. .
Amin Z; Department of Neonatology, Khoo Teck Puat-National University Children's Medical Institute, 1E Kent Ridge Road, Level 12 NUHS Tower Block, Singapore, 119228, Singapore.; Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, 1E Kent Ridge Road, Level 12 NUHS Tower Block, Singapore, 119228, Singapore.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Jul; Vol. 32 (7), pp. 1859-1869. Date of Electronic Publication: 2022 Dec 09.
Typ publikacji:
Systematic Review; Journal Article; Review
MeSH Terms:
Bronchopulmonary Dysplasia*
Infant, Newborn ; Infant ; Adult ; Humans ; Child ; Quality of Life/psychology ; Caregivers ; Aftercare ; Patient Discharge
Czasopismo naukowe
Tytuł:
Sexual quality of life in young gynaecological cancer survivors: a qualitative study.
Autorzy:
Roussin M; School of Health and Behavioural Sciences, University of the Sunshine Coast, 90 Sippy Downs Drive, Sunshine Coast, QLD, 4556, Australia. .
Lowe J; School of Health and Behavioural Sciences, University of the Sunshine Coast, 90 Sippy Downs Drive, Sunshine Coast, QLD, 4556, Australia.
Hamilton A; School of Health and Behavioural Sciences, University of the Sunshine Coast, 90 Sippy Downs Drive, Sunshine Coast, QLD, 4556, Australia.
Martin L; School of Health and Behavioural Sciences, University of the Sunshine Coast, 90 Sippy Downs Drive, Sunshine Coast, QLD, 4556, Australia.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Jul; Vol. 32 (7), pp. 2107-2115. Date of Electronic Publication: 2023 Mar 22.
Typ publikacji:
Journal Article
MeSH Terms:
Cancer Survivors*
Neoplasms*
Female ; Humans ; Quality of Life/psychology ; Sexual Behavior/psychology ; Emotions
Czasopismo naukowe

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