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    Wyświetlanie 1-11 z 11
    Tytuł:
    The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?
    Autorzy:
    Acuña Mora M; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.
    Sparud-Lundin C; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
    Fernlund E; Division of Pediatrics, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.; Crown Princess Victoria Children's Hospital, Linköping University Hospital, Linköping, Sweden.
    Fadl S; Department of Children and Young Adults, University Hospital Örebro, Örebro, Sweden.
    Kalliopi K; Department of Women's and Children's Health, Karolinska Institute, Stockholm, Sweden.
    Rydberg A; Department of Clinical Sciences, Umeå University, Umeå, Sweden.
    Burström Å; Karolinska Institute, Department of Neurobiology, Care Sciences and Society, Stockholm, Sweden.
    Hanseus K; Children's Heart Center, Skåne University Hospital Lund, Lund, Sweden.
    Moons P; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Bratt EL; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
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    Źródło:
    PloS one [PLoS One] 2022 Nov 10; Vol. 17 (11), pp. e0277267. Date of Electronic Publication: 2022 Nov 10 (Print Publication: 2022).
    Typ publikacji:
    Observational Study; Journal Article; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Patient Participation*
    Heart Defects, Congenital*
    Adolescent ; Adult ; Child ; Humans ; Quality of Life ; Cross-Sectional Studies ; Patient Reported Outcome Measures
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Implementation fidelity of a transition program for adolescents with congenital heart disease: the STEPSTONES project.
    Autorzy:
    Saarijärvi M; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden. .; KU Leuven, Department of Public Health and Primary Care, Leuven, Belgium. .
    Wallin L; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; School of Health and Welfare, Dalarna University, Falun, Sweden.; University of Gothenburg Centre for Person-Centered Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Moons P; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; KU Leuven, Department of Public Health and Primary Care, Leuven, Belgium.; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Gyllensten H; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; University of Gothenburg Centre for Person-Centered Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Bratt EL; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
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    Źródło:
    BMC health services research [BMC Health Serv Res] 2022 Feb 05; Vol. 22 (1), pp. 153. Date of Electronic Publication: 2022 Feb 05.
    Typ publikacji:
    Journal Article; Randomized Controlled Trial
    MeSH Terms:
    Delivery of Health Care*
    Heart Defects, Congenital*/therapy
    Adolescent ; Chronic Disease ; Humans ; Process Assessment, Health Care ; Research Design
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components.
    Autorzy:
    Skogby S; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden. .; Department of Paediatric Cardiology, Queen Silvia Children's Hospital, Gothenburg, Sweden. .; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium. .
    Bratt EL; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Paediatric Cardiology, Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Johansson B; Department of Surgery and Perioperative Sciences, Umeå University, Umeå, Sweden.
    Moons P; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium.; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Goossens E; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium.; Research Foundation Flanders, Brussels, Belgium.; Center for Research and Innovation in Care, Faculty of Nursing, University of Antwerp, Antwerp, Belgium.; Department of Patient Care Services, Antwerp University Hospital, Antwerp, Belgium.
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    Źródło:
    BMC health services research [BMC Health Serv Res] 2021 Dec 15; Vol. 21 (1), pp. 1343. Date of Electronic Publication: 2021 Dec 15.
    Typ publikacji:
    Journal Article; Systematic Review
    MeSH Terms:
    Aftercare*
    Health Personnel*
    Adolescent ; Chronic Disease ; Humans
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknieSzczegóły
    Tytuł:
    Mechanisms of impact and experiences of a person-centred transition programme for adolescents with CHD: the Stepstones project.
    Autorzy:
    Saarijärvi M; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden. .; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium. .
    Wallin L; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; School of Education, Health and Social Studies, Dalarna University, Falun, Sweden.
    Moons P; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Gyllensten H; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Bratt EL; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
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    Źródło:
    BMC health services research [BMC Health Serv Res] 2021 Jun 10; Vol. 21 (1), pp. 573. Date of Electronic Publication: 2021 Jun 10.
    Typ publikacji:
    Journal Article; Randomized Controlled Trial
    MeSH Terms:
    Heart Defects, Congenital*
    Parents*
    Adolescent ; Adult ; Chronic Disease ; Empowerment ; Humans ; Sweden
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Factors affecting adolescents' participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES project.
    Autorzy:
    Saarijärvi M; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden. .; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium. .
    Wallin L; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; School of Education, Health and Social Studies, Dalarna University, Falun, Sweden.
    Moons P; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.; Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
    Gyllensten H; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Bratt EL; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
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    Źródło:
    BMC medical research methodology [BMC Med Res Methodol] 2020 Aug 03; Vol. 20 (1), pp. 205. Date of Electronic Publication: 2020 Aug 03.
    Typ publikacji:
    Journal Article; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Delivery of Health Care*
    Adolescent ; Chronic Disease ; Humans ; Randomized Controlled Trials as Topic
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES).
    Autorzy:
    Acuña Mora M; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.
    Luyckx K; School Psychology and Development in Context, KU Leuven, Leuven, Belgium.
    Sparud-Lundin C; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
    Peeters M; Research Centre Innovations in Care, Rotterdam University of Applied Sciences, The Netherlands.
    van Staa A; Research Centre Innovations in Care, Rotterdam University of Applied Sciences, The Netherlands.
    Sattoe J; Research Centre Innovations in Care, Rotterdam University of Applied Sciences, The Netherlands.
    Bratt EL; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Moons P; Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.; Department of Paediatrics and Child Health, University of Cape Town, South Africa.
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    Źródło:
    PloS one [PLoS One] 2018 Jul 20; Vol. 13 (7), pp. e0201007. Date of Electronic Publication: 2018 Jul 20 (Print Publication: 2018).
    Typ publikacji:
    Journal Article; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Psychometrics*
    Patient Participation/*statistics & numerical data
    Adolescent ; Diabetes Mellitus/psychology ; Female ; Heart Diseases/congenital ; Heart Diseases/psychology ; Humans ; Male ; Surveys and Questionnaires
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Do not forget the parents-Parents' concerns during transition to adult care for adolescents with congenital heart disease.
    Autorzy:
    Bratt EL; Institution of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Burström Å; Institution for Women's and Children's Health, Karolinska Institute, Stockholm, Sweden.; Department of Paediatric Cardiology, Astrid Lindgren Children's Hospital, Stockholm, Sweden.
    Hanseus K; Department of Pediatric Cardiology, Skåne University Hospital, Lund, Sweden.
    Rydberg A; Department of Clinical Sciences, Pediatrics, Umeå University, Umeå, Sweden.
    Berghammer M; University West, Department of Health Science, Trollhättan, Sweden.; Department of Pediatrics, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
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    Corporate Authors:
    On behalf on the STEPSTONES-CHD consortium
    Źródło:
    Child: care, health and development [Child Care Health Dev] 2018 Mar; Vol. 44 (2), pp. 278-284. Date of Electronic Publication: 2017 Oct 05.
    Typ publikacji:
    Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Attitude to Health*
    Heart Defects, Congenital/*therapy
    Parents/*psychology
    Transition to Adult Care/*organization & administration
    Adolescent ; Consumer Health Informatics/standards ; Female ; Humans ; Interviews as Topic ; Male ; Middle Aged ; Parent-Child Relations ; Patient Education as Topic ; Professional-Family Relations ; Qualitative Research ; Sweden
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care.
    Autorzy:
    Burström Å; Institution for Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden. .; Department of Paediatric Cardiology, Astrid Lindgren Children's Hospital, Stockholm, Sweden. .
    Bratt EL; Institution of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Frenckner B; Institution for Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.; Department of Paediatric Cardiology, Astrid Lindgren Children's Hospital, Stockholm, Sweden.
    Nisell M; Institution for Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.; The Red Cross University College, Stockholm, Sweden.
    Hanséus K; Department of Pediatric Cardiology, Skåne University Hospital, Lund, Sweden.
    Rydberg A; Department of Clinical Sciences, Pediatrics, Umeå University, Umeå, Sweden.
    Öjmyr-Joelsson M; Institution for Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.; Department of Paediatric Cardiology, Astrid Lindgren Children's Hospital, Stockholm, Sweden.
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    Źródło:
    European journal of pediatrics [Eur J Pediatr] 2017 Jul; Vol. 176 (7), pp. 881-889. Date of Electronic Publication: 2017 May 16.
    Typ publikacji:
    Journal Article
    MeSH Terms:
    Attitude to Health*
    Transition to Adult Care*
    Heart Defects, Congenital/*psychology
    Heart Defects, Congenital/*therapy
    Adolescent ; Adult ; Female ; Focus Groups ; Humans ; Male ; Parent-Child Relations ; Professional-Patient Relations ; Qualitative Research ; Sweden
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknieSzczegóły
    Tytuł:
    Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey.
    Autorzy:
    Sparud-Lundin C; Institute of Health and Care Sciences, The Sahlgrenska Academy, University of Gothenburg, Box 457, SE- 405 30, Gothenburg, Sweden. .
    Berghammer M; Department of Health Science, University West, SE-461 32, Trollhättan, Sweden.; Centre for Person-Centred Care (GPCC), University of Gothenburg, Box 457, SE- 405 30, Gothenburg, Sweden.
    Moons P; Institute of Health and Care Sciences, The Sahlgrenska Academy, University of Gothenburg, Box 457, SE- 405 30, Gothenburg, Sweden.; KU Leuven Department of Public Health and Primary Care, Kapucijnenvoer 35, Box 7001, BE-3000, Leuven, Belgium.
    Bratt EL; Institute of Health and Care Sciences, The Sahlgrenska Academy, University of Gothenburg, Box 457, SE- 405 30, Gothenburg, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, SE-416 85, Gothenburg, Sweden.
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    Źródło:
    BMC health services research [BMC Health Serv Res] 2017 Apr 11; Vol. 17 (1), pp. 260. Date of Electronic Publication: 2017 Apr 11.
    Typ publikacji:
    Journal Article
    MeSH Terms:
    Attitude of Health Personnel*
    Transition to Adult Care*
    Chronic Disease/*therapy
    Nurses/*psychology
    Physicians/*psychology
    Adolescent ; Adult ; Aged ; Ambulatory Care ; Child ; Communication ; Cross-Sectional Studies ; Electronic Mail ; Female ; Humans ; Internet ; Long-Term Care ; Male ; Middle Aged ; Patient Transfer ; Surveys and Questionnaires ; Sweden ; Young Adult
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknieSzczegóły
    Tytuł:
    Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping review.
    Autorzy:
    Acuña Mora M; Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.; Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35, box 7001, 3000, Leuven, Belgium.
    Moons P; Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.; Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35, box 7001, 3000, Leuven, Belgium.
    Sparud-Lundin C; Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.
    Bratt EL; Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Goossens E; Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35, box 7001, 3000, Leuven, Belgium. .; Research Foundation Flanders (FWO), Brussels, Belgium. .
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    Źródło:
    Systematic reviews [Syst Rev] 2016 Sep 29; Vol. 5 (1), pp. 166. Date of Electronic Publication: 2016 Sep 29.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknieSzczegóły
    Tytuł:
    Parent's experiences of counselling and their need for support following a prenatal diagnosis of congenital heart disease--a qualitative study in a Swedish context.
    Autorzy:
    Bratt EL; Institute of Health and Care Sciences, The Sahlgrenska Academy, University of Gothenburg, Arvid Wallgrens Backe, Box 457, , 405 30, Gothenburg, Sweden. ewa-lena.bratt@gu.se.; Department of Paediatric Cardiology, The Queen Silvia Childréns hospital, Rondvägen 10, 416 50, Gothenburg, Sweden. ewa-lena.bratt@gu.se.
    Järvholm S; Department of Obstetrics and Gynecology, Sahlgrenska University Hospital, Blå Stråket 6, 413 45, Gothenburg, Sweden. .
    Ekman-Joelsson BM; Department of Paediatric Cardiology, The Queen Silvia Childréns hospital, Rondvägen 10, 416 50, Gothenburg, Sweden. .
    Mattson LÅ; Department of Obstetrics and Gynecology, Sahlgrenska University Hospital, Blå Stråket 6, 413 45, Gothenburg, Sweden. .
    Mellander M; Department of Paediatric Cardiology, The Queen Silvia Childréns hospital, Rondvägen 10, 416 50, Gothenburg, Sweden. .
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    Źródło:
    BMC pregnancy and childbirth [BMC Pregnancy Childbirth] 2015 Aug 15; Vol. 15, pp. 171. Date of Electronic Publication: 2015 Aug 15.
    Typ publikacji:
    Journal Article; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Counseling*
    Heart Defects, Congenital*
    Social Support*
    Parents/*psychology
    Stress, Psychological/*psychology
    Adult ; Female ; Humans ; Male ; Pregnancy ; Prenatal Diagnosis ; Qualitative Research ; Sweden ; Young Adult
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknieSzczegóły
      Wyświetlanie 1-11 z 11

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