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Tytuł :
Preferences of biobank participants for receiving actionable genomic test results: results of a recontacting study.
Autorzy :
Henrikson NB; Kaiser Permanente Washington Health Research Institute, Seattle, WA, USA. .
Scrol A; Kaiser Permanente Washington Health Research Institute, Seattle, WA, USA.
Leppig KA; Kaiser Permanente Washington Health Research Institute, Seattle, WA, USA.
Ralston JD; Kaiser Permanente Washington Health Research Institute, Seattle, WA, USA.
Larson EB; Kaiser Permanente Washington Health Research Institute, Seattle, WA, USA.
Jarvik GP; Departments of Medicine (Medical Genetics) and Genome Sciences, University of Washington Medical Center, Seattle, WA, USA.
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Źródło :
Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2021 Jun; Vol. 23 (6), pp. 1163-1166. Date of Electronic Publication: 2021 Feb 18.
Typ publikacji :
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms :
Biological Specimen Banks*
Duty to Recontact*
Genomics ; Humans ; Telephone ; Washington
Czasopismo naukowe
Tytuł :
Disclosing genetic information to family members without consent: Five Australian case studies.
Autorzy :
Tiller J; Public Health Genomics, Monash University, Melbourne, Australia. Electronic address: .
Bilkey G; Western Australian Department of Health, Perth, Australia.
Macintosh R; Centre for Clinical Genetics, Sydney Children's Hospitals Network, Australia.
O'Sullivan S; Genetic Services of Western, Australia.
Groube S; Tasmanian Clinical Genetics Service, Australia.
Palover M; Institute of Genomics, University of Tartu, Estonia.
Pachter N; Genetic Services of Western, Australia.
Rothstein M; University of Louisville School of Medicine, USA.
Lacaze P; Public Health Genomics, Monash University, Melbourne, Australia.
Otlowski M; University of Tasmania, Australia.
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Źródło :
European journal of medical genetics [Eur J Med Genet] 2020 Nov; Vol. 63 (11), pp. 104035. Date of Electronic Publication: 2020 Aug 14.
Typ publikacji :
Case Reports; Journal Article; Review
MeSH Terms :
Family*
Genetic Predisposition to Disease*
Duty to Warn/*legislation & jurisprudence
Australia ; Duty to Warn/ethics ; Genetic Privacy/ethics ; Genetic Privacy/legislation & jurisprudence ; Humans ; Informed Consent/ethics ; Informed Consent/legislation & jurisprudence
Czasopismo naukowe
Tytuł :
Dementias Platform UK Clinical Studies and Great Minds Register: protocol of a targeted brain health studies recontact database.
Autorzy :
Koychev I; Psychiatry, University of Oxford, Oxford, UK .
Young S; Psychiatry, University of Oxford, Oxford, UK.
Holve H; Psychiatry, University of Oxford, Oxford, UK.
Ben Yehuda M; Psychiatry, University of Oxford, Oxford, UK.
Gallacher J; Psychiatry, University of Oxford, Oxford, UK.
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Źródło :
BMJ open [BMJ Open] 2020 Nov 27; Vol. 10 (11), pp. e040766. Date of Electronic Publication: 2020 Nov 27.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Dementia*
Duty to Recontact*
Brain ; Humans ; Prospective Studies ; Retrospective Studies ; United Kingdom
Czasopismo naukowe
Tytuł :
Is there a New Duty to Warn Family Members in English Medical Law? ABC V ST George's Healthcare NHS Trust and Others [2020] EWHC 4551.
Autorzy :
Foster C; Faculty of Law, University of Oxford, Oxford OX1 3UL, UK.
Gilbar R; School of Law, Netanya Academic College, Netanya, Israel.
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Źródło :
Medical law review [Med Law Rev] 2021 Aug 11; Vol. 29 (2), pp. 359-372.
Typ publikacji :
Journal Article; Legal Case
MeSH Terms :
Family*
Confidentiality/*legislation & jurisprudence
Disclosure/*legislation & jurisprudence
Duty to Warn/*legislation & jurisprudence
Huntington Disease/*diagnosis
Female ; Humans ; Liability, Legal ; Male ; Malpractice/legislation & jurisprudence ; Pregnancy ; State Medicine/legislation & jurisprudence ; United Kingdom
Czasopismo naukowe
Tytuł :
The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results.
Autorzy :
Bombard Y; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Institute of Health Policy, Management, and Evaluation, University of Toronto, Toronto, ON M5T 3M6, Canada; Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, ON M5B 1T8, Canada. Electronic address: .
Brothers KB; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Department of Pediatrics, University of Louisville, Louisville, KY 40202, USA.
Fitzgerald-Butt S; National Society of Genetic Counselors, Chicago, IL 60611, USA; Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, IN, 46202, USA.
Garrison NA; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, WA 98101, USA; Department of Pediatrics, University of Washington School of Medicine, Seattle, WA 98101, USA.
Jamal L; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; National Society of Genetic Counselors, Chicago, IL 60611, USA; National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD, 20892, USA.
James CA; National Society of Genetic Counselors, Chicago, IL 60611, USA; Division of Cardiology, Department of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA.
Jarvik GP; Executive Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Departments of Medicine (Medical Genetics) and Genome Sciences, University of Washington, Seattle, WA 98195, USA.
McCormick JB; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Department of Humanities, College of Medicine, Pennsylvania State University, Hershey, PA 17033, USA.
Nelson TN; Canadian College of Medical Geneticists, Kingston, ON K7K 1Z7, Canada; BC Children's Hospital Research Institute, Vancouver, BC V5Z 4H4, Canada; Department of Pathology and Laboratory Medicine, University of British Columbia, Vancouver, BC V6T 2B5, Canada; Department of Pathology and Laboratory Medicine, BC Children's Hospital, Vancouver, BC V6H 3N1, Canada; Department of Medical Genetics, University of British Columbia, Vancouver, BC V6H 3N1, Canada.
Ormond KE; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Department of Genetics and Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford University, Stanford, CA 94305, USA.
Rehm HL; Department of Pathology, Harvard Medical School, Boston, MA 02115, USA; Center for Genomic Medicine, Massachusetts General Hospital, Boston, MA 02114, USA; Medical and Populations Genetics, Broad Institute of MIT and Harvard, Cambridge, MA 02142, USA.
Richer J; Canadian College of Medical Geneticists, Kingston, ON K7K 1Z7, Canada; Department of Pediatrics, Children's Hospital of Eastern Ontario (CHEO), Ottawa, ON K1H 8L1, Canada; University of Ottawa, Ottawa, ON K1N 6N5, Canada.
Souzeau E; Canadian Association of Genetic Counsellors, Oakville, ON L6J 7N5, Canada; Department of Ophthalmology, Flinders University, Flinders Medical Centre, Adelaide, SA 5042, Australia.
Vassy JL; Department of Pathology, Harvard Medical School, Boston, MA 02115, USA; Department of Medicine, Harvard Medical School and Brigham and Women's Hospital, Boston, MA 02115, USA; VA Boston Healthcare System, Boston, MA 02130, USA.
Wagner JK; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Center for Translational Bioethics and Health Care Policy, Geisinger Health System, Danville, PA 17822, USA.
Levy HP; Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Division of General Internal Medicine, Department of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA; McKusick-Nathans Institute of Genetic Medicine, Johns Hopkins University, Baltimore, MD 21205, USA.
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Źródło :
American journal of human genetics [Am J Hum Genet] 2019 Apr 04; Vol. 104 (4), pp. 578-595.
Typ publikacji :
Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.
MeSH Terms :
Duty to Recontact*
Duty to Warn/*legislation & jurisprudence
Genetic Testing/*standards
Genetics, Medical/*standards
Genomics/*standards
Australia ; Canada ; Ethics, Research ; Europe ; Genetics, Medical/education ; Genetics, Medical/ethics ; Humans ; Liability, Legal ; Research Subjects ; Societies, Medical ; United States
Czasopismo naukowe
Tytuł :
Experts reflecting on the duty to recontact patients and research participants; why professionals should take the lead in developing guidelines.
Autorzy :
Mitchell C; Amsterdam UMC, Meibergdreef 9, 1105AZ, Amsterdam, Netherlands. Electronic address: .
Ploem C; Amsterdam UMC, Meibergdreef 9, 1105AZ, Amsterdam, Netherlands.
Retèl V; Netherlands Cancer Institute-NKI, Amsterdam, Netherlands.
Gevers S; Amsterdam UMC, Meibergdreef 9, 1105AZ, Amsterdam, Netherlands.
Hennekam R; Amsterdam UMC, Meibergdreef 9, 1105AZ, Amsterdam, Netherlands.
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Źródło :
European journal of medical genetics [Eur J Med Genet] 2020 Feb; Vol. 63 (2), pp. 103642. Date of Electronic Publication: 2019 Mar 20.
Typ publikacji :
Journal Article
MeSH Terms :
Guidelines as Topic*
Duty to Recontact/*ethics
Data Collection ; Duty to Recontact/legislation & jurisprudence ; Ethics, Research ; Genetics, Medical/ethics ; Humans ; Informed Consent ; Interviews as Topic ; Netherlands ; Patients/legislation & jurisprudence ; Research Subjects/legislation & jurisprudence ; United Kingdom
Czasopismo naukowe
Tytuł :
COVID-19 and the Duty to Protect from Communicable Diseases.
Autorzy :
Ghossoub E; Dr. Ghossoub is an Assistant Professor of Clinical Psychiatry, Department of Psychiatry, American University of Beirut, Faculty of Medicine and The Medical Center, Beirut, Lebanon. Dr. Newman is a Professor of Psychiatry, Department of Psychiatry and Behavioral Neurosciences, Saint Louis University, Saint Louis, MO. .
Newman WJ; Dr. Ghossoub is an Assistant Professor of Clinical Psychiatry, Department of Psychiatry, American University of Beirut, Faculty of Medicine and The Medical Center, Beirut, Lebanon. Dr. Newman is a Professor of Psychiatry, Department of Psychiatry and Behavioral Neurosciences, Saint Louis University, Saint Louis, MO.
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Źródło :
The journal of the American Academy of Psychiatry and the Law [J Am Acad Psychiatry Law] 2020 Jun; Vol. 48 (2), pp. 155-160. Date of Electronic Publication: 2020 May 08.
Typ publikacji :
Editorial; Legal Case
MeSH Terms :
Betacoronavirus*
Communicable Disease Control*
Physician's Role*
Coronavirus Infections/*prevention & control
Duty to Warn/*legislation & jurisprudence
Pandemics/*prevention & control
Pneumonia, Viral/*prevention & control
COVID-19 ; Commitment of Mentally Ill/ethics ; Confidentiality/legislation & jurisprudence ; Coronavirus Infections/transmission ; Duty to Warn/ethics ; Ethics, Medical ; Humans ; Mandatory Reporting ; Patient Isolation ; Pneumonia, Viral/transmission ; Psychiatry ; SARS-CoV-2 ; United States
Opinia redakcyjna
Tytuł :
[A gender-based approach to the career paths of private practice nurses and their nursing practices].
Autorzy :
Douguet F; Laboratoire d'études et de recherche en sociologie, université Bretagne Sud, 20 rue Duquesne, 29238 Brest cedex 3, France. Electronic address: .
Vilbrod A; Laboratoire d'études et de recherche en sociologie, université Bretagne Sud, 20 rue Duquesne, 29238 Brest cedex 3, France.
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Transliterated Title :
Une approche par le genre des trajectoires professionnelles des infirmiers libéraux et de leurs pratiques de soins.
Źródło :
Soins; la revue de reference infirmiere [Soins] 2020 May; Vol. 65 (845), pp. 43-45.
Typ publikacji :
Journal Article
MeSH Terms :
Career Mobility*
Nursing, Private Duty*
Practice Patterns, Nurses'/*statistics & numerical data
Female ; Humans ; Male ; Sex Factors
Czasopismo naukowe
Tytuł :
Judgment in ABC case rules on confidentiality.
Autorzy :
Thornton J
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Źródło :
Lancet (London, England) [Lancet] 2020 Mar 07; Vol. 395 (10226), pp. 771-772.
Typ publikacji :
Journal Article
MeSH Terms :
Confidentiality*/ethics
Confidentiality*/legislation & jurisprudence
Duty to Warn*/ethics
Duty to Warn*/legislation & jurisprudence
Truth Disclosure*
Access to Information ; Female ; Genetic Testing ; Humans ; Huntington Disease/diagnosis ; Huntington Disease/genetics ; London ; Pregnancy ; State Medicine/ethics
Czasopismo naukowe
Tytuł :
[Place of coordination of complex pathways in oncology by coordinating private nurses].
Autorzy :
Bargoin M; Service de thérapie cellulaire et d'hématologie clinique Adulte, CHU ESTAING, 1, place Lucie-Aubrac, 63100 Clermont-Ferrand, France. Electronic address: .
Rey P; Union régional des professionnels de santé infirmiers libéraux d'Auvergne Rhône-Alpes, 21, quai Antoine-Riboud, 69002 Lyon, France.
Maffre N; Infirmiers libéraux coordinateurs ONC'IDEC, 15, rue Pré-La-Reine, 63000 Clermont-Ferrand, France.
Hudde T; Infirmiers libéraux coordinateurs ONC'IDEC, 15, rue Pré-La-Reine, 63000 Clermont-Ferrand, France.
Sérange E; Infirmiers libéraux coordinateurs ONC'IDEC, 15, rue Pré-La-Reine, 63000 Clermont-Ferrand, France.
Chalard N; Union régional des professionnels de santé infirmiers libéraux d'Auvergne Rhône-Alpes, 21, quai Antoine-Riboud, 69002 Lyon, France.
Guérin B; Réseau régional en cancérologie ONCAUVERGNE, 58, rue Montalembert, 63011 Clermont-Ferrand, France.
Moluçon Chabrot C; Service de thérapie cellulaire et d'hématologie clinique Adulte, CHU ESTAING, 1, place Lucie-Aubrac, 63100 Clermont-Ferrand, France.
Collombet-Migeon F; DGOS : direction générale de l'offre de soins, sous-direction régulation de l'offre de soins, bureau plateaux techniques et prise en charge hospitalière aigüe - R3, 14, avenue Duquesne, 75350 Paris, France.
Bay JO; Service de thérapie cellulaire et d'hématologie clinique Adulte, CHU ESTAING, 1, place Lucie-Aubrac, 63100 Clermont-Ferrand, France.
Bahadoor MRK; Réseau régional en cancérologie ONCAUVERGNE, 58, rue Montalembert, 63011 Clermont-Ferrand, France.
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Transliterated Title :
Place d’une coordination de parcours complexes en cancérologie par des infirmiers libéraux coordinateurs.
Źródło :
Bulletin du cancer [Bull Cancer] 2021 Jul-Aug; Vol. 108 (7-8), pp. 686-695. Date of Electronic Publication: 2021 May 25.
Typ publikacji :
Journal Article
MeSH Terms :
Critical Pathways/*organization & administration
Hotlines/*organization & administration
Medical Oncology/*organization & administration
Nursing, Private Duty/*organization & administration
Oncology Nursing/*organization & administration
Aged ; Communication ; Female ; Health Services Needs and Demand/economics ; Health Services Needs and Demand/statistics & numerical data ; Hospitalization/statistics & numerical data ; Hotlines/statistics & numerical data ; Humans ; Male ; Neoplasms/nursing ; Patient Satisfaction ; Program Evaluation ; Retrospective Studies
Czasopismo naukowe

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