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Tytuł:
The DTC microbiome testing industry needs more regulation.
Autorzy:
Hoffmann DE; University of Maryland School of Law, Baltimore, MD, USA.
von Rosenvinge EC; Department of Medicine, University of Maryland School of Medicine, Baltimore, MD, USA.; Veterans Affairs Maryland Health Care System, Baltimore, MD, USA.
Roghmann MC; Veterans Affairs Maryland Health Care System, Baltimore, MD, USA.; Department of Medicine, University of Maryland School of Medicine, Baltimore, MD, USA.; Department of Epidemiology and Public Health, University of Maryland School of Medicine, Baltimore, MD, USA.
Palumbo FB; University of Maryland School of Pharmacy, Baltimore, MD, USA.; Baker & Hostetler, Washington, DC, USA.
McDonald D; Department of Pediatrics, University of California San Diego School of Medicine, La Jolla, CA, USA.
Ravel J; Institute for Genome Sciences, University of Maryland School of Medicine, Baltimore, MD, USA.; Department of Microbiology and Immunology, University of Maryland School of Medicine, Baltimore, MD, USA.
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Źródło:
Science (New York, N.Y.) [Science] 2024 Mar 15; Vol. 383 (6688), pp. 1176-1179. Date of Electronic Publication: 2024 Mar 14.
Typ publikacji:
Journal Article
MeSH Terms:
Genetic Testing*/standards
Direct-To-Consumer Screening and Testing*/standards
Microbiota*/genetics
Humans
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Community-led risk analysis of direct-to-consumer whole-genome sequencing.
Autorzy:
Samlali K; BricoBio Community Biology Lab, Montréal, QC, Canada.; Centre for Applied Synthetic Biology, Concordia University, Montréal, QC, Canada.; Department of Electrical and Computer Engineering, Concordia University, Montréal, QC, Canada.
Thornbury M; BricoBio Community Biology Lab, Montréal, QC, Canada.; Centre for Applied Synthetic Biology, Concordia University, Montréal, QC, Canada.; Department of Biology, Concordia University, Montréal, QC, Canada.
Venter A; BricoBio Community Biology Lab, Montréal, QC, Canada.
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Źródło:
Biochemistry and cell biology = Biochimie et biologie cellulaire [Biochem Cell Biol] 2022 Dec 01; Vol. 100 (6), pp. 499-509. Date of Electronic Publication: 2022 Aug 08.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Humans ; Genetic Testing ; Genomics ; Risk Assessment
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships.
Autorzy:
Hazel JW; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Hammack-Aviran C; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Brelsford KM; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Malin BA; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Biostatistics, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Electrical Engineering and Computer Science, Vanderbilt University, Nashville, Tennessee, United States of America.
Beskow LM; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Clayton EW; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
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Źródło:
PloS one [PLoS One] 2021 Nov 29; Vol. 16 (11), pp. e0260340. Date of Electronic Publication: 2021 Nov 29 (Print Publication: 2021).
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Testing*
Adult ; Aged ; Exploratory Behavior ; Family ; Female ; Focus Groups ; Humans ; Law Enforcement ; Male ; Middle Aged ; Privacy ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
A principled approach to cross-sector genomic data access.
Autorzy:
Smith M; Center for Law and Justice, Charles Sturt University, Canberra, Australia.
Miller S; Australian Graduate School of Policing and Security, Charles Sturt University, Canberra, Australia.; Delft University of Technology, The Hague, The Netherlands.; University of Oxford, Oxford, UK.
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Źródło:
Bioethics [Bioethics] 2021 Oct; Vol. 35 (8), pp. 779-786. Date of Electronic Publication: 2021 Jul 12.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Privacy*
Genetic Testing ; Genomics ; Humans ; Pedigree
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Increasing Access to HIV Testing Through Direct-to-Consumer HIV Self-Test Distribution - United States, March 31, 2020-March 30, 2021.
Autorzy:
Hecht J
Sanchez T
Sullivan PS
DiNenno EA
Cramer N
Delaney KP
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Źródło:
MMWR. Morbidity and mortality weekly report [MMWR Morb Mortal Wkly Rep] 2021 Sep 24; Vol. 70 (38), pp. 1322-1325. Date of Electronic Publication: 2021 Sep 24.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Self-Testing*
HIV Testing/*statistics & numerical data
Health Services Accessibility/*statistics & numerical data
Adolescent ; Adult ; Female ; HIV Infections/diagnosis ; HIV Infections/epidemiology ; HIV Testing/methods ; Humans ; Male ; Middle Aged ; United States/epidemiology ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
An exploratory assessment of the applicability of direct-to-consumer genetic testing to translational research in Japan.
Autorzy:
Inoue M; HealthData Lab, Yahoo! Japan Corporation, Kioi Tower, Tokyo Garden Terrace Kioicho, 1-3, Kioi-cho, Chiyoda-ku, Tokyo, 102-8282, Japan.
Arichi S; HealthData Lab, Yahoo! Japan Corporation, Kioi Tower, Tokyo Garden Terrace Kioicho, 1-3, Kioi-cho, Chiyoda-ku, Tokyo, 102-8282, Japan.
Hachiya T; HealthData Lab, Yahoo! Japan Corporation, Kioi Tower, Tokyo Garden Terrace Kioicho, 1-3, Kioi-cho, Chiyoda-ku, Tokyo, 102-8282, Japan.
Ohtera A; Real World Evidence Solutions, IQVIA Solutions Japan K.K, Takanawa 4-10-18, Minato-ku, Tokyo, 108-0074, Japan.
Kim SW; Real World Evidence Solutions, IQVIA Solutions Japan K.K, Takanawa 4-10-18, Minato-ku, Tokyo, 108-0074, Japan.
Yu E; Real World Evidence Solutions, IQVIA Solutions Japan K.K, Takanawa 4-10-18, Minato-ku, Tokyo, 108-0074, Japan.
Nishimura M; Daiichi Sankyo Co. Ltd, Tokyo, Japan.
Shiosakai K; Daiichi Sankyo Co. Ltd, Tokyo, Japan.
Ohira T; Daiichi Sankyo Co. Ltd, Tokyo, Japan. .
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Źródło:
BMC research notes [BMC Res Notes] 2021 Jul 23; Vol. 14 (1), pp. 282. Date of Electronic Publication: 2021 Jul 23.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Testing*
Genome-Wide Association Study*
Translational Research, Biomedical*
Aldehyde Dehydrogenase, Mitochondrial ; Humans ; Japan ; Phenotype ; Polymorphism, Single Nucleotide ; Receptors, N-Methyl-D-Aspartate
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Perioperative evaluation of direct-to-consumer genetic testing results.
Autorzy:
Eklund SE; Department of Anesthesiology, Critical Care and Pain Medicine, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.
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Źródło:
Paediatric anaesthesia [Paediatr Anaesth] 2021 May; Vol. 31 (5), pp. 619-620.
Typ publikacji:
Letter
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Testing ; Humans
Opinia redakcyjna
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Direct-to-consumer genetic testing for factor V Leiden and prothrombin 20210G>A: the consumer experience.
Autorzy:
Elson SL; 23andMe, Inc, Sunnyvale, CA, USA.
Furlotte NA; 23andMe, Inc, Sunnyvale, CA, USA.
Hromatka BS; 23andMe, Inc, Sunnyvale, CA, USA.
Wilson CH; 23andMe, Inc, Sunnyvale, CA, USA.
Mountain JL; 23andMe, Inc, Sunnyvale, CA, USA.
Rowbotham HM; 23andMe, Inc, Sunnyvale, CA, USA.
Varga EA; Nationwide Children's Hospital, Columbus, OH, USA.
Francke U; 23andMe, Inc, Sunnyvale, CA, USA.; Department of Genetics, Stanford University Stanford, CA, USA.
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Źródło:
Molecular genetics & genomic medicine [Mol Genet Genomic Med] 2020 Nov; Vol. 8 (11), pp. e1468. Date of Electronic Publication: 2020 Sep 16.
Typ publikacji:
Journal Article
MeSH Terms:
Attitude*
Direct-To-Consumer Screening and Testing/*psychology
Factor V/*genetics
Genetic Testing/*statistics & numerical data
Prothrombin/*genetics
Adult ; Direct-To-Consumer Screening and Testing/statistics & numerical data ; Female ; Gene Frequency ; Health Behavior ; Heterozygote ; Humans ; Male ; Patients/psychology
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Benefits and Risks of Direct-to-Consumer Testing.
Autorzy:
Ayala-Lopez N; From the Department of Pathology, Johns Hopkins University School of Medicine, Baltimore, Maryland (Ayala-Lopez).
Nichols JH; the Department of Pathology, Microbiology and Immunology, Vanderbilt University Medical Center, Nashville, Tennessee (Nichols).
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Źródło:
Archives of pathology & laboratory medicine [Arch Pathol Lab Med] 2020 Oct 01; Vol. 144 (10), pp. 1193-1198.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Confidentiality ; Genetic Testing ; Humans ; Risk Assessment
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions.
Autorzy:
Yin Z; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Electrical Engineering and Computer Science, Vanderbilt University, Nashville, Tennessee, United States of America.; Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Song L; Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Sociology, Vanderbilt University, Nashville, Tennessee, United States of America.
Clayton EW; Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
Malin BA; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Electrical Engineering and Computer Science, Vanderbilt University, Nashville, Tennessee, United States of America.; Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.; Department of Biostatistics, Vanderbilt University Medical Center, Nashville, Tennessee, United States of America.
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Źródło:
PloS one [PLoS One] 2020 Sep 08; Vol. 15 (9), pp. e0238644. Date of Electronic Publication: 2020 Sep 08 (Print Publication: 2020).
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Testing*
Health*
Internet*
Interpersonal Relations*
Humans ; Probability ; Social Media
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Genotype concordance and polygenic risk score estimation across consumer genetic testing data.
Autorzy:
Batra P; School of Medicine, New York University, New York, New York.
Huang KL; Department of Genetics and Genomics, Icahn School of Medicine at Mount Sinai, New York, New York.; Tisch Cancer Institute, New York, New York.; Icahn Institute for Data Science and Genomic Technology, Icahn School of Medicine at Mount Sinai, New York, New York.
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Źródło:
Annals of human genetics [Ann Hum Genet] 2020 Jul; Vol. 84 (4), pp. 352-356. Date of Electronic Publication: 2020 May 21.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Testing*/methods
Genetic Testing*/standards
Genotype*
Humans ; Multifactorial Inheritance ; Risk Factors
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Exploring Genetic Data Across Individuals: Design and Evaluation of a Novel Comparative Report Tool.
Autorzy:
Westendorf L; Human-Computer Interaction Lab, Computer Science, Wellesley College, Wellesley, MA, United States.
Shaer O; Human-Computer Interaction Lab, Computer Science, Wellesley College, Wellesley, MA, United States.
Pollalis C; Human-Computer Interaction Lab, Computer Science, Wellesley College, Wellesley, MA, United States.
Verish C; Human-Computer Interaction Lab, Computer Science, Wellesley College, Wellesley, MA, United States.
Nov O; Department of Technology Management & Innovation, New York University, Tandon School of Engineering, Brooklyn, NY, United States.
Ball MP; Open Humans Foundation, Boston, MA, United States.
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Źródło:
Journal of medical Internet research [J Med Internet Res] 2018 Sep 24; Vol. 20 (9), pp. e10297. Date of Electronic Publication: 2018 Sep 24.
Typ publikacji:
Evaluation Study; Journal Article; Research Support, U.S. Gov't, Non-P.H.S.
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Predisposition to Disease*
Genomics*
Pedigree*
Adult ; Family ; Female ; Humans ; Male ; Middle Aged ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekstSzczegóły
Tytuł:
Feasibility and acceptability of home-based HIV testing among refugees: a pilot study in Nakivale refugee settlement in southwestern Uganda.
Autorzy:
O'Laughlin KN; Department of Emergency Medicine, Brigham & Women's Hospital, 75 Francis Street, Boston, MA, 02115, USA. .; Medical Practice Evaluation Center, Department of Medicine, Massachusetts General Hospital, 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA. .; Harvard Medical School, Boston, MA, 02114-2698, USA. .; Harvard Humanitarian Initiative, Cambridge, MA, USA. .
He W; Division of General Medicine, Massachusetts General Hospital, 50 Staniford St, Suite 560, Boston, MA, 02114-2698, USA.
Greenwald KE; Harvard Affiliated Emergency Medicine Residency, 75 Francis Street, Boston, MA, 02115, USA.
Kasozi J; United Nations High Commissioner for Refugees, Representation in Uganda, P.O. Box 3813, Kampala, Uganda.
Chang Y; Harvard Medical School, Boston, MA, 02114-2698, USA.; Division of General Medicine, Massachusetts General Hospital, 50 Staniford St, Suite 560, Boston, MA, 02114-2698, USA.
Mulogo E; Department of Community Health, Mbarara University of Science and Technology, P.O Box 1410, Mbarara, Uganda.
Faustin ZM; Bugema University, Kasese Campus, P.O. Box 6529, Kampala, Uganda.
Njogu P; United Nations High Commissioner for Refugees, Representation in Kenya, P.O. Box 43801-00100, Nairobi, Kenya.
Walensky RP; Medical Practice Evaluation Center, Department of Medicine, Massachusetts General Hospital, 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA.; Harvard Medical School, Boston, MA, 02114-2698, USA.; Division of Infectious Disease, Massachusetts General Hospital, 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA.; Division of Infectious Disease, Brigham & Women's Hospital, 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA.; Harvard University Center for AIDS Research (CFAR), 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA.
Bassett IV; Medical Practice Evaluation Center, Department of Medicine, Massachusetts General Hospital, 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA.; Harvard Medical School, Boston, MA, 02114-2698, USA.; Division of Infectious Disease, Massachusetts General Hospital, 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA.; Harvard University Center for AIDS Research (CFAR), 50 Staniford St, 9th Floor, Boston, MA, 02114-2698, USA.
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Źródło:
BMC infectious diseases [BMC Infect Dis] 2018 Jul 16; Vol. 18 (1), pp. 332. Date of Electronic Publication: 2018 Jul 16.
Typ publikacji:
Evaluation Study; Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Reagent Kits, Diagnostic*
Refugees*
HIV Infections/*diagnosis
Adult ; Chi-Square Distribution ; Feasibility Studies ; Female ; HIV Infections/epidemiology ; Humans ; Logistic Models ; Male ; Middle Aged ; Pilot Projects ; Prevalence ; Surveys and Questionnaires ; Uganda/epidemiology
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Issues surrounding consumer-bought food-allergy testing.
Autorzy:
Wong AWY; Department of Dermatology, Portsmouth Hospital, Portsmouth, UK.
White HEG; Department of Dermatology, Portsmouth Hospital, Portsmouth, UK.
Plant A; Department of Dermatology, Portsmouth Hospital, Portsmouth, UK.
Shipman AR; Department of Dermatology, Portsmouth Hospital, Portsmouth, UK.
Shipman KE; Department of Clinical Biochemistry, Worthing Hospital, Worthing, UK.
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Źródło:
Clinical and experimental dermatology [Clin Exp Dermatol] 2022 Mar; Vol. 47 (3), pp. 547-552. Date of Electronic Publication: 2021 Nov 10.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing/*standards
Food Hypersensitivity/*diagnosis
Accreditation ; Consumer Behavior ; Humans ; Immunoglobulin E/blood ; United Kingdom
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Consumer use and response to online third-party raw DNA interpretation services.
Autorzy:
Wang C; Department of Community Health Sciences, School of Public Health, Boston University, Boston, MA, USA.
Cahill TJ; Division of Emerging Media Studies, College of Communication, Boston University, Boston, MA, USA.
Parlato A; Division of Emerging Media Studies, College of Communication, Boston University, Boston, MA, USA.
Wertz B; Division of Emerging Media Studies, College of Communication, Boston University, Boston, MA, USA.
Zhong Q; Division of Emerging Media Studies, College of Communication, Boston University, Boston, MA, USA.
Cunningham TN; Department of Community Health Sciences, School of Public Health, Boston University, Boston, MA, USA.
Cummings JJ; Division of Emerging Media Studies, College of Communication, Boston University, Boston, MA, USA.
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Źródło:
Molecular genetics & genomic medicine [Mol Genet Genomic Med] 2018 Jan; Vol. 6 (1), pp. 35-43. Date of Electronic Publication: 2017 Nov 02.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Direct-To-Consumer Screening and Testing/*ethics
Direct-To-Consumer Screening and Testing/*statistics & numerical data
Genetic Testing/*methods
Adult ; Aged ; Aged, 80 and over ; Choice Behavior ; Direct-To-Consumer Screening and Testing/economics ; Female ; Humans ; Internet ; Male ; Middle Aged ; Sequence Analysis, DNA/methods ; Sequence Analysis, DNA/statistics & numerical data ; Social Media ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Effectiveness of personal genomic testing for disease-prevention behavior when combined with careful consultation with a physician: a preliminary study.
Autorzy:
Hayashi M; Department of General Medicine, School of Medicine, Juntendo University, 2-1-1, Hongo, Bunkyo-ku, Tokyo, 113-8421, Japan. .
Watanabe A; The Cancer Institute Hospital of JFCR, Tokyo, Japan.
Muramatsu M; Department of Molecular Epidemiology, Medical Research Institute, Tokyo Medical and Dental University, Tokyo, Japan.
Yamashita N; Institute of Medical Science, University of Tokyo, Tokyo, Japan.
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Źródło:
BMC research notes [BMC Res Notes] 2018 Apr 03; Vol. 11 (1), pp. 223. Date of Electronic Publication: 2018 Apr 03.
Typ publikacji:
Journal Article
MeSH Terms:
Direct-To-Consumer Screening and Testing*
Genetic Counseling*
Genetic Testing*
Health Knowledge, Attitudes, Practice*
Primary Prevention*
Risk Reduction Behavior*
Adult ; Female ; Humans ; Male ; Middle Aged ; Physicians
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Rural-urban and racial-ethnic differences in awareness of direct-to-consumer genetic testing.
Autorzy:
Salloum RG; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, 2004 Mowry Road, PO Box 100177, Gainesville, FL, 32610, USA. .
George TJ; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, 2004 Mowry Road, PO Box 100177, Gainesville, FL, 32610, USA.; Department of Medicine Division of Hematology/Oncology, University of Florida, Gainesville, USA.
Silver N; Department of Otolaryngology, University of Florida, Gainesville, USA.
Markham MJ; Department of Medicine Division of Hematology/Oncology, University of Florida, Gainesville, USA.
Hall JM; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, 2004 Mowry Road, PO Box 100177, Gainesville, FL, 32610, USA.
Guo Y; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, 2004 Mowry Road, PO Box 100177, Gainesville, FL, 32610, USA.
Bian J; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, 2004 Mowry Road, PO Box 100177, Gainesville, FL, 32610, USA.
Shenkman EA; Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, 2004 Mowry Road, PO Box 100177, Gainesville, FL, 32610, USA.
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Źródło:
BMC public health [BMC Public Health] 2018 Feb 23; Vol. 18 (1), pp. 277. Date of Electronic Publication: 2018 Feb 23.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Direct-To-Consumer Screening and Testing*/statistics & numerical data
Genetic Testing*/statistics & numerical data
Health Knowledge, Attitudes, Practice*/ethnology
Rural Population*/statistics & numerical data
Urban Population*/statistics & numerical data
Ethnicity/*psychology
Racial Groups/*psychology
Adolescent ; Adult ; Black or African American/psychology ; Black or African American/statistics & numerical data ; Aged ; Cross-Sectional Studies ; Ethnicity/statistics & numerical data ; Female ; Health Surveys ; Healthcare Disparities/ethnology ; Hispanic or Latino/psychology ; Hispanic or Latino/statistics & numerical data ; Humans ; Male ; Middle Aged ; Minority Groups/psychology ; Minority Groups/statistics & numerical data ; Racial Groups/statistics & numerical data ; United States ; White People/psychology ; White People/statistics & numerical data ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Regulating forensic genetic genealogy.
Autorzy:
Ram N; University of Maryland Carey School of Law, Baltimore, MD, USA.
Murphy EE; New York University School of Law, New York, NY, USA.
Suter SM; The George Washington University Law School, Washington, DC, USA.
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Źródło:
Science (New York, N.Y.) [Science] 2021 Sep 24; Vol. 373 (6562), pp. 1444-1446. Date of Electronic Publication: 2021 Sep 23.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Genetic Privacy*
Law Enforcement*/ethics
Forensic Genetics/*legislation & jurisprudence
Databases, Nucleic Acid ; Direct-To-Consumer Screening and Testing/legislation & jurisprudence ; Humans ; Maryland ; Pedigree ; Police/ethics ; Police/legislation & jurisprudence
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
"Welcome to You": A Reflection on Genetic Self-Exploration.
Autorzy:
Sunde K
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Źródło:
Narrative inquiry in bioethics [Narrat Inq Bioeth] 2015 Winter; Vol. 5 (3), pp. 220-2.
Typ publikacji:
Journal Article; Personal Narrative
MeSH Terms:
Direct-To-Consumer Screening and Testing*/ethics
Direct-To-Consumer Screening and Testing*/psychology
Genetic Testing*/ethics
Genetic Predisposition to Disease/genetics ; Genetic Predisposition to Disease/psychology ; Humans ; Sequence Analysis, DNA/ethics
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Current landscape of direct-to-consumer genetic testing and its role in ophthalmology: a review.
Autorzy:
Sanfilippo PG; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, University of Melbourne, Melbourne, Victoria, Australia.
Kearns LS; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, University of Melbourne, Melbourne, Victoria, Australia.
Wright P; Lions Eye Institute, Centre for Ophthalmology and Visual Science, University of Western Australia, Perth, Western Australia, Australia.; School of Medicine, Queen's Medical Centre, The University of Nottingham, Nottingham, UK.
Mackey DA; Lions Eye Institute, Centre for Ophthalmology and Visual Science, University of Western Australia, Perth, Western Australia, Australia.; School of Medicine, Menzies Research Institute Tasmania, University of Tasmania, Hobart, Tasmania, Australia.
Hewitt AW; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, University of Melbourne, Melbourne, Victoria, Australia.; Lions Eye Institute, Centre for Ophthalmology and Visual Science, University of Western Australia, Perth, Western Australia, Australia.; School of Medicine, Menzies Research Institute Tasmania, University of Tasmania, Hobart, Tasmania, Australia.
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Źródło:
Clinical & experimental ophthalmology [Clin Exp Ophthalmol] 2015 Aug; Vol. 43 (6), pp. 578-90. Date of Electronic Publication: 2015 Apr 27.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't; Review
MeSH Terms:
Biomedical Research*
Eye Diseases, Hereditary*
Direct-To-Consumer Screening and Testing/*standards
Genetic Testing/*standards
Direct-To-Consumer Screening and Testing/ethics ; Direct-To-Consumer Screening and Testing/organization & administration ; Genetic Testing/ethics ; Genetic Testing/legislation & jurisprudence ; Health Policy/legislation & jurisprudence ; Humans ; Informed Consent ; Ophthalmology
Czasopismo naukowe
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