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Title:
The knowledge and reuse practices of researchers utilising government health information assets, Victoria, Australia, 2008-2020.
Authors:
Riley M; Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.
Robinson K; Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.
Kilkenny MF; Stroke and Ageing Research, Department of Medicine, School of Clinical Sciences at Monash Health, Monash University, Victoria, Australia.; Stroke Division, The Florey Institute of Neuroscience and Mental Health, Melbourne Brain Centre, University of Melbourne, Victoria, Australia.
Leggat SG; Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.; School of Public Health and Tropical Medicine, James Cook University, Townsville, Australia.
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PloS one [PLoS One] 2024 Feb 01; Vol. 19 (2), pp. e0297396. Date of Electronic Publication: 2024 Feb 01 (Print Publication: 2024).
Publication Type:
Journal Article
MeSH Terms:
Confidentiality*
Informed Consent*
Humans ; Victoria ; Cross-Sectional Studies ; Government
Academic Journal
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Title:
Improving the inclusion of an under-served group in trials: development and implementation of the INCLUDE Impaired Capacity to Consent Framework.
Authors:
Shepherd V; Centre for Trials Research, Cardiff University, 4th floor Neuadd Meirionnydd, Heath Park, Cardiff, CF14 4YS, UK. .
Joyce K; Bristol Trials Centre, Bristol Medical School, University of Bristol, Bristol, UK.
Lewis A; Bristol Trials Centre, Bristol Medical School, University of Bristol, Bristol, UK.
Flynn S; CEDAR (Centre for Educational Development, Appraisal and Research), University of Warwick, Warwick, UK.
Clout M; Bristol Trials Centre, Bristol Medical School, University of Bristol, Bristol, UK.
Nocivelli B; Division of Population Medicine, School of Medicine, Cardiff University, Cardiff, UK.
Segrott J; Centre for Trials Research, Cardiff University, 4th floor Neuadd Meirionnydd, Heath Park, Cardiff, CF14 4YS, UK.
Treweek S; Health Services Research Unit, University of Aberdeen, Aberdeen, UK.
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Source:
Trials [Trials] 2024 Jan 25; Vol. 25 (1), pp. 83. Date of Electronic Publication: 2024 Jan 25.
Publication Type:
Journal Article
MeSH Terms:
Informed Consent*
Adult ; Humans ; Surveys and Questionnaires ; Clinical Trials as Topic
Academic Journal
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Title:
Randomized study of two different consent procedures on recall: a study within a digital alcohol intervention trial.
Authors:
Ulfsdotter Gunnarsson K; Department of Health, Medicine and Caring Sciences, Division of Society and Health, Linköping University, 581 83, Linköping, Sweden. .
Collier ES; Department of Health, Medicine and Caring Sciences, Division of Society and Health, Linköping University, 581 83, Linköping, Sweden.; Perception & Design Unit, Division of Bioeconomy & Health, RISE Research Institutes of Sweden, Gothenburg, Sweden.
McCambridge J; Department of Health Sciences, University of York, York, UK.
Bendtsen M; Department of Health, Medicine and Caring Sciences, Division of Society and Health, Linköping University, 581 83, Linköping, Sweden.
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Source:
Trials [Trials] 2024 Jan 02; Vol. 25 (1), pp. 5. Date of Electronic Publication: 2024 Jan 02.
Publication Type:
Randomized Controlled Trial; Journal Article
MeSH Terms:
Informed Consent*
Mental Recall*
Humans ; Consent Forms ; Research Design ; Surveys and Questionnaires
Academic Journal
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Title:
Participants' understanding of informed consent in clinical trials: A systematic review and updated meta-analysis.
Authors:
Wu C; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wang N; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wang Q; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wang C; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wei Z; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wu Z; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Yu S; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Jiang X; Beijing Jishuitan Hospital, Capital Medical University, Beijing Research Institute of Traumatology and Orthopaedics, Beijing, China.
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Source:
PloS one [PLoS One] 2024 Jan 02; Vol. 19 (1), pp. e0295784. Date of Electronic Publication: 2024 Jan 02 (Print Publication: 2024).
Publication Type:
Meta-Analysis; Systematic Review; Journal Article
MeSH Terms:
Comprehension*
Informed Consent*
Humans ; Clinical Trials as Topic
Academic Journal
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Title:
uConsent: Addressing the gap in measuring understanding of informed consent in clinical research.
Authors:
Ittenbach RF; Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.
Gaynor JW; Division of Cardiothoracic Surgery, Department of Surgery, Children's Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Dorich JM; Division of Patient Services, Cincinnati Children's Hospital and Department of Orthopedic Surgery, University of Cincinnati College of Medicine, Ohio, Cincinnati, USA.; Department of Rehabilitation, Exercise and Nutrition Sciences, University of Cincinnati College of Allied Health Sciences, Ohio, Cincinnati, USA.
Burnham NB; Division of Cardiothoracic Surgery, Department of Surgery, Children's Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Huang G; Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.
Harvey MT; Division of Cardiothoracic Surgery, Department of Surgery, Children's Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Corsmo JJ; Research Administration, Kennedy Krieger Institute, Baltimore, Maryland, USA.
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Source:
Clinical and translational science [Clin Transl Sci] 2023 Dec; Vol. 16 (12), pp. 2530-2542. Date of Electronic Publication: 2023 Oct 12.
Publication Type:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Biological Specimen Banks*
Informed Consent*
Adolescent ; Young Adult ; Humans ; Child ; Surveys and Questionnaires ; Psychometrics ; Reproducibility of Results
Academic Journal
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Title:
A response to Al et al. Trials 2023;24:233.
Authors:
Merz JF; Department of Medical Ethics & Health Policy, Perelman School of Medicine at the University of Pennsylvania, Blockley Hall 1427, 423 Guardian Drive, Philadelphia, PA, 19104-4884, USA. .
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Source:
Trials [Trials] 2023 Aug 13; Vol. 24 (1), pp. 525. Date of Electronic Publication: 2023 Aug 13.
Publication Type:
Letter; Comment
MeSH Terms:
Informed Consent*/ethics
Patient Preference*
Humans ; Research Subjects ; Ethical Analysis
Editorial & Opinion
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Title:
Experiences of patients and next of kin on informed consent process for emergency surgery in two Urban university teaching hospitals in Uganda: a comparative cross sectional study.
Authors:
Kituuka O; Department of Surgery, Makerere University College of Health Sciences, Kampala, Uganda. .
Mwaka E; Department of Anatomy, Makerere University College of Health Sciences, Kampala, Uganda.
Munabi I; Department of Anatomy, Makerere University College of Health Sciences, Kampala, Uganda.
Galukande M; Department of Surgery, Makerere University College of Health Sciences, Kampala, Uganda.
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Source:
BMC emergency medicine [BMC Emerg Med] 2023 Aug 02; Vol. 23 (1), pp. 82. Date of Electronic Publication: 2023 Aug 02.
Publication Type:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Hospitals, Teaching*
Informed Consent*
Humans ; Cross-Sectional Studies ; Uganda ; Universities ; Surveys and Questionnaires
Academic Journal
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Title:
SWAT 84: effects of same-day consent vs delayed consent on the recruitment and retention of trial participants-an observational SWAT.
Authors:
Elfghi M; School of Medicine, University of Galway, University Road, Galway, Ireland. .
Jordan F; School of Medicine, University of Galway, University Road, Galway, Ireland.
Sultan S; Department of Vascular and Endovascular Surgery, University College Hospital, Galway (UCHG), Newcastle Road, Galway, Ireland.
Tawfick W; School of Medicine, University of Galway, University Road, Galway, Ireland.; Department of Vascular and Endovascular Surgery, University College Hospital, Galway (UCHG), Newcastle Road, Galway, Ireland.
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Source:
Trials [Trials] 2023 Oct 25; Vol. 24 (1), pp. 691. Date of Electronic Publication: 2023 Oct 25.
Publication Type:
Journal Article; Observational Study; Randomized Controlled Trial
MeSH Terms:
Informed Consent*
Research Design*
Humans ; Northern Ireland ; Patient Selection ; Prospective Studies
Academic Journal
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Title:
Informed consent in cancer clinical drug trials in China: a narrative literature review of the past 20 years.
Authors:
Liu X; Medical Ethics Committee, Xiangya Hospital of Central South University, 87 Xiangya Road, Changsha, 410008, Hunan, People's Republic of China.
Lu X; School of Humanities, Central South University, Changsha, 410075, Hunan, People's Republic of China.
Zhou W; School of Public Administration, Hunan University, Changsha, 410023, Hunan, People's Republic of China.
Hahne J; Department of Psychological & Brain Sciences, Washington University in St. Louis, St. Louis, MO, USA.
Khoshnood K; Yale School of Public Health, Yale University, 60 College Street, New Haven, CT, 06520, USA.
Shi X; Department of Environmental Health Sciences, Yale School of Public Health, 60 College St, New Haven, CT, 06520, USA.
Zhong Y; School of Humanities, Central South University, Changsha, 410075, Hunan, People's Republic of China.
Wang X; Center for Clinical Pharmacology, The Third Xiangya Hospital, Central South University, Changsha, 410013, Hunan, People's Republic of China. .
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Source:
Trials [Trials] 2023 Jul 07; Vol. 24 (1), pp. 445. Date of Electronic Publication: 2023 Jul 07.
Publication Type:
Journal Article; Review
MeSH Terms:
Informed Consent*
Neoplasms*/drug therapy
Adult ; Humans ; Disclosure ; Narration ; Data Management
Academic Journal
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Title:
Get this thing out of my body! Factors determining consent for translational oncology research: a qualitative research.
Authors:
Caroline D; Centre de Recherche des Cordeliers, Sorbonne Université, Université Paris Cité, Inserm, Laboratoire Êtres, Unité Fonctionnelle d'Éthique Médicale, Hôpital Necker-Enfants Malades, APHP, Paris, France. .
Marie-France M; Centre de Recherche des Cordeliers, Sorbonne Université, Université Paris Cité, Inserm, Laboratoire Êtres, Unité Fonctionnelle d'Éthique Médicale, Hôpital Necker-Enfants Malades, APHP, Paris, France.
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Source:
Journal of translational medicine [J Transl Med] 2023 May 21; Vol. 21 (1), pp. 336. Date of Electronic Publication: 2023 May 21.
Publication Type:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Informed Consent*
Neoplasms*
Humans ; Translational Research, Biomedical ; Biological Specimen Banks ; Qualitative Research
Academic Journal
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Title:
How informed is informed consent?-Evaluating the quality of informed consent among surgical patients in a tertiary care hospital in Nepal.
Authors:
Basukala S; Department of Surgery, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Shrestha O; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Thapa N; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Karki S; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Pandit A; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Thapa BB; Department of Surgery, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Thapa A; Department of Surgery, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
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Source:
PloS one [PLoS One] 2023 Jul 10; Vol. 18 (7), pp. e0288074. Date of Electronic Publication: 2023 Jul 10 (Print Publication: 2023).
Publication Type:
Journal Article
MeSH Terms:
Informed Consent*
Humans ; Adult ; Middle Aged ; Cross-Sectional Studies ; Nepal ; Prospective Studies ; Tertiary Care Centers ; Surveys and Questionnaires
Academic Journal
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Title:
A qualitative exploration of obtaining informed consent in medical consultations with Burma-born women.
Authors:
Power A; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia; and The Royal Australian College of General Practitioners, East Melbourne, Vic. 3002, Australia.
Tuteja A; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia.
Mascarenhas L; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia; and Utopia Refugee and Asylum Seeker Health, Hoppers Crossing, Vic. 3029, Australia.
Temple-Smith M; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia.
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Source:
Australian journal of primary health [Aust J Prim Health] 2023 Jul; Vol. 29 (3), pp. 284-291.
Publication Type:
Journal Article
MeSH Terms:
Informed Consent*
Women's Health*
Humans ; Male ; Female ; Myanmar ; Australia ; Referral and Consultation ; Qualitative Research
Academic Journal
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Title:
Experiences of parents and caretakers going through the consent process to perform minimally invasive tissue sampling (MITS) on their deceased children in Quelimane, Mozambique: A qualitative study.
Authors:
Magaço A; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Maixenchs M; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; ISGlobal, Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.
Macete Y; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Escritório N; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Mucor R; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Calia A; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Sitoe A; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Xirinda E; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Vitorino P; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Garel M; Emory Global Health Institute, Atlanta, GA, United States of America.
Breiman RF; Department of Global Health, Rollins School of Public Health, Emory University, Atlanta, GA, United States of America.
Amouzou A; Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Bassat Q; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; ISGlobal, Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.; ICREA, Pg. Lluís Companys, Barcelona, Spain.; Pediatrics Department, Hospital Sant Joan de Déu, Universitat de Barcelona, Esplugues, Barcelona, Spain.; Consorcio de Investigación Biomédica en Red de Epidemiología y Salud Pública (CIBERESP), Madrid, Spain.
Mandomando I; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; Instituto Nacional de Saúde (INS), Ministério da Saúde, Maputo, Mozambique.
Blevins J; Emory Global Health Institute, Atlanta, GA, United States of America.
Munguambe K; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; Faculdade de Medicina, Universidade Eduardo Mondlane, Maputo, Mozambique.
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Source:
PloS one [PLoS One] 2023 Jun 09; Vol. 18 (6), pp. e0286785. Date of Electronic Publication: 2023 Jun 09 (Print Publication: 2023).
Publication Type:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Parents*
Informed Consent*
Female ; Pregnancy ; Humans ; Child ; Mozambique ; Cause of Death ; Qualitative Research
Academic Journal
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Title:
Does the feedback of blood results in observational studies influence response and consent? A randomised study of the Understanding Society Innovation Panel.
Authors:
Benzeval M; Institute for Social and Economic Research, University of Essex, Colchester, UK. .
Andrayas A; Institute for Social and Economic Research, University of Essex, Colchester, UK.; School of Psychological Science, University of Bristol, Bristol, UK.
Mazza J; European University Institute, Fiesole, Italy.
Al Baghal T; Institute for Social and Economic Research, University of Essex, Colchester, UK.
Burton J; Institute for Social and Economic Research, University of Essex, Colchester, UK.
Crossley TF; European University Institute, Fiesole, Italy.
Kumari M; Institute for Social and Economic Research, University of Essex, Colchester, UK.
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Source:
BMC medical research methodology [BMC Med Res Methodol] 2023 Jun 07; Vol. 23 (1), pp. 134. Date of Electronic Publication: 2023 Jun 07.
Publication Type:
Randomized Controlled Trial; Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Family Characteristics*
Informed Consent*
Humans ; Longitudinal Studies ; Surveys and Questionnaires ; Feedback
Academic Journal
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Title:
A one-size-fits-all approach to data-sharing will not suffice in lifecourse research: a grounded theory study of data-sharing from the perspective of participants in a 50-year-old lifecourse study about health and development.
Authors:
Reeves J; Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand.
Treharne GJ; Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand. .
Ratima M; Te Pou Tiringa, New Plymouth, Aotearoa, New Zealand.
Theodore R; Dunedin Multidisciplinary Health and Development Research Unit, Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand.
Edwards W; Taumata Associates, New Plymouth, Aotearoa, New Zealand.
Poulton R; Dunedin Multidisciplinary Health and Development Research Unit, Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand.
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Source:
BMC medical research methodology [BMC Med Res Methodol] 2023 May 16; Vol. 23 (1), pp. 118. Date of Electronic Publication: 2023 May 16.
Publication Type:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Informed Consent*
Information Dissemination*
Humans ; Middle Aged ; Cohort Studies ; Grounded Theory ; Qualitative Research
Academic Journal
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Title:
Consent as a compositional act - a framework that provides clarity for the retention and use of data.
Authors:
Rivas Velarde MC; Geneva School of Health Science, University of Applied Sciences Geneva HES-SO, Geneva, Switzerland. .
Lovis C; Division of Medical Information Sciences, Department of Radiology and Medical Informatics, University Hospital of Geneva, Geneva, Switzerland.
Ienca M; Institute for Ethics and History of Medicine, Department of Clinical Medicine, School of Medicine and Health, Technical University of Munich, Munich, Germany.; College of Humanities, Swiss Federal Institute of Technology in Lausanne, Lausanne, Switzerland.
Samer C; Division of Clinical Pharmacology and Toxicology, Geneva University Hospitals, Geneva, Switzerland.
Hurst S; Institute for Ethics, History, and the Humanities (iEH2), Faculty of Medicine, University of Geneva, Geneva, Switzerland.
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Source:
Philosophy, ethics, and humanities in medicine : PEHM [Philos Ethics Humanit Med] 2024 Mar 06; Vol. 19 (1), pp. 2. Date of Electronic Publication: 2024 Mar 06.
Publication Type:
Journal Article
MeSH Terms:
Biomedical Research*
Humans ; Communication ; Concept Formation ; Informed Consent ; Social Responsibility
Academic Journal
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Showing 1-20 from 44906 results

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