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Tytuł:
The knowledge and reuse practices of researchers utilising government health information assets, Victoria, Australia, 2008-2020.
Autorzy:
Riley M; Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.
Robinson K; Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.
Kilkenny MF; Stroke and Ageing Research, Department of Medicine, School of Clinical Sciences at Monash Health, Monash University, Victoria, Australia.; Stroke Division, The Florey Institute of Neuroscience and Mental Health, Melbourne Brain Centre, University of Melbourne, Victoria, Australia.
Leggat SG; Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.; School of Public Health and Tropical Medicine, James Cook University, Townsville, Australia.
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Źródło:
PloS one [PLoS One] 2024 Feb 01; Vol. 19 (2), pp. e0297396. Date of Electronic Publication: 2024 Feb 01 (Print Publication: 2024).
Typ publikacji:
Journal Article
MeSH Terms:
Confidentiality*
Informed Consent*
Humans ; Victoria ; Cross-Sectional Studies ; Government
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Improving the inclusion of an under-served group in trials: development and implementation of the INCLUDE Impaired Capacity to Consent Framework.
Autorzy:
Shepherd V; Centre for Trials Research, Cardiff University, 4th floor Neuadd Meirionnydd, Heath Park, Cardiff, CF14 4YS, UK. .
Joyce K; Bristol Trials Centre, Bristol Medical School, University of Bristol, Bristol, UK.
Lewis A; Bristol Trials Centre, Bristol Medical School, University of Bristol, Bristol, UK.
Flynn S; CEDAR (Centre for Educational Development, Appraisal and Research), University of Warwick, Warwick, UK.
Clout M; Bristol Trials Centre, Bristol Medical School, University of Bristol, Bristol, UK.
Nocivelli B; Division of Population Medicine, School of Medicine, Cardiff University, Cardiff, UK.
Segrott J; Centre for Trials Research, Cardiff University, 4th floor Neuadd Meirionnydd, Heath Park, Cardiff, CF14 4YS, UK.
Treweek S; Health Services Research Unit, University of Aberdeen, Aberdeen, UK.
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Źródło:
Trials [Trials] 2024 Jan 25; Vol. 25 (1), pp. 83. Date of Electronic Publication: 2024 Jan 25.
Typ publikacji:
Journal Article
MeSH Terms:
Informed Consent*
Adult ; Humans ; Surveys and Questionnaires ; Clinical Trials as Topic
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Randomized study of two different consent procedures on recall: a study within a digital alcohol intervention trial.
Autorzy:
Ulfsdotter Gunnarsson K; Department of Health, Medicine and Caring Sciences, Division of Society and Health, Linköping University, 581 83, Linköping, Sweden. .
Collier ES; Department of Health, Medicine and Caring Sciences, Division of Society and Health, Linköping University, 581 83, Linköping, Sweden.; Perception & Design Unit, Division of Bioeconomy & Health, RISE Research Institutes of Sweden, Gothenburg, Sweden.
McCambridge J; Department of Health Sciences, University of York, York, UK.
Bendtsen M; Department of Health, Medicine and Caring Sciences, Division of Society and Health, Linköping University, 581 83, Linköping, Sweden.
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Źródło:
Trials [Trials] 2024 Jan 02; Vol. 25 (1), pp. 5. Date of Electronic Publication: 2024 Jan 02.
Typ publikacji:
Randomized Controlled Trial; Journal Article
MeSH Terms:
Informed Consent*
Mental Recall*
Humans ; Consent Forms ; Research Design ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Participants' understanding of informed consent in clinical trials: A systematic review and updated meta-analysis.
Autorzy:
Wu C; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wang N; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wang Q; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wang C; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wei Z; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Wu Z; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Yu S; Department of Molecular Orthopaedics, Beijing Research Institute of Traumatology and Orthopaedics, Beijing Jishuitan Hospital, Capital Medical University, Beijing, China.
Jiang X; Beijing Jishuitan Hospital, Capital Medical University, Beijing Research Institute of Traumatology and Orthopaedics, Beijing, China.
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Źródło:
PloS one [PLoS One] 2024 Jan 02; Vol. 19 (1), pp. e0295784. Date of Electronic Publication: 2024 Jan 02 (Print Publication: 2024).
Typ publikacji:
Meta-Analysis; Systematic Review; Journal Article
MeSH Terms:
Comprehension*
Informed Consent*
Humans ; Clinical Trials as Topic
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
uConsent: Addressing the gap in measuring understanding of informed consent in clinical research.
Autorzy:
Ittenbach RF; Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.
Gaynor JW; Division of Cardiothoracic Surgery, Department of Surgery, Children's Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Dorich JM; Division of Patient Services, Cincinnati Children's Hospital and Department of Orthopedic Surgery, University of Cincinnati College of Medicine, Ohio, Cincinnati, USA.; Department of Rehabilitation, Exercise and Nutrition Sciences, University of Cincinnati College of Allied Health Sciences, Ohio, Cincinnati, USA.
Burnham NB; Division of Cardiothoracic Surgery, Department of Surgery, Children's Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Huang G; Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.
Harvey MT; Division of Cardiothoracic Surgery, Department of Surgery, Children's Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Corsmo JJ; Research Administration, Kennedy Krieger Institute, Baltimore, Maryland, USA.
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Źródło:
Clinical and translational science [Clin Transl Sci] 2023 Dec; Vol. 16 (12), pp. 2530-2542. Date of Electronic Publication: 2023 Oct 12.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Biological Specimen Banks*
Informed Consent*
Adolescent ; Young Adult ; Humans ; Child ; Surveys and Questionnaires ; Psychometrics ; Reproducibility of Results
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
A response to Al et al. Trials 2023;24:233.
Autorzy:
Merz JF; Department of Medical Ethics & Health Policy, Perelman School of Medicine at the University of Pennsylvania, Blockley Hall 1427, 423 Guardian Drive, Philadelphia, PA, 19104-4884, USA. .
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Źródło:
Trials [Trials] 2023 Aug 13; Vol. 24 (1), pp. 525. Date of Electronic Publication: 2023 Aug 13.
Typ publikacji:
Letter; Comment
MeSH Terms:
Informed Consent*/ethics
Patient Preference*
Humans ; Research Subjects ; Ethical Analysis
Opinia redakcyjna
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Experiences of patients and next of kin on informed consent process for emergency surgery in two Urban university teaching hospitals in Uganda: a comparative cross sectional study.
Autorzy:
Kituuka O; Department of Surgery, Makerere University College of Health Sciences, Kampala, Uganda. .
Mwaka E; Department of Anatomy, Makerere University College of Health Sciences, Kampala, Uganda.
Munabi I; Department of Anatomy, Makerere University College of Health Sciences, Kampala, Uganda.
Galukande M; Department of Surgery, Makerere University College of Health Sciences, Kampala, Uganda.
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Źródło:
BMC emergency medicine [BMC Emerg Med] 2023 Aug 02; Vol. 23 (1), pp. 82. Date of Electronic Publication: 2023 Aug 02.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Hospitals, Teaching*
Informed Consent*
Humans ; Cross-Sectional Studies ; Uganda ; Universities ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
SWAT 84: effects of same-day consent vs delayed consent on the recruitment and retention of trial participants-an observational SWAT.
Autorzy:
Elfghi M; School of Medicine, University of Galway, University Road, Galway, Ireland. .
Jordan F; School of Medicine, University of Galway, University Road, Galway, Ireland.
Sultan S; Department of Vascular and Endovascular Surgery, University College Hospital, Galway (UCHG), Newcastle Road, Galway, Ireland.
Tawfick W; School of Medicine, University of Galway, University Road, Galway, Ireland.; Department of Vascular and Endovascular Surgery, University College Hospital, Galway (UCHG), Newcastle Road, Galway, Ireland.
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Źródło:
Trials [Trials] 2023 Oct 25; Vol. 24 (1), pp. 691. Date of Electronic Publication: 2023 Oct 25.
Typ publikacji:
Journal Article; Observational Study; Randomized Controlled Trial
MeSH Terms:
Informed Consent*
Research Design*
Humans ; Northern Ireland ; Patient Selection ; Prospective Studies
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Informed consent in cancer clinical drug trials in China: a narrative literature review of the past 20 years.
Autorzy:
Liu X; Medical Ethics Committee, Xiangya Hospital of Central South University, 87 Xiangya Road, Changsha, 410008, Hunan, People's Republic of China.
Lu X; School of Humanities, Central South University, Changsha, 410075, Hunan, People's Republic of China.
Zhou W; School of Public Administration, Hunan University, Changsha, 410023, Hunan, People's Republic of China.
Hahne J; Department of Psychological & Brain Sciences, Washington University in St. Louis, St. Louis, MO, USA.
Khoshnood K; Yale School of Public Health, Yale University, 60 College Street, New Haven, CT, 06520, USA.
Shi X; Department of Environmental Health Sciences, Yale School of Public Health, 60 College St, New Haven, CT, 06520, USA.
Zhong Y; School of Humanities, Central South University, Changsha, 410075, Hunan, People's Republic of China.
Wang X; Center for Clinical Pharmacology, The Third Xiangya Hospital, Central South University, Changsha, 410013, Hunan, People's Republic of China. .
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Źródło:
Trials [Trials] 2023 Jul 07; Vol. 24 (1), pp. 445. Date of Electronic Publication: 2023 Jul 07.
Typ publikacji:
Journal Article; Review
MeSH Terms:
Informed Consent*
Neoplasms*/drug therapy
Adult ; Humans ; Disclosure ; Narration ; Data Management
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Get this thing out of my body! Factors determining consent for translational oncology research: a qualitative research.
Autorzy:
Caroline D; Centre de Recherche des Cordeliers, Sorbonne Université, Université Paris Cité, Inserm, Laboratoire Êtres, Unité Fonctionnelle d'Éthique Médicale, Hôpital Necker-Enfants Malades, APHP, Paris, France. .
Marie-France M; Centre de Recherche des Cordeliers, Sorbonne Université, Université Paris Cité, Inserm, Laboratoire Êtres, Unité Fonctionnelle d'Éthique Médicale, Hôpital Necker-Enfants Malades, APHP, Paris, France.
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Źródło:
Journal of translational medicine [J Transl Med] 2023 May 21; Vol. 21 (1), pp. 336. Date of Electronic Publication: 2023 May 21.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Informed Consent*
Neoplasms*
Humans ; Translational Research, Biomedical ; Biological Specimen Banks ; Qualitative Research
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
How informed is informed consent?-Evaluating the quality of informed consent among surgical patients in a tertiary care hospital in Nepal.
Autorzy:
Basukala S; Department of Surgery, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Shrestha O; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Thapa N; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Karki S; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Pandit A; College of Medicine, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Thapa BB; Department of Surgery, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
Thapa A; Department of Surgery, Nepalese Army Institute of Health Sciences, Kathmandu, Nepal.
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Źródło:
PloS one [PLoS One] 2023 Jul 10; Vol. 18 (7), pp. e0288074. Date of Electronic Publication: 2023 Jul 10 (Print Publication: 2023).
Typ publikacji:
Journal Article
MeSH Terms:
Informed Consent*
Humans ; Adult ; Middle Aged ; Cross-Sectional Studies ; Nepal ; Prospective Studies ; Tertiary Care Centers ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
A qualitative exploration of obtaining informed consent in medical consultations with Burma-born women.
Autorzy:
Power A; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia; and The Royal Australian College of General Practitioners, East Melbourne, Vic. 3002, Australia.
Tuteja A; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia.
Mascarenhas L; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia; and Utopia Refugee and Asylum Seeker Health, Hoppers Crossing, Vic. 3029, Australia.
Temple-Smith M; Department of General Practice, University of Melbourne, Parkville, Vic. 3010, Australia.
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Źródło:
Australian journal of primary health [Aust J Prim Health] 2023 Jul; Vol. 29 (3), pp. 284-291.
Typ publikacji:
Journal Article
MeSH Terms:
Informed Consent*
Women's Health*
Humans ; Male ; Female ; Myanmar ; Australia ; Referral and Consultation ; Qualitative Research
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Experiences of parents and caretakers going through the consent process to perform minimally invasive tissue sampling (MITS) on their deceased children in Quelimane, Mozambique: A qualitative study.
Autorzy:
Magaço A; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Maixenchs M; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; ISGlobal, Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.
Macete Y; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Escritório N; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Mucor R; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Calia A; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Sitoe A; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Xirinda E; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Vitorino P; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.
Garel M; Emory Global Health Institute, Atlanta, GA, United States of America.
Breiman RF; Department of Global Health, Rollins School of Public Health, Emory University, Atlanta, GA, United States of America.
Amouzou A; Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Bassat Q; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; ISGlobal, Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.; ICREA, Pg. Lluís Companys, Barcelona, Spain.; Pediatrics Department, Hospital Sant Joan de Déu, Universitat de Barcelona, Esplugues, Barcelona, Spain.; Consorcio de Investigación Biomédica en Red de Epidemiología y Salud Pública (CIBERESP), Madrid, Spain.
Mandomando I; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; Instituto Nacional de Saúde (INS), Ministério da Saúde, Maputo, Mozambique.
Blevins J; Emory Global Health Institute, Atlanta, GA, United States of America.
Munguambe K; Centro de Investigação em Saúde de Manhiça (CISM), Maputo, Mozambique.; Faculdade de Medicina, Universidade Eduardo Mondlane, Maputo, Mozambique.
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Źródło:
PloS one [PLoS One] 2023 Jun 09; Vol. 18 (6), pp. e0286785. Date of Electronic Publication: 2023 Jun 09 (Print Publication: 2023).
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Parents*
Informed Consent*
Female ; Pregnancy ; Humans ; Child ; Mozambique ; Cause of Death ; Qualitative Research
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Does the feedback of blood results in observational studies influence response and consent? A randomised study of the Understanding Society Innovation Panel.
Autorzy:
Benzeval M; Institute for Social and Economic Research, University of Essex, Colchester, UK. .
Andrayas A; Institute for Social and Economic Research, University of Essex, Colchester, UK.; School of Psychological Science, University of Bristol, Bristol, UK.
Mazza J; European University Institute, Fiesole, Italy.
Al Baghal T; Institute for Social and Economic Research, University of Essex, Colchester, UK.
Burton J; Institute for Social and Economic Research, University of Essex, Colchester, UK.
Crossley TF; European University Institute, Fiesole, Italy.
Kumari M; Institute for Social and Economic Research, University of Essex, Colchester, UK.
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Źródło:
BMC medical research methodology [BMC Med Res Methodol] 2023 Jun 07; Vol. 23 (1), pp. 134. Date of Electronic Publication: 2023 Jun 07.
Typ publikacji:
Randomized Controlled Trial; Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Family Characteristics*
Informed Consent*
Humans ; Longitudinal Studies ; Surveys and Questionnaires ; Feedback
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
A one-size-fits-all approach to data-sharing will not suffice in lifecourse research: a grounded theory study of data-sharing from the perspective of participants in a 50-year-old lifecourse study about health and development.
Autorzy:
Reeves J; Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand.
Treharne GJ; Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand. .
Ratima M; Te Pou Tiringa, New Plymouth, Aotearoa, New Zealand.
Theodore R; Dunedin Multidisciplinary Health and Development Research Unit, Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand.
Edwards W; Taumata Associates, New Plymouth, Aotearoa, New Zealand.
Poulton R; Dunedin Multidisciplinary Health and Development Research Unit, Department of Psychology, University of Otago, PO Box 56, Dunedin, Aotearoa, 9054, New Zealand.
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Źródło:
BMC medical research methodology [BMC Med Res Methodol] 2023 May 16; Vol. 23 (1), pp. 118. Date of Electronic Publication: 2023 May 16.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Informed Consent*
Information Dissemination*
Humans ; Middle Aged ; Cohort Studies ; Grounded Theory ; Qualitative Research
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Consent as a compositional act - a framework that provides clarity for the retention and use of data.
Autorzy:
Rivas Velarde MC; Geneva School of Health Science, University of Applied Sciences Geneva HES-SO, Geneva, Switzerland. .
Lovis C; Division of Medical Information Sciences, Department of Radiology and Medical Informatics, University Hospital of Geneva, Geneva, Switzerland.
Ienca M; Institute for Ethics and History of Medicine, Department of Clinical Medicine, School of Medicine and Health, Technical University of Munich, Munich, Germany.; College of Humanities, Swiss Federal Institute of Technology in Lausanne, Lausanne, Switzerland.
Samer C; Division of Clinical Pharmacology and Toxicology, Geneva University Hospitals, Geneva, Switzerland.
Hurst S; Institute for Ethics, History, and the Humanities (iEH2), Faculty of Medicine, University of Geneva, Geneva, Switzerland.
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Źródło:
Philosophy, ethics, and humanities in medicine : PEHM [Philos Ethics Humanit Med] 2024 Mar 06; Vol. 19 (1), pp. 2. Date of Electronic Publication: 2024 Mar 06.
Typ publikacji:
Journal Article
MeSH Terms:
Biomedical Research*
Humans ; Communication ; Concept Formation ; Informed Consent ; Social Responsibility
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Low diagnostic performance of thick blood smears of 50 µl in comparison with direct examination of 10 µl blood and the leukoconcentration technique of 5ml blood among loiasis-suspected patients with low microfilaremia in Gabon, Central Africa, using the STARD-BLCM guidelines
Autorzy:
M'Bondoukwé, Noé Patrick (AUTHOR)
Owono-Medang, Matthieu (AUTHOR)
Moussavou-Boussougou, Marie Noëlle (AUTHOR)
Akoue, Yvan (AUTHOR)
Migueba, Valentin (AUTHOR)
Bulaev, Dmitry (AUTHOR)
Neven, Anouk (AUTHOR)
James, Luice Aurtin Joel (AUTHOR)
Ntsame Ella, Sylvie Alberte (AUTHOR)
Mawili-Mboumba, Denise Patricia (AUTHOR)
Atsame, Julienne (AUTHOR)
Vaillant, Michel (AUTHOR)
Bouyou Akotet, Marielle Karine (AUTHOR)
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Źródło:
Parasites & Vectors. 3/15/2024, Vol. 17 Issue 1, p1-14. 14p.
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Bimekizumab: Short-Term Effectiveness and Safety in Real Clinical Practice in Andalucia, Spain.
Autorzy:
Ruiz-Villaverde, Ricardo (AUTHOR)
Rodriguez-Fernandez-Freire, Lourdes (AUTHOR)
Cebolla-Verdugo, Marta (AUTHOR)
Prados-Carmona, Alvaro (AUTHOR)
Hernández-Montoya, Carlos (AUTHOR)
Armario-Hita, José Carlos (AUTHOR)
Galán-Gutiérrez, Manuel (AUTHOR)
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Źródło:
Life (2075-1729). Mar2024, Vol. 14 Issue 3, p281. 12p.
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Long term outcomes and causal modelling of compulsory inpatient and outpatient mental health care using Norwegian registry data: Protocol for a controversies in psychiatry research project.
Autorzy:
Hofstad, Tore (AUTHOR)
Nyttingnes, Olav (AUTHOR)
Markussen, Simen (AUTHOR)
Johnsen, Erik (AUTHOR)
Killackey, Eoin (AUTHOR)
McDaid, David (AUTHOR)
Rinaldi, Miles (AUTHOR)
Dean, Kimberlie (AUTHOR)
Brinchmann, Beate (AUTHOR)
Douglas, Kevin (AUTHOR)
Gröning, Linda (AUTHOR)
Bjørkly, Stål (AUTHOR)
Palmstierna, Tom (AUTHOR)
Strømme, Maria Fagerbakke (AUTHOR)
Blindheim, Anne (AUTHOR)
Rugkåsa, Jorun (AUTHOR)
Hofmann, Bjørn Morten (AUTHOR)
Pedersen, Reidar (AUTHOR)
Widding‐Havneraas, Tarjei (AUTHOR)
Rypdal, Knut (AUTHOR)
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Źródło:
International Journal of Methods in Psychiatric Research. Mar2024, Vol. 33 Issue 1, p1-13. 13p.
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Human cerebral organoids: the ethical stance of scientists.
Autorzy:
Lavazza A; Department of Brain and Behavioral Sciences, University of Pavia, Piazza Botta 11, 27100, Pavia, Italy. .
Chinaia AA; MoMiLab, IMT School for Advanced Studies Lucca, Piazza S. Francesco 19, 55100, Lucca, Italy.
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Źródło:
Stem cell research & therapy [Stem Cell Res Ther] 2023 Apr 01; Vol. 14 (1), pp. 59. Date of Electronic Publication: 2023 Apr 01.
Typ publikacji:
Journal Article
MeSH Terms:
Brain*
Informed Consent*
Humans ; Organoids
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Legally Effective but Ethically Inadequate: Institutional Review Board Policies for Consent from Legally Authorized Representatives.
Autorzy:
Harrison RR; Clinical assistant professor in the Department of Internal Medicine at the University of Texas Rio Grande Valley School of Medicine.
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Źródło:
Ethics & human research [Ethics Hum Res] 2023 Mar; Vol. 45 (2), pp. 14-25.
Typ publikacji:
Journal Article
MeSH Terms:
Ethics Committees, Research*
Informed Consent*
Adult ; United States ; Humans ; Prospective Studies ; Organizational Policy ; National Institutes of Health (U.S.)
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Informing a European guidance framework on electronic informed consent in clinical research: a qualitative study.
Autorzy:
De Sutter E; Clinical Pharmacology and Pharmacotherapy, Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium. .
Borry P; Centre for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.
Huys I; Clinical Pharmacology and Pharmacotherapy, Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium.
Barbier L; Clinical Pharmacology and Pharmacotherapy, Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium.
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Źródło:
BMC health services research [BMC Health Serv Res] 2023 Feb 21; Vol. 23 (1), pp. 181. Date of Electronic Publication: 2023 Feb 21.
Typ publikacji:
Journal Article
MeSH Terms:
Informed Consent*
Attitude*
Humans ; Qualitative Research ; Focus Groups ; European Union
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Importance of decisional capacity tools in obtaining informed consent in clinical settings.
Autorzy:
Radenković M; Department of Pharmacology, Clinical Pharmacology and Toxicology, Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
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Źródło:
Bioethics [Bioethics] 2023 Feb; Vol. 37 (2), pp. 146-153. Date of Electronic Publication: 2022 Nov 24.
Typ publikacji:
Journal Article
MeSH Terms:
Mental Competency*
Informed Consent*
Humans ; Patients ; Decision Making
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Co-creation of information materials within the assent process: From theory to practice.
Autorzy:
Fons-Martinez J; Vaccine Research Area, Foundation for the Promotion of Health and Biomedical Research of Valencia Region, FISABIO, Valencia, Spain.
Ferrer-Albero C; Facultad de Medicina y Ciencias de la Salud, Universidad Católica de Valencia San Vicente Mártir, Valencia, Spain.
Diez-Domingo J; Vaccine Research Area, Foundation for the Promotion of Health and Biomedical Research of Valencia Region, FISABIO, Valencia, Spain.; Facultad de Medicina y Ciencias de la Salud, Universidad Católica de Valencia San Vicente Mártir, Valencia, Spain.
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Źródło:
Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2023 Feb; Vol. 26 (1), pp. 429-439. Date of Electronic Publication: 2022 Nov 23.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Informed Consent*
Biomedical Research*
Child ; Adolescent ; Humans ; Parents ; Research Design ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Empowering patients with dementia to make legally effective decisions: a randomized controlled trial on enhancing capacity to consent to treatment.
Autorzy:
Poth A; Psychological Ageing Research (PAR), University of Siegen, Siegen, Germany.
Penger S; Psychological Ageing Research (PAR), University of Siegen, Siegen, Germany.
Knebel M; Interdisciplinary Ageing Research (IAW), Goethe University Frankfurt, Frankfurt, Germany.
Müller T; Psychological Ageing Research (PAR), University of Siegen, Siegen, Germany.
Pantel J; Institute of General Practice in Frankfurt am Main, Goethe University Frankfurt, Frankfurt, Germany.
Oswald F; Interdisciplinary Ageing Research (IAW), Goethe University Frankfurt, Frankfurt, Germany.
Haberstroh J; Psychological Ageing Research (PAR), University of Siegen, Siegen, Germany.
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Źródło:
Aging & mental health [Aging Ment Health] 2023 Feb; Vol. 27 (2), pp. 292-300. Date of Electronic Publication: 2022 Jan 06.
Typ publikacji:
Randomized Controlled Trial; Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Informed Consent*
Dementia*/drug therapy
Humans ; Power, Psychological ; Decision Making
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Informed consent in cancer clinical care: Perspectives of healthcare professionals on information disclosure at a tertiary institution in Uganda.
Autorzy:
Kampi R; School of Biomedical Sciences, College of Health Sciences, Makerere University, Kampala, Uganda.
Okello C; Uganda Cancer Institute, Kampala, Uganda.
Ochieng J; School of Biomedical Sciences, College of Health Sciences, Makerere University, Kampala, Uganda.
Mwaka ES; School of Biomedical Sciences, College of Health Sciences, Makerere University, Kampala, Uganda.
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Źródło:
PloS one [PLoS One] 2024 Apr 04; Vol. 19 (4), pp. e0301586. Date of Electronic Publication: 2024 Apr 04 (Print Publication: 2024).
Typ publikacji:
Journal Article
MeSH Terms:
Disclosure*
Neoplasms*/therapy
Humans ; Uganda ; Informed Consent/psychology ; Health Personnel/psychology ; Delivery of Health Care
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Alternative consent methods used in the multinational, pragmatic, randomised clinical trial SafeBoosC-III.
Autorzy:
Vestager ML; Department of Neonatology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark. .
Hansen ML; Department of Neonatology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.; Copenhagen Trial Unit, Centre for Clinical Intervention Research, The Capital Region, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
Greisen G; Department of Neonatology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
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Corporate Authors:
SafeBoosC-III trial group
Źródło:
Trials [Trials] 2024 Apr 04; Vol. 25 (1), pp. 236. Date of Electronic Publication: 2024 Apr 04.
Typ publikacji:
Randomized Controlled Trial; Pragmatic Clinical Trial; Journal Article
MeSH Terms:
Oximetry*
Cerebrovascular Circulation*
Infant ; Infant, Newborn ; Humans ; Infant, Extremely Premature ; Parents ; Surveys and Questionnaires ; Informed Consent
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Decision-making and autonomy among participants in early-phase cancer immunotherapy trials: a qualitative study.
Autorzy:
Avery J; School of Nursing, University of British Columbia, Vancouver, BC, Canada.; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Bell JAH; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada. .; Department of Clinical and Organizational Ethics, University Health Network, Toronto, ON, Canada. .; The Institute for Education Research, University Health Network, Toronto, ON, Canada. .; Department of Psychiatry and Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada. .; Princess Margaret Cancer Centre, Department of Supportive Care, Research Division, 700 Bay St., 23rd Floor, Toronto, ON, M5G 1Z6, Canada. .
Baryolay K; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Rodin G; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.; Global Institute of Psychosocial, Palliative and End-of-Life Care (GIPPEC), Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Cancer Experience, University Health Network Cancer Program, University Health Network, Toronto, ON, Canada.; Princess Margaret Research Institute, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Nissim R; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.; Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, ON, Canada.
Balneaves LG; Rady Faculty of Health Sciences, College of Nursing, University of Manitoba, Winnipeg, MB, Canada.
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Źródło:
BMC cancer [BMC Cancer] 2024 Mar 25; Vol. 24 (1), pp. 373. Date of Electronic Publication: 2024 Mar 25.
Typ publikacji:
Journal Article
MeSH Terms:
Decision Making*
Neoplasms*/therapy
Neoplasms*/psychology
Adult ; Humans ; Patient Participation/psychology ; Informed Consent ; Qualitative Research ; Immunotherapy
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Exploring attitudes and variation by sociodemographic factors in consent provided for financial data linkage in an experimental birth cohort study.
Autorzy:
Reece S; Hull York Medical School, York, North Yorkshire, UK. .
Dickerson J; Bradford Institute for Health Research, Bradford Royal Infirmary, Bradford, West Yorkshire, UK.
Pickett KE; Department of Health Sciences, University of York, Heslington Road, York, North Yorkshire, UK.
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Źródło:
BMC public health [BMC Public Health] 2024 Mar 05; Vol. 24 (1), pp. 712. Date of Electronic Publication: 2024 Mar 05.
Typ publikacji:
Observational Study; Journal Article
MeSH Terms:
Sociodemographic Factors*
Ethnicity*
Humans ; Cohort Studies ; Quality of Life ; Minority Groups ; Informed Consent
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers.
Autorzy:
Chudyk AM; College of Pharmacy, Rady Faculty of Health Sciences, University of Manitoba, CR3024-369 Tache Avenue, Winnipeg, MB, R2H 2A6, Canada. .
Stoddard R; Horizon Health Network, 80 Woodbridge Street, Fredericton, NB, E3B 4R3, Canada.
Duhamel TA; Faculty of Kinesiology and Recreation Management, 212 Active Living Centre, Winnipeg, MB, R3T 2N2, Canada.; Institute of Cardiovascular Sciences, St. Boniface General Hospital-Albrechtsen Research Centre, 351 Tache Ave, Winnipeg, MB, R2H 2A6, Canada.
Schultz ASH; College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, CR3022-369 Tache Avenue, Winnipeg, MB, R2H 2A6, Canada.
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Corporate Authors:
Patient Engagement in Research Partners
Źródło:
Health research policy and systems [Health Res Policy Syst] 2024 Feb 14; Vol. 22 (1), pp. 24. Date of Electronic Publication: 2024 Feb 14.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Participation*
Humans ; Canada ; Databases, Factual ; Informed Consent
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Developing strategies to address disparities in retention communication during the consent discussion: development of a behavioural intervention.
Autorzy:
Coffey T; Health Services Research Unit, Health Sciences Building, University of Aberdeen, Foresterhill, Aberdeen, AB25 2ZD, UK. .
Duncan E; Health Services Research Unit, Health Sciences Building, University of Aberdeen, Foresterhill, Aberdeen, AB25 2ZD, UK.
Morgan H; Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK.
Gillies K; Health Services Research Unit, Health Sciences Building, University of Aberdeen, Foresterhill, Aberdeen, AB25 2ZD, UK.
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Źródło:
Trials [Trials] 2023 Apr 26; Vol. 24 (1), pp. 296. Date of Electronic Publication: 2023 Apr 26.
Typ publikacji:
Journal Article
MeSH Terms:
Informed Consent*
Behavior Therapy*
Humans ; Surveys and Questionnaires ; Communication
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Challenges for the maintaining the microbiological safety of the UK blood supply.
Autorzy:
Neuberger J; Queen Elizabeth Hospital, Birmingham. Electronic address: .
Brailsford SR; NHS Blood and Transplant, Charcot Road, Colindale, London.
Mallinson G; Joint UK Blood Transfusion and Tissue Transplantation Services Professional Advisory Committee (JPAC), NHS Blood and Transplant, Bristol.
Murphy MF; NHS Blood & Transplant, Oxford University Hospitals NHS Foundation Trust and University of Oxford, Oxford.
Simmonds P; University of Oxford, Oxford, UK.
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Źródło:
Clinical medicine (London, England) [Clin Med (Lond)] 2023 Mar; Vol. 23 (2), pp. 151-156.
Typ publikacji:
Journal Article; Review
MeSH Terms:
Informed Consent*
Transfusion Reaction*/prevention & control
Humans ; United Kingdom
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Psychological and Ethical Challenges of Introducing Whole Genome Sequencing into Routine Newborn Screening: Lessons Learned from Existing Newborn Screening.
Autorzy:
Ulph F; Division of Psychology & Mental Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
Bennett R; Centre for Social Ethics and Policy, Department of Law, School of Social Sciences, Faculty of Humanities, University of Manchester, Manchester, UK.
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Źródło:
The New bioethics : a multidisciplinary journal of biotechnology and the body [New Bioeth] 2023 Mar; Vol. 29 (1), pp. 52-74. Date of Electronic Publication: 2022 Oct 01.
Typ publikacji:
Journal Article; Review
MeSH Terms:
Neonatal Screening*/psychology
Informed Consent*
Infant, Newborn ; Humans ; Whole Genome Sequencing ; Communication
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Patient autonomy and withholding information.
Autorzy:
Rees M; Department of Philosophy, University of Toronto, Toronto, Ontario, Canada.
Pokaż więcej
Źródło:
Bioethics [Bioethics] 2023 Mar; Vol. 37 (3), pp. 256-264. Date of Electronic Publication: 2023 Jan 05.
Typ publikacji:
Journal Article
MeSH Terms:
Informed Consent*
Personal Autonomy*
Humans ; Disclosure ; Ethics, Medical
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
The proxy dilemma: Informed consent in paediatric clinical research - a case study of Thailand.
Autorzy:
Varadan S
Sirinam S
Limkittikul K
Cheah PY
Pokaż więcej
Źródło:
Developing world bioethics [Dev World Bioeth] 2022 Dec; Vol. 22 (4), pp. 288-297. Date of Electronic Publication: 2022 Jan 24.
Typ publikacji:
Journal Article
MeSH Terms:
Informed Consent*
Advance Directives*
Child ; Humans ; Thailand
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Feasibility, effectiveness and costs of a decision support intervention for consultees and legal representatives of adults lacking capacity to consent (CONSULT): protocol for a randomised Study Within a Trial.
Autorzy:
Shepherd V; Centre for Trials Research, Cardiff University, Cardiff, UK. .
Wood F; PRIME Centre Wales, Wales, UK.; Division of Population Medicine, Cardiff University, Cardiff, UK.
Gillies K; Health Services Research Unit, University of Aberdeen, Aberdeen, UK.
Martin A; Academic Unit of Health Economics, University of Leeds, Leeds, UK.
O'Connell A; Exeter Clinical Trials Unit, University of Exeter, Exeter, UK.
Hood K; Centre for Trials Research, Cardiff University, Cardiff, UK.
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Źródło:
Trials [Trials] 2022 Nov 24; Vol. 23 (1), pp. 957. Date of Electronic Publication: 2022 Nov 24.
Typ publikacji:
Clinical Trial Protocol; Journal Article
MeSH Terms:
Research Design*
Informed Consent*
Adult ; Humans ; Feasibility Studies ; Prospective Studies ; Proxy ; Randomized Controlled Trials as Topic ; Multicenter Studies as Topic
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Challenges regarding informed consent in recruitment to clinical research: a qualitative study of clinical research nurses' experiences.
Autorzy:
Godskesen T; Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden. .; Faculty of Nursing and Health Sciences, Nord University, Bodø, Norway. .
Björk J; Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.; Stockholm Centre for Healthcare Ethics (CHE), LIME, Karolinska Institutet, Stockholm, Sweden.; Department of Research and Development, Region Kronoberg, Växjö, Sweden.
Juth N; Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.; Stockholm Centre for Healthcare Ethics (CHE), LIME, Karolinska Institutet, Stockholm, Sweden.
Pokaż więcej
Źródło:
Trials [Trials] 2023 Dec 11; Vol. 24 (1), pp. 801. Date of Electronic Publication: 2023 Dec 11.
Typ publikacji:
Journal Article
MeSH Terms:
Voice*
Nurses*
Humans ; Qualitative Research ; Informed Consent ; Research Personnel
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
The coverage of medical injuries in company trial informed consent forms.
Autorzy:
Healy D; Department of Family Medicine, McMaster University, Hamilton, ON, Canada.
Germán Roux A; Pfizer Vaccine Trial Participant (2020), University of Buenos Aires, Buenos Aires, Argentina.
Dressen B; Astra-Zeneca Trial Participant (2020), NIH Vaccine Injuries Research Subject (2021).
Pokaż więcej
Źródło:
The International journal of risk & safety in medicine [Int J Risk Saf Med] 2023; Vol. 34 (2), pp. 121-128.
Typ publikacji:
Journal Article
MeSH Terms:
Consent Forms*
Informed Consent*
Humans
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Comparison of conventionally and digitally completed patient consent-anamnesis forms in terms of surface contamination.
Autorzy:
Baser B
Gulnar B
Tuhan Kutlu E
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Źródło:
Technology and health care : official journal of the European Society for Engineering and Medicine [Technol Health Care] 2023; Vol. 31 (5), pp. 1737-1746.
Typ publikacji:
Journal Article
MeSH Terms:
Software*
Informed Consent*
Humans ; Tablets
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Conflict Over Death by Neurologic Criteria: Caution, Consent, and Nursing Considerations.
Autorzy:
Barnum B; Children's Hospital Los Angeles, Center for Bioethics.
Derrington SF
Pokaż więcej
Źródło:
The American journal of bioethics : AJOB [Am J Bioeth] 2023 Jan; Vol. 23 (1), pp. 88-90.
Typ publikacji:
Journal Article; Comment
MeSH Terms:
Dissent and Disputes*
Informed Consent*
Humans
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
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