Temat: "Informed consent" - OpacWWW

Skocz do pozycji: 1.

Tytuł:: Decision-making and autonomy among participants in early-phase cancer immunotherapy trials: a qualitative study.
Autorzy:: Avery J; School of Nursing, University of British Columbia, Vancouver, BC, Canada.; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Bell JAH; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada. .; Department of Clinical and Organizational Ethics, University Health Network, Toronto, ON, Canada. .; The Institute for Education Research, University Health Network, Toronto, ON, Canada. .; Department of Psychiatry and Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada. .; Princess Margaret Cancer Centre, Department of Supportive Care, Research Division, 700 Bay St., 23rd Floor, Toronto, ON, M5G 1Z6, Canada. .
Baryolay K; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Rodin G; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.; Global Institute of Psychosocial, Palliative and End-of-Life Care (GIPPEC), Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Cancer Experience, University Health Network Cancer Program, University Health Network, Toronto, ON, Canada.; Princess Margaret Research Institute, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.
Nissim R; Department of Supportive Care Research, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.; Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, ON, Canada.
Balneaves LG; Rady Faculty of Health Sciences, College of Nursing, University of Manitoba, Winnipeg, MB, Canada.; Pokaż więcej
Źródło:: BMC cancer [BMC Cancer] 2024 Mar 25; Vol. 24 (1), pp. 373. Date of Electronic Publication: 2024 Mar 25.
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*
Neoplasms*/therapy
Neoplasms*/psychology
Adult ; Humans ; Patient Participation/psychology ; Informed Consent ; Qualitative Research ; Immunotherapy

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Skocz do pozycji: 2.

Tytuł:: Informed Nondissent at the Limits of Viability.
Autorzy:: Kon NM; Ethics Consultants, Inc.
Kon AA; Community Children's and University of Washington.; Pokaż więcej
Źródło:: The American journal of bioethics : AJOB [Am J Bioeth] 2022 Nov; Vol. 22 (11), pp. 54-56.
Typ publikacji:: Journal Article; Comment
MeSH Terms:: Informed Consent*
Decision Making*
Humans

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Skocz do pozycji: 3.

Tytuł:: Evaluating the Ability to Consent to Research: A Twenty-Year Track Record.
Autorzy:: Matera-Vatnick M; Postbaccalaureate fellow at the National Cancer Institute.
Todman KW; Clinical social worker at the National Institute of Mental Health (NIMH).
Wakim PG; Chief of the biostatistics and clinical epidemiology service at the National Institutes of Health Clinical Center (NIH CC).
Sullivan HK; PhD student in health policy at Harvard University and was a fellow in the Department of Bioethics at the NIH CC at the time of participating in this research.
Squires C; Licensed certified social worker at the NIMH.
Brintnall-Karabelas J; Licensed clinical social worker at the NIMH.
Doernberg SN; Fourth-year medical student at Harvard Medical School and was a fellow in the Department of Bioethics at the NIH CC at the time of participating in this research.
Danis M; Chief of the Bioethics Consultation Service at the NIH CC.; Pokaż więcej
Źródło:: Ethics & human research [Ethics Hum Res] 2022 Mar; Vol. 44 (2), pp. 2-17.
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*
Informed Consent*
Humans ; Prospective Studies ; Retrospective Studies

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Skocz do pozycji: 4.

Tytuł:: [The Basics of Decision-Making Capacity: The Top-10 Principles for the Clinical Practice].
Autorzy:: Trachsel M; Institut für Biomedizinische Ethik und Medizingeschichte, Universität Zürich (UZH), Zürich.; Abteilung Klinische Ethik, Universitätsspital Basel (USB), Basel.; Abteilung Klinische Ethik, Universitäre Psychiatrische Kliniken (UPK) Basel, Basel.
Biller-Andorno N; Institut für Biomedizinische Ethik und Medizingeschichte, Universität Zürich (UZH), Zürich.; Pokaż więcej
Transliterated Title:: Das kleine Einmaleins der Urteilsfähigkeit: Die Top-10-Grundsätze für die klinische Praxis.
Źródło:: Praxis [Praxis (Bern 1994)] 2022; Vol. 111 (3), pp. 149-156.
Typ publikacji:: Journal Article; Review
MeSH Terms:: Decision Making*
Informed Consent*
Adult ; Humans ; Mental Competency ; Personal Autonomy

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Skocz do pozycji: 5.

Tytuł:: Deciding with Others: Interdependent Decision-Making.
Autorzy:: Largent EA
Clapp J
Blumenthal-Barby JS
Grady C
McGuire AL
Karlawish J
Grill JD
Stites SD
Peterson A; Pokaż więcej
Źródło:: The Hastings Center report [Hastings Cent Rep] 2022 Nov; Vol. 52 (6), pp. 23-32.
Typ publikacji:: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
MeSH Terms:: Decision Making*
Family*
Humans ; Child, Preschool ; Adult ; Patient Participation ; Informed Consent

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Skocz do pozycji: 6.

Tytuł:: Egyptian patients'/guardians' experiences and perception about clinical informed consent and its purpose: Cross sectional study.
Autorzy:: Metwally AM; Medical Research Division, Community Medicine Research Department, National Research Centre, Dokki, Cairo, Egypt.
Amer HA; Medical Research Division, Community Medicine Research Department, National Research Centre, Dokki, Cairo, Egypt.; Department of Infection Control, King Saud Medical City, Riyadh, KSA.
Salama HI; National Blood Transfusion Services Mansoura Region, Ministry of Health and Population, Egypt.
Abd El Hady SI; Neuropsychiatry Dept., Ministry of Health and Population, Egypt.
Alam RR; Faculty of Nursing, Mansoura University, Mansoura, Egypt.; Egyptian Liver Research Institute And Hospital (ELRIAH), Mansoura, Egypt.
Aboulghate A; Medical Research Division, Community Medicine Research Department, National Research Centre, Dokki, Cairo, Egypt.
Mohamed HA; Faculty of Nursing, Mansoura University, Mansoura, Egypt.; Egyptian Liver Research Institute And Hospital (ELRIAH), Mansoura, Egypt.
Badran HM; Faculty of Nursing, Mansoura University, Mansoura, Egypt.; Egyptian Liver Research Institute And Hospital (ELRIAH), Mansoura, Egypt.
Saadallah AA; King Faisal Specialist Hospital & Research Centre, Riyadh, Saudi Arabia.
El-Sonbaty MM; Medical Research Division, Child Health Department, National Research Centre, Cairo, Egypt.; Department of Pediatrics, College of Medicine, Taibah University, Madinah, K.S.A.
Eltahlawy E; Environmental Research Division, Environmental Health and Occupational Medicine, National Research Centre, Egypt.
Saad W; Department of biological anthropology, National Research Centre, Egypt, Cairo, Egypt.
Mohsen A; Medical Research Division, Community Medicine Research Department, National Research Centre, Dokki, Cairo, Egypt.
Abdel-Latif GA; Medical Research Division, Community Medicine Research Department, National Research Centre, Dokki, Cairo, Egypt.
Fathy AM; Medical Research Division, Community Medicine Research Department, National Research Centre, Dokki, Cairo, Egypt.
Hassanain AI; Medical Research Division, Child Health Department, National Research Centre, Cairo, Egypt.
Eldali A; Free-Lancer, Khartoum, Sudan.; Pokaż więcej
Źródło:: PloS one [PLoS One] 2021 Jun 14; Vol. 16 (6), pp. e0252996. Date of Electronic Publication: 2021 Jun 14 (Print Publication: 2021).
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*
Perception*
Disclosure/*standards
Informed Consent/*ethics
Legal Guardians/*psychology
Adult ; Cross-Sectional Studies ; Egypt ; Female ; Humans ; Informed Consent/psychology ; Male ; Middle Aged ; Surveys and Questionnaires

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Skocz do pozycji: 7.

Tytuł:: Re-Consenting Pediatric Research Participants as Legal Adulthood Approaches: Lessons from the SPARK Autism Study
Autorzy:: Connie Anderson (ORCID 0000-0002-6975-7883)
Alan Iampieri
Leah Franklin
Amy Daniels
Katharine Diehl
J. Kiely Law; Pokaż więcej
Deskryptory:: Informed Consent
Pediatrics
Research Methodology
Autism Spectrum Disorders
Longitudinal Studies
Qualitative Research
Adolescents
Caregivers
Decision Making
Mothers
Independent Living
Transitional Programs
Źródło:: Journal of Autism and Developmental Disorders. 2024 54(1):18-32.
Recenzowane naukowo:: Y
Page Count:: 15

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Skocz do pozycji: 8.

Tytuł:: Better Consent-and Not Just for When Time Is Short.
Autorzy:: Menikoff J; Office for Human Research Protections.; Pokaż więcej
Źródło:: The American journal of bioethics : AJOB [Am J Bioeth] 2020 Jun; Vol. 20 (5), pp. 1-3.
Typ publikacji:: Editorial; Comment
MeSH Terms:: Decision Making*
Informed Consent*
Humans

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Skocz do pozycji: 9.

Tytuł:: Safeguarding Vulnerable Autonomy? Situational Vulnerability, the Inherent Jurisdiction, and Insights from Feminist Philosophy.
Autorzy:: Lewis J; Institute of Ethics, Faculty of Humanities and Social Sciences, Dublin City University, Dublin 9, Ireland.; Pokaż więcej
Źródło:: Medical law review [Med Law Rev] 2021 Aug 11; Vol. 29 (2), pp. 306-336.
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*
Feminism*
Personal Autonomy*
Vulnerable Populations*
Mental Competency/*legislation & jurisprudence
Informed Consent/legislation & jurisprudence ; United Kingdom

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Skocz do pozycji: 10.

Tytuł:: Can women in labor give informed consent to epidural analgesia?
Autorzy:: Wada K; Centre for Clinical Ethics, St. Joseph's Health Centre Toronto, Toronto, Canada.
Charland LC; Philosophy and Psychiatry & School of Health Studies, Western University, London, Canada.
Bellingham G; Anesthesia & Perioperative Medicine, London Health Sciences Centre University Hospital, London, Canada.; Pokaż więcej
Źródło:: Bioethics [Bioethics] 2019 May; Vol. 33 (4), pp. 475-486. Date of Electronic Publication: 2018 Oct 25.
Typ publikacji:: Journal Article; Systematic Review
MeSH Terms:: Labor, Obstetric*/psychology
Mental Competency*
Personal Autonomy*
Analgesia, Epidural/*ethics
Decision Making/*ethics
Informed Consent/*ethics
Labor Pain/*drug therapy
Analgesia, Epidural/psychology ; Analgesics/administration & dosage ; Analgesics/therapeutic use ; Analgesics, Opioid/administration & dosage ; Anxiety/etiology ; Cognition ; Comprehension ; Delivery, Obstetric/ethics ; Emotions ; Female ; Humans ; Informed Consent/psychology ; Labor Pain/psychology ; Pain Management/ethics ; Pain Management/methods ; Pregnancy ; Pregnant Women/psychology ; Stress, Psychological/etiology

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Skocz do pozycji: 11.

Tytuł:: The art of consent: visual materials help adult patients make informed choices about surgical care.
Autorzy:: Kearns C; General Surgery Department, University of Edinburgh College of Medicine and Veterinary Medicine, Edinburgh, Scotland.; General Surgery Department, NHS Lothian, Royal Infirmary of Edinburgh, Edinburgh, Scotland.; General Surgery Department, Artibiotics, Wellington, New Zealand.
Kearns N; Orthopaedic Surgery Department, NHS Lothian, Royal Infirmary of Edinburgh, Edinburgh, Scotland.
Paisley AM; General Surgery Department, NHS Lothian, Royal Infirmary of Edinburgh, Edinburgh, Scotland.; Pokaż więcej
Źródło:: Journal of visual communication in medicine [J Vis Commun Med] 2020 Apr; Vol. 43 (2), pp. 76-83. Date of Electronic Publication: 2019 Dec 04.
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*
Informed Consent*
Audiovisual Aids/*standards
Surgical Procedures, Operative/*standards
Humans ; Medical Illustration ; Single-Blind Method

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Skocz do pozycji: 12.

Tytuł:: Treatment decisions in women of childbearing age on valproate.
Autorzy:: Harris L; Royal London Hospital, London, UK.
Lowes O; University Hospital Coventry and Warwickshire, Coventry, UK.
Angus-Leppan H; Clinical Neurosciences, Royal Free London NHS Foundation Trust, University College London, London, UK.; Institute of Neurology, University College London, London, UK.; Pokaż więcej
Źródło:: Acta neurologica Scandinavica [Acta Neurol Scand] 2020 Apr; Vol. 141 (4), pp. 287-293. Date of Electronic Publication: 2020 Jan 21.
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*
Informed Consent*
Anticonvulsants/*administration & dosage
Epilepsy/*drug therapy
Patients/*psychology
Pregnancy Complications/*etiology
Valproic Acid/*administration & dosage
Adult ; Anticonvulsants/adverse effects ; Anticonvulsants/therapeutic use ; Female ; Humans ; Patient Education as Topic ; Pregnancy ; Pregnancy Complications/psychology ; Seizures/drug therapy ; Surveys and Questionnaires ; Valproic Acid/adverse effects ; Valproic Acid/therapeutic use

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Skocz do pozycji: 13.

Tytuł:: Are information provision interventions effective for people with multiple sclerosis? A Cochrane Review summary with commentary.
Autorzy:: Arienti C; IRCCS Fondazione Don Carlo Gnocchi, Via Capecelatro, 66 - 20148 Milan, Italy Tel.: +39 0307245282; E-mail: .; Pokaż więcej
Źródło:: NeuroRehabilitation [NeuroRehabilitation] 2020; Vol. 46 (2), pp. 255-257.
Typ publikacji:: Journal Article; Review
MeSH Terms:: Decision Making*/physiology
Informed Consent/*psychology
Multiple Sclerosis/*psychology
Multiple Sclerosis/*therapy
Quality of Life/*psychology
Humans ; Informed Consent/standards ; Patient Education as Topic/methods ; Randomized Controlled Trials as Topic/methods ; Treatment Outcome

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Skocz do pozycji: 14.

Tytuł:: Adolescents and Body Modification for Gender Identity Expression.
Autorzy:: Murphy TF; Department of Medical Education, University of Illinois College of Medicine, Chicago, IL, USA.; Pokaż więcej
Źródło:: Medical law review [Med Law Rev] 2019 Nov 01; Vol. 27 (4), pp. 623-639.
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*
Gender Identity*
Informed Consent By Minors*
Adolescent Health/*ethics
Gender Dysphoria/*psychology
Psychology, Adolescent/*ethics
Sex Reassignment Procedures/*ethics
Adolescent ; Female ; Fertility Preservation/ethics ; Humans ; Male ; Respect

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Skocz do pozycji: 15.

Tytuł:: Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability.
Autorzy:: McCormack LA; Public Health Research Division, RTI International, Research Triangle Park, North Carolina, United States of America.
Wylie A; Center for Newborn Screening, RTI International, Research Triangle Park, North Carolina, United States of America.
Moultrie R; Public Health Research Division, RTI International, Research Triangle Park, North Carolina, United States of America.
Furberg RD; Health Quality & Analytics, RTI International, Research Triangle Park, North Carolina, United States of America.
Wheeler AC; Center for Newborn Screening, RTI International, Research Triangle Park, North Carolina, United States of America.
Treiman K; Public Health Research Division, RTI International, Research Triangle Park, North Carolina, United States of America.
Bailey DB Jr; Center for Newborn Screening, RTI International, Research Triangle Park, North Carolina, United States of America.
Raspa M; Center for Newborn Screening, RTI International, Research Triangle Park, North Carolina, United States of America.; Pokaż więcej
Źródło:: PloS one [PLoS One] 2019 Oct 23; Vol. 14 (10), pp. e0223801. Date of Electronic Publication: 2019 Oct 23 (Print Publication: 2019).
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Decision Making*
Decision Support Systems, Clinical*
Informed Consent*
Patient Selection*
Intellectual Disability/*psychology
Patient Participation/*statistics & numerical data
Research Subjects/*psychology
Adolescent ; Adult ; Child ; Female ; Health Knowledge, Attitudes, Practice ; Humans ; Intellectual Disability/therapy ; Male ; Randomized Controlled Trials as Topic ; Surveys and Questionnaires ; Young Adult

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Skocz do pozycji: 16.

Tytuł:: Challenges in informed consent decision-making in Korean clinical research: A participant perspective.
Autorzy:: Choi IS; Department of Pharmacy, Kyungpook National University Medical Centre, Daegu, South Korea.
Choi EY; College of Pharmacy, Yeungnam University, Gyeongsan, South Korea.; Department of Pharmacy, Ulsan University Hospital, Ulsan, South Korea.
Lee IH; College of Pharmacy, Yeungnam University, Gyeongsan, South Korea.; Pokaż więcej
Źródło:: PloS one [PLoS One] 2019 May 23; Vol. 14 (5), pp. e0216889. Date of Electronic Publication: 2019 May 23 (Print Publication: 2019).
Typ publikacji:: Journal Article
MeSH Terms:: Communication*
Comprehension*
Decision Making*
Disclosure*
Informed Consent*
Adult ; Aged ; Clinical Trials as Topic ; Female ; Humans ; Male ; Middle Aged ; Republic of Korea ; Research Personnel

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Skocz do pozycji: 17.

Tytuł:: Inner Speaking and Uncertainty during Idea Generation
Autorzy:: de Rooij, Alwin (ORCID 0000-0002-9840-4892); Pokaż więcej
Deskryptory:: Informed Consent
Inner Speech (Subvocal)
Cognitive Processes
Adoption (Ideas)
Creativity
Attitudes
Beliefs
Decision Making
Ambiguity (Context)
Interpersonal Communication
Simulation
Self Management
Self Determination
Źródło:: Journal of Creative Behavior. Sep 2023 57(3):376-396.
Recenzowane naukowo:: Y
Page Count:: 21

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Skocz do pozycji: 18.

Tytuł:: Mechanistic reasoning and informed consent.
Autorzy:: Kennedy A; The Harriet L. Wilkes Honors College, Florida Atlantic University, Florida, USA.
Malanowski S; The Harriet L. Wilkes Honors College, Florida Atlantic University, Florida, USA.; Pokaż więcej
Źródło:: Bioethics [Bioethics] 2019 Jan; Vol. 33 (1), pp. 162-168. Date of Electronic Publication: 2018 Aug 14.
Typ publikacji:: Journal Article
MeSH Terms:: Decision Making*/ethics
Health Knowledge, Attitudes, Practice*
Knowledge*
Drug Therapy/*methods
Evidence-Based Medicine/*methods
Informed Consent/*psychology
Humans ; Informed Consent/ethics ; Pharmacology ; Thinking