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Tytuł :
From the Child’s Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care
Autorzy :
Katharine E. Brock
Joanne Wolfe
Christina Ullrich
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Temat :
pediatric palliative care
quality of life
symptom management
hospice
patient-reported outcomes
mobile apps
Pediatrics
RJ1-570
Źródło :
Children, Vol 5, Iss 4, p 45 (2018)
Opis pliku :
electronic resource
Relacje :
http://www.mdpi.com/2227-9067/5/4/45; https://doaj.org/toc/2227-9067
Dostęp URL :
https://doaj.org/article/00885328b0be46fe92f56914356780e0
Czasopismo naukowe
Tytuł :
Palliative Care in Hematopoietic Stem Cell Transplantation
Autorzy :
Monika Führer
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Źródło :
Palliative Care in Pediatric Oncology. :103-117
Książka elektroniczna
Tytuł :
Communication with Children with Cancer and Their Families Throughout the Illness Journey and at the End of Life
Autorzy :
Erica C. KayeAff7 Aff8 Aff9
Jennifer M. SnamanAff10 Aff11
Liza JohnsonAff8 Aff9
Deena LevineAff8 Aff9
Brent Powell
Amy Love
Jennifer Smith
Jennifer H. Ehrentraut
Joanna Lyman
Melody Cunningham
Justin N. BakerAff8 Aff9
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Źródło :
Palliative Care in Pediatric Oncology. :55-93
Materiał oryginalny :
“Speak clearly, if you speak at all; carve every word before you let it fall.”
Oliver Wendall Holmes
“The way you tell the truth to families makes a huge difference…if you know the person that’s coming in there and they’re telling the truth, as hard as it is, but you know they care about you and they love your child, it’s okay. As hard as it is, it’s okay and it makes all the difference.”
Bereaved parent
Degree :
M.D.
Książka elektroniczna
Tytuł :
Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With Cancer.
Autorzy :
Widger K; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Sutradhar R; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Rapoport A; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Vadeboncoeur C; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Zelcer S; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Kassam A; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Nelson K; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Liu Y; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Wolfe J; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Earle CC; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Pole JD; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
Gupta S; Kimberley Widger, Rinku Sutradhar, Adam Rapoport, Alisha Kassam, and Sumit Gupta, University of Toronto; Kimberley Widger, Adam Rapoport, Alisha Kassam, Katherine Nelson, and Sumit Gupta, The Hospital for Sick Children; Rinku Sutradhar, Ying Liu, Craig C. Earle, Jason D. Pole, and Sumit Gupta, Institute for Clinical Evaluative Sciences; Adam Rapoport, Emily's House Children's Hospice; Jason D. Pole, Pediatric Oncology Group of Ontario, Toronto; Christina Vadeboncoeur, Children's Hospital of Eastern Ontario, University of Ottawa, and Roger Neilson House, Ottawa; Shayna Zelcer, London Health Sciences Centre, London; Alisha Kassam, Southlake Regional Health Centre, Newmarket, Canada; and Joanne Wolfe, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, MA.
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Źródło :
Journal of clinical oncology : official journal of the American Society of Clinical Oncology [J Clin Oncol] 2018 Mar 10; Vol. 36 (8), pp. 801-807. Date of Electronic Publication: 2018 Jan 22.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Neoplasms/*psychology
Palliative Care/*methods
Terminal Care/*methods
Adolescent ; Child ; Child, Preschool ; Cohort Studies ; Female ; Humans ; Infant ; Infant, Newborn ; Male ; Retrospective Studies
Czasopismo naukowe

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