Survival of children with rare structural congenital anomalies: a multi-registry cohort study.
Autorzy:
Coi A; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Via Moruzzi 1, 56124, Pisa, Italy. . Santoro M; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Via Moruzzi 1, 56124, Pisa, Italy. Pierini A; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Via Moruzzi 1, 56124, Pisa, Italy.; Fondazione Toscana Gabriele Monasterio, Pisa, Italy. Rankin J; Population Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK. Glinianaia SV; Population Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK. Tan J; Population Health Research Institute, St George's University of London, London, UK. Reid AK; Population Health Research Institute, St George's University of London, London, UK. Garne E; Paediatric Department, Hospital Lillebaelt, Kolding, Denmark. Loane M; Faculty of Life and Health Sciences, Ulster University, Belfast, Northern Ireland, UK. Given J; Faculty of Life and Health Sciences, Ulster University, Belfast, Northern Ireland, UK. Ballardini E; Neonatal Intensive Care Unit, Paediatric Section, IMER Registry (Emilia Romagna Registry of Birth Defects), Department of Medical Sciences, University of Ferrara, Ferrara, Italy. Cavero-Carbonell C; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain. de Walle HEK; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands. Gatt M; Malta Congenital Anomalies Register, Directorate of Health Information and Research, Pieta, Malta. García-Villodre L; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain. Gissler M; Information Services Department, THL Finnish Institute for Health and Welfare, Helsinki, Finland. Jordan S; Faculty of Medicine, Health and Life Science, Swansea University, Swansea, Wales, UK. Kiuru-Kuhlefelt S; Information Services Department, THL Finnish Institute for Health and Welfare, Helsinki, Finland. KjaerUrhojS; Paediatric Department, Hospital Lillebaelt, Kolding, Denmark.; Section of Epidemiology, Department of Public Health, University of Copenhagen, Copenhagen, Denmark. Klungsøyr K; Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.; Division for Mental and Physical Health, Norwegian Institute of Public Health, Bergen, Norway. Lelong N; Center of Research in Epidemiology and StatisticS/CRESS/Obstetrical Perinatal and Pediatric Epidemiology Research Team (EPOPé), INSERM, INRA, Université de Paris, Paris, France. Lutke LR; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands. Neville AJ; IMER Registry (Emila Romagna Registry of Birth Defects), Center for Clinical and Epidemiological Research, University of Ferrara Azienda Ospedaliero- Universitaria di Ferrara, Ferrara, Italy. Rahshenas M; Center of Research in Epidemiology and StatisticS/CRESS/Obstetrical Perinatal and Pediatric Epidemiology Research Team (EPOPé), INSERM, INRA, Université de Paris, Paris, France. Scanlon I; Faculty of Medicine, Health and Life Science, Swansea University, Swansea, Wales, UK. Wellesley D; Wessex Clinical Genetics Service, Princess Anne Hospital, Faculty of Medicine, University Hospital Southampton, Southampton, UK. Morris JK; Population Health Research Institute, St George's University of London, London, UK.
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Źródło:
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2022 Mar 29; Vol. 17 (1), pp. 142. Date of Electronic Publication: 2022 Mar 29.
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