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Wyświetlanie 1-10 z 10
Tytuł :
Employees’ Views and Ethical, Legal, and Social Implications Assessment of Voluntary Workplace Genomic Testing
Autorzy :
Kunal Sanghavi
W. Gregory Feero
Debra J. H. Mathews
Anya E. R. Prince
Lori Lyn Price
Edison T. Liu
Kyle B. Brothers
J. Scott Roberts
Charles Lee
Pokaż więcej
Temat :
workplace genomic testing
workplace wellness
employees
ELSI
genetic health professionals
Genetics
QH426-470
Źródło :
Frontiers in Genetics, Vol 12 (2021)
Opis pliku :
electronic resource
Relacje :
https://www.frontiersin.org/articles/10.3389/fgene.2021.643304/full; https://doaj.org/toc/1664-8021
Dostęp URL :
https://doaj.org/article/8d3e69c122b04843b243be4ae40273f1
Czasopismo naukowe
Tytuł :
Tensions in ethics and policy created by National Precision Medicine Programs
Autorzy :
Jusaku Minari
Kyle B. Brothers
Michael Morrison
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Temat :
Precision medicine
Genomics
Consent
Insurance
Privacy
Sustainability
Medicine
Genetics
QH426-470
Źródło :
Human Genomics, Vol 12, Iss 1, Pp 1-10 (2018)
Opis pliku :
electronic resource
Relacje :
http://link.springer.com/article/10.1186/s40246-018-0151-9; https://doaj.org/toc/1479-7364
Dostęp URL :
https://doaj.org/article/9a52e3fd65ca47b68872064b8df0fabb
Czasopismo naukowe
Tytuł :
Online Pediatric Research: Addressing Consent, Assent, and Parental Permission.
Autorzy :
Brothers KB; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Ellen Wright Clayton, M.D., J.D., is the Craig-Weaver Professor of Pediatrics, Professor of Health Policy, and Member of the Center for Biomedical Ethics and Society at Vanderbilt University Medical Center, and Professor of Law at the Vanderbilt University School of Law. Aaron J. Goldenberg, Ph.D., is an Associate Professor and Vice Chair for the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
Clayton EW; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Ellen Wright Clayton, M.D., J.D., is the Craig-Weaver Professor of Pediatrics, Professor of Health Policy, and Member of the Center for Biomedical Ethics and Society at Vanderbilt University Medical Center, and Professor of Law at the Vanderbilt University School of Law. Aaron J. Goldenberg, Ph.D., is an Associate Professor and Vice Chair for the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
Goldenberg AJ; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Ellen Wright Clayton, M.D., J.D., is the Craig-Weaver Professor of Pediatrics, Professor of Health Policy, and Member of the Center for Biomedical Ethics and Society at Vanderbilt University Medical Center, and Professor of Law at the Vanderbilt University School of Law. Aaron J. Goldenberg, Ph.D., is an Associate Professor and Vice Chair for the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
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Źródło :
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2020 Mar; Vol. 48 (1_suppl), pp. 129-137.
Typ publikacji :
Journal Article
MeSH Terms :
Decision Making*
Internet-Based Intervention*
Minors*
Parental Consent*
Biomedical Research/*ethics
Biomedical Research/*legislation & jurisprudence
Adolescent ; Adult ; Child ; Humans ; Rare Diseases ; Research Subjects
Czasopismo naukowe
Tytuł :
Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations.
Autorzy :
Rothstein MA; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Wilbanks JT; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Beskow LM; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Brelsford KM; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Brothers KB; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Doerr M; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Evans BJ; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Hammack-Aviran CM; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
McGowan ML; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Tovino SA; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.
Pokaż więcej
Źródło :
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2020 Mar; Vol. 48 (1_suppl), pp. 196-226.
Typ publikacji :
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms :
Computers, Handheld*
Ethics, Research*
Mobile Applications*
Policy*
Telemedicine*
Biomedical Research/*legislation & jurisprudence
Biomedical Research/trends ; Guidelines as Topic ; Humans ; Research Personnel/classification ; United States
Czasopismo naukowe
Tytuł :
Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations.
Autorzy :
Rothstein MA; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Zawati MH; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Beskow LM; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Brelsford KM; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Brothers KB; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Hammack-Aviran CM; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Hazel JW; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Joly Y; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Lang M; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Patrinos D; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Saltzman A; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
Knoppers BM; Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine. Ma'n H. Zawati, Ph.D. (D.C.L.), is Executive Director of the Centre of Genomics and Policy and Assistant Professor, Department of Human Genetics, McGill University Faculty of Medicine. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Catherine M. Hammack-Aviran, J.D., M.A., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. James W. Hazel, J.D., Ph.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Yann Joly, Ph.D. (D.C.L.), is Research Director of the Centre of Genomics and Policy and Associate Professor, Department of Human Genetics, McGill University Faculty of Medicine. Michael Lang, B.C.L., LL.B., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Dimitri Patrinos, B.Sc., LL.B., J.D., is a Research Assistant at the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine. Andrea Saltzman, B.S.N., M.A., is Director, Office of Research Subject Protection, Broad Institute of Massachusetts Institute of Technology and Harvard University. Bartha Maria Knoppers, Ph.D. (Comparative Medical Law), is Canada Research Chair in Law and Medicine, Professor and Director of the Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine.
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Źródło :
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2019 Dec; Vol. 47 (4), pp. 705-731.
Typ publikacji :
Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
MeSH Terms :
Ethics, Research*
Genomics*
Patient Selection*
Biomedical Research/*ethics
Biomedical Research/*legislation & jurisprudence
Ethics Committees, Research/*legislation & jurisprudence
Ethics Committees, Research/*organization & administration
Ethical Review ; Internationality ; Rare Diseases
Czasopismo naukowe
Tytuł :
A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.
Autorzy :
Brothers KB; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Suzanne M. Rivera, Ph.D., is Vice President for Research and Technology Management at Case Western Reserve University School of Medicine and an Associate Professor in the Department of Bioethics. R. Jean Cadigan, Ph.D., is an Associate Professor in the Department of Social Medicine at the University of North Carolina-Chapel Hill, as well as a core faculty member in UNC's Center for Bioethics. Richard R. Sharp, Ph.D., directs the Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program and the Clinical and Translational Research Ethics Program at the Mayo Clinic in Rochester, MN. Aaron J. Goldenberg, Ph.D., is an Associate Professor in the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
Rivera SM; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Suzanne M. Rivera, Ph.D., is Vice President for Research and Technology Management at Case Western Reserve University School of Medicine and an Associate Professor in the Department of Bioethics. R. Jean Cadigan, Ph.D., is an Associate Professor in the Department of Social Medicine at the University of North Carolina-Chapel Hill, as well as a core faculty member in UNC's Center for Bioethics. Richard R. Sharp, Ph.D., directs the Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program and the Clinical and Translational Research Ethics Program at the Mayo Clinic in Rochester, MN. Aaron J. Goldenberg, Ph.D., is an Associate Professor in the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
Cadigan RJ; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Suzanne M. Rivera, Ph.D., is Vice President for Research and Technology Management at Case Western Reserve University School of Medicine and an Associate Professor in the Department of Bioethics. R. Jean Cadigan, Ph.D., is an Associate Professor in the Department of Social Medicine at the University of North Carolina-Chapel Hill, as well as a core faculty member in UNC's Center for Bioethics. Richard R. Sharp, Ph.D., directs the Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program and the Clinical and Translational Research Ethics Program at the Mayo Clinic in Rochester, MN. Aaron J. Goldenberg, Ph.D., is an Associate Professor in the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
Sharp RR; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Suzanne M. Rivera, Ph.D., is Vice President for Research and Technology Management at Case Western Reserve University School of Medicine and an Associate Professor in the Department of Bioethics. R. Jean Cadigan, Ph.D., is an Associate Professor in the Department of Social Medicine at the University of North Carolina-Chapel Hill, as well as a core faculty member in UNC's Center for Bioethics. Richard R. Sharp, Ph.D., directs the Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program and the Clinical and Translational Research Ethics Program at the Mayo Clinic in Rochester, MN. Aaron J. Goldenberg, Ph.D., is an Associate Professor in the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
Goldenberg AJ; Kyle B. Brothers, M.D., Ph.D., is an Associate Professor in the Department of Pediatrics at the University of Louisville, where he is also affiliated with the Institute for Bioethics, Health Policy, and Law. Suzanne M. Rivera, Ph.D., is Vice President for Research and Technology Management at Case Western Reserve University School of Medicine and an Associate Professor in the Department of Bioethics. R. Jean Cadigan, Ph.D., is an Associate Professor in the Department of Social Medicine at the University of North Carolina-Chapel Hill, as well as a core faculty member in UNC's Center for Bioethics. Richard R. Sharp, Ph.D., directs the Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program and the Clinical and Translational Research Ethics Program at the Mayo Clinic in Rochester, MN. Aaron J. Goldenberg, Ph.D., is an Associate Professor in the Department of Bioethics at Case Western Reserve University (CWRU). He is also Co-Director of the Center for Genetic Research Ethics and Law at CWRU.
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Źródło :
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2019 Mar; Vol. 47 (1), pp. 165-172.
Typ publikacji :
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms :
Government Regulation*
Policy Making*
Stakeholder Participation*
Human Experimentation/*ethics
Human Experimentation/*legislation & jurisprudence
Bioethics/trends ; Humans
Czasopismo naukowe
    Wyświetlanie 1-10 z 10

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