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Tytuł :
Quality of life in long term survivors of pediatric intestinal transplantation compared with liver transplantation and home parenteral nutrition: A prospective single-center pilot study.
Autorzy :
Proli F; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.; Department of Pediatrics, Department of Woman and Child Health and Public Health, Fondazione Policlinico A. Gemelli IRCCS, Rome, Italy.
Metou-Lopes A; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
Ayachi A; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
Rossi M; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
D'Arcangelo G; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
Faragalli A; Centre of Epidemiology, Biostatistics and Medical Information Technology, Marche Polytechnic University, Ancona, Italy.
Lambe C; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
Talbotec C; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
Goulet O; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
Chardot C; Pediatric Surgery, Hôpital Necker Enfants Malades, Paris, France.
Lacaille F; Gastroenterology-Hepatology-Nutrition Unit, Hôpital Necker-Enfants Malades, Paris, France.
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Źródło :
Pediatric transplantation [Pediatr Transplant] 2021 May; Vol. 25 (3), pp. e13982. Date of Electronic Publication: 2021 Feb 16.
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
Metabolic bone disease in children with intestinal failure is not associated with the level of parenteral nutrition dependency.
Autorzy :
Abi Nader E; Department of Pediatric Gastroenterology, Hepatology and Nutrition, National Reference Center for Rare Digestive Diseases, Necker Enfants Malades University Hospital, 75015, Paris, France; Université de Paris, Faculty of Medicine, 75006, Paris, France. Electronic address: .
Lambe C; Department of Pediatric Gastroenterology, Hepatology and Nutrition, National Reference Center for Rare Digestive Diseases, Necker Enfants Malades University Hospital, 75015, Paris, France.
Talbotec C; Department of Pediatric Gastroenterology, Hepatology and Nutrition, National Reference Center for Rare Digestive Diseases, Necker Enfants Malades University Hospital, 75015, Paris, France.
Acramel A; Department of Pharmacy, Necker Enfants Malades University Hospital, 75015, Paris, France.
Pigneur B; Department of Pediatric Gastroenterology, Hepatology and Nutrition, National Reference Center for Rare Digestive Diseases, Necker Enfants Malades University Hospital, 75015, Paris, France; Université de Paris, Faculty of Medicine, 75006, Paris, France.
Goulet O; Department of Pediatric Gastroenterology, Hepatology and Nutrition, National Reference Center for Rare Digestive Diseases, Necker Enfants Malades University Hospital, 75015, Paris, France; Université de Paris, Faculty of Medicine, 75006, Paris, France.
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Źródło :
Clinical nutrition (Edinburgh, Scotland) [Clin Nutr] 2021 Apr; Vol. 40 (4), pp. 1974-1982. Date of Electronic Publication: 2020 Sep 15.
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
The challenging management of a series of 43 infants with Netherton syndrome: unexpected complications and novel mutations.
Autorzy :
Bellon N; Department of Dermatology, Reference Centre for Genodermatoses and Rare Skin Diseases (MAGEC), Necker-Enfants Malades Hospital (AP-HP), Imagine Institute, Paris, France.
Hadj-Rabia S; Department of Dermatology, Reference Centre for Genodermatoses and Rare Skin Diseases (MAGEC), Necker-Enfants Malades Hospital (AP-HP), Imagine Institute, Paris, France.; Paris-Centre University, Paris, France.
Moulin F; Department of Paediatric Intensive Care, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Lambe C; Department of Paediatric Gastroenterology, Hepatology and Nutrition, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Lezmi G; Paris-Centre University, Paris, France.; Department of Pneumo-Allergology, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Charbit-Henrion F; Paris-Centre University, Paris, France.; Department of Genetics, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Alby C; Department of Genetics, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Le Saché-de Peufeilhoux L; Department of Dermatology, Reference Centre for Genodermatoses and Rare Skin Diseases (MAGEC), Necker-Enfants Malades Hospital (AP-HP), Imagine Institute, Paris, France.
Leclerc-Mercier S; Department of Pathology, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Hadchouel A; Paris-Centre University, Paris, France.; Department of Pneumo-Allergology, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Steffann J; Paris-Centre University, Paris, France.; Department of Genetics, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Hovnanian A; Paris-Centre University, Paris, France.; Department of Genetics, Necker-Enfants Malades Hospital (AP-HP), Paris, France.; INSERM UMR 1163, Laboratory of Genetic Skin Diseases, Imagine Institute, Paris, France.
Lapillonne A; Paris-Centre University, Paris, France.; Department of Neonatology, Necker-Enfants Malades Hospital (AP-HP), Paris, France.
Bodemer C; Department of Dermatology, Reference Centre for Genodermatoses and Rare Skin Diseases (MAGEC), Necker-Enfants Malades Hospital (AP-HP), Imagine Institute, Paris, France.; Paris-Centre University, Paris, France.
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Źródło :
The British journal of dermatology [Br J Dermatol] 2021 Mar; Vol. 184 (3), pp. 532-537. Date of Electronic Publication: 2020 Sep 10.
Typ publikacji :
Journal Article
MeSH Terms :
Netherton Syndrome*/genetics
Netherton Syndrome*/therapy
Hair ; Humans ; Infant ; Infant, Newborn ; Mutation ; Proteinase Inhibitory Proteins, Secretory/genetics ; Serine Peptidase Inhibitor Kazal-Type 5
Czasopismo naukowe
Tytuł :
Cannabinoids Improve Gastrointestinal Symptoms in a Parenteral Nutrition-Dependent Patient With Chronic Intestinal Pseudo-Obstruction.
Autorzy :
Zemrani B; Pediatric Gastroenterology-Hepatology-Nutrition Unit, Necker-Enfants-Malades Hospital, Paris, France.; Woman-Mother-Child Department, Lausanne University Hospital, Lausanne, Switzerland.
Lambe C; Pediatric Gastroenterology-Hepatology-Nutrition Unit, Necker-Enfants-Malades Hospital, Paris, France.
Goulet O; Pediatric Gastroenterology-Hepatology-Nutrition Unit, Necker-Enfants-Malades Hospital, Paris, France.
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Źródło :
JPEN. Journal of parenteral and enteral nutrition [JPEN J Parenter Enteral Nutr] 2021 Feb; Vol. 45 (2), pp. 427-429. Date of Electronic Publication: 2020 Mar 17.
Typ publikacji :
Case Reports
MeSH Terms :
Cannabinoids*
Intestinal Pseudo-Obstruction*/complications
Intestinal Pseudo-Obstruction*/therapy
Child ; Chronic Disease ; Humans ; Parenteral Nutrition, Total ; Quality of Life
Raport
Tytuł :
Incidence and predictors of axillary web syndrome and its association with lymphedema in women following breast cancer treatment: a retrospective study.
Autorzy :
Ryans K; Department of Physical Therapy, Mercy College, Dobbs Ferry, NY, USA. .; Department of Oncology Rehabilitation & Lymphedema Management, Atlantic Health System, Morristown, NJ, USA. .
Davies CC; Nursing and Allied Health Research Office, Baptist Health Lexington, Lexington, KY, USA.
Gaw G; Department of Oncology Rehabilitation & Lymphedema Management, Atlantic Health System, Morristown, NJ, USA.
Lambe C; Department of Oncology Rehabilitation, Regional Cancer Center at Lee Health , Cape Coral, FL, USA.
Henninge M; Physical Therapy and Rehabilitation, United Health Services, Vestal, NY, USA.
VanHoose L; Department of Physical Therapy, University of Louisiana Monroe, Monroe, LA, USA.
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Źródło :
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer [Support Care Cancer] 2020 Dec; Vol. 28 (12), pp. 5881-5888. Date of Electronic Publication: 2020 Apr 08.
Typ publikacji :
Journal Article
MeSH Terms :
Axilla/*surgery
Breast Cancer Lymphedema/*pathology
Breast Neoplasms/*surgery
Cicatrix/*epidemiology
Cicatrix/*pathology
Lymph Node Excision/*adverse effects
Adult ; Aged ; Aged, 80 and over ; Breast/pathology ; Breast/surgery ; Breast Cancer Lymphedema/etiology ; Breast Neoplasms/rehabilitation ; Cancer Survivors/statistics & numerical data ; Female ; Humans ; Incidence ; Middle Aged ; Postoperative Complications/epidemiology ; Prospective Studies ; Retrospective Studies ; Risk Factors ; Shoulder/pathology ; Young Adult
Czasopismo naukowe
Tytuł :
Antenatal finding of 16q24.1 duplication including FOXF1, revealing an autosomal dominant familial pathology with congenital short bowel, malrotation and renal abnormalities.
Autorzy :
Lavillaureix A; CHU Rennes, Service de Génétique Clinique, Centre de Référence Maladies Rares CLAD-Ouest, ERN ITHACA, Hôpital Sud, Rennes, France; Univ Rennes, CNRS, IGDR, UMR 6290, F-35000 Rennes, France. Electronic address: .
Foulon G; CHU Rennes, Pédiatrie - Maladies Rares Digestives (MaRDi), Hôpital Sud, Rennes, F-35000 Rennes, France.
Launay E; CHU Rennes, Service de Cytogénétique et Biologie Cellulaire, F-35033 Rennes, France.
Belaud-Rotureau MA; CHU Rennes, Service de Cytogénétique et Biologie Cellulaire, F-35033 Rennes, France; Univ Rennes, CHU Rennes, INSERM, EHESP, IRSET (Institut de Recherche en Santé, Environnement et Travail) - UMR_S 1085, F-35000 Rennes, France.
Thibault R; Unité de Nutrition, Maladies Rares Digestives (MaRDi), CHU Rennes, INRAE, INSERM, Univ Rennes, Nutrition Metabolisms and Cancer, NuMeCan, Rennes, France.
Lambe C; Service de gastro-entérologie, hépatologie et nutrition pédiatrique, Hopital Necker-Enfants Malades, Assistance Publique - Hopitaux de Paris, Paris, France.
Aussel D; Diagnostic Anténatal, Clinique La Sagesse, Rennes, France.
Pasquier L; CHU Rennes, Service de Génétique Clinique, Centre de Référence Maladies Rares CLAD-Ouest, ERN ITHACA, Hôpital Sud, Rennes, France.
Odent S; CHU Rennes, Service de Génétique Clinique, Centre de Référence Maladies Rares CLAD-Ouest, ERN ITHACA, Hôpital Sud, Rennes, France; Univ Rennes, CNRS, IGDR, UMR 6290, F-35000 Rennes, France.
Arnaud A; CHU Rennes, Service de Chirurgie Pédiatrique, Maladies Rares Digestives (MaRDi), Hôpital Sud, Rennes, F-35000 Rennes, France; Institut NuMeCan, INRAe, INSERM, Univ Rennes, Rennes, France.
Habonimana E; CHU Rennes, Service de Chirurgie Pédiatrique, Maladies Rares Digestives (MaRDi), Hôpital Sud, Rennes, F-35000 Rennes, France.
Dabadie A; CHU Rennes, INRAe, INSERM, Univ Rennes, Institut NUMECAN (Nutrition Metabolism and Cancer), Pédiatrie - Maladies Rares Digestives (MaRDi), Hôpital Sud, Rennes, F-35000 Rennes, France.
Jaillard S; CHU Rennes, Service de Cytogénétique et Biologie Cellulaire, F-35033 Rennes, France; Univ Rennes, CHU Rennes, INSERM, EHESP, IRSET (Institut de Recherche en Santé, Environnement et Travail) - UMR_S 1085, F-35000 Rennes, France.
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Źródło :
Clinics and research in hepatology and gastroenterology [Clin Res Hepatol Gastroenterol] 2020 Nov 15, pp. 101562. Date of Electronic Publication: 2020 Nov 15.
Typ publikacji :
Letter
Opinia redakcyjna
Tytuł :
Beyond 10 years, with or without an intestinal graft: Present and future?
Autorzy :
Courbage S; Department of Pediatric Gastroenterology, Hepatology and Nutrition, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Canioni D; Department of Pathology, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Talbotec C; Department of Pediatric Gastroenterology, Hepatology and Nutrition, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Lambe C; Department of Pediatric Gastroenterology, Hepatology and Nutrition, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Chardot C; Department of Pediatric Surgery, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Rabant M; Department of Pathology, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Galmiche L; Department of Pathology, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Corcos O; Department of Gastroenterology, Nutrition Support and Intestinal Transplantation, Beaujon Hospital, University of Paris, Clichy, France.
Goulet O; Department of Pediatric Gastroenterology, Hepatology and Nutrition, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
Joly F; Department of Gastroenterology, Nutrition Support and Intestinal Transplantation, Beaujon Hospital, University of Paris, Clichy, France.
Lacaille F; Department of Pediatric Gastroenterology, Hepatology and Nutrition, Necker-Enfants Malades Hospital, University of Paris, Paris, France.
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Źródło :
American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons [Am J Transplant] 2020 Oct; Vol. 20 (10), pp. 2802-2812. Date of Electronic Publication: 2020 May 03.
Typ publikacji :
Journal Article
MeSH Terms :
Graft Rejection*/etiology
Immunosuppressive Agents*
Child ; Graft Survival ; Humans ; Mycophenolic Acid ; Sirolimus
Czasopismo naukowe
Tytuł :
Colon importance in short bowel syndrome.
Autorzy :
Lambe C; Pediatric Gastroenterology Hepatology and Nutrition Necker Enfants Malades Hospital, Paris, France.
Goulet O; Pediatric Gastroenterology Hepatology and Nutrition Necker Enfants Malades Hospital, Paris, France.
Norsa L; Pediatric Hepatology Gastroenterology and Transplantation, ASST Papa Giovanni XXIII, Bergamo, Italy.
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Źródło :
Aging [Aging (Albany NY)] 2019 Nov 15; Vol. 11 (22), pp. 9961-9962. Date of Electronic Publication: 2019 Nov 15.
Typ publikacji :
Editorial
MeSH Terms :
Gastrointestinal Microbiome*
Colon/*microbiology
Short Bowel Syndrome/*microbiology
Humans
Opinia redakcyjna
Tytuł :
OR54: The Reve Study, Preliminary Results. A Monocentric Single-Arm Study to Characterize the Long-Term Safety and Efficacy of GLP-2 Analog (Teduglutide) in the Management of Short Bowel Syndrome in Pediatric Patients on Home-Parenteral Nutrition.
Autorzy :
Lambe, C.
Talbotec, C.
Kapel, N.
Goulet, O.
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Źródło :
Clinical Nutrition; 2019 Supplement 1, Vol. 38, pS25-S25, 1p
Czasopismo naukowe
Tytuł :
Short Bowel Syndrome as the Leading Cause of Intestinal Failure in Early Life: Some Insights into the Management.
Autorzy :
Goulet O; Department of Pediatric Gastroenterology-Hepatology-Nutrition, National Reference Center for Rare Digestive Diseases, Pediatric Intestinal Failure Rehabilitation Center, Hôpital Necker-Enfants Malades, University Sorbonne-Paris-Cité Paris Descartes Medical School, Paris, France.
Abi Nader E; Department of Pediatric Gastroenterology-Hepatology-Nutrition, National Reference Center for Rare Digestive Diseases, Pediatric Intestinal Failure Rehabilitation Center, Hôpital Necker-Enfants Malades, University Sorbonne-Paris-Cité Paris Descartes Medical School, Paris, France.
Pigneur B; Department of Pediatric Gastroenterology-Hepatology-Nutrition, National Reference Center for Rare Digestive Diseases, Pediatric Intestinal Failure Rehabilitation Center, Hôpital Necker-Enfants Malades, University Sorbonne-Paris-Cité Paris Descartes Medical School, Paris, France.
Lambe C; Department of Pediatric Gastroenterology-Hepatology-Nutrition, National Reference Center for Rare Digestive Diseases, Pediatric Intestinal Failure Rehabilitation Center, Hôpital Necker-Enfants Malades, University Sorbonne-Paris-Cité Paris Descartes Medical School, Paris, France.
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Źródło :
Pediatric gastroenterology, hepatology & nutrition [Pediatr Gastroenterol Hepatol Nutr] 2019 Jul; Vol. 22 (4), pp. 303-329. Date of Electronic Publication: 2019 Jun 27.
Typ publikacji :
Journal Article; Review
Czasopismo naukowe
Tytuł :
The colon as an energy salvage organ for children with short bowel syndrome.
Autorzy :
Norsa L; Department of Pediatric Gastroenterology-Hepatology-Nutrition, Hôpital Necker-Enfants Malades, Université Paris Descartes, Paris, France.; Pediatric Gastroenterology, Hepatology and Nutrition, Ospedale Papa Giovanni XXIII, Bergamo, Italy.
Lambe C; Department of Pediatric Gastroenterology-Hepatology-Nutrition, Hôpital Necker-Enfants Malades, Université Paris Descartes, Paris, France.
Abi Abboud S; Department of Pediatric Gastroenterology-Hepatology-Nutrition, Hôpital Necker-Enfants Malades, Université Paris Descartes, Paris, France.
Barbot-Trystram L; Department of Coprology, Assistance Publique-Hôpitaux de Paris, Hopital de la Pitié-Salpêtrière and Université Paris Descartes, Paris, France.
Ferrari A; FROM Research Foundation (Fondazione per la Ricerca Ospedale Maggiore), ASST Papa Giovanni XXIII, Bergamo, Italy.
Talbotec C; Department of Pediatric Gastroenterology-Hepatology-Nutrition, Hôpital Necker-Enfants Malades, Université Paris Descartes, Paris, France.
Kapel N; Department of Coprology, Assistance Publique-Hôpitaux de Paris, Hopital de la Pitié-Salpêtrière and Université Paris Descartes, Paris, France.
Pigneur B; Department of Pediatric Gastroenterology-Hepatology-Nutrition, Hôpital Necker-Enfants Malades, Université Paris Descartes, Paris, France.
Goulet O; Department of Pediatric Gastroenterology-Hepatology-Nutrition, Hôpital Necker-Enfants Malades, Université Paris Descartes, Paris, France.
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Źródło :
The American journal of clinical nutrition [Am J Clin Nutr] 2019 Apr 01; Vol. 109 (4), pp. 1112-1118.
Typ publikacji :
Journal Article
MeSH Terms :
Colon/*physiopathology
Short Bowel Syndrome/*physiopathology
Child ; Child, Preschool ; Citrulline/blood ; Cross-Sectional Studies ; Female ; Humans ; Intestinal Absorption ; Intestine, Small/growth & development ; Intestine, Small/physiopathology ; Male ; Parenteral Nutrition ; Retrospective Studies ; Short Bowel Syndrome/blood ; Short Bowel Syndrome/therapy
Czasopismo naukowe
Tytuł :
Experience of Using a Semielemental Formula for Home Enteral Nutrition in Children: A Multicenter Cross-sectional Study.
Autorzy :
Leonard M; Department of Pediatric Gastroenterology, Hepatology and Nutrition, CHU Lille, University Lille, Lille, France.; Université Libre de Bruxelles, Bruxelles, Belgium.
Caldari D; Department of Pediatrics, CHU Nantes, Nantes.
Mas E; University Toulouse, INSERM, INRA, ENVT, UPS.; Department of Pediatric Gastroenterology, Hepatology, Nutrition, Diabetology and Inherited Metabolic Disorders, Children Hospital, CHU Toulouse, Toulouse.
Lambe C; Department of Pediatric Gastroenterology, Hôpital Necker - Enfants Malades, Paris.
Comte A; Department of Pediatric Hepatology, Gastroenterology and Nutrition, CHU Besançon, Besançon.
Ley D; Department of Pediatric Gastroenterology, Hepatology and Nutrition, CHU Lille, University Lille, Lille, France.
Peretti N; Department of Pediatrics, Hôpital Femme-Mère-Enfant, Hospices Civils de Lyon, Lyon.
Borderon C; Department of Pediatrics, CHU Clermont-Ferrand, Clermont-Ferrand.
Marinier E; Department of Pediatric Gastroenterology and Nutrition, Hôpital Robert-Debré, Paris.
Coste ME; Department of Pediatrics, CHU Marseille, Marseille.
Lamireau T; Department of Pediatrics, CHU Bordeaux, Bordeaux.
Rubio A; Department of Pediatrics, CHU Grenoble, Grenoble.
Turquet A; Department of Pediatrics, CHU Felix Guyon, La Réunion.
Dubern B; Department of Pediatric Nutrition and Gastroenterology, Hôpital Trousseau, Paris.
Dabadie A; Department of Pediatrics, CHU Rennes, Rennes.
Gautry J; Nestlé Health Science, Noisiel.
Kyheng M; Engineer in Biostatistics, University Lille, CHU Lille, Lille, France.
Guimber D; Department of Pediatric Gastroenterology, Hepatology and Nutrition, CHU Lille, University Lille, Lille, France.
Gottrand F; Department of Pediatric Gastroenterology, Hepatology and Nutrition, CHU Lille, University Lille, Lille, France.
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Źródło :
Journal of pediatric gastroenterology and nutrition [J Pediatr Gastroenterol Nutr] 2019 Apr; Vol. 68 (4), pp. 585-590.
Typ publikacji :
Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't
MeSH Terms :
Enteral Nutrition*
Food, Formulated*
Child ; Cohort Studies ; Cross-Sectional Studies ; Female ; France ; Home Care Services ; Humans ; Male ; Retrospective Studies ; Surveys and Questionnaires ; Treatment Outcome
Czasopismo naukowe

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