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Tytuł:
Quality improvement in juvenile idiopathic arthritis: a mixed-methods implementation pilot of the CAPTURE-JIA dataset.
Autorzy:
McErlane F; Paediatric Rheumatology, Great North Children's Hospital, Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK. .; Institute of Population and Health Sciences, Medical School, Newcastle University, Newcastle upon Tyne, UK. .
Anderson C; Appligo Ltd.
Lawson-Tovey S; Centre for Genetics and Genomics Versus Arthritis, Centre for Musculoskeletal Research, The University of Manchester, Manchester, UK.; National Institute of Health Research Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University NHS Foundation Trust, Manchester, UK.
Lee B; Appligo Ltd.
Lee C; Appligo Ltd.
Lunt L; National Institute of Health Research Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University NHS Foundation Trust, Manchester, UK.; Versus Arthritis Centre for Epidemiology, Centre for Musculoskeletal Research, The University of Manchester, Manchester, UK.
McDonagh JE; National Institute of Health Research Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University NHS Foundation Trust, Manchester, UK.; Versus Arthritis Centre for Epidemiology, Centre for Musculoskeletal Research, The University of Manchester, Manchester, UK.; Department of Paediatric and Adolescent Rheumatology, Royal Manchester Children's Hospital, Manchester University Hospitals NHS Trust, Manchester, UK.
Smith AD; National Institute of Health Research Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University NHS Foundation Trust, Manchester, UK.; Versus Arthritis Centre for Epidemiology, Centre for Musculoskeletal Research, The University of Manchester, Manchester, UK.
Smith N; Musculoskeletal Research Group, Translational and Clinical Research Institute, Newcastle University, Newcastle Upon Tyne, UK.
Cleary G; Department of Rheumatology, Alder Hey Children's Hospital, Liverpool, UK.
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Źródło:
Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2022 Jun 18; Vol. 20 (1), pp. 43. Date of Electronic Publication: 2022 Jun 18.
Typ publikacji:
Journal Article
MeSH Terms:
Arthritis, Juvenile*/diagnosis
Arthritis, Juvenile*/therapy
Adolescent ; Child ; Data Collection ; Humans ; Longitudinal Studies ; Prospective Studies ; Quality Improvement
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement.
Autorzy:
McDonagh JE; Versus Arthritis Centre for Epidemiology; Centre for MSK Research, University of Manchester, Stopford Building, 2nd floor, Oxford Rd, Manchester, M13 9PT, UK. janet.mcdonagh@manchester.ac.uk.; NIHR Biomedical Research Centre, Manchester University Hospital NHS Trust, Manchester, UK. janet.mcdonagh@manchester.ac.uk.; Department of Paediatric and Adolescent Rheumatology, Royal Manchester Children's Hospital, Manchester University Hospitals NHS Trust, Manchester, UK. janet.mcdonagh@manchester.ac.uk.
Tattersall R; Sheffield Children's Hospital and Sheffield Teaching Hospitals, Manchester, UK.
Clinch J; Bristol Royal Hospital for Children and Royal National Hospital for Rheumatic Diseases, Bath, UK.
Swan J; Public Health Family Nurse, Family Nurse Partnership, Wallacetown Health Centre, NHS Tayside, Dundee, UK.; Paediatric Rheumatology European Society (PReS) Juvenile Dermatomyositis Working Party, Manchester, UK.
Foster HE; Paediatric Rheumatology, Newcastle University, Newcastle upon Tyne, UK.; Honorary Consultant Great North Children's Hospital, Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.; Chair Paediatric Global Musculoskeletal Task Force, Manchester, UK.
McCann L; Paediatric Rheumatology European Society (PReS) Juvenile Dermatomyositis Working Party, Manchester, UK.; Consultant Paediatric Rheumatologist, Alder Hey Children's NHS Foundation Trust, Liverpool, UK.; Honorary Clinical Senior Lecturer, University of Liverpool, Liverpool, UK.
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Źródło:
Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2021 Aug 25; Vol. 19 (1), pp. 136. Date of Electronic Publication: 2021 Aug 25.
Typ publikacji:
Journal Article; Review
MeSH Terms:
COVID-19*/epidemiology
COVID-19*/prevention & control
Rheumatic Diseases*/epidemiology
Rheumatic Diseases*/therapy
Rheumatology*/standards
Rheumatology*/trends
Transition to Adult Care*/organization & administration
Transition to Adult Care*/standards
Transition to Adult Care*/trends
Adolescent ; Europe/epidemiology ; Humans ; Organizational Innovation ; SARS-CoV-2 ; Standard of Care
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Identifying the content and context of pain within paediatric rheumatology healthcare professional curricula in the UK: a summative content analysis.
Autorzy:
Lee RR; Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatological Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, University of Manchester, Manchester, UK. .; National Institute for Health Research Biomedical Research Centre, Manchester University Hospital NHS Trust, Stopford Building, Oxford Road, Manchester, M13 9PT, UK. .
McDonagh JE; Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatological Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, University of Manchester, Manchester, UK.; National Institute for Health Research Biomedical Research Centre, Manchester University Hospital NHS Trust, Stopford Building, Oxford Road, Manchester, M13 9PT, UK.; Royal Manchester Children's Hospital, Manchester University Foundation Hospitals Trust, Manchester, UK.
Connelly M; Children's Mercy Kansas City, 2401 Gillham Road, Kansas City, USA.
Peters S; Manchester Centre for Health Psychology, Division of Psychology and Mental Health, University of Manchester, Manchester, UK.
Cordingley L; Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatological Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, University of Manchester, Manchester, UK.; National Institute for Health Research Biomedical Research Centre, Manchester University Hospital NHS Trust, Stopford Building, Oxford Road, Manchester, M13 9PT, UK.
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Źródło:
Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2021 Aug 21; Vol. 19 (1), pp. 129. Date of Electronic Publication: 2021 Aug 21.
Typ publikacji:
Journal Article
MeSH Terms:
Musculoskeletal Pain*/diagnosis
Musculoskeletal Pain*/physiopathology
Musculoskeletal Pain*/psychology
Musculoskeletal Pain*/therapy
Curriculum/*standards
Health Personnel/*education
Pediatrics/*education
Rheumatology/*education
Child ; Clinical Competence/standards ; Humans ; Pain Management/methods ; Pain Management/psychology ; Pain Measurement/methods ; Pain Measurement/psychology ; Pain Perception ; Professional-Patient Relations ; Terminology as Topic
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Adolescents' experiences of fluctuating pain in musculoskeletal disorders: a qualitative systematic review and thematic synthesis.
Autorzy:
Khanom S; Centre for Epidemiology Versus Arthritis , School of Biological Sciences, Faculty of Biology, Medicine and Health, University of Manchester, 2.706 Stopford Building, Oxford Road, Manchester, M13 9PT, UK. .
McDonagh JE; Centre for Epidemiology Versus Arthritis , School of Biological Sciences, Faculty of Biology, Medicine and Health, University of Manchester, 2.706 Stopford Building, Oxford Road, Manchester, M13 9PT, UK.; NIHR Manchester Biomedical Research Centre, Manchester University NHS Foundation Trust, Manchester, UK.
Briggs M; Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, UK.
Bakir E; Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, UK.
McBeth J; Centre for Epidemiology Versus Arthritis , School of Biological Sciences, Faculty of Biology, Medicine and Health, University of Manchester, 2.706 Stopford Building, Oxford Road, Manchester, M13 9PT, UK.
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Źródło:
BMC musculoskeletal disorders [BMC Musculoskelet Disord] 2020 Oct 02; Vol. 21 (1), pp. 645. Date of Electronic Publication: 2020 Oct 02.
Typ publikacji:
Journal Article; Review; Systematic Review
MeSH Terms:
Chronic Pain*/diagnosis
Chronic Pain*/epidemiology
Musculoskeletal Diseases*/diagnosis
Musculoskeletal Diseases*/epidemiology
Adaptation, Psychological ; Adolescent ; Humans ; Qualitative Research ; Symptom Flare Up
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Facilitating transition of young people with long-term health conditions from children's to adults' healthcare services - implications of a 5-year research programme.
Autorzy:
Colver A; Northumbria Healthcare NHS Foundation Trust, North Shields, UK and Newcastle University, Newcastle upon Tyne, UK .
Rapley T; Northumbria University, Newcastle upon Tyne, UK.
Parr JR; Northumbria Healthcare NHS Foundation Trust, North Shields, UK, Newcastle University, Newcastle upon Tyne, UK and Great North Children's Hospital, Newcastle upon Tyne, UK.
McConachie H; Newcastle University, Newcastle upon Tyne, UK.
Dovey-Pearce G; Northumbria Healthcare NHS Foundation Trust, North Shields, UK and Newcastle University, Newcastle upon Tyne, UK.
Couteur AL; Newcastle University, Newcastle upon Tyne, UK and Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
McDonagh JE; Centre for Epidemiology Versus Arthritis, Manchester, UK and NIHR Manchester Biomedical Research Centre, Manchester, UK.
Bennett C; Council for Disabled Children, London, UK.
Maniatopoulos G; Newcastle University, Newcastle upon Tyne, UK.
Pearce MS; Newcastle University, Newcastle upon Tyne, UK.
Reape D; Northumbria Healthcare NHS Foundation Trust, North Shields, UK.
Chater N; Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
Gleeson H; University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.
Vale L; Newcastle University, Newcastle upon Tyne, UK.
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Źródło:
Clinical medicine (London, England) [Clin Med (Lond)] 2020 Jan; Vol. 20 (1), pp. 74-80.
Typ publikacji:
Journal Article
MeSH Terms:
Transition to Adult Care*
Adolescent ; Child ; Delivery of Health Care ; Health Personnel ; Humans ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
A UK study: vocational experiences of young adults with juvenile idiopathic arthritis.
Autorzy:
Lunt LE; Centre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK.; NIHR Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University Hospitals NHS Foundation Trust,, Manchester, UK.
Bosworth A; National Rheumatoid Arthritis Society, (NRAS), Maidenhead, UK.
Bezzant M; National Rheumatoid Arthritis Society, (NRAS), Maidenhead, UK.
Walker-Bone K; Arthritis Research UK/MRC Centre for Musculoskeletal Health and Work, University of Southampton, Southampton, UK.
Hyrich KL; Centre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK.; NIHR Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University Hospitals NHS Foundation Trust,, Manchester, UK.
Thomson W; NIHR Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University Hospitals NHS Foundation Trust,, Manchester, UK.; Centre for Genetics and Genomics Versus Arthritis, The University of Manchester, Manchester, UK.
McDonagh JE; Centre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK.; NIHR Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University Hospitals NHS Foundation Trust,, Manchester, UK.
Verstappen SMM; Centre for Epidemiology Versus Arthritis, The University of Manchester, Manchester, UK. .; NIHR Manchester Biomedical Research Centre, Manchester Academic Health Science Centre, Manchester University Hospitals NHS Foundation Trust,, Manchester, UK. .; Arthritis Research UK/MRC Centre for Musculoskeletal Health and Work, University of Southampton, Southampton, UK. .
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Źródło:
Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2019 Aug 06; Vol. 17 (1), pp. 54. Date of Electronic Publication: 2019 Aug 06.
Typ publikacji:
Letter; Comment
MeSH Terms:
Arthritis, Juvenile*
Musculoskeletal Diseases*
Transition to Adult Care*
Adolescent ; Age of Onset ; Humans ; United Kingdom ; Young Adult
Opinia redakcyjna
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Untimely illness: When diagnosis does not match age-related expectations.
Autorzy:
Kirkpatrick S; Nuffield Department of Primary Health Care Sciences, University of Oxford, Oxford, UK.
Locock L; Health Services Research Unit, University of Aberdeen, Aberdeen, UK.
Farre A; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
Ryan S; Nuffield Department of Primary Health Care Sciences, University of Oxford, Oxford, UK.
Salisbury H; Nuffield Department of Primary Health Care Sciences, University of Oxford, Oxford, UK.
McDonagh JE; Centre for Musculoskeletal Research, University of Manchester, Manchester, UK.
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Źródło:
Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2018 Aug; Vol. 21 (4), pp. 730-740. Date of Electronic Publication: 2018 Feb 09.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Age of Onset*
Arthritis, Juvenile/*diagnosis
Asthma/*diagnosis
Chronic Disease/*psychology
Adolescent ; Adult ; Aged ; Female ; Health Personnel ; Humans ; Male ; Middle Aged ; Qualitative Research ; Quality of Life/psychology ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions.
Autorzy:
Colver A; Institute of Health & Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK. .; Northumbria Healthcare NHS Foundation Trust, North Tyneside General Hospital, Rake Lane, North Shields, NE29 8NH, UK. .
McConachie H; Institute of Health & Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.
Le Couteur A; Institute of Health & Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.; Northumberland, Tyne and Wear NHS Foundation Trust, St. Nicholas Hospital, Jubilee Road, Newcastle upon Tyne, NE3 3XT, UK.
Dovey-Pearce G; Northumbria Healthcare NHS Foundation Trust, North Tyneside General Hospital, Rake Lane, North Shields, NE29 8NH, UK.
Mann KD; Institute of Health & Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.
McDonagh JE; Centre for Musculoskeletal Research and Manchester Academic Health Science Centre, University of Manchester, Stopford Building, Oxford Rd, Manchester, M13 9PT, UK.; NIHR Manchester Biomedical Research Centre, Manchester University NHS Foundation Trust, Manchester Royal Infirmary, Oxford Rd, Manchester, M13 9WL, UK.
Pearce MS; Institute of Health & Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.
Vale L; Institute of Health & Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.
Merrick H; Institute of Health & Society, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.
Parr JR; Northumberland, Tyne and Wear NHS Foundation Trust, St. Nicholas Hospital, Jubilee Road, Newcastle upon Tyne, NE3 3XT, UK.; Institute of Neuroscience, Sir James Spence Institute, Newcastle University, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.; Great North Children's Hospital, Newcastle Upon Tyne Hospitals NHS Foundation Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP, UK.
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Corporate Authors:
Transition Collaborative Group
Źródło:
BMC medicine [BMC Med] 2018 Jul 23; Vol. 16 (1), pp. 111. Date of Electronic Publication: 2018 Jul 23.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Health Services/*trends
Adolescent ; Clinical Protocols ; Cohort Studies ; Female ; Humans ; Longitudinal Studies ; Male
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study.
Autorzy:
Parsons S; Public Programmes Team, Manchester University NHS Foundation Trust, Manchester, UK.; NIHR Manchester Biomedical Research Centre, Manchester University NHS Foundation Trust, Manchester, UK.; Manchester Academic Health Science Centre, Manchester, UK.
Thomson W; NIHR Manchester Biomedical Research Centre, Manchester University NHS Foundation Trust, Manchester, UK.; Manchester Academic Health Science Centre, Manchester, UK.; Arthritis Research UK Centre for Genetics and Genomics, Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatological Sciences, Manchester, UK.; School of Biological Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, Manchester, UK.
Cresswell K; Public Programmes Team, Manchester University NHS Foundation Trust, Manchester, UK.; NIHR Manchester Biomedical Research Centre, Manchester University NHS Foundation Trust, Manchester, UK.; Manchester Academic Health Science Centre, Manchester, UK.
Starling B; NIHR Manchester Biomedical Research Centre, Manchester University NHS Foundation Trust, Manchester, UK.; Research and Innovation Division, Manchester University NHS Foundation Trust, Manchester, UK.
McDonagh JE; School of Biological Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, Manchester, UK. Janet.mcdonagh@manchester.ac.uk.; Arthritis Research UK Centre for Epidemiology, Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatological Sciences, Manchester, UK. Janet.mcdonagh@manchester.ac.uk.; Centre for MSK Research, University of Manchester, Stopford Building 2nd floor, Oxford Rd, Manchester, M13 9PT, UK. Janet.mcdonagh@manchester.ac.uk.
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Corporate Authors:
Barbara Ansell National Network for Adolescent Rheumatology (BANNAR)
Źródło:
Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2018 May 24; Vol. 16 (1), pp. 35. Date of Electronic Publication: 2018 May 24.
Typ publikacji:
Journal Article
MeSH Terms:
Biomedical Research*
Health Knowledge, Attitudes, Practice*
Patient Participation/*psychology
Rheumatic Diseases/*psychology
Adolescent ; Child ; Culture ; Female ; Focus Groups ; Humans ; Male ; Qualitative Research ; United Kingdom ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Wyświetlanie 1-20 z 42

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