Autor: "Meinders, Marjan J." - OpacWWW

Skocz do pozycji: 1.

Tytuł:: Caregiver burden in Parkinson's disease: a mixed-methods study.
Autorzy:: Geerlings AD; Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, P.O. Box 9101 (Internal Code 914), 6500 HB, Nijmegen, The Netherlands.
Kapelle WM; Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, P.O. Box 9101 (Internal Code 914), 6500 HB, Nijmegen, The Netherlands.
Sederel CJ; Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, P.O. Box 9101 (Internal Code 914), 6500 HB, Nijmegen, The Netherlands.
Tenison E; Department of Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.
Wijngaards-Berenbroek H; Parkinson Café Nijmegen, Nijmegen, The Netherlands.
Meinders MJ; Scientific Center for Quality of Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands.
Munneke M; Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, P.O. Box 9101 (Internal Code 914), 6500 HB, Nijmegen, The Netherlands.
Ben-Shlomo Y; Department of Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.
Bloem BR; Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, P.O. Box 9101 (Internal Code 914), 6500 HB, Nijmegen, The Netherlands.
Darweesh SKL; Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, P.O. Box 9101 (Internal Code 914), 6500 HB, Nijmegen, The Netherlands. .; Pokaż więcej
Źródło:: BMC medicine [BMC Med] 2023 Jul 10; Vol. 21 (1), pp. 247. Date of Electronic Publication: 2023 Jul 10.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Caregiver Burden*/etiology
Caregiver Burden*/psychology
Caregiver Burden*/therapy
Caregivers*/psychology
Cost of Illness*
Parkinson Disease*/psychology
Parkinson Disease*/therapy
Quality of Life*/psychology
Aged ; Female ; Humans ; Male ; Cross-Sectional Studies ; Netherlands ; Middle Aged ; Qualitative Research ; Surveys and Questionnaires

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Skocz do pozycji: 2.

Tytuł:: Reply to: Hypoxia treatment of Parkinson's disease may disrupt the circadian system.
Autorzy:: Janssen Daalen JM; Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands. .; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behavior, Nijmegen, The Netherlands. .; Department of Physiology, Department of Medical BioSciences, Radboud University Medical Center, Nijmegen, The Netherlands. .
Meinders MJ; Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behavior, Nijmegen, The Netherlands.; IQ Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands.
Straatsma IR; Department of Physiology, Department of Medical BioSciences, Radboud University Medical Center, Nijmegen, The Netherlands.
Ainslie PN; Center for Heart, Lung and Vascular Health, School of Health and Exercise Sciences, University of British Columbia, Kelowna, Canada.
Thijssen DHJ; Department of Physiology, Department of Medical BioSciences, Radboud University Medical Center, Nijmegen, The Netherlands.
Bloem BR; Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behavior, Nijmegen, The Netherlands.; Pokaż więcej
Źródło:: BMC neurology [BMC Neurol] 2023 Jun 19; Vol. 23 (1), pp. 235. Date of Electronic Publication: 2023 Jun 19.
Typ publikacji:: Letter; Comment
MeSH Terms:: Parkinson Disease*
Humans ; Circadian Rhythm ; Hypoxia

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Skocz do pozycji: 3.

Tytuł:: Perspectives of people living with Parkinson's disease on personalized prediction models.
Autorzy:: van den Heuvel L; Department of Neurology, Centre of Expertise for Parkinson and Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Centre, Nijmegen, The Netherlands.
Knippenberg M; Scientific Centre for Quality of Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Centre, Nijmegen, The Netherlands.
Post B; Department of Neurology, Centre of Expertise for Parkinson and Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Centre, Nijmegen, The Netherlands.
Meinders MJ; Scientific Centre for Quality of Healthcare, Centre of Expertise for Parkinson and Movement Disorders, Radboud Institute for Health Sciences, Radboud University Medical Centre, Nijmegen, The Netherlands.
Bloem BR; Department of Neurology, Centre of Expertise for Parkinson and Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Centre, Nijmegen, The Netherlands.
Stiggelbout AM; Department of Biomedical Data Sciences, Medical Decision Making, Leiden University Medical Centre, Leiden, The Netherlands.; Pokaż więcej
Źródło:: Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2022 Aug; Vol. 25 (4), pp. 1580-1590. Date of Electronic Publication: 2022 May 24.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Parkinson Disease*
Focus Groups ; Humans ; Precision Medicine ; Prognosis ; Research Design ; Risk Assessment

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Skocz do pozycji: 4.

Tytuł:: Multiple N-of-1 trials to investigate hypoxia therapy in Parkinson's disease: study rationale and protocol.
Autorzy:: Janssen Daalen JM; Center of Expertise for Parkinson & Movement Disorders; Nijmegen, the Netherlands, Department of Neurology, Donders Institute for Brain, Cognition and Behavior, Radboud University Medical Center, Nijmegen, The Netherlands.
Meinders MJ; Center of Expertise for Parkinson & Movement Disorders; Nijmegen, the Netherlands, Department of Neurology, Donders Institute for Brain, Cognition and Behavior, Radboud University Medical Center, Nijmegen, The Netherlands.; IQ Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands.
Giardina F; Department of Health Evidence, Radboud Institute for Health Sciences, Radboud University Medical Center, Section Biostatistics, Nijmegen, The Netherlands.
Roes KCB; Department of Health Evidence, Radboud Institute for Health Sciences, Radboud University Medical Center, Section Biostatistics, Nijmegen, The Netherlands.
Stunnenberg BC; Department of Neurology, Donders Institute for Brain, Cognition and Behavior, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Neurology, Rijnstate Hospital, Arnhem, Netherlands.
Mathur S; UnshakeableMD, Oshawa, ON, Canada.
Ainslie PN; Center for Heart, Lung and Vascular Health, School of Health and Exercise Sciences, University of British Columbia, Kelowna, Canada.
Thijssen DHJ; Department of Physiology, Radboud University Medical Center, Nijmegen, The Netherlands.
Bloem BR; Center of Expertise for Parkinson & Movement Disorders; Nijmegen, the Netherlands, Department of Neurology, Donders Institute for Brain, Cognition and Behavior, Radboud University Medical Center, Nijmegen, The Netherlands. .; Pokaż więcej
Źródło:: BMC neurology [BMC Neurol] 2022 Jul 14; Vol. 22 (1), pp. 262. Date of Electronic Publication: 2022 Jul 14.
Typ publikacji:: Clinical Trial Protocol; Journal Article
MeSH Terms:: Neurodegenerative Diseases*
Parkinson Disease*/therapy
Bayes Theorem ; Double-Blind Method ; Humans ; Hypoxia ; Randomized Controlled Trials as Topic

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Skocz do pozycji: 5.

Tytuł:: Density of Patient-Sharing Networks: Impact on the Value of Parkinson Care.
Autorzy:: Vlaanderen FP; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.
de Man Y; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.
Tanke MAC; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.
Munneke M; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.; Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.; Department of Neurology, Radboud Institute for Health Sciences, Nijmegen, The Netherlands.; Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.
Atsma F; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.
Meinders MJ; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.
Jeurissen PPT; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.
Bloem BR; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.; Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.; Department of Neurology, Radboud Institute for Health Sciences, Nijmegen, The Netherlands.; Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.
Krijthe JH; Department of Intelligent Systems, Delft University of Technology, Delft, The Netherlands.
Groenewoud S; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare, Nijmegen, The Netherlands.; Pokaż więcej
Źródło:: International journal of health policy and management [Int J Health Policy Manag] 2022 Jul 01; Vol. 11 (7), pp. 1132-1139. Date of Electronic Publication: 2021 Mar 03.
Typ publikacji:: Journal Article
MeSH Terms:: Parkinson Disease*/therapy
Humans ; Delivery of Health Care ; Health Care Costs ; Hospitals ; Netherlands

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Skocz do pozycji: 6.

Tytuł:: The Effect of a Multidisciplinary Blended Learning Program on Palliative Care Knowledge for Health Care Professionals Involved in the Care for People with Parkinson's Disease.
Autorzy:: Lennaerts-Kats H; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.
Ebenau A; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.
Kanters S; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.
Bloem BR; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.
Vissers KCP; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.
Dijkstra BW; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.
Meinders MJ; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Center of Expertise for Parkinson & Movement Disorders, Nijmegen, The Netherlands.; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, Nijmegen, the Netherlands.
Groot MM; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2022; Vol. 12 (8), pp. 2575-2584.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Palliative Care*
Parkinson Disease*/therapy
Humans ; Middle Aged ; Focus Groups ; Health Personnel ; Caregivers

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Skocz do pozycji: 7.

Tytuł:: "No One Can Tell Me How Parkinson's Disease Will Unfold": A Mixed Methods Case Study on Palliative Care for People with Parkinson's Disease and Their Family Caregivers.
Autorzy:: Lennaerts-Kats H; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.
Ebenau A; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.
van der Steen JT; Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands.
Munneke M; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.
Bloem BR; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.
Vissers KCP; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.
Meinders MJ; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, Nijmegen, The Netherlands.
Groot MM; Department of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Nijmegen, The Netherlands.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2022; Vol. 12 (1), pp. 207-219.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Palliative Care*/psychology
Parkinson Disease*/psychology
Caregivers/psychology ; Hallucinations ; Humans ; Quality of Life

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Skocz do pozycji: 8.

Tytuł:: Professionals' Treatment Preferences in the Prodromal Phase of Parkinson's Disease: A Discrete Choice Experiment.
Autorzy:: van den Heuvel L; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.
Hoefsloot W; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.
Post B; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.
Meinders MJ; Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Centre for Quality of Healthcare, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.
Bloem BR; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.
Stiggelbout AM; Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Centre, Leiden, the Netherlands.
van Til JA; University of Twente, Department of Health Technology and Services Research, Technical Medical Center, Enschede, the Netherlands.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2022; Vol. 12 (5), pp. 1655-1664.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Drug-Related Side Effects and Adverse Reactions*
Parkinson Disease*/therapy
Humans ; Neurologists ; Prodromal Symptoms

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Skocz do pozycji: 9.

Tytuł:: Including People with Parkinson's Disease in Clinical Study Design and Execution: A Call to Action.
Autorzy:: Meinders MJ; Center of Expertise for Parkinson & Movement Disorders, Department of Neurology, Radboud University Medical Center, Nijmegen, the Netherlands.; Scientific Centre for Quality of Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the Netherlands.
Donnelly AC; The Michael J. Fox Foundation for Parkinson's Research, Patient Council, New York, NY, USA.
Sheehan M; The Michael J. Fox Foundation for Parkinson's Research, Patient Council, New York, NY, USA.
Bloem BR; Center of Expertise for Parkinson & Movement Disorders, Department of Neurology, Radboud University Medical Center, Nijmegen, the Netherlands.; Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, the Netherlands.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2022; Vol. 12 (4), pp. 1359-1363.
Typ publikacji:: Letter
MeSH Terms:: Parkinson Disease*
Humans ; Motivation ; Patient Participation ; Research Design ; Research Personnel

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Skocz do pozycji: 10.

Tytuł:: Real-Life Gait Performance as a Digital Biomarker for Motor Fluctuations: The .
Autorzy:: Evers LJ; Center of Expertise for Parkinson and Movement Disorders, department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, Netherlands.; Institute for Computing and Information Sciences, Radboud University, Nijmegen, Netherlands.
Raykov YP; Department of Mathematics, School of Engineering and Applied Sciences, Aston University, Birmingham, United Kingdom.
Krijthe JH; Institute for Computing and Information Sciences, Radboud University, Nijmegen, Netherlands.
Silva de Lima AL; Center of Expertise for Parkinson and Movement Disorders, department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, Netherlands.
Badawy R; School of Computer Science, University of Birmingham, Birmingham, United Kingdom.
Claes K; UCB Pharma, Brussels, Belgium.
Heskes TM; Institute for Computing and Information Sciences, Radboud University, Nijmegen, Netherlands.
Little MA; School of Computer Science, University of Birmingham, Birmingham, United Kingdom.
Meinders MJ; Scientific Center for Quality of Healthcare (IQ healthcare), Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, Netherlands.
Bloem BR; Center of Expertise for Parkinson and Movement Disorders, department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, Netherlands.; Pokaż więcej
Źródło:: Journal of medical Internet research [J Med Internet Res] 2020 Oct 09; Vol. 22 (10), pp. e19068. Date of Electronic Publication: 2020 Oct 09.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't; Validation Study
MeSH Terms:: Gait/*physiology
Monitoring, Physiologic/*methods
Motor Disorders/*diagnosis
Parkinson Disease/*complications
Wearable Electronic Devices/*standards
Aged ; Female ; Humans ; Male ; Motor Disorders/etiology

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Skocz do pozycji: 11.

Tytuł:: RADPAC-PD: A tool to support healthcare professionals in timely identifying palliative care needs of people with Parkinson's disease.
Autorzy:: Lennaerts-Kats H; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behavior, Nijmegen, The Netherlands.; Department of Anesthesiology, Pain and Palliative Care, Radboud University Medical Center, Nijmegen, The Netherlands.
van der Steen JT; Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands.; Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands.
Vijftigschild Z; Department of Anesthesiology, Pain and Palliative Care, Radboud University Medical Center, Nijmegen, The Netherlands.
Steppe M; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behavior, Nijmegen, The Netherlands.
Meinders MJ; Radboud University Medical Center; Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, Nijmegen, The Netherlands.
Munneke M; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behavior, Nijmegen, The Netherlands.
Bloem BR; Department of Neurology, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behavior, Nijmegen, The Netherlands.
Vissers KCP; Department of Anesthesiology, Pain and Palliative Care, Radboud University Medical Center, Nijmegen, The Netherlands.
Groot MM; Department of Anesthesiology, Pain and Palliative Care, Radboud University Medical Center, Nijmegen, The Netherlands.; Pokaż więcej
Źródło:: PloS one [PLoS One] 2020 Apr 21; Vol. 15 (4), pp. e0230611. Date of Electronic Publication: 2020 Apr 21 (Print Publication: 2020).
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Health Personnel*
Needs Assessment*
Palliative Care/*statistics & numerical data
Parkinson Disease/*therapy
Delphi Technique ; Focus Groups ; Humans ; Time Factors

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Skocz do pozycji: 12.

Tytuł:: The Impact of the COVID-19 Pandemic on Psychological Distress, Physical Activity, and Symptom Severity in Parkinson's Disease.
Autorzy:: van der Heide A; Radboud University Nijmegen, Donders Institute for Brain, Cognition, and Behaviour, Centre for Cognitive Neuroimaging, Nijmegen, the Netherlands.; Donders Institute for Brain, Cognition, and Behavior, Centre for Cognitive Neuroimaging, Radboud University Nijmegen, Nijmegen, the Netherlands.
Meinders MJ; Radboud University Medical Centre, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, The Netherlands.
Bloem BR; Radboud University Nijmegen, Donders Institute for Brain, Cognition, and Behaviour, Centre for Cognitive Neuroimaging, Nijmegen, the Netherlands.
Helmich RC; Radboud University Nijmegen, Donders Institute for Brain, Cognition, and Behaviour, Centre for Cognitive Neuroimaging, Nijmegen, the Netherlands.; Donders Institute for Brain, Cognition, and Behavior, Centre for Cognitive Neuroimaging, Radboud University Nijmegen, Nijmegen, the Netherlands.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2020; Vol. 10 (4), pp. 1355-1364.
Typ publikacji:: Journal Article; Observational Study; Research Support, Non-U.S. Gov't
MeSH Terms:: Exercise*
Psychological Distress*
Coronavirus Infections/*complications
Coronavirus Infections/*psychology
Parkinson Disease/*psychology
Pneumonia, Viral/*complications
Pneumonia, Viral/*psychology
Aged ; COVID-19 ; Female ; Humans ; Longitudinal Studies ; Male ; Middle Aged ; Pandemics ; Parkinson Disease/diagnosis ; Severity of Illness Index ; Surveys and Questionnaires

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Skocz do pozycji: 13.

Tytuł:: "How Long Can I Carry On?" The Need for Palliative Care in Parkinson's Disease: A Qualitative Study from the Perspective of Bereaved Family Caregivers.
Autorzy:: Lennaerts-Kats H; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.; Radboud University Medical Center (Radboudumc), Department of Anesthesiology, Pain and Palliative Care, Nijmegen, The Netherlands.
Ebenau A; Radboud University Medical Center (Radboudumc), Department of Anesthesiology, Pain and Palliative Care, Nijmegen, The Netherlands.
Steppe M; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.
van der Steen JT; Radboud University Medical Center (Radboudumc), Nijmegen, Department of Primary and Community Care, Nijmegen, The Netherlands; and Leiden University Medical Center, Department of Public Health and Primary Care, Leiden, The Netherlands.
Meinders MJ; Radboud University Medical Center (Radboudumc), Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, Nijmegen, the Netherlands.
Vissers K; Radboud University Medical Center (Radboudumc), Department of Anesthesiology, Pain and Palliative Care, Nijmegen, The Netherlands.
Munneke M; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.
Groot M; Radboud University Medical Center (Radboudumc), Department of Anesthesiology, Pain and Palliative Care, Nijmegen, The Netherlands.
Bloem BR; Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Centre of Expertise for Parkinson & Movement Disorders, Nijmegen, the Netherlands.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2020; Vol. 10 (4), pp. 1631-1642.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Bereavement*
Caregivers/*psychology
Family/*psychology
Palliative Care/*psychology
Parkinson Disease/*nursing
Adult ; Aged ; Female ; Guilt ; Health Knowledge, Attitudes, Practice ; Humans ; Male ; Middle Aged ; Qualitative Research

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Skocz do pozycji: 14.

Tytuł:: Quadruple Decision Making for Parkinson's Disease Patients: Combining Expert Opinion, Patient Preferences, Scientific Evidence, and Big Data Approaches to Reach Precision Medicine.
Autorzy:: van den Heuvel L; Department of Neurology, Radboud University Medical Centre, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.
Dorsey RR; Department of Neurology, University of Rochester Medical Centre, Rochester, NY, USA.
Prainsack B; Department of Political Science, University of Vienna, AT; and Department of Global Health & Social Medicine, King's College London, London, UK.
Post B; Department of Neurology, Radboud University Medical Centre, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.
Stiggelbout AM; Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Centre, Leiden, The Netherlands.
Meinders MJ; Radboud University Medical Centre, Radboud Institute for Health Sciences; Scientific Centre for Quality of Healthcare, Nijmegen, The Netherlands.
Bloem BR; Department of Neurology, Radboud University Medical Centre, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2020; Vol. 10 (1), pp. 223-231.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Big Data*
Clinical Decision-Making*
Evidence-Based Medicine*/standards
Machine Learning*
Patient Preference*
Precision Medicine*/standards
Parkinson Disease/*therapy
Decision Making, Shared ; Humans ; Models, Organizational

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Skocz do pozycji: 15.

Tytuł:: Palliative care for persons with Parkinson's disease: a qualitative study on the experiences of health care professionals.
Autorzy:: Lennaerts H; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud university medical center, Reinier Postlaan 4, 6500, Nijmegen, AB, The Netherlands. .
Steppe M; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud university medical center, Reinier Postlaan 4, 6500, Nijmegen, AB, The Netherlands.
Munneke M; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud university medical center, Reinier Postlaan 4, 6500, Nijmegen, AB, The Netherlands.
Meinders MJ; Scientific Center for Quality of Healthcare, Radboud Institute for Health Sciences, Radboud university medical center, Nijmegen, The Netherlands.
van der Steen JT; Department of Primary and Community Care, Radboud university medical center, Nijmegen, The Netherlands.; Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands.
Van den Brand M; Department of Anesthesiology, Pain and Palliative Medicine, Radboud university medical center, Nijmegen, The Netherlands.
van Amelsvoort D; Dutch Parkinson's Disease Association, Bunnik, The Netherlands.
Vissers K; Department of Anesthesiology, Pain and Palliative Medicine, Radboud university medical center, Nijmegen, The Netherlands.
Bloem BR; Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud university medical center, Reinier Postlaan 4, 6500, Nijmegen, AB, The Netherlands.
Groot M; Department of Anesthesiology, Pain and Palliative Medicine, Radboud university medical center, Nijmegen, The Netherlands.; Pokaż więcej
Źródło:: BMC palliative care [BMC Palliat Care] 2019 Jul 09; Vol. 18 (1), pp. 53. Date of Electronic Publication: 2019 Jul 09.
Typ publikacji:: Journal Article
MeSH Terms:: Health Personnel/*psychology
Parkinson Disease/*complications
Adult ; Aged ; Aged, 80 and over ; Attitude of Health Personnel ; Female ; Focus Groups/methods ; Health Personnel/statistics & numerical data ; Humans ; Interviews as Topic/methods ; Life Change Events ; Male ; Middle Aged ; Netherlands ; Palliative Care/methods ; Palliative Care/standards ; Parkinson Disease/physiopathology ; Qualitative Research

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