Informacja

Drogi użytkowniku, aplikacja do prawidłowego działania wymaga obsługi JavaScript. Proszę włącz obsługę JavaScript w Twojej przeglądarce.

English (EN)·Polski (PL)·Ukraiński (UK)
Przejdź do strony domowej biblioteki Uniwersytet Ekonomiczny we Wrocławiu Link otwiera się w nowym oknie Logo biblioteki Prolib Integro - strona głównaUniwersytet Ekonomiczny we Wrocławiu

Wyszukujesz frazę ""Nowell WB"" wg kryterium: Autor

  Lista filtrów
Wyrównaj
    Wyświetlanie 1-19 z 19
    Tytuł:
    Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks
    Autorzy:
    Beukelman T
    Long MD
    Rhee RL
    Kappelman MD
    Merkel PA
    Nowell WB
    Clinton C
    Ringold S
    Del Gaizo V
    Price B
    Shaw DG
    Venkatachalam S
    Cuthbertson D
    Xie F
    Zhang X
    Curtis JR
    Pokaż więcej
    Temat:
    patient reported outcome measures
    patient outcome assessment
    biological therapy
    autoimmune diseases
    Medicine (General)
    R5-920
    Źródło:
    Patient Related Outcome Measures, Vol Volume 14, Pp 171-180 (2023)
    Opis pliku:
    electronic resource
    Relacje:
    https://www.dovepress.com/assessment-of-real-world-patient-reported-outcomes-in-patients-initiat-peer-reviewed-fulltext-article-PROM; https://doaj.org/toc/1179-271X
    Dostęp URL:
    https://doaj.org/article/d10f1ba5d25f466ca4b55456e35e0720  Link otwiera się w nowym oknie
    Czasopismo naukowe
    Szczegóły
    Tytuł:
    Healthcare disparities: patients' perspectives on barriers to joint replacement.
    Autorzy:
    Goodman SM; Department of Medicine, Weill Cornell Medicine, New York, NY, 10021, USA. .; Department of Rheumatology, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA. .
    Mannstadt I; Department of Rheumatology, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA.
    Gibbons JAB; Department of Medicine, Columbia University Vagelos Physician of College and Surgeons, New York, NY, USA.
    Rajan M; Department of Medicine, Weill Cornell Medicine, New York, NY, 10021, USA.
    Bass A; Department of Rheumatology, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA.
    Russell L; Department of Rheumatology, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA.
    Mehta B; Department of Medicine, Weill Cornell Medicine, New York, NY, 10021, USA.; Department of Rheumatology, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA.
    Figgie M; Department of Orthopedic Surgery, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA.
    Parks ML; Department of Orthopedic Surgery, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA.
    Venkatachalam S; Global Healthy Living Foundation Inc, Upper Nyack, NY, USA.
    Nowell WB; Global Healthy Living Foundation Inc, Upper Nyack, NY, USA.
    Brantner C; Department of Medicine, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, USA.
    Lui G; Department of Medicine, New York Institute of Technology College of Osteopathic Medicine, Glen Head, New York, NY, USA.
    Card A; Department of Medicine, Weill Cornell Medicine, New York, NY, 10021, USA.
    Leung P; Department of Medicine, Weill Cornell Medicine, New York, NY, 10021, USA.
    Tischler H; Department of Orthopedic Surgery, New York-Presbyterian Brooklyn Methodist Hospital, New York, NY, USA.
    Young SR; Department of Social Work, Binghamton University, Binghamton, NY, USA.
    Navarro-Millán I; Department of Medicine, Weill Cornell Medicine, New York, NY, 10021, USA.; Department of Rheumatology, Hospital for Special Surgery, 535 E 70th Street, New York, NY, 10021, USA.
    Pokaż więcej
    Źródło:
    BMC musculoskeletal disorders [BMC Musculoskelet Disord] 2023 Dec 18; Vol. 24 (1), pp. 976. Date of Electronic Publication: 2023 Dec 18.
    Typ publikacji:
    Journal Article
    MeSH Terms:
    Arthroplasty, Replacement*
    Healthcare Disparities*
    Humans ; Ethnicity ; Hispanic or Latino ; United States ; White ; Black or African American
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    A Real-World Effectiveness Study Using a Mobile Application to Evaluate Early Outcomes with Upadacitinib in Rheumatoid Arthritis.
    Autorzy:
    Harrold LR; CorEvitas, LLC, 300 5th Avenue, Waltham, MA, 02451, USA. .; University of Massachusetts Medical School, Worcester, MA, USA. .
    Zueger P; AbbVie Inc., North Chicago, IL, USA.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Blachley T; CorEvitas, LLC, 300 5th Avenue, Waltham, MA, 02451, USA.
    Schrader A; CorEvitas, LLC, 300 5th Avenue, Waltham, MA, 02451, USA.
    Lakin PR; CorEvitas, LLC, 300 5th Avenue, Waltham, MA, 02451, USA.
    Curtis D; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Stradford L; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Venkatachalam S; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Tundia N; AbbVie Inc., North Chicago, IL, USA.
    Patel PA; AbbVie Inc., North Chicago, IL, USA.
    Pokaż więcej
    Źródło:
    Rheumatology and therapy [Rheumatol Ther] 2023 Dec; Vol. 10 (6), pp. 1519-1533. Date of Electronic Publication: 2023 Sep 20.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknieSzczegóły
    Tytuł:
    Correction: Experiences and Treatment Preferences in Patients With Psoriatic Arthritis: A Cross-Sectional Study in the ArthritisPower Registry.
    Autorzy:
    Ogdie A; Division of Rheumatology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
    Myers K; RTI Health Solutions, 3040 East Cornwallis Road, Post Office Box 12194, Research Triangle Park, NC, 27709-2194, USA. .
    Mansfield C; RTI Health Solutions, 3040 East Cornwallis Road, Post Office Box 12194, Research Triangle Park, NC, 27709-2194, USA.
    Tillett W; Department of Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, UK.; Department of Pharmacy and Pharmacology, University of Bath, Bath, UK.
    Nash P; Department of Medicine, Griffith University, Brisbane, QLD, Australia.
    Leach C; RTI Health Solutions, 3040 East Cornwallis Road, Post Office Box 12194, Research Triangle Park, NC, 27709-2194, USA.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Gavigan K; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Zueger P; AbbVie Inc., North Chicago, IL, USA.
    McDearmon-Blondell E; AbbVie Inc., North Chicago, IL, USA.
    Walsh J; Division of Rheumatology, University of Utah School of Medicine, Salt Lake City, UT, USA.
    Pokaż więcej
    Źródło:
    Rheumatology and therapy [Rheumatol Ther] 2022 Oct; Vol. 9 (5), pp. 1477-1480.
    Typ publikacji:
    Published Erratum
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Web-Based Mindfulness-Based Interventions for Well-being: Randomized Comparative Effectiveness Trial.
    Autorzy:
    Sylvia LG; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.; Harvard University, Cambridge, MA, United States.
    Lunn MR; Stanford University School of Medicine, Stanford, CA, United States.
    Obedin-Maliver J; Stanford University School of Medicine, Stanford, CA, United States.
    McBurney RN; Accelerated Cure Project for Multiple Sclerosis, Waltham, MA, United States.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Nosheny RL; University of California San Francisco School of Medicine, San Francisco, CA, United States.
    Mularski RA; Kaiser Permanente Center for Health Research Northwest Region, Portland, OR, United States.
    Long MD; University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, United States.
    Merkel PA; University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, United States.
    Pletcher MJ; University of California San Francisco School of Medicine, San Francisco, CA, United States.
    Tovey RE; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.
    Scalchunes C; Immune Deficiency Foundation, Towson, MD, United States.
    Sutphen R; University of South Florida, Tampa, FL, United States.
    Martin AS; Parent Project Muscular Dystrophy, Washington, DC, United States.
    Horn EJ; Phelan-McDermid Syndrome Foundation, Osprey, FL, United States.
    O'Boyle M; Phelan-McDermid Syndrome Foundation, Osprey, FL, United States.
    Pitch L; ImproveCareNow Inc., Burlington, VT, United States.
    Seid M; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.
    Redline S; Brigham and Women's Hospital, Boston, MA, United States.
    Greenebaum S; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.
    George N; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.
    French NJ; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.
    Faria CM; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.
    Puvanich N; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.
    Rabideau DJ; Biostatistics, Massachusetts General Hospital, Boston, MA, United States.
    Selvaggi CA; Biostatistics, Massachusetts General Hospital, Boston, MA, United States.
    Yu C; Biostatistics, Massachusetts General Hospital, Boston, MA, United States.
    Faraone SV; State University of New York Upstate Medical University, Syracuse, NY, United States.
    Venkatachalam S; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    McCall D; Health eHeart Alliance, San Francisco, CA, United States.
    Terry SF; Genetic Alliance, Damascus, MD, United States.
    Deckersbach T; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.
    Nierenberg AA; Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States.; Harvard University, Cambridge, MA, United States.
    Pokaż więcej
    Źródło:
    Journal of medical Internet research [J Med Internet Res] 2022 Sep 12; Vol. 24 (9), pp. e35620. Date of Electronic Publication: 2022 Sep 12.
    Typ publikacji:
    Journal Article; Randomized Controlled Trial; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Cognitive Behavioral Therapy*
    Mindfulness*
    Psychotherapy, Group*
    Female ; Humans ; Infant, Newborn ; Internet ; Treatment Outcome
    Czasopismo naukowe
    Pełny tekstSzczegóły
    Tytuł:
    The development and validation of a Patient-Perceived Methotrexate Intolerance Scale for use in adult rheumatoid arthritis patients.
    Autorzy:
    Salt E; College of Nursing, University of Kentucky, Lexington, Kentucky, USA.
    Wiggins A; College of Nursing, University of Kentucky, Lexington, Kentucky, USA.
    Lohr K; Department of Rheumatology, College of Medicine, University of Kentucky, Lexington, Kentucky, USA.
    Crofford L; Division of Rheumatology & Immunology, Vanderbilt University, Nashville, Tennessee, USA.
    Studts J; School of Medicine, Division of Medical Oncology, University of Colorado, Aurora, Colorado, USA.
    Nowell WB; Global Healthy Living Foundation and CreakyJoints, New York, New York, USA.
    Cappelleri JC; Pfizer Inc., Groton, Connecticut, USA.
    Rayens MK; College of Nursing, University of Kentucky, Lexington, Kentucky, USA.
    Pokaż więcej
    Źródło:
    Musculoskeletal care [Musculoskeletal Care] 2022 Sep; Vol. 20 (3), pp. 529-540. Date of Electronic Publication: 2021 Dec 08.
    Typ publikacji:
    Journal Article; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Arthritis, Rheumatoid*/drug therapy
    Methotrexate*/adverse effects
    Adult ; Humans ; Reproducibility of Results ; Severity of Illness Index ; Surveys and Questionnaires
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Protocol for the pilot randomized trial of the CArdiovascular Risk assEssment for Rheumatoid Arthritis (CARE RA) intervention: a peer coach behavioral intervention.
    Autorzy:
    Weiner J; Indiana University, Bloomington, IN, USA.; Peer Coach CARE RA, New York, USA.
    Lui G; New York Institute of Technology College of Osteopathic Medicine, Old Westbury, NY, USA.
    Brown M; Division of General Internal Medicine, Weill Cornell Medicine, New York, NY, USA.
    Páez YD; Division of General Internal Medicine, Weill Cornell Medicine, New York, NY, USA.
    Fritz S; Peer Coach CARE RA, New York, USA.
    Sydnor-Campbell T; Peer Coach CARE RA, New York, USA.; BodyMind Consulting, LLC, Philadelphia, USA.
    Allen A Jr; Peer Coach CARE RA, New York, USA.; Colgate Palmolive, New York, USA.
    Jabri A; Division of General Internal Medicine, Weill Cornell Medicine, New York, NY, USA.
    Venkatachalam S; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Gavigan K; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Curtis JR; Universtiy of Alabama at Birmingham, Birmingham, AL, USA.
    Fraenkel L; Yale University, New Haven, CT, USA.; Berkshire Medical Center, Berkshire, Pittsfield, MA, USA.
    Safford M; Division of General Internal Medicine, Weill Cornell Medicine, New York, NY, USA.
    Navarro-Millán I; Division of General Internal Medicine, Weill Cornell Medicine, New York, NY, USA. .; Division of Rheumatology, Hospital for Special Surgery, New York, NY, USA. .
    Pokaż więcej
    Źródło:
    Pilot and feasibility studies [Pilot Feasibility Stud] 2022 Apr 15; Vol. 8 (1), pp. 84. Date of Electronic Publication: 2022 Apr 15.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Employment, Work Productivity, and Biologic Treatments in Self-Reported Axial Spondyloarthritis: a Cross-Sectional Study in a Female Predominant Population from the ArthritisPower Registry.
    Autorzy:
    Gavigan K; Global Healthy Living Foundation, 515 N Midland Ave, Upper Nyack, NY, 10960, USA. .
    Nowell WB; Global Healthy Living Foundation, 515 N Midland Ave, Upper Nyack, NY, 10960, USA.
    Hunter T; Eli Lilly and Company, Indianapolis, IN, USA.
    Curtis JR; University of Alabama at Birmingham, Birmingham, AL, USA.
    Malatestinic WN; Eli Lilly and Company, Indianapolis, IN, USA.
    Bolce RJ; Eli Lilly and Company, Indianapolis, IN, USA.
    Lisse JR; Eli Lilly and Company, Indianapolis, IN, USA.
    Walsh J; University of Utah, Salt Lake City, UT, USA.
    Pokaż więcej
    Źródło:
    Rheumatology and therapy [Rheumatol Ther] 2022 Apr; Vol. 9 (2), pp. 663-677. Date of Electronic Publication: 2022 Feb 21.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Experiences and Treatment Preferences in Patients With Psoriatic Arthritis: A Cross-Sectional Study in the ArthritisPower Registry.
    Autorzy:
    Ogdie A; Division of Rheumatology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
    Myers K; RTI Health Solutions, 3040 East Cornwallis Road, Post Office Box 12194, Research Triangle Park, NC, 27709-2194, USA. .
    Mansfield C; RTI Health Solutions, 3040 East Cornwallis Road, Post Office Box 12194, Research Triangle Park, NC, 27709-2194, USA.
    Tillett W; Department of Rheumatology, Royal National Hospital for Rheumatic Diseases, Bath, UK.; Department of Pharmacy and Pharmacology, University of Bath, Bath, UK.
    Nash P; Department of Medicine, Griffith University, Brisbane, QLD, Australia.
    Leach C; RTI Health Solutions, 3040 East Cornwallis Road, Post Office Box 12194, Research Triangle Park, NC, 27709-2194, USA.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Gavigan K; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Zueger P; AbbVie Inc., North Chicago, IL, USA.
    McDearmon-Blondell E; AbbVie Inc., North Chicago, IL, USA.
    Walsh J; Division of Rheumatology, University of Utah School of Medicine, Salt Lake City, UT, USA.
    Pokaż więcej
    Źródło:
    Rheumatology and therapy [Rheumatol Ther] 2022 Apr; Vol. 9 (2), pp. 735-751. Date of Electronic Publication: 2022 Mar 13.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Patient Perspectives on Biologics for Axial Spondyloarthritis in a Cross-sectional Study in a Predominantly Female Population: Treatment Satisfaction, Wear-off Between Doses, and Use of Supplemental Medication.
    Autorzy:
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, USA. .
    Gavigan K; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Hunter T; Eli Lilly and Company, Indianapolis, IN, USA.
    Bolce RJ; Eli Lilly and Company, Indianapolis, IN, USA.
    Lisse JR; Eli Lilly and Company, Indianapolis, IN, USA.
    Himelein C; Eli Lilly and Company, Indianapolis, IN, USA.
    Dubey S; Eli Lilly and Company, Indianapolis, IN, USA.
    Curtis JR; The University of Alabama at Birmingham, Birmingham, AL, USA.
    Walsh JA; George E. Wahlen Department of Veterans Affairs Medical Center, The University of Utah, Salt Lake City, UT, USA.
    Pokaż więcej
    Źródło:
    Rheumatology and therapy [Rheumatol Ther] 2022 Apr; Vol. 9 (2), pp. 509-520. Date of Electronic Publication: 2021 Dec 27.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Patient-Reported Nausea and Fatigue Related to Methotrexate: A Prospective, Self-Controlled Study in the ArthritisPower Registry.
    Autorzy:
    Nowell WB; Patient-Centered Research, Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Karis E; Amgen Inc., Thousand Oaks, CA, USA.
    Gavigan K; Patient-Centered Research, Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Stradford L; Patient-Centered Research, Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Zhao H; Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Faculty Office Tower, 510 20th Street South #834, Birmingham, AL, 35294, USA.
    Chen L; Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Faculty Office Tower, 510 20th Street South #834, Birmingham, AL, 35294, USA.
    Stryker S; Amgen Inc., Thousand Oaks, CA, USA.
    Yun H; Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Faculty Office Tower, 510 20th Street South #834, Birmingham, AL, 35294, USA.
    Venkatachalam S; Patient-Centered Research, Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Kricorian G; Amgen Inc., Thousand Oaks, CA, USA.
    Xie F; Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Faculty Office Tower, 510 20th Street South #834, Birmingham, AL, 35294, USA.
    Curtis JR; Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Faculty Office Tower, 510 20th Street South #834, Birmingham, AL, 35294, USA. .
    Pokaż więcej
    Źródło:
    Rheumatology and therapy [Rheumatol Ther] 2022 Feb; Vol. 9 (1), pp. 207-221. Date of Electronic Publication: 2021 Nov 28.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Correction: Data Sharing Goals for Nonprofit Funders of Clinical Trials.
    Autorzy:
    Coetzee T; National Multiple Sclerosis Society, Cherry Hill, NJ, United States.
    Ball MP; Open Humans Foundation, San Diego, CA, United States.
    Boutin M; Novartis, Basel, Switzerland.
    Bronson A; Edgewise Therapeutics, Boulder, CO, United States.
    Dexter DT; Parkinson's UK, London, United Kingdom.
    English RA; National Academies of Sciences, Engineering, and Medicine, Washington, DC, United States.
    Furlong P; Parent Project Muscular Dystrophy, Bethesda, MD, United States.
    Goodman AD; Department of Neurology, University of Rochester Medical Center, Rochester, NY, United States.
    Grossman C; Biogen, Cambridge, MA, United States.
    Hernandez AF; Duke University School of Medicine, Durham, NC, United States.
    Hinners JE; Bison Ink, Washington, DC, United States.
    Hudson L; Critical Path Institute, Tucson, AZ, United States.
    Kennedy A; Parent Project Muscular Dystrophy, Bethesda, MD, United States.
    Marchisotto MJ; MJM Advisory, LLC, New York, NY, United States.
    Matrisian L; Pancreatic Cancer Action Network, Washington, DC, United States.
    Myers E; Doris Duke Charitable Foundation, New York, NY, United States.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Nosek BA; Center for Open Science, Charlottesville, VA, United States.
    Sherer T; The Michael J Fox Foundation for Parkinson's Research, New York, NY, United States.
    Shore C; National Academies of Sciences, Engineering, and Medicine, Washington, DC, United States.
    Sim I; Department of Medicine, University of California San Francisco, San Francisco, CA, United States.
    Smolensky L; The Michael J Fox Foundation for Parkinson's Research, New York, NY, United States.
    Williams C; Multiple Myeloma Research Foundation, Norwalk, CT, United States.
    Wood J; Vivli, Columbia, MO, United States.
    Terry SF; Genetic Alliance, Washington, DC, United States.
    Pokaż więcej
    Źródło:
    Journal of participatory medicine [J Particip Med] 2021 Jun 30; Vol. 13 (2), pp. e31371. Date of Electronic Publication: 2021 Jun 30.
    Typ publikacji:
    Published Erratum
    Pełny tekstSzczegóły
    Tytuł:
    Data Sharing Goals for Nonprofit Funders of Clinical Trials.
    Autorzy:
    Coetzee T; National Multiple Sclerosis Society, Cherry Hill, NJ, United States.
    Ball MP; Open Humans Foundation, San Diego, CA, United States.
    Boutin M; Novartis, Basel, Switzerland.
    Bronson A; Edgewise Therapeutics, Boulder, CO, United States.
    Dexter DT; Parkinson's UK, London, United Kingdom.
    English RA; National Academies of Sciences, Engineering, and Medicine, Washington, DC, United States.
    Furlong P; Parent Project Muscular Dystrophy, Bethesda, MD, United States.
    Goodman AD; Department of Neurology, University of Rochester Medical Center, Rochester, NY, United States.
    Grossman C; Biogen, Cambridge, MA, United States.
    Hernandez AF; Duke University School of Medicine, Durham, NC, United States.
    Hinners JE; Bison Ink, Washington, DC, United States.
    Hudson L; Critical Path Institute, Tucson, AZ, United States.
    Kennedy A; Parent Project Muscular Dystrophy, Bethesda, MD, United States.
    Marchisotto MJ; MJM Advisory, LLC, McLean, VA, United States.
    Myers E; Doris Duke Charitable Foundation, New York, NY, United States.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Nosek BA; Center for Open Science, Charlottesville, VA, United States.
    Sherer T; The Michael J Fox Foundation for Parkinson's Research, New York, NY, United States.
    Shore C; National Academies of Sciences, Engineering, and Medicine, Washington, DC, United States.
    Sim I; Department of Medicine, University of California San Francisco, San Francisco, CA, United States.
    Smolensky L; The Michael J Fox Foundation for Parkinson's Research, New York, NY, United States.
    Williams C; Multiple Myeloma Research Foundation, Norwalk, CT, United States.
    Wood J; Vivli, Columbia, MO, United States.
    Terry SF; Genetic Alliance, Washington, DC, United States.
    Matrisian L; Pancreatic Cancer Action Network, Washington, DC, United States.
    Pokaż więcej
    Źródło:
    Journal of participatory medicine [J Particip Med] 2021 Mar 29; Vol. 13 (1), pp. e23011. Date of Electronic Publication: 2021 Mar 29.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    OPEX: Development of a novel overall patient experience measure to facilitate interpretation of comparison effectiveness studies.
    Autorzy:
    Fraenkel L; Department of Medicine, Section of Rheumatology, Yale University School of Medicine, New Haven, Connecticut, United States of America.; Department of Medicine, Section of Rheumatology, Berkshire Health Systems, Pittsfield, Massachusetts, United States of America.
    Wei Z; Department of Engineering Management and Systems Engineering, The George Washington University, Washington, DC, United States of America.
    Ramsey C; Mental Illness Research Education and Clinical Center, Corporal Michael J. Crescenz VA Medical Center, Philadelphia, PA, United States of America.; Yale Center for Medical Informatics, Yale School of Medicine, New Haven, CT, United States of America.
    Wiedmeyer C; Patient-Centered Research, Global Heathy Living Foundation, Upper Nyack, NY, United States of America.
    Michaud K; Division of Rheumatology and Immunology, University of Nebraska Medical Center, Omaha, NE, United States of America.; Forward, The National Databank for Rheumatic Diseases, Wichita, KS, United States of America.
    Neogi T; Department of Medicine, Section of Rheumatology, Boston University School of Medicine, Boston, MA, United States of America.
    Nowell WB; Patient-Centered Research, Global Heathy Living Foundation, Upper Nyack, NY, United States of America.
    Venkatachalam S; Patient-Centered Research, Global Heathy Living Foundation, Upper Nyack, NY, United States of America.
    Broniatowski DA; Department of Engineering Management and Systems Engineering, The George Washington University, Washington, DC, United States of America.
    Pokaż więcej
    Źródło:
    PloS one [PLoS One] 2021 Jan 29; Vol. 16 (1), pp. e0245598. Date of Electronic Publication: 2021 Jan 29 (Print Publication: 2021).
    Typ publikacji:
    Comparative Study; Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, Non-P.H.S.
    MeSH Terms:
    Patient Outcome Assessment*
    Arthritis, Rheumatoid/*therapy
    Female ; Humans ; Male
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study.
    Autorzy:
    Schmit C; Population Informatics Lab, Department of Health Policy & Management, Texas A&M University School of Public Health, College Station, TX, United States.
    Ajayi KV; Population Informatics Lab, Department of Health Policy & Management, Texas A&M University School of Public Health, College Station, TX, United States.
    Ferdinand AO; Southwest Rural Health Research Center, Department of Health Policy & Management, Texas A&M University School of Public Health, College Station, TX, United States.
    Giannouchos T; Population Informatics Lab, Department of Health Policy & Management, Texas A&M University School of Public Health, College Station, TX, United States.; Pharmacotherapy Outcomes Research Center, College of Pharmacy, University of Utah, Salt Lake City, UT, United States.
    Ilangovan G; Population Informatics Lab, Department of Health Policy & Management, Texas A&M University School of Public Health, College Station, TX, United States.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Kum HC; Population Informatics Lab, Department of Health Policy & Management, Texas A&M University School of Public Health, College Station, TX, United States.
    Pokaż więcej
    Źródło:
    Journal of medical Internet research [J Med Internet Res] 2020 Dec 15; Vol. 22 (12), pp. e20783. Date of Electronic Publication: 2020 Dec 15.
    Typ publikacji:
    Journal Article; Research Support, Non-U.S. Gov't
    MeSH Terms:
    Confidentiality/*standards
    Health Literacy/*standards
    Software/*standards
    Adult ; Aged ; Communication ; Databases, Factual ; Delphi Technique ; Humans ; Middle Aged ; Young Adult
    Czasopismo naukowe
    Pełny tekstSzczegóły
    Tytuł:
    Harnessing health plan enrollee data to boost membership in patient-powered research networks.
    Autorzy:
    Chen X; HealthCore, Inc., 123 Justison Street, Suite 200, Wilmington, DE, 19801-5134, USA. .
    Agiro A; HealthCore, Inc., 123 Justison Street, Suite 200, Wilmington, DE, 19801-5134, USA.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, New York, NY, USA.
    Loud S; Accelerated Cure Project, Waltham, MA, USA.
    McBurney R; Accelerated Cure Project, Waltham, MA, USA.
    Young K; Vasculitis Foundation, Kansas City, MO, USA.
    Sutphen R; University of South Florida, Tampa, FL, USA.
    Bourquardez Clark E; University of South Florida, Tampa, FL, USA.
    Burroughs CM; University of South Florida, Tampa, FL, USA.
    Curtis JR; Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.
    Sreih AG; Division of Rheumatology and Department of Biostatistics, Epidemiology, and Informatics, University of Pennsylvania, Philadelphia, PA, USA.
    Merkel PA; Division of Rheumatology and Department of Biostatistics, Epidemiology, and Informatics, University of Pennsylvania, Philadelphia, PA, USA.
    Haynes K; HealthCore, Inc., 123 Justison Street, Suite 200, Wilmington, DE, 19801-5134, USA.
    Pokaż więcej
    Źródło:
    BMC health services research [BMC Health Serv Res] 2020 May 25; Vol. 20 (1), pp. 462. Date of Electronic Publication: 2020 May 25.
    Typ publikacji:
    Journal Article; Randomized Controlled Trial
    MeSH Terms:
    Community-Institutional Relations*
    Patient Participation*
    Insurance, Health/*organization & administration
    Adolescent ; Adult ; Aged ; Electronic Mail/statistics & numerical data ; Female ; Humans ; Male ; Middle Aged ; Postal Service/statistics & numerical data ; Young Adult
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Digital Tracking of Rheumatoid Arthritis Longitudinally (DIGITAL) Using Biosensor and Patient-Reported Outcome Data: Protocol for a Real-World Study.
    Autorzy:
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Curtis JR; School of Health Professions, University of Alabama at Birmingham, Birmingham, AL, United States.
    Nolot SK; Eli Lilly and Company, Indianapolis, IN, United States.
    Curtis D; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Venkatachalam S; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Owensby JK; School of Health Professions, University of Alabama at Birmingham, Birmingham, AL, United States.
    Poon JL; Eli Lilly and Company, Indianapolis, IN, United States.
    Calvin AB; Eli Lilly and Company, Indianapolis, IN, United States.
    Kannowski CL; Eli Lilly and Company, Indianapolis, IN, United States.
    Faries DE; Eli Lilly and Company, Indianapolis, IN, United States.
    Gavigan K; Global Healthy Living Foundation, Upper Nyack, NY, United States.
    Haynes VS; Eli Lilly and Company, Indianapolis, IN, United States.
    Pokaż więcej
    Źródło:
    JMIR research protocols [JMIR Res Protoc] 2019 Sep 26; Vol. 8 (9), pp. e14665. Date of Electronic Publication: 2019 Sep 26.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekstSzczegóły
    Tytuł:
    Patient Perceptions of Unmet Medical Need in Rheumatoid Arthritis: A Cross-Sectional Survey in the USA.
    Autorzy:
    Radawski C; Eli Lilly and Company, Indianapolis, IN, USA. .
    Genovese MC; Stanford University, Palo Alto, CA, USA.
    Hauber B; RTI Health Solutions, Research Triangle Park, NC, USA.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Hollis K; RTI Health Solutions, Research Triangle Park, NC, USA.
    Gaich CL; Eli Lilly and Company, Indianapolis, IN, USA.
    DeLozier AM; Eli Lilly and Company, Indianapolis, IN, USA.
    Gavigan K; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Reynolds M; RTI Health Solutions, Research Triangle Park, NC, USA.
    Cardoso A; Eli Lilly and Company, Indianapolis, IN, USA.
    Curtis JR; University of Alabama at Birmingham, Birmingham, AL, USA.
    Pokaż więcej
    Źródło:
    Rheumatology and therapy [Rheumatol Ther] 2019 Sep; Vol. 6 (3), pp. 461-471. Date of Electronic Publication: 2019 Aug 06.
    Typ publikacji:
    Journal Article
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
    Tytuł:
    Combining online and in-person methods to evaluate the content validity of PROMIS fatigue short forms in rheumatoid arthritis.
    Autorzy:
    Bartlett SJ; Center for Health Outcomes Research, McGill University, 5252 de Maisonneuve West, #3D-57, Montreal, QC, H4A 3S5, Canada. .; Division of Rheumatology, Johns Hopkins School of Medicine, Mason F Lord Tower, 5200 Eastern Avenue, Rm 404, Baltimore, MD, 21224, USA. .
    Gutierrez AK; Division of Rheumatology, Johns Hopkins School of Medicine, Mason F Lord Tower, 5200 Eastern Avenue, Rm 404, Baltimore, MD, 21224, USA.; Ateneo School of Medicine and Public Health, Pasig City, Philippines.
    Butanis A; Division of Rheumatology, Johns Hopkins School of Medicine, Mason F Lord Tower, 5200 Eastern Avenue, Rm 404, Baltimore, MD, 21224, USA.
    Bykerk VP; Hospital for Special Surgery, Weill Cornell Medical College, 525 East 71st St, 7th floor, New York, NY, 10021, USA.
    Curtis JR; Division of Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.
    Ginsberg S; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Leong AL; Healthy Motivation, Santa Barbara, CA, USA.
    Lyddiatt A; Patient Partners, London, ON, Canada.
    Nowell WB; Global Healthy Living Foundation, Upper Nyack, NY, USA.
    Orbai AM; Division of Rheumatology, Johns Hopkins School of Medicine, Mason F Lord Tower, 5200 Eastern Avenue, Rm 404, Baltimore, MD, 21224, USA.
    Smith KC; Johns Hopkins Bloomberg School of Public Health Center for Qualitative Studies in Health and Medicine, Baltimore, MD, USA.
    Bingham CO 3rd; Division of Rheumatology, Johns Hopkins School of Medicine, Mason F Lord Tower, 5200 Eastern Avenue, Rm 404, Baltimore, MD, 21224, USA.
    Pokaż więcej
    Źródło:
    Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2018 Sep; Vol. 27 (9), pp. 2443-2451. Date of Electronic Publication: 2018 May 24.
    Typ publikacji:
    Journal Article
    MeSH Terms:
    Arthritis, Rheumatoid/*complications
    Education, Distance/*methods
    Fatigue/*etiology
    Interview, Psychological/*methods
    Arthritis, Rheumatoid/pathology ; Fatigue/pathology ; Female ; Humans ; Male ; Middle Aged ; Quality of Life ; Reproducibility of Results ; Surveys and Questionnaires
    Czasopismo naukowe
    Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
      Wyświetlanie 1-19 z 19

      Ta witryna wykorzystuje pliki cookies do przechowywania informacji na Twoim komputerze. Pliki cookies stosujemy w celu świadczenia usług na najwyższym poziomie, w tym w sposób dostosowany do indywidualnych potrzeb. Korzystanie z witryny bez zmiany ustawień dotyczących cookies oznacza, że będą one zamieszczane w Twoim komputerze. W każdym momencie możesz dokonać zmiany ustawień dotyczących cookies