A psychometric evaluation of the PedsQL Family Impact Module in parents of children with sickle cell disease.
Autorzy:
PanepintoJA; Department of Pediatrics, The Children's Research Institute of the Children's Hospital of Wisconsin/Medical College of Wisconsin, Milwaukee, WI, USA. />Hoffmann RG Pajewski NM
Development of the PedsQL™ Sickle Cell Disease Module items: qualitative methods.
Autorzy:
PanepintoJA; Department of Pediatrics, Children's Hospital of Wisconsin of the Children's Research Institute/Medical College of Wisconsin, Hematology/Oncology/Bone Marrow Transplantation, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA. />Torres S Varni JW
Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module.
Autorzy:
PanepintoJA; Medical College of Wisconsin, Pediatric Hematology and Oncology, and the Children's Hospital of Wisconsin, 8701 Watertown Plank Road, MFRC Suite 3050, Milwaukee, WI, 53226, USA. . Paul Scott J; Medical College of Wisconsin, Pediatric Hematology and Oncology, and the Children's Hospital of Wisconsin, 8701 Watertown Plank Road, MFRC Suite 3050, Milwaukee, WI, 53226, USA. Badaki-Makun O; Johns Hopkins University, Pediatric Emergency Medicine, Baltimore, MD, USA. Darbari DS; Children's National Medical Center, Pediatric Hematology and Oncology, Washington, DC, USA. Chumpitazi CE; Baylor College of Medicine/Texas Children's Hospital, Pediatric Emergency Medicine, Houston, TX, USA. Airewele GE; Baylor College of Medicine/Texas Children's Hospital, Pediatric Hematology and Oncology, Houston, TX, USA. Ellison AM; Children's Hospital of Philadelphia, Pediatric Emergency Medicine, Philadelphia, PA, USA. Smith-Whitley K; Children's Hospital of Philadelphia, Pediatric Hematology and Oncology, Philadelphia, PA, USA. Mahajan P; Wayne State University/Children's Hospital of Michigan, Pediatric Emergency Medicine, Detroit, MI, USA. Sarnaik SA; Wayne State University/Children's Hospital of Michigan, Pediatric Hematology and Oncology, Detroit, MI, USA. Charles Casper T; University of Utah/Pediatric Emergency Care Applied Research Network Data Coordinating Center, Salt Lake City, UT, USA. Cook LJ; University of Utah/Pediatric Emergency Care Applied Research Network Data Coordinating Center, Salt Lake City, UT, USA. Leonard J; Nationwide Children's Hospital, Pediatric Emergency Medicine, Columbus, OH, USA. Hulbert ML; Washington University School of Medicine, Division of Pediatric Hematology and Oncology, St. Louis, MO, USA. Powell EC; Ann & Robert H. Lurie Children's Hospital of Chicago, Division of Emergency Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA. Liem RI; Ann & Robert H. Lurie Children's Hospital of Chicago, Hematology, Oncology & Stem Cell Transplant, Chicago, IL, USA. Hickey R; Children's Hospital of Pittsburgh of University of Pittsburgh Medical Center, Pediatric Emergency Medicine, Pittsburgh, PA, USA. Krishnamurti L; Department of Pediatrics, Aflac Cancer and Blood Disorders Center, Emory University School of Medicine, Atlanta, GA, USA. Hillery CA; Department of Pediatrics, Division of Hematology/Oncology, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA. Brousseau DC; Medical College of Wisconsin, Pediatric Emergency Medicine, and the Children's Hospital of Wisconsin, Milwaukee, WI, USA.
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