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Wyświetlanie 1-20 z 7394
Tytuł:
Partnering with Family Advocates to Understand the Impact on Families Caring for a Child with a Serious Mental Health Challenge.
Autorzy:
Brock-Baca AH; Butler Institute for Families, University of Denver Graduate School of Social Work, Denver, CO, 512-663-4377, USA. .
Zundel C; Colorado Office of Behavioral Health, 3824 W. Princeton Circle, Denver, CO, 80236, USA.
Fox D; Colorado Office of Behavioral Health, 3824 W. Princeton Circle, Denver, CO, 80236, USA.
Johnson Nagel N; Colorado Office of Behavioral Health, 3824 W. Princeton Circle, Denver, CO, 80236, USA.
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Źródło:
The journal of behavioral health services & research [J Behav Health Serv Res] 2023 Jul; Vol. 50 (3), pp. 315-332. Date of Electronic Publication: 2022 Oct 14.
Typ publikacji:
Journal Article; Research Support, U.S. Gov't, P.H.S.
MeSH Terms:
Mental Health*
Patient Advocacy*
Child ; Humans ; Prospective Studies ; Employment ; Caregivers/psychology ; Family/psychology
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
What are We Asking Patients to Do? A Critical Ethical Review of the Limits of Patient Self-Advocacy in the Oncology Setting.
Autorzy:
Wilkenfeld DA; University of Pittsburgh School of Nursing, Pittsburgh, PA, USA.
Hagan Thomas T; University of Pittsburgh School of Nursing, Pittsburgh, PA, USA.
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Źródło:
The New bioethics : a multidisciplinary journal of biotechnology and the body [New Bioeth] 2023 Jun; Vol. 29 (2), pp. 181-190. Date of Electronic Publication: 2022 Nov 14.
Typ publikacji:
Journal Article
MeSH Terms:
Neoplasms*/therapy
Patient Advocacy*
Humans ; Patient Participation ; Ethical Review
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Physician Advocacy in Rhode Island: History, Culture & How to Get Involved.
Autorzy:
Callahan K; Rhode Island Medical Society Council and Councilor at Large; Clinical Associate Professor of Family Medicine, Warren Alpert Medical School of Brown University, Providence, RI.
La Prova G; Clinical Assistant Professor of Family Medicine, Warren Alpert Medical School of Brown University, Providence, RI.
Dulski R; former Director of Advocacy, Rhode Island Medical Society, and newly appointed CNE Director of Government Affairs.
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Źródło:
Rhode Island medical journal (2013) [R I Med J (2013)] 2023 Mar 01; Vol. 106 (2), pp. 60-64. Date of Electronic Publication: 2023 Mar 01.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Advocacy*
Physicians*
Humans ; Rhode Island
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Canadian newspaper coverage on harm reduction featuring bereaved mothers: A mixed methods analysis.
Autorzy:
Morris R. N., Heather (AUTHOR)
Wild, T. Cameron (AUTHOR)
Giovannoni, Marina (AUTHOR)
Haines-Saah, Rebecca (AUTHOR)
Koziel, Jakob (AUTHOR)
Schulz, Petra (AUTHOR)
Bwala, Hauwa (AUTHOR)
Kunyk, Diane (AUTHOR)
Bubela, Tania (AUTHOR)
Hyshka, Elaine (AUTHOR)
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Źródło:
PLoS ONE. 11/27/2023, Vol. 18 Issue 11, p1-23. 23p.
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Oncology Nurses' Role in Promoting Patient Self-Advocacy.
Autorzy:
Alsbrook KE; University of Pittsburgh.
Donovan HS; University of Pittsburgh.
Wesmiller SW; University of Pittsburgh.
Hagan Thomas T; University of Pittsburgh.
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Źródło:
Clinical journal of oncology nursing [Clin J Oncol Nurs] 2022 Jun 01; Vol. 26 (3), pp. 239-243.
Typ publikacji:
Journal Article
MeSH Terms:
Neoplasms*/nursing
Neoplasms*/therapy
Nurse's Role*
Oncology Nursing*
Patient Advocacy*
Humans ; Nurse-Patient Relations ; Nurses ; Patient-Centered Care
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Core protocol development for phase 2/3 clinical trials in the leukodystrophy vanishing white matter: a consensus statement by the VWM consortium and patient advocates.
Autorzy:
Schoenmakers DH; Department of Child Neurology, Emma's Children's Hospital, Amsterdam UMC Location Vrije Universiteit, Amsterdam, The Netherlands.; Amsterdam Leukodystrophy Center, Amsterdam Neuroscience, Cellular & Molecular Mechanisms, Amsterdam, The Netherlands.; Department of Endocrinology and Metabolism, Platform 'Medicine for Society', Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.
Leferink PS; IXA Neuroscience, Amsterdam Neuroscience, Amsterdam UMC Location Vrije Universiteit, Amsterdam, The Netherlands.
Vanderver A; Division of Neurology, Children's Hospital of Philadelphia, Philadelphia, USA.; Department of Neurology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, USA.
Bonkowsky JL; Division of Pediatric Neurology, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah, USA.; Primary Children's Hospital, Intermountain Healthcare, Salt Lake City, Utah, USA.
Krägeloh-Mann I; Department of Developmental and Child Neurology, Social Pediatrics, University Children's Hospital Tübingen, Tübingen, Germany.
Bernard G; Departments of Neurology and Neurosurgery, Pediatrics and Human Genetics, McGill University; Department Specialized Medicine, Division of Medical Genetics, McGill University Health Center, Montreal, Canada.; Child Health and Human Development Program, Research Institute of the McGill University Health Center, Montreal, Canada.
Bertini E; Research Unit of Neuromuscular and Neurodegenerative Diseases, Translational Pediatrics and Clinical Genetics Research Division, Ospedale Pediatrico Bambino Gesù, IRCCS, Rome, Italy.
Fatemi A; Kennedy Krieger Institute, Johns Hopkins University, Baltimore, MD, USA.
Fogel BL; Los Angeles David Geffen School of Medicine, University of California, Los Angeles, USA.
Wolf NI; Department of Child Neurology, Emma's Children's Hospital, Amsterdam UMC Location Vrije Universiteit, Amsterdam, The Netherlands.; Amsterdam Leukodystrophy Center, Amsterdam Neuroscience, Cellular & Molecular Mechanisms, Amsterdam, The Netherlands.
Skwirut D; United Leukodystrophy Foundation, DeKalb Illinois, USA.; VWM Families Foundation, Greenwhich, CT, USA.
Buck A; VWM Families Foundation, Greenwhich, CT, USA.
Holberg B; VWM Families Foundation, Greenwhich, CT, USA.
Saunier-Vivar EF; Research Department, European Leukodystrophies Association International and European Leukodystrophies Association France, Paris, France.
Rauner R; United Leukodystrophy Foundation, DeKalb Illinois, USA.
Dekker H; Vereniging Volwassenen, Kinderen en Stofwisselingsziekten, Zwolle, The Netherlands.
van Bokhoven P; IXA Neuroscience, Amsterdam Neuroscience, Amsterdam UMC Location Vrije Universiteit, Amsterdam, The Netherlands.
Stellingwerff MD; Department of Child Neurology, Emma's Children's Hospital, Amsterdam UMC Location Vrije Universiteit, Amsterdam, The Netherlands.; Amsterdam Leukodystrophy Center, Amsterdam Neuroscience, Cellular & Molecular Mechanisms, Amsterdam, The Netherlands.
Berkhof J; Department of Epidemiology and Data Science, Amsterdam UMC Location Vrije Universiteit, Amsterdam, The Netherlands.
van der Knaap MS; Department of Child Neurology, Emma's Children's Hospital, Amsterdam UMC Location Vrije Universiteit, Amsterdam, The Netherlands. .; Amsterdam Leukodystrophy Center, Amsterdam Neuroscience, Cellular & Molecular Mechanisms, Amsterdam, The Netherlands. .; Department of Integrative Neurophysiology, Center for Neurogenomics and Cognitive Research, Vrije Universiteit, Amsterdam, The Netherlands. .
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Źródło:
BMC neurology [BMC Neurol] 2023 Aug 17; Vol. 23 (1), pp. 305. Date of Electronic Publication: 2023 Aug 17.
Typ publikacji:
Clinical Trial Protocol; Journal Article
MeSH Terms:
Demyelinating Diseases*
Neurodegenerative Diseases*
White Matter*
Humans ; Clinical Trials, Phase II as Topic ; Clinical Trials, Phase III as Topic ; Consensus ; Patient Advocacy ; Randomized Controlled Trials as Topic ; Research Design ; Sample Size ; Child, Preschool ; Child ; Adolescent ; Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
When I say… health advocacy.
Autorzy:
Hubinette MM; Department of Family Practice|Centre for Health Education Scholarship, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
LaDonna KA; Department of Innovation in Medical Education|Department of Medicine, Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Scott I; Department of Family Practice|Centre for Health Education Scholarship, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
van der Goes T; Department of Family Practice, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
Kahlke R; Division of Education and Innovation, Department of Medicine, McMaster Education Research, Innovation and Theory Program, McMaster University, Hamilton, Ontario, Canada.
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Źródło:
Medical education [Med Educ] 2022 Apr; Vol. 56 (4), pp. 362-364. Date of Electronic Publication: 2022 Jan 23.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Advocacy*
Humans
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Views of healthcare consumer representatives on defensive practice: 'We are your biggest advocate and supporter… not the enemy'.
Autorzy:
Ries NM; Faculty of Law, Law Health Justice Research Centre, University of Technology Sydney, Sydney, New South Wales, Australia.
Johnston B; Faculty of Law, Law Health Justice Research Centre, University of Technology Sydney, Sydney, New South Wales, Australia.
Jansen J; Faculty of Health, Medicine and Life Sciences, School for Public Health and Primary Care, Maastricht University, Maastricht, The Netherlands.
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Źródło:
Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2022 Feb; Vol. 25 (1), pp. 374-383. Date of Electronic Publication: 2021 Dec 03.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Communication*
Defensive Medicine*
Patient Advocacy*
Patient Participation*
Australia ; Health Knowledge, Attitudes, Practice ; Humans ; Physician-Patient Relations ; Qualitative Research
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Maintaining Engagement in Adults with Neurofibromatosis Type 1 to Use the iCanCope Mobile Application (iCanCope-NF).
Autorzy:
Buono, Frank D. (AUTHOR)
Larkin, Kaitlyn (AUTHOR)
Pham, Quynh (AUTHOR)
De Sousa, Diane (AUTHOR)
Zempsky, William T. (AUTHOR)
Lalloo, Chitra (AUTHOR)
Stinson, Jennifer N. (AUTHOR)
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Źródło:
Cancers. Jun2023, Vol. 15 Issue 12, p3213. 12p.
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Patient representatives: Crucial members of health-care working groups facing an uncertain role and conflicting expectations. A qualitative study.
Autorzy:
Hult A; Department of Surgical Sciences, Uppsala University, Uppsala, Sweden.
Lundgren E; Department of Surgical Sciences, Uppsala University, Uppsala, Sweden.
Jangland E; Department of Surgical Sciences, Uppsala University, Uppsala, Sweden.
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Źródło:
Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2021 Aug; Vol. 24 (4), pp. 1197-1206. Date of Electronic Publication: 2021 May 05.
Typ publikacji:
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Patient Advocacy*
Physicians*
Delivery of Health Care ; Humans ; Motivation ; Qualitative Research
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Being a Patient Representative Is More Work Than Being a Patient Advocate-Done Right, It Is Also Likely to Be More Effective.
Autorzy:
Wassersug R; Department of Cellular and Physiological Sciences, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.
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Źródło:
Current oncology (Toronto, Ont.) [Curr Oncol] 2021 Feb 25; Vol. 28 (2), pp. 1017-1019. Date of Electronic Publication: 2021 Feb 25.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Advocacy*
Humans
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Wyświetlanie 1-20 z 7394

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