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Tytuł:
Cost-related prescription non-adherence and patient-reported outcomes in systemic lupus erythematosus: The Michigan Lupus Epidemiology & Surveillance program.
Autorzy:
Minhas D; Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.
Marder W; Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.; Department of Obstetrics and Gynecology, University of Michigan, Ann Arbor, MI, USA.
Hassett AL; Department of Anesthesiology, University of Michigan, Ann Arbor, MI, USA.
Zick SM; Department of Family Medicine, University of Michigan, Ann Arbor, MI, USA.
Gordon C; Rheumatology Research Group, Institute of Inflammation and Ageing, University of Birmingham, Birmingham, UK.
Harlow SD; Department of Epidemiology, University of Michigan, Ann Arbor, MI, USA.
Wang L; Department of Biostatistics, University of Michigan, Ann Arbor, MI, USA.
Barbour KE; Centers for Disease Control and Prevention, Atlanta, GA, USA.
Helmick CG; Centers for Disease Control and Prevention, Atlanta, GA, USA.
McCune WJ; Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.
Somers EC; Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA.; Department of Obstetrics and Gynecology, University of Michigan, Ann Arbor, MI, USA.; Department of Environmental Health Sciences, University of Michigan, Ann Arbor, MI, USA.
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Źródło:
Lupus [Lupus] 2023 Aug; Vol. 32 (9), pp. 1075-1083. Date of Electronic Publication: 2023 Jun 28.
Typ publikacji:
Journal Article
MeSH Terms:
Lupus Erythematosus, Systemic*/drug therapy
Lupus Erythematosus, Systemic*/epidemiology
Humans ; Female ; Middle Aged ; Male ; Michigan/epidemiology ; RNA, Complementary/therapeutic use ; Prescriptions ; Patient Reported Outcome Measures
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Does hydroxychloroquine improve patient reported outcomes in patients with lupus?
Autorzy:
Jolly M; Rheumatology, Rush University, Chicago, USA.
Sehgal V; Rheumatology, Rush University, Chicago, USA.
Arora S; Rheumatology, Rush University, Chicago, USA.
Azizoddin D; Emergency medicine, Brigham and Women's Hospital and Harvard Medical School, Boston, USA.
Pinto B; St Johns Hospital, Bengaluru, India.
Sharma A; Post Graduate Institute of Medical Education and Research, Chandigarh, India.
Devilliers H; CHU Dijon Bourgogne - Hospital François Mitterrand, Dijon, France.
Inoue M; Hyogo University of Health Sciences, Hyogo, Japan.
Toloza S; Rheumatology, Hospital San Juan Batista, Catamarca, Argentina.
Bertoli A; Rheumatology, Instituto Reumatologico Strusberg, Cordoba, Spain.
Blazevic I; Rheumatology, 28196Universidad de Buenos Aires, 28196Universidad de Buenos Aires, Buenos Aires, Argentina.
Vilá LM; Division of Rheumatology, University of Puerto Rico Medical Sciences Campus, San Juan, Puerto Rico.
Moldovan I; Rheumatology, Beaver Medical Group, Redlands, USA.
Torralba KD; Division of Rheumatology, 12221Loma Linda University School of Medicine, 12221Loma Linda University School of Medicine, Loma Linda, USA.
Mazzoni D; Department of Oncology and Hemato-Oncology, University of Bologna, Bologna, Italy.
Cicognani E; Department of Oncology and Hemato-Oncology, University of Bologna, Bologna, Italy.
Hasni S; Rheumatology, National Institute of Health, Bethesda, USA.
Goker B; Rheumatology, Gazi University, Ankara, Turkey.
Haznedaroglu S; Rheumatology, Gazi University, Ankara, Turkey.
Bourre-Tessier J; Rheumatology, University of Montreal, Montreal, Canada.
Navarra SV; Section of Rheumatology, University of Santo Tomas, Manila, Philippines.
Clarke A; Division of Rheumatology, 2129University of Calgary, 2129University of Calgary, Calgary, Canada.
Weisman M; Division of Rheumatology, Cedars Sinai Medical Center, Los Angeles, USA.
Wallace D; Division of Rheumatology, Cedars Sinai Medical Center, Los Angeles, USA.
Mok CC; Medicine, Tuen Mun Hospital, Hong Kong, Hong Kong.
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Źródło:
Lupus [Lupus] 2021 Oct; Vol. 30 (11), pp. 1790-1798. Date of Electronic Publication: 2021 Jul 26.
Typ publikacji:
Journal Article; Multicenter Study
MeSH Terms:
Antirheumatic Agents*/therapeutic use
Hydroxychloroquine*/therapeutic use
Lupus Erythematosus, Systemic*/drug therapy
Patient Reported Outcome Measures*
Adult ; Cross-Sectional Studies ; Databases, Factual ; Female ; Humans ; Male ; Middle Aged ; Quality of Life
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Delayed diagnosis adversely affects outcome in systemic lupus erythematosus: Cross sectional analysis of the LuLa cohort.
Autorzy:
Kernder A; Department of Rheumatology and Hiller-Research Unit Rheumatology, Heinrich-Heine-University, Düsseldorf, Germany.
Richter JG; Department of Rheumatology and Hiller-Research Unit Rheumatology, Heinrich-Heine-University, Düsseldorf, Germany.
Fischer-Betz R; Department of Rheumatology and Hiller-Research Unit Rheumatology, Heinrich-Heine-University, Düsseldorf, Germany.
Winkler-Rohlfing B; German Lupus Self-Help Community, Wuppertal, Germany.
Brinks R; Department of Rheumatology and Hiller-Research Unit Rheumatology, Heinrich-Heine-University, Düsseldorf, Germany.
Aringer M; Department of Medicine III, Division of Rheumatology, TU Dresden, Germany.
Schneider M; Department of Rheumatology and Hiller-Research Unit Rheumatology, Heinrich-Heine-University, Düsseldorf, Germany.
Chehab G; Department of Rheumatology and Hiller-Research Unit Rheumatology, Heinrich-Heine-University, Düsseldorf, Germany.
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Źródło:
Lupus [Lupus] 2021 Mar; Vol. 30 (3), pp. 431-438. Date of Electronic Publication: 2021 Jan 05.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Reported Outcome Measures*
Quality of Life*
Delayed Diagnosis/*adverse effects
Lupus Erythematosus, Systemic/*diagnosis
Adult ; Aged ; Cohort Studies ; Cross-Sectional Studies ; Disease Progression ; Female ; Germany ; Humans ; Lupus Erythematosus, Systemic/psychology ; Male ; Middle Aged ; Severity of Illness Index
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Patient-reported disease impact of systemic lupus erythematosus with active joint symptoms: Results from the systemic lupus erythematosus-update survey.
Autorzy:
Kamen DL; Department of Medicine, 2629Medical University of South Carolina, Charleston, SC, USA.
Birt JA; Value, Evidence, and Outcomes, 1539Eli Lilly and Company, Lilly Corporate Center, Indianapolis, IN, USA.
Hadi MA; Patient Centred Research, 387388Evidera Inc, London, UK.
Gibbons E; Patient Centred Research, 387388Evidera Inc, London, UK.
Bushnell DM; Patient Centred Research, 387388Evidera Inc, Bethesda, MD, USA.
Yu R; Patient Centred Research, 387388Evidera Inc, London, UK.
Delbecque LA; Value, Evidence, and Outcomes, 1539Eli Lilly and Company, Lilly Corporate Center, Indianapolis, IN, USA.
Griffing K; Value, Evidence, and Outcomes, 1539Eli Lilly and Company, Lilly Corporate Center, Indianapolis, IN, USA.
Askanase A; Department of Rheumatology, 116366Columbia University College of Physicians and Surgeons, New York, NY, USA.
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Źródło:
Lupus [Lupus] 2023 Mar; Vol. 32 (3), pp. 342-351. Date of Electronic Publication: 2022 Dec 21.
Typ publikacji:
Journal Article
MeSH Terms:
Lupus Erythematosus, Systemic*/drug therapy
Fibromyalgia*
Joint Diseases*
Adult ; Humans ; Quality of Life ; Cross-Sectional Studies ; Severity of Illness Index ; Surveys and Questionnaires ; Pain ; Patient Reported Outcome Measures ; Arthralgia
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
The Arabic LupusPRO: A Cross-Cultural Validation of a Disease-Specific Patient-Reported Outcome Tool for Quality of Life in Lupus Patients.
Autorzy:
Elkaraly NE; Department of Physical Medicine, Rheumatology and Rehabilitation, Faculty of Medicine, Suez Canal University, Ismailia, Egypt.
Nasef SI; Department of Physical Medicine, Rheumatology and Rehabilitation, Faculty of Medicine, Suez Canal University, Ismailia, Egypt.
Omar AS; Department of Physical Medicine, Rheumatology and Rehabilitation, Faculty of Medicine, Suez Canal University, Ismailia, Egypt.
Fouad AM; Department of Public Health, Occupational and Environmental Medicine, Faculty of Medicine, Suez Canal University, Ismailia, Egypt.
Jolly M; Department of Medicine and Behavioral Sciences, Rush University, Chicago, IL, USA.
Mohamed AE; Department of Physical Medicine, Rheumatology and Rehabilitation, Faculty of Medicine, Suez Canal University, Ismailia, Egypt.
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Źródło:
Lupus [Lupus] 2020 Nov; Vol. 29 (13), pp. 1727-1735. Date of Electronic Publication: 2020 Sep 02.
Typ publikacji:
Journal Article; Validation Study
MeSH Terms:
Cross-Cultural Comparison*
Patient Reported Outcome Measures*
Quality of Life*
Surveys and Questionnaires*
Lupus Erythematosus, Systemic/*physiopathology
Adolescent ; Adult ; Cross-Sectional Studies ; Egypt ; Factor Analysis, Statistical ; Female ; Humans ; Language ; Lupus Erythematosus, Systemic/psychology ; Male ; Middle Aged ; Psychometrics ; Reproducibility of Results ; Severity of Illness Index ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Performance and psychometric properties of lupus impact tracker in assessing patient-reported outcomes in pediatric lupus: Report from a pilot study.
Autorzy:
Ganguli SK; Department of Pediatric Rheumatology, Marshfield Clinic, Marshfield, WI, USA.
Hui-Yuen JS; Department of Pediatric Rheumatology, Cohen Children's Medical Center, Lake Success, NY, USA.; Department of Pediatrics, School of Medicine, Hofstra University, Hempstead, NY, USA.
Jolly M; Department of Rheumatology, Rush University Medical Center, Chicago, IL, USA.
Cerise J; Department of Biostatistics, The Feinstein Institute of Medical Research, Manhasset, NY, USA.
Eberhard BA; Department of Pediatric Rheumatology, Cohen Children's Medical Center, Lake Success, NY, USA.; Department of Pediatrics, School of Medicine, Hofstra University, Hempstead, NY, USA.
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Źródło:
Lupus [Lupus] 2020 Nov; Vol. 29 (13), pp. 1781-1789. Date of Electronic Publication: 2020 Aug 24.
Typ publikacji:
Journal Article; Observational Study; Validation Study
MeSH Terms:
Patient Reported Outcome Measures*
Surveys and Questionnaires*
Lupus Erythematosus, Systemic/*psychology
Adolescent ; Adult ; Child ; Disability Evaluation ; Female ; Humans ; Lupus Erythematosus, Systemic/physiopathology ; Male ; Pilot Projects ; Prospective Studies ; Psychometrics ; Reproducibility of Results ; Severity of Illness Index ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Relationship between remission, disease activity and patient-reported outcome measures in patients with recent-onset systemic lupus erythematosus.
Autorzy:
Heijke R; Division of Neuro and Inflammation Sciences, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.
Björk M; Division of Occupational Therapy, Department of Social and Welfare Studies, Linköping University, Linköping, Sweden.
Frodlund M; Division of Neuro and Inflammation Sciences, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.
McDonald L; Centre for Observational Research and Data Sciences, Bristol-Myers Squibb, Uxbridge, UK.
Alemao E; World Wide Health Economics and Outcomes Research, Bristol-Myers Squibb, Princeton, NJ, USA.
Sjöwall C; Division of Neuro and Inflammation Sciences, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.
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Źródło:
Lupus [Lupus] 2020 May; Vol. 29 (6), pp. 625-630. Date of Electronic Publication: 2020 Mar 18.
Typ publikacji:
Journal Article; Observational Study
MeSH Terms:
Patient Reported Outcome Measures*
Lupus Erythematosus, Systemic/*diagnosis
Lupus Erythematosus, Systemic/*psychology
Adult ; Case-Control Studies ; Causality ; Decision Making, Shared ; Female ; Humans ; Incidence ; Longitudinal Studies ; Lupus Erythematosus, Systemic/epidemiology ; Lupus Erythematosus, Systemic/ethnology ; Male ; Remission, Spontaneous ; Retrospective Studies ; Severity of Illness Index ; Sweden/epidemiology
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Identifying co-morbid fibromyalgia in patients with systemic lupus erythematosus using the Multi-Dimensional Health Assessment Questionnaire.
Autorzy:
Huang FF; University of New South Wales, Sydney, Australia.; Rheumatology Department, Liverpool Hospital, Liverpool, Australia.
Fang R; University of New South Wales, Sydney, Australia.; Rheumatology Department, Liverpool Hospital, Liverpool, Australia.
Nguyen MH; University of New South Wales, Sydney, Australia.; Rheumatology Department, Liverpool Hospital, Liverpool, Australia.
Bryant K; University of New South Wales, Sydney, Australia.
Gibson KA; University of New South Wales, Sydney, Australia.; Rheumatology Department, Liverpool Hospital, Liverpool, Australia.
O'Neill SG; University of New South Wales, Sydney, Australia.; Rheumatology Department, Liverpool Hospital, Liverpool, Australia.
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Źródło:
Lupus [Lupus] 2020 Oct; Vol. 29 (11), pp. 1404-1411. Date of Electronic Publication: 2020 Aug 02.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Reported Outcome Measures*
Fibromyalgia/*epidemiology
Lupus Erythematosus, Systemic/*epidemiology
Adolescent ; Adult ; Aged ; Comorbidity ; Female ; Fibromyalgia/physiopathology ; Humans ; Lupus Erythematosus, Systemic/physiopathology ; Male ; Middle Aged ; Pain Measurement ; Quality of Life ; Surveys and Questionnaires ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Changes in quality of life in relation to disease activity in systemic lupus erythematosus: post-hoc analysis of the BLISS-52 Trial.
Autorzy:
Jolly M; Division of Rheumatology, Rush University Medical Center, Chicago, USA.
Annapureddy N; Division of Rheumatology, Vanderbilt University Medical Center, Nashville, USA.
Arnaud L; Service de Rhumatologie, Hôpitaux Universitaires de Strasbourg, INSERM UMRS 1109, CRMR RESO, Strasbourg, France.
Devilliers H; Internal Medicine and Systemic Diseases Unit, Dijon University Hospital, Dijon, France.; INSERM CIC-1432 Clinical Investigation Center - Clinical Epidemiology, Dijon University Hospital, Dijon, France.
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Źródło:
Lupus [Lupus] 2019 Dec; Vol. 28 (14), pp. 1628-1639. Date of Electronic Publication: 2019 Nov 01.
Typ publikacji:
Clinical Trial, Phase III; Journal Article; Multicenter Study; Randomized Controlled Trial
MeSH Terms:
Patient Reported Outcome Measures*
Quality of Life*
Lupus Erythematosus, Systemic/*physiopathology
Lupus Erythematosus, Systemic/*psychology
Adult ; Antibodies, Monoclonal, Humanized/therapeutic use ; Female ; Humans ; Lupus Erythematosus, Systemic/drug therapy ; Male ; Middle Aged ; Severity of Illness Index ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Hindi LupusPRO: cross cultural validation of disease specific patient reported outcome measure of lupus.
Autorzy:
Pinto B; Department of Internal Medicine, Post Graduate Institute of Medical Education and Research, Chandigarh, India.
Jolly M; Department of Medicine, Division of Rheumatology, Rush University Medical Center, Chicago, USA.
Dhooria A; Department of Internal Medicine, Post Graduate Institute of Medical Education and Research, Chandigarh, India.
Grover S; Department of Psychiatry, Post Graduate Institute of Medical Education and Research, Chandigarh, India.
Raj JM; Department of Biostatistics, St. John's National Academy of Health Sciences, Bangalore, India.
Devilliers H; Department of Internal Medicine, University Hospital Dijon-Burgundy, Dijon, France.
Sharma A; Department of Internal Medicine, Post Graduate Institute of Medical Education and Research, Chandigarh, India.
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Źródło:
Lupus [Lupus] 2019 Nov; Vol. 28 (13), pp. 1534-1540. Date of Electronic Publication: 2019 Oct 21.
Typ publikacji:
Journal Article; Validation Study
MeSH Terms:
Patient Reported Outcome Measures*
Quality of Life*
Surveys and Questionnaires*
Lupus Erythematosus, Systemic/*physiopathology
Adult ; Cross-Cultural Comparison ; Cross-Sectional Studies ; Female ; Humans ; India ; Lupus Erythematosus, Systemic/psychology ; Male ; Psychometrics ; Reproducibility of Results ; Severity of Illness Index
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
The use of patient-reported outcome measures to classify type 1 and 2 systemic lupus erythematosus activity.
Autorzy:
Eudy AM; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.
Reeve BB; Department of Population Health Sciences, 12277Duke University School of Medicine, Durham, NC, USA.
Coles T; Department of Population Health Sciences, 12277Duke University School of Medicine, Durham, NC, USA.
Lin L; Department of Population Health Sciences, 12277Duke University School of Medicine, Durham, NC, USA.
Rogers JL; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.
Pisetsky DS; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.; 20054Medical Research Service Durham VAMC, Durham, NC, USA.
Criscione-Schreiber LG; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.
Doss J; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.
Sadun R; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.
Sun K; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.
Clowse ME; Department of Medicine, 12277Duke University School of Medicine, Durham, NC, USA.
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Źródło:
Lupus [Lupus] 2022 May; Vol. 31 (6), pp. 697-705. Date of Electronic Publication: 2022 Mar 28.
Typ publikacji:
Journal Article
MeSH Terms:
Lupus Erythematosus, Systemic*/complications
Lupus Erythematosus, Systemic*/diagnosis
Nephritis*
Female ; Humans ; Male ; Patient Reported Outcome Measures ; Severity of Illness Index
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Feasibility of Patient-Reported Outcomes Measurement Information System (PROMIS®) computerized adaptive tests in systemic lupus erythematosus outpatients.
Autorzy:
Kasturi S; 1 Department of Medicine/Rheumatology, Tufts Medical Center, Boston, MA, USA.
Burket JC; 2 Hospital for Special Surgery, Healthcare Research Institute, New York, NY, USA.
Berman JR; 3 Department of Medicine/Rheumatology, Hospital for Special Surgery and Weill Cornell Medicine, New York, NY, USA.
Kirou KA; 3 Department of Medicine/Rheumatology, Hospital for Special Surgery and Weill Cornell Medicine, New York, NY, USA.
Levine AB; 3 Department of Medicine/Rheumatology, Hospital for Special Surgery and Weill Cornell Medicine, New York, NY, USA.
Sammaritano LR; 3 Department of Medicine/Rheumatology, Hospital for Special Surgery and Weill Cornell Medicine, New York, NY, USA.
Mandl LA; 3 Department of Medicine/Rheumatology, Hospital for Special Surgery and Weill Cornell Medicine, New York, NY, USA.
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Źródło:
Lupus [Lupus] 2018 Sep; Vol. 27 (10), pp. 1591-1599. Date of Electronic Publication: 2018 May 24.
Typ publikacji:
Evaluation Study; Journal Article
MeSH Terms:
Patient Reported Outcome Measures*
Lupus Erythematosus, Systemic/*diagnosis
Outpatients/*psychology
Adult ; Aged ; Comprehension ; Feasibility Studies ; Feedback, Psychological ; Female ; Health Knowledge, Attitudes, Practice ; Health Literacy ; Humans ; Lupus Erythematosus, Systemic/psychology ; Lupus Erythematosus, Systemic/therapy ; Male ; Middle Aged ; Patient Satisfaction ; Predictive Value of Tests ; Treatment Outcome ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Translation, cultural adaptation and validation of the Systemic Lupus Erythematosus Activity Questionnaire (SLAQ) in a cohort of Italian systemic lupus erythematosus patients.
Autorzy:
Tani C; 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
Vagelli R; 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
Stagnaro C; 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
Carli L; 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
Lorenzoni V; 2 Institute of Management, Scuola Superiore Sant'Anna, Pisa, Italy.
Drago F; 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
Doherty W; 3 Language Centre, University of Pisa, Italy.; 4 Clinical and Experimental Rheumatology, Pisa, Italy.
McSorley MR; 3 Language Centre, University of Pisa, Italy.
Marconcini L; 4 Clinical and Experimental Rheumatology, Pisa, Italy.
Della Rossa A; 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
Turchetti G; 2 Institute of Management, Scuola Superiore Sant'Anna, Pisa, Italy.
Mosca M; 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Italy.
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Źródło:
Lupus [Lupus] 2018 Sep; Vol. 27 (10), pp. 1735-1741. Date of Electronic Publication: 2018 Jul 25.
Typ publikacji:
Journal Article; Validation Study
MeSH Terms:
Cultural Characteristics*
Patient Reported Outcome Measures*
Translating*
Health Knowledge, Attitudes, Practice/*ethnology
Lupus Erythematosus, Systemic/*diagnosis
White People/*psychology
Adult ; Comprehension ; Feasibility Studies ; Female ; Humans ; Italy/epidemiology ; Lupus Erythematosus, Systemic/ethnology ; Lupus Erythematosus, Systemic/psychology ; Lupus Erythematosus, Systemic/therapy ; Male ; Middle Aged ; Pilot Projects ; Predictive Value of Tests ; Prognosis ; Reproducibility of Results ; Severity of Illness Index
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Patient-reported outcome measures in systemic lupus erythematosus by a web-based application: A randomized, crossover, agreement study.
Autorzy:
Uhrenholt L; Department of Rheumatology, 53141Aalborg University Hospital, Aalborg, Denmark.; Department of Clinical Medicine, 1004Aalborg University, Aalborg, Denmark.; Section for Biostatistics and Evidence-Based Research, 542252the Parker Institute, Copenhagen, Denmark.; DANBIO, 70590Rigshospitalet Glostrup, Glostrup, Denmark.
Høstgaard S; Department of Clinical Medicine, 1004Aalborg University, Aalborg, Denmark.
Pedersen JF; Department of Clinical Medicine, 1004Aalborg University, Aalborg, Denmark.
Christensen R; Section for Biostatistics and Evidence-Based Research, 542252the Parker Institute, Copenhagen, Denmark.; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, 11286Odense University Hospital, Odense, Denmark.
Dreyer L; Department of Rheumatology, 53141Aalborg University Hospital, Aalborg, Denmark.; Department of Clinical Medicine, 1004Aalborg University, Aalborg, Denmark.
Leffers HCB; Copenhagen Lupus and Vasculitis Clinic, Centre for Rheumatology and Spine Diseases, 53146Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
Taylor PC; Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, 6396University of Oxford, Oxford, UK.
Strand V; Division of Immunology/Rheumatology, 6429Stanford University School of Medicine, Palo Alto, California, USA.
Jacobsen S; Copenhagen Lupus and Vasculitis Clinic, Centre for Rheumatology and Spine Diseases, 53146Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.; Department of Clinical Medicine, Faculty of Health Science, 4321University of Copenhagen, Copenhagen, Denmark.
Voss A; Department of Rheumatology, 11286Odense University Hospital, University of Southern Denmark, Odense, Denmark.
Gregersen JW; Department of Nephrology, 53141Aalborg University Hospital, Aalborg, Denmark.
Kristensen S; Department of Rheumatology, 53141Aalborg University Hospital, Aalborg, Denmark.; Department of Clinical Medicine, 1004Aalborg University, Aalborg, Denmark.
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Źródło:
Lupus [Lupus] 2021 Nov; Vol. 30 (13), pp. 2124-2134. Date of Electronic Publication: 2021 Oct 31.
Typ publikacji:
Journal Article; Randomized Controlled Trial
MeSH Terms:
Lupus Erythematosus, Systemic*/diagnosis
Lupus Erythematosus, Systemic*/therapy
Fatigue ; Humans ; Pain ; Patient Reported Outcome Measures ; Severity of Illness Index ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Validation of the LupusPRO version 1.8: an update to a disease-specific patient-reported outcome tool for systemic lupus erythematosus.
Autorzy:
Azizoddin DR; 1 Department of Medicine and Behavioral Sciences, Rush University, Chicago, IL, USA.
Weinberg S; 1 Department of Medicine and Behavioral Sciences, Rush University, Chicago, IL, USA.
Gandhi N; 1 Department of Medicine and Behavioral Sciences, Rush University, Chicago, IL, USA.
Arora S; 2 Division of Rheumatology, John H. Stroger, Jr. Hospital of Cook County, Chicago, IL, USA.
Block JA; 1 Department of Medicine and Behavioral Sciences, Rush University, Chicago, IL, USA.
Sequeira W; 1 Department of Medicine and Behavioral Sciences, Rush University, Chicago, IL, USA.
Jolly M; 1 Department of Medicine and Behavioral Sciences, Rush University, Chicago, IL, USA.
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Źródło:
Lupus [Lupus] 2018 Apr; Vol. 27 (5), pp. 728-737. Date of Electronic Publication: 2017 Oct 31.
Typ publikacji:
Journal Article; Validation Study
MeSH Terms:
Patient Reported Outcome Measures*
Lupus Erythematosus, Systemic/*diagnosis
Adult ; Emotions ; Female ; Health Status ; Humans ; Lupus Erythematosus, Systemic/physiopathology ; Lupus Erythematosus, Systemic/psychology ; Lupus Erythematosus, Systemic/therapy ; Male ; Mental Health ; Middle Aged ; Pain/diagnosis ; Pain/physiopathology ; Pain/psychology ; Pain Measurement ; Predictive Value of Tests ; Psychometrics ; Quality of Life ; Reproducibility of Results ; Sleep ; Sleep Initiation and Maintenance Disorders/diagnosis ; Sleep Initiation and Maintenance Disorders/physiopathology ; Sleep Initiation and Maintenance Disorders/psychology
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Discordance of patient and physician health status concerns in systemic lupus erythematosus.
Autorzy:
Golder V; 1 School of Clinical Sciences, Monash University, Australia.; 2 Department of Rheumatology, Monash Health, Clayton, Australia.
Ooi JJY; 1 School of Clinical Sciences, Monash University, Australia.; 3 Alfred Health, Melbourne, Australia.
Antony AS; 2 Department of Rheumatology, Monash Health, Clayton, Australia.
Ko T; 2 Department of Rheumatology, Monash Health, Clayton, Australia.
Morton S; 2 Department of Rheumatology, Monash Health, Clayton, Australia.
Kandane-Rathnayake R; 1 School of Clinical Sciences, Monash University, Australia.
Morand EF; 1 School of Clinical Sciences, Monash University, Australia.; 2 Department of Rheumatology, Monash Health, Clayton, Australia.
Hoi AY; 1 School of Clinical Sciences, Monash University, Australia.; 2 Department of Rheumatology, Monash Health, Clayton, Australia.
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Źródło:
Lupus [Lupus] 2018 Mar; Vol. 27 (3), pp. 501-506. Date of Electronic Publication: 2017 Aug 01.
Typ publikacji:
Comparative Study; Journal Article
MeSH Terms:
Health Status*
Patient Reported Outcome Measures*
Fatigue/*psychology
Lupus Erythematosus, Systemic/*physiopathology
Pain/*psychology
Adult ; Ambulatory Care Facilities ; Australia ; Cross-Sectional Studies ; Female ; Health Services Needs and Demand ; Humans ; Male ; Middle Aged ; Pain Measurement ; Physicians ; Quality of Life ; Severity of Illness Index ; Surveys and Questionnaires ; Tertiary Care Centers
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Validity and reliability of patient reported outcomes measurement information system computerized adaptive tests in systemic lupus erythematous.
Autorzy:
Moazzami M; Department of Medicine, 43989The George Washington University School of Medicine and Health Sciences, Washington, DC, USA.
Katz P; Department of Medicine and Health Policy, 8785University of California San Francisco, San Francisco, CA, USA.
Bonilla D; Division of Rheumatology, Department of Medicine, Toronto Western Hospital-Lupus Clinic, 7989University Health Network, Toronto, ON, Canada.
Engel L; Department of Occupational Therapy, College of Rehabilitation Sciences, Rady Faculty of Health Sciences, 8664University of Manitoba, Winnipeg, MB, Canada.
Su J; Centre for Prognosis Studies in the Rheumatic Diseases, 7989University Health Network, Toronto, ON, Canada.
Akhavan P; Division of Rheumatology, Department of Medicine, Mount Sinai Hospital, 12366University of Toronto Faculty of Medicine, Toronto, ON, Canada.
Anderson N; Division of Rheumatology, Department of Medicine, Toronto Western Hospital-Lupus Clinic, 7989University Health Network, Toronto, ON, Canada.
Tayer-Shifman OE; Rheumatology Service, 37253Meir Medical Center, Kfar-Saba, Israel.
Beaton D; Health Measurement, St. Michael's Hospital, University of Toronto, 7966Institute for Work and Health, Toronto, ON, Canada.
Touma Z; Division of Rheumatology, Department of Medicine; Toronto Western Hospital-Lupus Clinic; Institute of Health Policy, Management and Evaluation, 7938University of Toronto, Toronto, ON, Canada.
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Źródło:
Lupus [Lupus] 2021 Nov; Vol. 30 (13), pp. 2102-2113. Date of Electronic Publication: 2021 Nov 19.
Typ publikacji:
Journal Article
MeSH Terms:
Lupus Erythematosus, Discoid*
Lupus Erythematosus, Systemic*/diagnosis
Canada ; Erythema ; Humans ; Information Systems ; Patient Reported Outcome Measures ; Reproducibility of Results ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Impact of the first wave of the COVID-19 pandemic on systemic lupus erythematosus patients: Results from a multi-center prospective cohort.
Autorzy:
Kasturi S; Division of Rheumatology, Allergy & Immunology/Department of Medicine, Tufts Medical Center, Boston, USA.
Price LL; Institute of Clinical Research and Health Policy Studies, 1867Tufts Medical Center, Tufts Medical Center, Boston, USA.; Tufts Clinical and Translational Science Institute, Tufts University, Boston, USA.
Paushkin V; Division of Rheumatology, Allergy & Immunology/Department of Medicine, Tufts Medical Center, Boston, USA.
Salmon JE; Division of Rheumatology/Department of Medicine, Hospital for Special Surgery and Weill Cornell Medicine, New York, USA.
McAlindon TE; Division of Rheumatology, Allergy & Immunology/Department of Medicine, Tufts Medical Center, Boston, USA.
Mandl LA; Division of Rheumatology/Department of Medicine, Hospital for Special Surgery and Weill Cornell Medicine, New York, USA.
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Źródło:
Lupus [Lupus] 2021 Oct; Vol. 30 (11), pp. 1747-1755. Date of Electronic Publication: 2021 Jul 20.
Typ publikacji:
Journal Article; Multicenter Study
MeSH Terms:
Quality of Life*
Anxiety/*psychology
Depression/*psychology
Lupus Erythematosus, Systemic/*psychology
Pain/*psychology
Adult ; Aged ; COVID-19/epidemiology ; Humans ; Longitudinal Studies ; Male ; Middle Aged ; Pandemics ; Patient Reported Outcome Measures ; Prospective Studies ; SARS-CoV-2 ; Telemedicine/statistics & numerical data
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Associations between physicians' global assessment of disease activity and patient-reported outcomes in patients with systemic lupus erythematosus: A longitudinal study.
Autorzy:
Louthrenoo W; Division of Rheumatology, Department of Internal Medicine, Faculty of Medicine, Chiang Mai University, Chiang Mai, Thailand.
Kasitanon N; Division of Rheumatology, Department of Internal Medicine, Faculty of Medicine, Chiang Mai University, Chiang Mai, Thailand.
Morand E; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Australia.
Kandane-Rathnayake R; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Australia.
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Źródło:
Lupus [Lupus] 2021 Sep; Vol. 30 (10), pp. 1586-1595. Date of Electronic Publication: 2021 Jul 01.
Typ publikacji:
Journal Article
MeSH Terms:
Lupus Erythematosus, Systemic*/diagnosis
Physicians*
Humans ; Longitudinal Studies ; Patient Reported Outcome Measures ; Quality of Life ; Severity of Illness Index
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Validation of the Lupus Impact Tracker in an Australian patient cohort.
Autorzy:
Antony A; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Victoria, Australia.
Kandane-Rathnayake RK; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Victoria, Australia.
Ko T; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Victoria, Australia.
Boulos D; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Victoria, Australia.
Hoi AY; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Victoria, Australia.
Jolly M; Rush University Medical Centre, Chicago, IL, USA.
Morand EF; School of Clinical Sciences at Monash Health, Monash University, Melbourne, Victoria, Australia .
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Źródło:
Lupus [Lupus] 2017 Jan; Vol. 26 (1), pp. 98-105. Date of Electronic Publication: 2016 Aug 11.
Typ publikacji:
Journal Article; Validation Study
MeSH Terms:
Patient Reported Outcome Measures*
Quality of Life*
Surveys and Questionnaires*
Lupus Erythematosus, Systemic/*psychology
Adult ; Aged ; Australia ; Disabled Persons ; Factor Analysis, Statistical ; Female ; Humans ; Lupus Erythematosus, Systemic/physiopathology ; Male ; Middle Aged ; Psychometrics ; Reproducibility of Results ; Severity of Illness Index ; Socioeconomic Factors ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Wyświetlanie 1-20 z 32

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