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Wyszukujesz frazę ""Perrone, Ronald"" wg kryterium: Autor


Tytuł :
Patient-reported outcome measures for pain in autosomal dominant polycystic kidney disease: A systematic review.
Autorzy :
Natale P; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.; Department of Emergency and Organ Transplantation, University of Bari, Bari, Italy.
Hannan E; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.
Sautenet B; Service de Néphrologie-Hypertension, Dialyses, Transplantation Rénale, Hôpital de Tours, Tours, France.; Université de Tours, Université de Nantes, INSERM, SPHERE U1246, Tours, France.
Ju A; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.
Perrone RD; Medicine, Nephrology, Clinical and Translational Research Center, Tufts Medical Center and Tufts University School of Medicine, Boston, Massachusetts, United States of America.
Burnette E; London, United Kingdom.
Casteleijn N; Department of Urology, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands.
Chapman A; Department of Nephrology, The University of Chicago, Chicago, Illinois, United States of America.
Eastty S; London, United Kingdom.
Gansevoort R; Department of Urology, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands.
Hogan M; Division of Nephrology & Hypertension, Department of Internal Medicine Mayo Clinic, Rochester, Minnesota, United States of America.
Horie S; Department of Urology, Juntendo University, Tokyo, Japan.
Knebelmann B; Université de Paris APHP, Hôpital Necker, Service de Néphrologie, Paris, France.
Lee R; Armidale, NSW, Australia.
Mustafa RA; Division of Nephrology and Hypertension, Department of Internal Medicine, University of Kansas Medical Centre, Lawrence, Kansas, United States of America.
Sandford R; Academic Department of Medical Genetics, University of Cambridge, Cambridge, United Kingdom.
Baumgart A; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.
Tong A; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.
Strippoli GFM; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.; Department of Emergency and Organ Transplantation, University of Bari, Bari, Italy.
Craig JC; College of Medicine and Public Health, Flinders University, Adelaide, SA, Australia.
Rangan GK; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, The University of Sydney, Sydney, NSW, Australia.; Department of Medicine, Westmead Hospital, Western Sydney Local Health District, Sydney, NSW, Australia.
Cho Y; Australasian Kidney Trials Network, University of Queensland, Brisbane, QLD, Australia.; Translational Research Institute, Brisbane, QLD, Australia.; Department of Nephrology, Princess Alexandra Hospital, Brisbane, QLD, Australia.
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Źródło :
PloS one [PLoS One] 2021 May 27; Vol. 16 (5), pp. e0252479. Date of Electronic Publication: 2021 May 27 (Print Publication: 2021).
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
The Effect of Tolvaptan on BP in Polycystic Kidney Disease: A Post Hoc Analysis of the TEMPO 3:4 Trial.
Autorzy :
Heida JE; Department of Nephrology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
Gansevoort RT; Department of Nephrology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands .
Torres VE; Division of Nephrology and Hypertension, Department of Internal Medicine, Mayo Clinic, Rochester, Minnesota.
Devuyst O; Institute of Physiology, University of Zurich, Zurich, Switzerland.; Division of Nephrology, Université Catholique de Louvain, Brussels, Belgium.
Perrone RD; Division of Nephrology, Department of Medicine, Tufts Medical Center, Tufts University School of Medicine, Boston, Massachusetts.
Lee J; Otsuka Pharmaceutical Development & Commercialization, Inc., Rockville, Maryland.
Li H; Otsuka Pharmaceutical Development & Commercialization, Inc., Rockville, Maryland.
Ouyang J; Otsuka Pharmaceutical Development & Commercialization, Inc., Rockville, Maryland.
Chapman AB; Section of Nephrology, University of Chicago, Chicago, Illinois.
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Źródło :
Journal of the American Society of Nephrology : JASN [J Am Soc Nephrol] 2021 Apr 22. Date of Electronic Publication: 2021 Apr 22.
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
Per-Treatment Post Hoc Analysis of Clinical Trial Outcomes With Tolvaptan in ADPKD.
Autorzy :
Mallett AJ; Institute for Molecular Bioscience and Faculty of Medicine, University of Queensland, Brisbane, Queensland, Australia.; Department of Renal Medicine, Townsville University Hospital, Townsville, Queensland, Australia.
Perrone RD; Division of Nephrology, Department of Medicine, Tufts Medical Center and Tufts University School of Medicine, Boston, Massachusetts, USA.
Rangan G; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, The University of Sydney, Sydney, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Sydney, New South Wales, Australia.
Hawley C; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Queensland, Australia.; Translational Research Institute, Brisbane, Queensland, Australia.
El-Damanawi R; Division of Experimental Medicine and Immunotherapeutics, Department of Medicine, University of Cambridge, Cambridge, UK.; Cambridge Clinical Trials Unit, Addenbrooke's Hospital, Cambridge, UK.
Hiemstra TF; Division of Experimental Medicine and Immunotherapeutics, Department of Medicine, University of Cambridge, Cambridge, UK.; Cambridge Clinical Trials Unit, Addenbrooke's Hospital, Cambridge, UK.
Arellano CT; Institute for Molecular Bioscience and Faculty of Medicine, University of Queensland, Brisbane, Queensland, Australia.
Lee J; Biostatistics, Otsuka Pharmaceutical Development & Commercialization, Inc., Rockville, Maryland, USA.
Torres VE; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
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Źródło :
Kidney international reports [Kidney Int Rep] 2021 Feb 02; Vol. 6 (4), pp. 1032-1040. Date of Electronic Publication: 2021 Feb 02 (Print Publication: 2021).
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
Establishing a Core Outcome Set for Autosomal Dominant Polycystic Kidney Disease: Report of the Standardized Outcomes in Nephrology-Polycystic Kidney Disease (SONG-PKD) Consensus Workshop.
Autorzy :
Cho Y; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australasian Kidney Trials Network, The University of Queensland, Brisbane, Australia; Translational Research Institute, Brisbane, Australia. Electronic address: .
Tong A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney.
Craig JC; College of Medicine and Public Health, Flinders University, Adelaide, Australia.
Mustafa RA; Division of Nephrology and Hypertension, Department of Internal Medicine, University of Kansas Medical Center, Kansas City, KS.
Chapman A; Department of Medicine, The University of Chicago, Chicago, IL.
Perrone RD; Division of Nephrology, Tufts Medical Center, Tufts University School of Medicine Boston, MA.
Ahn C; Department of Internal Medicine, Seoul National University Hospital, Seoul, South Korea.
Fowler K; The Voice of the Patient, Inc, Seattle, WA.
Torres V; Department of Nephrology and Hypertension, Mayo Clinic, Rochester, MN.
Gansevoort RT; Faculty of Medical Sciences, University Medical Center, Gronigen, the Netherlands.
Ong ACM; Academic Nephrology Unit, Department of Infection Immunity & Cardiovascular Disease, University of Sheffield, Sheffield, United Kingdom.
Coolican H; Polycystic Kidney Disease Australia, Sydney, Australia.
Tze-Wah Kao J; School of Medicine, Fu Jen Catholic University and Fu Jen Catholic University Hospital, Taipei City, Taiwan; Department of Internal Medicine, National Taiwan University Hospital, Taipei, Taiwan.
Harris T; Polycystic Kidney Disease International, Geneva, Switzerland.
Gutman T; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney.
Shen JI; Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA.
Viecelli AK; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australasian Kidney Trials Network, The University of Queensland, Brisbane, Australia.
Johnson DW; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australasian Kidney Trials Network, The University of Queensland, Brisbane, Australia; Translational Research Institute, Brisbane, Australia.
Au E; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney.
El-Damanawi R; Division of Experimental Medicine and Immunotherapeutics, Department of Medicine, University of Cambridge, Cambridge, United Kingdom; Cambridge Clinical Trials Unit, Addenbrooke's Hospital, Cambridge, United Kingdom.
Logeman C; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney.
Ju A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney.
Manera KE; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney.
Chonchol M; School of Medicine, Renal Diseases and Hypertension, University of Colorado, Denver, CO.
Odland D; Polycystic Kidney Disease Foundation, Kansas City, MO.
Baron D; Polycystic Kidney Disease Foundation, Kansas City, MO.
Pei Y; Division of Nephrology, University of Toronto, Toronto, Canada; Division of Genomic Medicine, University of Toronto, Toronto, Canada.
Sautenet B; Department of Nephrology, Hypertension, Dialysis, Kidney Transplantation, Tours Hospital, SPHERE-INSERM 1246, University of Tours and Nantes, Tours, France.
Rastogi A; Division of Nephrology, Department of Medicine, David Geffen School of Medicine, University of California, Los Angeles, CA.
Sharma A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, The University of Sydney, Sydney, Australia.
Rangan G; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, The University of Sydney, Sydney, Australia; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Sydney, Australia.
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Corporate Authors :
SONG-PKD Workshop Investigators
Źródło :
American journal of kidney diseases : the official journal of the National Kidney Foundation [Am J Kidney Dis] 2021 Feb; Vol. 77 (2), pp. 255-263. Date of Electronic Publication: 2020 Aug 06.
Typ publikacji :
Consensus Development Conference; Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Mortality*
Cardiovascular Diseases/*physiopathology
Pain/*physiopathology
Polycystic Kidney, Autosomal Dominant/*physiopathology
Renal Insufficiency/*physiopathology
Activities of Daily Living ; Administrative Personnel ; Cardiovascular Diseases/etiology ; Caregivers ; Delphi Technique ; Disease Progression ; Humans ; Nephrologists ; Outcome Assessment, Health Care ; Pain/etiology ; Polycystic Kidney, Autosomal Dominant/complications ; Polycystic Kidney, Autosomal Dominant/therapy ; Renal Insufficiency/etiology ; Stakeholder Participation
Czasopismo naukowe
Tytuł :
Baseline Characteristics and Patient-Reported Outcomes of ADPKD Patients in the Multicenter TAME-PKD Clinical Trial.
Autorzy :
Seliger SL; Department of Medicine, Division of Nephrology, University of Maryland School of Medicine, Baltimore, Maryland.
Watnick T; Department of Medicine, Division of Nephrology, University of Maryland School of Medicine, Baltimore, Maryland.
Althouse AD; Department of Medicine, Division of Internal Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Perrone RD; Department of Medicine, Division of Nephrology, Tufts Medical Center, Boston, Massachusetts.
Abebe KZ; Department of Medicine, Division of Internal Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Hallows KR; Department of Medicine, Division of Nephrology and Hypertension, University of Southern California Keck School of Medicine, Los Angeles, California.
Miskulin DC; Department of Medicine, Division of Internal Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Bae KT; Department of Medicine, Division of Nephrology, Tufts Medical Center, Boston, Massachusetts.; Department of Radiology, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
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Źródło :
Kidney360 [Kidney360] 2020 Dec 31; Vol. 1 (12), pp. 1363-1372.
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
Multicenter Study of Long-Term Safety of Tolvaptan in Later-Stage Autosomal Dominant Polycystic Kidney Disease.
Autorzy :
Torres VE; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota .
Chapman AB; Section of Nephrology, The University of Chicago School of Medicine, Chicago, Illinois.
Devuyst O; Institute of Physiology, University of Zurich, Zurich, Switzerland.; Division of Nephrology, Université Catholique de Louvain Medical School, Brussels, Belgium.
Gansevoort RT; Division of Nephrology, University Medical Center Groningen, Groningen, The Netherlands.
Perrone RD; Division of Nephrology, Department of Medicine, Tufts Medical Center, Boston, Massachusetts.
Lee J; Biostatistics, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland.
Hoke ME; Global Medical Affairs, Otsuka Pharmaceutical Development & Commercialization, Princeton, New Jersey.
Estilo A; Clinical Safety and Pharmacovigilance, Otsuka Pharmaceutical Development & Commercialization, Princeton, New Jersey.
Sergeyeva O; Global Clinical Development, Otsuka Pharmaceutical Development & Commercialization, Princeton, New Jersey.
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Źródło :
Clinical journal of the American Society of Nephrology : CJASN [Clin J Am Soc Nephrol] 2020 Dec 31; Vol. 16 (1), pp. 48-58. Date of Electronic Publication: 2020 Dec 29.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
Czasopismo naukowe
Tytuł :
'A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study.
Autorzy :
Logeman C; School of Public Health, The University of Sydney, Sydney, New South Wales, Australia .; Centre for Kidney Research, Westmead Hospital, Westmead, New South Wales, Australia.
Cho Y; Australasian Kidney Trials Network, University of Queensland at Princess Alexandra Hospital, Brisbane, Queensland, Australia.; Department of Nephrology, Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.
Sautenet B; Department of Nephrology Hypertension, Centre Hospitalier Régional Universitaire de Tours, Tours, France.
Rangan GK; Centre for Transplant and Renal Research, The Westmead Institute for Medical Research, Sydney, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Westmead, New South Wales, Australia.
Gutman T; School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, Westmead Hospital, Westmead, New South Wales, Australia.
Craig J; College of Medicine and Public Health, Flinders University Faculty of Medicine, Nursing and Health Sciences, Adelaide, South Australia, Australia.
Ong A; Academic Nephrology Unit, The Henry Wellcome Laboratories for Medical Research, University of Sheffield Medical School, Sheffield, UK.
Chapman A; Department of Medicine, University of Chicago, Chicago, Illinois, USA.
Ahn C; Internal Medicine, Seoul National University, Seoul, South Korea.
Coolican H; Head Office, Polycystic Kidney Disease Foundation of Australia, Sydney, New South Wales, Australia.
Tze-Wah Kao J; School of Medicine, Fu Jen Catholic University Hospital, New Taipei City, Taiwan.; Department of Internal Medicine, National Taiwan University Hospital, Taipei, Taiwan.
Gansevoort RT; Faculty of Medical Sciences, University Medical Center Groningen, Groningen, The Netherlands.
Perrone R; Division of Nephrology, Tufts University School of Medicine, Boston, Massachusetts, USA.
Harris T; Head Office, PKD International, Geneva, Switzerland.; London Office, PKD International, London, UK.
Torres V; Department of Nephrology and Hypertension, Mayo Clinic, Rochester, New York, USA.
Fowler K; Kidney Health Initiative, The Voice of the Patient, Washington, DC, USA.
Pei Y; Divisions of Nephrology and Genomic Medicine, University of Toronto, Toronto, Ontario, Canada.
Kerr P; Nephrology, Monash Medical Centre Clayton, Melbourne, Victoria, Australia.
Ryan J; Nephrology, Monash Medical Centre Clayton, Melbourne, Victoria, Australia.
Johnson D; Department of Renal Medicine, Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.; Australasian Kidney Trials Network, The University of Queensland, Saint Lucia, Queensland, Australia.
Viecelli A; Australasian Kidney Trials Network, University of Queensland at Princess Alexandra Hospital, Brisbane, Queensland, Australia.; School of Medicine, University of Queensland, Brisbane, Queensland, Australia.
Geneste C; Department of Nephrology and Clinical Immunology, Centre Hospitalier Régional Universitaire de Tours, Tours, France.
Kim H; Internal Medicine, Seoul National University Hospital, Jongno-gu, South Korea.
Kim Y; Department of Internal Medicine, Keimyung University College of Medicine, Daegu, South Korea.
Howell M; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, New South Wales, Australia.; School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
Ju A; School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, Westmead Hospital, Westmead, New South Wales, Australia.
Manera KE; School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, Westmead Hospital, Westmead, New South Wales, Australia.
Teixeira-Pinto A; School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, Westmead Hospital, Westmead, New South Wales, Australia.
Parasivam G; Discipline of Genetic Medicine, The University of Sydney Medical School, Sydney, New South Wales, Australia.; Clinical Genetics, The Sydney Children's Hospitals Network Randwick and Westmead, Westmead, New South Wales, Australia.
Tong A; School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, Westmead Hospital, Westmead, New South Wales, Australia.
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Źródło :
BMJ open [BMJ Open] 2020 Oct 10; Vol. 10 (10), pp. e038005. Date of Electronic Publication: 2020 Oct 10.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Caregivers*
Polycystic Kidney, Autosomal Dominant*/diagnosis
Adolescent ; Adult ; Attitude ; Australia ; Focus Groups ; France ; Humans ; Quality of Life ; Republic of Korea
Czasopismo naukowe
Tytuł :
Toward Patient-Centered Innovation: A Conceptual Framework for Patient-Reported Outcome Measures for Transformative Kidney Replacement Devices.
Autorzy :
Flythe JE; Division of Nephrology and Hypertension, Department of Medicine, University of North Carolina Kidney Center, University of North Carolina School of Medicine, Chapel Hill, North Carolina .; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Hilliard TS; American Institutes for Research, Chapel Hill, North Carolina.
Ikeler K; American Institutes for Research, Chapel Hill, North Carolina.
Keller S; American Institutes for Research, Chapel Hill, North Carolina.
Gipson DS; Division of Nephrology, Department of Pediatrics, University of Michigan, Ann Arbor, Michigan.
Grandinetti AC; Kidney Health Initiative Patient and Family Partnership Council, Elmhurst, Illinois.
Nordyke RJ; Beta6 Consulting Group, Los Angeles, California.
Perrone RD; Division of Nephrology, Tufts Medical Center, Boston, Massachusetts.
Roy-Chaudhury P; Division of Nephrology and Hypertension, Department of Medicine, University of North Carolina Kidney Center, University of North Carolina School of Medicine, Chapel Hill, North Carolina.; W.G. (Bill) Hefner Veterans Affairs Medical Center, Salisbury, North Carolina.
Unruh M; School of Medicine, University of New Mexico, Albuquerque, New Mexico.
West M; Kidney Health Initiative and American Society of Nephrology, Washington, DC.
Bocell F; Center for Devices and Radiological Health, US Food and Drug Administration, Silver Spring, Maryland.
Hurst FP; Center for Devices and Radiological Health, US Food and Drug Administration, Silver Spring, Maryland.
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Źródło :
Clinical journal of the American Society of Nephrology : CJASN [Clin J Am Soc Nephrol] 2020 Oct 07; Vol. 15 (10), pp. 1522-1530. Date of Electronic Publication: 2020 Apr 10.
Typ publikacji :
Journal Article; Research Support, N.I.H., Extramural
Czasopismo naukowe
Tytuł :
Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease: An International Delphi Survey.
Autorzy :
Cho Y; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australasian Kidney Trials Network, University of Queensland, Brisbane, Australia; Translational Research Institute, Brisbane, Australia. Electronic address: .
Rangan G; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, The University of Sydney, Sydney, Australia; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Sydney, Australia.
Logeman C; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Ryu H; Department of Internal Medicine, Seoul National University Hospital, Seoul, South Korea.
Sautenet B; Department of Nephrology Hypertension, Dialysis, Kidney Transplantation, Tours Hospital, SPHERE - INSERM 1246, University of Tours and Nantes, Tours, France.
Perrone RD; Division of Nephrology, Tufts Medical Center, Tufts University School of Medicine, Boston, MA.
Nadeau-Fredette AC; Department of Nephrology, Hopital Maisonneuve-Rosemont, Montreal, Canada.
Mustafa RA; Department of Internal Medicine, Division of Nephrology and Hypertension, University of Kansas Medical Center, Kansas City, KS.
Htay H; Department of Renal Medicine, Singapore General Hospital, Bukit Merah, Singapore.
Chonchol M; Department of Nephrology, University of Colorado, Denver, CO.
Harris T; Polycystic Kidney Disease International, London, United Kingdom.
Gutman T; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Craig JC; College of Medicine and Public Health, Flinders University, Adelaide, Australia.
Ong ACM; Academic Nephrology Unit, Department of Infection Immunity & Cardiovascular Disease, University of Sheffield, Sheffield, United Kingdom.
Chapman A; Department of Medicine, The University of Chicago, Chicago, IL.
Ahn C; Department of Internal Medicine, Seoul National University Hospital, Seoul, South Korea.
Coolican H; Polycystic Kidney Disease Foundation of Australia, Roseville, NSW, Australia.
Kao JT; School of Medicine, Fu Jen Catholic University and Fu Jen Catholic University Hospital, Taiwan; Department of Internal Medicine, National Taiwan University Hospital, Taipei City, Taiwan.
Gansevoort RT; Faculty of Medical Sciences, University Medical Center Gronigen, Groningen, the Netherlands.
Torres V; Department of Nephrology and Hypertension, Mayo Clinic, Rochester, MN.
Pei Y; Division of Nephrology and Division of Genomic Medicine, University of Toronto, Toronto, Canada.
Johnson DW; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australasian Kidney Trials Network, University of Queensland, Brisbane, Australia; Translational Research Institute, Brisbane, Australia.
Viecelli AK; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australasian Kidney Trials Network, University of Queensland, Brisbane, Australia; Department of Nephrology, Mater Hospital, Brisbane, Australia.
Teixeira-Pinto A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Howell M; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Ju A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Manera KE; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Tong A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
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Źródło :
American journal of kidney diseases : the official journal of the National Kidney Foundation [Am J Kidney Dis] 2020 Sep; Vol. 76 (3), pp. 361-373. Date of Electronic Publication: 2020 Apr 28.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Polycystic Kidney, Autosomal Dominant/*therapy
Adolescent ; Adult ; Africa/epidemiology ; Aged ; Asia/epidemiology ; Caregivers/psychology ; Child ; Consensus ; Delphi Technique ; Female ; Health Personnel/psychology ; Humans ; Intracranial Aneurysm/etiology ; Kidney Failure, Chronic/epidemiology ; Kidney Failure, Chronic/etiology ; Male ; Middle Aged ; Pain/etiology ; Patient Reported Outcome Measures ; Patients/psychology ; Polycystic Kidney, Autosomal Dominant/complications ; Polycystic Kidney, Autosomal Dominant/epidemiology ; Polycystic Kidney, Autosomal Dominant/psychology ; Qualitative Research ; Quality of Life ; Self Concept ; Socioeconomic Factors ; Stress, Psychological ; Young Adult
Czasopismo naukowe
Tytuł :
The value of genotypic and imaging information to predict functional and structural outcomes in ADPKD.
Autorzy :
Lavu S; Division of Nephrology and Hypertension.
Vaughan LE; Department of Biomedical Statistics and Informatics, and.
Senum SR; Division of Nephrology and Hypertension.
Kline TL; Department of Radiology, Mayo Clinic, Rochester, Minnesota, USA.
Chapman AB; Division of Nephrology, University of Chicago School of Medicine, Chicago, Illinois, USA.; Department of Internal Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.
Perrone RD; Division of Nephrology, Tufts Medical Center, Tufts University School of Medicine, Boston, Massachusetts, USA.
Mrug M; Division of Nephrology, University of Alabama and Department of Veterans Affairs Medical Center, Birmingham, Alabama, USA.
Braun WE; Department of Nephrology and Hypertension, Cleveland Clinic, Cleveland, Ohio, USA.
Steinman TI; Renal Division, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA.
Rahbari-Oskoui FF; Department of Internal Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.
Brosnahan GM; Division of Renal Diseases and Hypertension, University of Colorado Denver Anschutz Medical Campus, Aurora, Colorado, USA.
Bae KT; Department of Radiology and.
Landsittel D; Center of Research on Health Care, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania, USA.
Chebib FT; Division of Nephrology and Hypertension.
Yu AS; Jared Grantham Kidney Institute, Kansas University Medical Center, Kansas, Kansas, USA.
Torres VE; Division of Nephrology and Hypertension.
Harris PC; Division of Nephrology and Hypertension.
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Corporate Authors :
HALT PKD and CRISP Study Investigators
Źródło :
JCI insight [JCI Insight] 2020 Aug 06; Vol. 5 (15). Date of Electronic Publication: 2020 Aug 06.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural
Czasopismo naukowe
Tytuł :
Tolvaptan or transplant: why wait?
Autorzy :
Gordon CE; Division of Nephrology, Tufts Medical Center, Boston, Massachusetts, USA; Tufts University School of Medicine, Boston, Massachusetts, USA.
Perrone RD; Division of Nephrology, Tufts Medical Center, Boston, Massachusetts, USA; Tufts University School of Medicine, Boston, Massachusetts, USA. Electronic address: .
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Źródło :
Kidney international [Kidney Int] 2020 Aug; Vol. 98 (2), pp. 286-289.
Typ publikacji :
Journal Article; Comment
MeSH Terms :
Polycystic Kidney, Autosomal Dominant*
Tolvaptan*
Antidiuretic Hormone Receptor Antagonists ; Benzazepines ; Humans
Czasopismo naukowe
Tytuł :
Range and Variability of Outcomes Reported in Randomized Trials Conducted in Patients With Polycystic Kidney Disease: A Systematic Review.
Autorzy :
Sautenet B; Service de Néphrologie-Hypertension, Dialyses, Transplantation Rénale, Hôpital de Tours, Tours, France; Université de Tours, Université de Nantes, INSERM, SPHERE U1246, Tours, France. Electronic address: .
Cho Y; Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australasian Kidney Trials Network, University of Queensland, Brisbane, Australia; Translational Research Institute, Brisbane, Australia.
Gutman T; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
Rangan G; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, The University of Sydney, Sydney, Australia; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Sydney, Australia.
Ong A; Academic Nephrology Unit, Department of Infection Immunity & Cardiovascular Disease, University of Sheffield, United Kingdom.
Chapman AB; Department of Medicine, The University of Chicago, Chicago, IL.
Ahn C; Division of Nephrology, Seoul National University Hospital, Seoul, South Korea.
Coolican H; Polycystic Kidney Disease Foundation of Australia, Sydney, Australia.
Tze-Wah Kao J; School of Medicine, Fu Jen Catholic University, Taiwan; Department of Internal Medicine, National Taiwan University Hospital, Taiwan.
Fowler K; Kidney Health Initiative, Patient Family Partnership Council, The Voice of the Patient, Elmhurst, Illinois.
Gansevoort RT; Faculty of Medical Sciences, University Medical Center Groningen, the Netherlands.
Geneste C; Service de Néphrologie-Hypertension, Dialyses, Transplantation Rénale, Hôpital de Tours, Tours, France.
Perrone RD; Division of Nephrology, Tufts Medical Center, Tufts University School of Medicine, Boston, MA.
Harris T; Polycystic Kidney Disease International, London, United Kingdom.
Torres VE; Department of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota.
Pei Y; Division of Nephrology, University of Toronto, Toronto, Canada; Division of Genomic Medicine, University of Toronto, Toronto, Canada.
Craig JC; College of Medicine and Public Health, Flinders University, Adelaide, Australia.
Tong A; Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.
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Corporate Authors :
SONG-PKD Initiative
Źródło :
American journal of kidney diseases : the official journal of the National Kidney Foundation [Am J Kidney Dis] 2020 Aug; Vol. 76 (2), pp. 213-223. Date of Electronic Publication: 2020 Mar 11.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't; Systematic Review
MeSH Terms :
Clinical Trials as Topic*
Outcome Assessment, Health Care*
Polycystic Kidney, Autosomal Dominant/*therapy
Blood Pressure ; Cardiovascular Diseases/epidemiology ; Humans ; Infections/epidemiology ; Kidney Function Tests ; Organ Size ; Pain/epidemiology ; Patient Reported Outcome Measures ; Polycystic Kidney, Autosomal Dominant/metabolism ; Polycystic Kidney, Autosomal Dominant/physiopathology ; Renal Insufficiency/epidemiology ; Renal Insufficiency/therapy
Czasopismo naukowe
Tytuł :
A 51-Year-Old Renal Transplant Recipient With Abdominal Pain.
Autorzy :
Higgs J; Division of Geographic Medicine and Infectious Diseases, Tufts Medical Center, Boston, Massachusetts, USA.
Strand A; Division of Geographic Medicine and Infectious Diseases, Tufts Medical Center, Boston, Massachusetts, USA.
Goyal N; Tufts Division of Nephrology, Tufts Medical Center, Boston, Massachusetts, USA.
Kohli R; Division of Geographic Medicine and Infectious Diseases, Tufts Medical Center, Boston, Massachusetts, USA.
Pejchal M; Tufts Surgical/GI Pathology Division, Tufts Medical Center, Boston, Massachusetts, USA.
Perrone R; Tufts University School of Medicine and Division of Nephrology and Clinical and Translational Research Center, Tufts Medical Center, Boston, Massachusetts, USA.
Yoo J; Division of General and GI surgery, Brigham and Women's Hospital, Boston, Massachusetts, USA.
Dad T; Associate Nephrology Fellowship Director, Tufts Medical Center, Boston, Massachusetts, USA.
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Źródło :
Clinical infectious diseases : an official publication of the Infectious Diseases Society of America [Clin Infect Dis] 2020 Jul 11; Vol. 71 (2), pp. 453-454.
Typ publikacji :
Case Reports; Journal Article
MeSH Terms :
Kidney Transplantation*/adverse effects
Abdominal Pain/etiology ; Humans ; Kidney ; Middle Aged ; Transplant Recipients
Czasopismo naukowe
Tytuł :
Expanded Imaging Classification of Autosomal Dominant Polycystic Kidney Disease.
Autorzy :
Bae KT; Department of Radiology, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania .
Shi T; Department of Biomedical Informatics, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Tao C; Department of Radiology, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Yu ASL; Division of Nephrology and Hypertension, Department of Internal Medicine, and Jared Grantham Kidney Institute, Kansas University Medical Center, Kansas City, Kansas.
Torres VE; Division of Nephrology and Hypertension, Mayo Clinic College of Medicine, Rochester, Minnesota.
Perrone RD; Division of Nephrology, Tufts University Medical Center, Boston, Massachusetts.
Chapman AB; Section of Nephrology, University of Chicago School of Medicine, Chicago, Illinois.
Brosnahan G; Division of Renal Diseases and Hypertension, University of Colorado Denver Anschutz Medical Campus, Aurora, Colorado.
Steinman TI; Renal Division, Beth Israel Deaconess Medical Center, Boston, Massachusetts.
Braun WE; Department of Nephrology and Hypertension, Cleveland Clinic, Cleveland, Ohio.
Srivastava A; Department of Biomedical Informatics, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Irazabal MV; Division of Nephrology and Hypertension, Mayo Clinic College of Medicine, Rochester, Minnesota.
Abebe KZ; Department of Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Harris PC; Division of Nephrology and Hypertension, Mayo Clinic College of Medicine, Rochester, Minnesota.
Landsittel DP; Department of Biomedical Informatics, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
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Corporate Authors :
HALT PKD Consortium
Źródło :
Journal of the American Society of Nephrology : JASN [J Am Soc Nephrol] 2020 Jul; Vol. 31 (7), pp. 1640-1651. Date of Electronic Publication: 2020 Jun 02.
Typ publikacji :
Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
MeSH Terms :
Kidney/*pathology
Polycystic Kidney, Autosomal Dominant/*classification
Polycystic Kidney, Autosomal Dominant/*diagnostic imaging
Renal Insufficiency, Chronic/*etiology
Adult ; Body Height ; Disease Progression ; Female ; Glomerular Filtration Rate ; Humans ; Magnetic Resonance Imaging ; Male ; Middle Aged ; Organ Size ; Polycystic Kidney, Autosomal Dominant/complications ; Polycystic Kidney, Autosomal Dominant/pathology ; Predictive Value of Tests ; ROC Curve ; Risk Assessment/methods ; Young Adult
Czasopismo naukowe
Tytuł :
The NOCTURNE Randomized Trial Comparing 2 Tolvaptan Formulations.
Autorzy :
Perrone RD; Division of Nephrology, Tufts Medical Center, Tufts University School of Medicine, Boston, Massachusetts, USA.
Chapman AB; Department of Internal Medicine, Emory University School of Medicine, Atlanta, Georgia, USA Section of Nephrology, University of Chicago School of Medicine, Chicago, Illinois, USA.
Oberdhan D; Health Outcomes, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
Czerwiec FS; Goldfinch Bio Inc., Cambridge, Massachusetts, USA.
Sergeyeva O; Global Clinical Development, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
Ouyang J; Biostatistics, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
Shoaf SE; Clinical Pharmacology, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
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Źródło :
Kidney international reports [Kidney Int Rep] 2020 Apr 27; Vol. 5 (6), pp. 801-812. Date of Electronic Publication: 2020 Apr 27 (Print Publication: 2020).
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
A Randomized Trial of Modified-Release Versus Immediate-Release Tolvaptan in ADPKD.
Autorzy :
Perrone RD; Division of Nephrology, Tufts Medical Center, Tufts University School of Medicine, Boston, Massachusetts, USA.
Chapman AB; Department of Internal Medicine, Emory University School of Medicine, Atlanta, Georgia, USA; Section of Nephrology, University of Chicago School of Medicine, Chicago, Illinois, USA.
Oberdhan D; Health Outcomes, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
Czerwiec FS; Clinical Development, Goldfinch Bio Inc., Cambridge, Massachusetts, USA.
Sergeyeva O; Global Clinical Development, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
Ouyang J; Biostatistics, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
Shoaf SE; Quantitative Pharmacology, Otsuka Pharmaceutical Development & Commercialization, Rockville, Maryland, USA.
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Źródło :
Kidney international reports [Kidney Int Rep] 2020 Mar 17; Vol. 5 (6), pp. 790-800. Date of Electronic Publication: 2020 Mar 17 (Print Publication: 2020).
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
Implications of early diagnosis of autosomal dominant polycystic kidney disease: A post hoc analysis of the TEMPO 3:4 trial.
Autorzy :
Janssens P; PKD Research Group, Laboratory of Pediatrics, University Hospitals Leuven, Leuven, Belgium.; Department of Nephrology, University Hospitals Brussels, Brussels, Belgium.
Jouret F; Division of Nephrology, University of Liège Hospital (ULiège CHU), Liège, Belgium.; Groupe Interdisciplinaire de Génoprotéomique Appliquée (GIGA), Cardiovascular Sciences, ULiège, Liège, Belgium.
Bammens B; Department of Microbiology & Immunology, KU Leuven, Leuven, Belgium.; Department of Nephrology, Dialysis and Renal Transplantation, University Hospitals Leuven, Leuven, Belgium.
Liebau MC; Department of Pediatrics and Center for Molecular Medicine, University of Cologne, Faculty of Medicine and University Hospital of Cologne, Cologne, Germany.; Department II of Internal Medicine and Center for Molecular Medicine Cologne, University of Cologne, Faculty of Medicine and University Hospital of Cologne, Cologne, Germany.; Cologne Excellence Cluster on Cellular Stress Responses in Ageing-Associated Diseases (CECAD) and Systems Biology of Ageing Cologne (Sybacol), University of Cologne, Faculty of Medicine and University Hospital of Cologne, Cologne, Germany.
Schaefer F; Division of Pediatric Nephrology, University Children's Hospital Heidelberg, Heidelberg, Germany.
Dandurand A; Otsuka Pharmaceutical Development & Commercialization Inc., Princeton, USA.
Perrone RD; Division of Nephrology, Tufts Medical Center and Tufts University School of Medicine, Boston, USA.
Müller RU; Department II of Internal Medicine and Center for Molecular Medicine Cologne, University of Cologne, Faculty of Medicine and University Hospital of Cologne, Cologne, Germany.; Cologne Excellence Cluster on Cellular Stress Responses in Ageing-Associated Diseases (CECAD) and Systems Biology of Ageing Cologne (Sybacol), University of Cologne, Faculty of Medicine and University Hospital of Cologne, Cologne, Germany.
Pao CS; Otsuka Pharmaceutical Development & Commercialization Inc., Princeton, USA.
Mekahli D; PKD Research Group, Laboratory of Pediatrics, University Hospitals Leuven, Leuven, Belgium. .; Department of Pediatric Nephrology, University Hospitals Leuven, Leuven, Belgium. .
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Źródło :
Scientific reports [Sci Rep] 2020 Mar 09; Vol. 10 (1), pp. 4294. Date of Electronic Publication: 2020 Mar 09.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Early Diagnosis*
Glomerular Filtration Rate*
Quality of Life*
Polycystic Kidney, Autosomal Dominant/*diagnosis
Adult ; Case-Control Studies ; Disease Management ; Disease Progression ; Female ; Follow-Up Studies ; Humans ; Male ; Polycystic Kidney, Autosomal Dominant/therapy ; Prognosis ; Prospective Studies
Czasopismo naukowe
Tytuł :
Detection and characterization of mosaicism in autosomal dominant polycystic kidney disease.
Autorzy :
Hopp K; Division of Renal Diseases and Hypertension, University of Colorado Denver Anschutz Medical Campus, Aurora, Colorado, USA; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Cornec-Le Gall E; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA; Department of Nephrology, Centre Hospitalier Universitaire de Brest, Université de Brest, Brest, France; National Institute of Health and Medical Sciences, INSERM U1078, Brest, France.
Senum SR; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Te Paske IBAW; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Raj S; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Lavu S; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Baheti S; Division of Biomedical Statistics and Informatics, Mayo Clinic, Rochester, Minnesota, USA.
Edwards ME; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Madsen CD; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Heyer CM; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Ong ACM; Kidney Genetics Group, Academic Nephrology Unit, University of Sheffield, Sheffield, UK.
Bae KT; Department of Radiology, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania, USA.
Fatica R; Department of Nephrology and Hypertension, Cleveland Clinic, Cleveland, Ohio, USA.
Steinman TI; Renal Division, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA.
Chapman AB; Division of Nephrology, University of Chicago School of Medicine, Chicago, Illinois, USA; Department of Internal Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.
Gitomer B; Division of Renal Diseases and Hypertension, University of Colorado Denver Anschutz Medical Campus, Aurora, Colorado, USA.
Perrone RD; Division of Nephrology, Tufts University Medical Center, Boston, Massachusetts, USA.
Rahbari-Oskoui FF; Department of Internal Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.
Torres VE; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA.
Harris PC; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnesota, USA; Department of Biochemistry and Molecular Biology, Mayo Clinic, Rochester, Minnesota, USA. Electronic address: .
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Corporate Authors :
HALT Progression of Polycystic Kidney Disease Group, the ADPKD Modifier Study
Źródło :
Kidney international [Kidney Int] 2020 Feb; Vol. 97 (2), pp. 370-382. Date of Electronic Publication: 2019 Oct 09.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural
Czasopismo naukowe
Tytuł :
Identifying patient-important outcomes in polycystic kidney disease: An international nominal group technique study.
Autorzy :
Cho Y; Department of Nephrology, Princess Alexandra Hospital.; Australasian Kidney Trials Network, University of Queensland.; Translational Research Institute, Brisbane, Queensland, Australia.
Sautenet B; Department of Nephrology Hypertension, Dialysis, Kidney Transplantation, Tours Hospital, SPHERE - INSERM 1246, University of Tours and Nantes, Tours, France.
Gutman T; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead.
Rangan G; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, The University of Sydney.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Sydney, New South Wales, Australia.
Craig JC; College of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
Ong AC; Academic Nephrology Unit, Department of Infection Immunity & Cardiovascular Disease, University of Sheffield, Sheffield, UK.
Chapman A; Department of Medicine, The University of Chicago, Chicago, Illinois, USA.
Ahn C; Division of Nephrology, Seoul National University Hospital, Seoul, South Korea.
Coolican H; Polycystic Kidney Disease Foundation of Australia, Sydney, Australia.
Kao JT; School of Medicine, Fu Jen Catholic University and Fu Jen Catholic University Hospital.; Department of Internal Medicine, National Taiwan University Hospital, Taipei, Taiwan.
Gansevoort R; Faculty of Medical Sciences, University Medical Center Gronigen, Gronigen, the Netherlands.
Perrone RD; Division of Nephrology, Tufts Medical Center, Tufts University School of Medicine, Boston, Massachusetts, US.
Harris T; Polycystic Kidney Disease International, London, UK.
Torres V; Department of Nephrology and Hypertension, Mayo Clinic, Rochester, Minnestota, USA.
Pei Y; Division of Nephrology and Division of Genomic Medicine, University of Toronto, Toronto, Canada.
Kerr PG; Department of Nephrology, Monash Medical Centre and Monash University, Melbourne, Victoria, Australia.
Ryan J; Department of Nephrology, Monash Medical Centre and Monash University, Melbourne, Victoria, Australia.
Johnson DW; Department of Nephrology, Princess Alexandra Hospital.; Australasian Kidney Trials Network, University of Queensland.; Translational Research Institute, Brisbane, Queensland, Australia.
Viecelli AK; Department of Nephrology, Princess Alexandra Hospital.
Geneste C; Department of Nephrology Hypertension, Dialysis, Kidney Transplantation, Tours Hospital, SPHERE - INSERM 1246, University of Tours and Nantes, Tours, France.
Kim H; Division of Nephrology, Seoul National University Hospital, Seoul, South Korea.
Kim Y; Division of Nephrology, Seoul National University Hospital, Seoul, South Korea.
Oh YK; Division of Nephrology, Seoul National University Hospital, Seoul, South Korea.
Teixeira-Pinto A; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead.
Logeman C; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead.
Howell M; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead.
Ju A; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead.
Manera KE; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead.
Tong A; Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.; Centre for Kidney Research, The Children's Hospital at Westmead.
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Źródło :
Nephrology (Carlton, Vic.) [Nephrology (Carlton)] 2019 Dec; Vol. 24 (12), pp. 1214-1224. Date of Electronic Publication: 2019 May 02.
Typ publikacji :
Journal Article
MeSH Terms :
Cost of Illness*
Kidney Failure, Chronic*/etiology
Kidney Failure, Chronic*/mortality
Life Style*
Patient Outcome Assessment*
Polycystic Kidney, Autosomal Dominant*/diagnosis
Polycystic Kidney, Autosomal Dominant*/epidemiology
Polycystic Kidney, Autosomal Dominant*/physiopathology
Polycystic Kidney, Autosomal Dominant*/psychology
Quality of Life*
Attitude to Health ; Australia ; Caregivers/psychology ; Disease Progression ; Evaluation Studies as Topic ; Female ; France ; Humans ; Kidney Function Tests/psychology ; Male ; Middle Aged ; Progression-Free Survival ; Republic of Korea
Czasopismo naukowe
Tytuł :
International consensus statement on the diagnosis and management of autosomal dominant polycystic kidney disease in children and young people.
Autorzy :
Gimpel C; Division of Pediatric Nephrology, Department of General Pediatrics, Adolescent Medicine and Neonatology, Center for Pediatrics, Medical Center-University of Freiburg, Faculty of Medicine, Freiburg, Germany. .
Bergmann C; Department of Medicine IV, Medical Center-University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.; Center for Human Genetics, Bioscientia, Ingelheim, Germany.
Bockenhauer D; University College London, Great Ormond Street Hospital, Institute of Child Health, London, UK.
Breysem L; Department of Pediatric Radiology, University Hospital of Leuven, Leuven, Belgium.
Cadnapaphornchai MA; Rocky Mountain Pediatric Kidney Center, Rocky Mountain Hospital for Children at Presbyterian St Luke's Medical Center, Denver, CO, USA.
Cetiner M; Department of Pediatrics II, University Hospital Essen, Essen, Germany.
Dudley J; Renal Department, Bristol Royal Hospital for Children, Bristol, UK.
Emma F; Division of Nephrology and Dialysis, Ospedale Pediatrico Bambino Gesù-IRCCS, Rome, Italy.
Konrad M; Department of General Pediatrics, University Children's Hospital, Münster, Germany.
Harris T; PKD International, Geneva, Switzerland.; PKD Charity, London, UK.
Harris PC; Division of Nephrology and Hypertension, Mayo Clinic, Rochester, MN, USA.
König J; Department of General Pediatrics, University Children's Hospital, Münster, Germany.
Liebau MC; Department of Pediatrics and Center for Molecular Medicine Cologne, University of Cologne, Faculty of Medicine and University Hospital Cologne, Cologne, Germany.
Marlais M; University College London, Great Ormond Street Hospital, Institute of Child Health, London, UK.
Mekahli D; Department of Pediatric Nephrology, University Hospital of Leuven, Leuven, Belgium.; PKD Research Group, Laboratory of Pediatrics, Department of Development and Regeneration, GPURE, KU Leuven, Leuven, Belgium.
Metcalfe AM; Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield, UK.
Oh J; Department of Pediatrics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Perrone RD; Division of Nephrology, Department of Medicine, Tufts Medical Center, Boston, MA, USA.
Sinha MD; Kings College London, Department of Paediatric Nephrology, Evelina London Children's Hospital, London, UK.
Titieni A; Department of General Pediatrics, University Children's Hospital, Münster, Germany.
Torra R; Department of Nephrology, University of Barcelona, Barcelona, Spain.
Weber S; Department of Pediatrics, University of Marburg, Marburg, Germany.
Winyard PJD; University College London, Great Ormond Street Hospital, Institute of Child Health, London, UK.
Schaefer F; Division of Pediatric Nephrology, Center for Pediatrics and Adolescent Medicine, University Hospital, Heidelberg, Germany.
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Źródło :
Nature reviews. Nephrology [Nat Rev Nephrol] 2019 Nov; Vol. 15 (11), pp. 713-726.
Typ publikacji :
Consensus Development Conference; Journal Article; Practice Guideline; Research Support, Non-U.S. Gov't
MeSH Terms :
Polycystic Kidney, Autosomal Dominant/*diagnosis
Polycystic Kidney, Autosomal Dominant/*therapy
Adolescent ; Child ; Combined Modality Therapy ; Directive Counseling ; Humans ; Mass Screening ; Polycystic Kidney, Autosomal Dominant/complications ; Polycystic Kidney, Autosomal Dominant/psychology ; Referral and Consultation ; Risk Assessment
Czasopismo naukowe

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