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Tytuł:
Investigating gender-based differential item functioning on the Kansas City Cardiomyopathy Questionnaire (KCCQ) using qualitative content analysis.
Autorzy:
Coles TM; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA. .; Duke University School of Medicine, 215 Morris Street, Durham, NC, 27701, USA. .
Lucas N; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA.
McFatrich M; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA.
Henke D; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA.
Ridgeway JL; Mayo Clinic, Rochester, NY, USA.
Behnken EM; Mayo Clinic, Rochester, NY, USA.
Weinfurt K; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA.
Reeve BB; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA.
Corneli A; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA.
Dunlay SM; Mayo Clinic, Rochester, NY, USA.
Spertus JA; Saint Luke's Mid America Heart Institute, University of Missouri Kansas City, Kansas City, MO, USA.
Lin L; Department of Population Health Sciences, Center for Health Measurement, Duke University, Durham, NC, USA.
Piña IL; Wayne State University, Detroit, Michigan, USA.; Central Michigan University, Mount Pleasant, Michigan, USA.; Center for Devices and Radiological Health, U.S. Food and Drug Administration, Silver Spring, Maryland, USA.
Bocell FD; Center for Devices and Radiological Health, U.S. Food and Drug Administration, Silver Spring, Maryland, USA.
Tarver ME; Center for Devices and Radiological Health, U.S. Food and Drug Administration, Silver Spring, Maryland, USA.
Dohse H; Tour de Heart, Hailey, ID, USA.
Saha A; Center for Devices and Radiological Health, U.S. Food and Drug Administration, Silver Spring, Maryland, USA.
Caldwell B; Center for Devices and Radiological Health, U.S. Food and Drug Administration, Silver Spring, Maryland, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2023 Mar; Vol. 32 (3), pp. 841-852. Date of Electronic Publication: 2022 Nov 02.
Typ publikacji:
Journal Article
MeSH Terms:
Heart Failure*/therapy
Cardiomyopathies*
Male ; Adult ; Humans ; Female ; Aged ; Quality of Life/psychology ; Health Status ; Stroke Volume ; Kansas ; Ventricular Function, Left ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Racial differences in user experiences and perceived value of electronic symptom monitoring in a cohort of black and white bladder and prostate cancer patients.
Autorzy:
Samuel CA; Department of Health Policy and Management, Gillings School of Glob1al Public Health and Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, 1105F McGavran-Greenberg Hall, CB#7411, Chapel Hill, NC, 27599-7411, USA. cleo_.
Smith AB; Department of Urology At University of North Carolina School of Medicine and Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, 2115 Physicians Office Building, Chapel Hill, NC, 27599, USA.
Elkins W; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, 1105F McGavran-Greenberg Hall, Chapel Hill, NC, 27599, USA.
Richmond J; Department of Health Behavior, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, 302 Rosenau Hall, Chapel Hill, NC, 27599, USA.
Mahbooba Z; Department of Radiation Oncology, University of North Carolina School of Medicine, University of North Carolina at Chapel Hill, 101 Manning Drive, Chapel Hill, NC, 27599-7235, USA.
Basch E; Lineberger Comprehensive Cancer Center, University of North Carolina At Chapel Hill, 170 Manning Drive, Campus Box 7305, Chapel Hill, NC, 27599-7305, USA.
Bennett AV; Department of Health Policy and Management, Gillings School of Global Public Health, and Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, 1106A McGavran-Greenberg Hall, CB 7411, Chapel Hill, NC, 27599, USA.
Chung AE; University of North Carolina School of Medicine and Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, 5034 Old Clinic Building, CB 7110, Chapel Hill, NC, 27599, USA.
Jonsson M; Patient Reported Outcomes Core Facility, Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Chen RC; Department of Radiation Oncology, Lineberger Comprehensive Cancer Center and Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, 101 Manning Drive, Chapel Hill, NC, 27599, USA.
Reeve BB; Department of Population Health Sciences, Department of Pediatrics, and Duke Cancer Institute, Duke University School of Medicine, Duke University, 215 Morris Street, Room 230, Durham, NC, 27701, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2021 Nov; Vol. 30 (11), pp. 3213-3227. Date of Electronic Publication: 2020 Feb 28.
Typ publikacji:
Journal Article
MeSH Terms:
Prostatic Neoplasms*
Urinary Bladder*
Electronics ; Humans ; Male ; Patient Reported Outcome Measures ; Quality of Life/psychology ; Race Factors
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
International guidance on the selection of patient-reported outcome measures in clinical trials: a review.
Autorzy:
Crossnohere NL; Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. .
Brundage M; Queen's Cancer Research Institute, Queen's University, Kingston, Canada.
Calvert MJ; Centre for Patient Reported Outcomes Research (CPROR), Institute of Applied Health Research, and NIHR, Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.
King M; The University of Sydney, Sydney, Australia.
Reeve BB; Duke University School of Medicine, Durham, NC, USA.
Thorner E; Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD, USA.
Wu AW; Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.; Johns Hopkins School of Medicine, Baltimore, MD, USA.
Snyder C; Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.; Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD, USA.; Johns Hopkins School of Medicine, Baltimore, MD, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2021 Jan; Vol. 30 (1), pp. 21-40. Date of Electronic Publication: 2020 Sep 14.
Typ publikacji:
Journal Article; Review
MeSH Terms:
Patient Reported Outcome Measures*
Quality of Life/*psychology
Clinical Trials as Topic ; Humans
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Identifying clinically meaningful severity categories for PROMIS pediatric measures of anxiety, mobility, fatigue, and depressive symptoms in juvenile idiopathic arthritis and childhood-onset systemic lupus erythematosus.
Autorzy:
Mann CM; Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA. .
Schanberg LE; Department of Pediatrics and Duke Clinical Research Institute, Duke Health, Durham, NC, USA.
Wang M; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
von Scheven E; Division of Pediatric Rheumatology, Department of Pediatrics, University of California, San Francisco, San Francisco, CA, USA.
Lucas N; Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.
Hernandez A; Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.
Ringold S; Division of Pediatric Rheumatology, Department of Pediatrics, Seattle Children's Hospital, Seattle, WA, USA.
Reeve BB; Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.; Department of Pediatrics and Duke Clinical Research Institute, Duke Health, Durham, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2020 Sep; Vol. 29 (9), pp. 2573-2584. Date of Electronic Publication: 2020 May 14.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Reported Outcome Measures*
Anxiety/*psychology
Arthritis, Juvenile/*psychology
Arthritis, Juvenile/*rehabilitation
Depression/*psychology
Lupus Erythematosus, Systemic/*psychology
Lupus Erythematosus, Systemic/*rehabilitation
Quality of Life/*psychology
Adolescent ; Child ; Female ; Humans ; Male
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
The association of age, literacy, and race on completing patient-reported outcome measures in pediatric oncology.
Autorzy:
Withycombe JS; Nell Hodgson Woodruff School of Nursing, Emory University, 1520 Clifton Road, NE, Atlanta, GA, USA. .
McFatrich M; Center for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.
Pinheiro L; Division of General Internal Medicine, Weill Cornell Medicine, New York, NY, USA.
Hinds PS; Children's National Health System, 111 Michigan Ave., N.W., Office M7655, Washington, D.C., 20010, USA.
Keller FG; Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, 2015 Uppergate Drive, ECC 436, Atlanta, GA, 30322, USA.
Baker JN; Saint Jude Children's Research Hospital, 262 Danny Thomas Place MS 260, Memphis, TN, 38105-3678, USA.
Mack JW; Dana-Farber, Harvard Cancer Center, 44 Binney Street, Boston, MA, 02115, USA.
Sung L; Hospital for Sick Children, 555 University Avenue, Toronto, ON, M5G 1X8, Canada.
Waldron MK; Children's National Health System, 111 Michigan Ave., N.W., Office M7655, Washington, D.C., 20010, USA.
Reeve BB; Center for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2019 Jul; Vol. 28 (7), pp. 1793-1801. Date of Electronic Publication: 2019 Jan 17.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Reported Outcome Measures*
Literacy/*statistics & numerical data
Neoplasms/*psychology
Quality of Life/*psychology
Surveys and Questionnaires/*statistics & numerical data
Adolescent ; Adult ; Child ; Comprehension ; Female ; Humans ; Male ; Reading ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures.
Autorzy:
Tulsky DS; Center for Health Assessment Research and Translation, University of Delaware, STAR Health Sciences Complex, 540 South College Ave, Newark, DE, 10713, USA. .; Departments of Physical Therapy and Psychological and Brain Sciences, University of Delaware, Newark, DE, USA. .
Kisala PA; Center for Health Assessment Research and Translation, University of Delaware, STAR Health Sciences Complex, 540 South College Ave, Newark, DE, 10713, USA.
Boulton AJ; Center for Health Assessment Research and Translation, University of Delaware, STAR Health Sciences Complex, 540 South College Ave, Newark, DE, 10713, USA.
Jette AM; MGH Institute of Health Professions, Boston, MA, USA.
Thissen D; University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Ni P; Boston University School of Public Health, Boston, MA, USA.
DeWalt DA; University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Huang IC; Department of Health Outcomes and Policy, College of Medicine, University of Florida, Gainesville, FL, USA.; Department of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN, USA.
Liu Y; University of Maryland, College Park, MD, USA.
Mulcahey MJ; Department of Occupational Therapy, School of Health Professions, Thomas Jefferson University, Philadelphia, PA, USA.
Slavin M; Boston University School of Public Health, Boston, MA, USA.
Magnus B; Marquette University, Milwaukee, WI, USA.
Crump H; University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Hanks R; Rehabilitation Institute of Michigan, Detroit, USA.
Charlifue S; Craig Hospital, Englewood, CO, USA.
Reeve BB; Duke University, Durham, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2019 May; Vol. 28 (5), pp. 1217-1229. Date of Electronic Publication: 2018 Dec 11.
Typ publikacji:
Journal Article
MeSH Terms:
Disabled Persons/*psychology
Psychometrics/*methods
Quality of Life/*psychology
Adolescent ; Adult ; Cross-Sectional Studies ; Female ; Humans ; Male ; Patient Reported Outcome Measures ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review.
Autorzy:
Pinheiro LC; Division of General Internal Medicine, Department of Medicine, Weill Cornell Medicine, New York, NY, 10064, USA. .
McFatrich M; Center for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.
Lucas N; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Walker JS; Health Sciences Library, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Withycombe JS; Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
Hinds PS; Department of Nursing Research and Quality Outcomes, Children's National Health System, Department of Pediatrics, George Washington University, Washington, DC, USA.
Sung L; Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada.; Division of Haematology/Oncology, The Hospital for Sick Children, Toronto, Canada.
Tomlinson D; Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada.
Freyer DR; Children's Center for Cancer and Blood Diseases, Children's Hospital Los Angeles, Los Angeles, CA, USA.
Mack JW; Dana-Farber Cancer Institute, Boston, MA, USA.
Baker JN; Division of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN, USA.
Reeve BB; Center for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2018 Feb; Vol. 27 (2), pp. 291-319. Date of Electronic Publication: 2017 Sep 06.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural; Review; Systematic Review
MeSH Terms:
Self Report*
Medical Oncology/*standards
Quality of Life/*psychology
Adolescent ; Adult ; Biomedical Research ; Child ; Cross-Sectional Studies ; Humans ; Psychometrics ; Reproducibility of Results ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Assessing responsiveness over time of the PROMIS pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease.
Autorzy:
Reeve BB; Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, NC, USA. .; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina, 1101-D McGavran-Greenberg Hall, CB#7411, 135 Dauer Dr, Chapel Hill, NC, 27599-7411, USA. .
Edwards LJ; Department of Biostatistics, University of North Carolina, Chapel Hill, NC, USA.
Jaeger BC; Department of Biostatistics, University of North Carolina, Chapel Hill, NC, USA.
Hinds PS; Department of Nursing Research and Quality Outcomes, Children's National Health System, Washington, DC, USA.; Department of Pediatrics, George Washington University, Washington, DC, USA.
Dampier C; Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, USA.; AFLAC Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, GA, USA.
Gipson DS; C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA.
Selewski DT; C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA.
Troost JP; C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA.
Thissen D; Department of Psychology and Neuroscience, University of North Carolina, Chapel Hill, NC, USA.
Barry V; Department of Pediatrics, Emory University School of Medicine, Atlanta, GA, USA.; AFLAC Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Atlanta, GA, USA.
Gross HE; Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, NC, USA.
DeWalt DA; Division of General Medicine and Clinical Epidemiology, UNC School of Medicine, Chapel Hill, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2018 Jan; Vol. 27 (1), pp. 249-257. Date of Electronic Publication: 2017 Sep 07.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Anemia, Sickle Cell/*diagnosis
Neoplasms/*diagnosis
Nephrotic Syndrome/*diagnosis
Quality of Life/*psychology
Adolescent ; Anemia, Sickle Cell/pathology ; Child ; Cross-Sectional Studies ; Female ; Humans ; Male ; Neoplasms/pathology ; Nephrotic Syndrome/pathology ; Self Report ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknie Pełny tekstSzczegóły
Tytuł:
Evaluating measurement invariance across assessment modes of phone interview and computer self-administered survey for the PROMIS measures in a population-based cohort of localized prostate cancer survivors.
Autorzy:
Wang M; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
Chen RC; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Radiation Oncology, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Usinger DS; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Reeve BB; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2017 Nov; Vol. 26 (11), pp. 2973-2985. Date of Electronic Publication: 2017 Jul 05.
Typ publikacji:
Journal Article
MeSH Terms:
Computers/*statistics & numerical data
Interviews as Topic/*methods
Prostatic Neoplasms/*diagnosis
Psychometrics/*methods
Quality of Life/*psychology
Aged ; Cancer Survivors ; Cohort Studies ; Humans ; Male ; Middle Aged ; Prostatic Neoplasms/mortality ; Surveys and Questionnaires ; Survivors
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Examining health-related quality of life patterns in women with breast cancer.
Autorzy:
Pinheiro LC; Department of Health Policy and Management, University of North Carolina, Chapel Hill, USA. .
Tan X; Department of Biostatistics, Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, USA.
Olshan AF; Department of Epidemiology, Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, USA.
Wheeler SB; Department of Health Policy and Management, Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, USA.
Reeder-Hayes KE; University of North Carolina Breast Cancer, Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, USA.
Samuel CA; Department of Health Policy and Management, Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, USA.
Reeve BB; Department of Health Policy and Management, Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2017 Jul; Vol. 26 (7), pp. 1733-1743. Date of Electronic Publication: 2017 Feb 28.
Typ publikacji:
Journal Article
MeSH Terms:
Breast Neoplasms/*psychology
Quality of Life/*psychology
Adult ; Aged ; Female ; Humans ; Middle Aged
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
The prognostic value of pre-diagnosis health-related quality of life on survival: a prospective cohort study of older Americans with lung cancer.
Autorzy:
Pinheiro LC; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
Zagar TM; Departments of Neurosurgery and Radiation Oncology, University of North Carolina at Chapel Hill, Chapel Hill, USA.
Reeve BB; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Health Policy and Management, Gillings School of Global Public Health,Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2017 Jul; Vol. 26 (7), pp. 1703-1712. Date of Electronic Publication: 2017 Feb 14.
Typ publikacji:
Journal Article
MeSH Terms:
Activities of Daily Living/*psychology
Lung Neoplasms/*psychology
Quality of Life/*psychology
Aged ; Aged, 80 and over ; Aging ; Cohort Studies ; Female ; Humans ; Lung Neoplasms/mortality ; Male ; Prognosis ; Prospective Studies ; Survival Analysis ; United States
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
The challenge of measuring intra-individual change in fatigue during cancer treatment.
Autorzy:
Moinpour CM; Public Health Sciences Division, Fred Hutchinson Cancer Research Center [Emerita], Seattle, WA, USA. .
Donaldson GW; Pain Research Center, Department of Anesthesiology, University of Utah, Salt Lake City, UT, USA.
Davis KM; Health Services Research, Georgetown University Medical Center, and Georgetown University Lombardi Comprehensive Cancer Center, Washington, DC, USA.
Potosky AL; Health Services Research, Georgetown University Medical Center, and Georgetown University Lombardi Comprehensive Cancer Center, Washington, DC, USA.
Jensen RE; Health Services Research, Georgetown University Medical Center, and Georgetown University Lombardi Comprehensive Cancer Center, Washington, DC, USA.
Gralow JR; Seattle Cancer Care Alliance, Fred Hutchinson Cancer Research Center, Seattle, WA, USA.
Back AL; Seattle Cancer Care Alliance, Fred Hutchinson Cancer Research Center, Seattle, WA, USA.
Hwang JJ; Hematology/Oncology, Levine Cancer Institute, Carolinas HealthCare System, Charlotte, NC, USA.
Yoon J; Cancer Prevention Program, Public Health Sciences Division, Fred Hutchinson Cancer Research Center, Seattle, WA, USA.
Bernard DL; Seattle Cancer Care Alliance, Fred Hutchinson Cancer Research Center, Seattle, WA, USA.
Loeffler DR; The Cystic Fibrosis Foundation, Bethesda, MD, USA.
Rothrock NE; Department of Medical Social Sciences and Center for Patient-Centered Outcomes, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Hays RD; Departments of Medicine and Health Services Research, University of California Los Angeles, Los Angeles, CA, USA.
Reeve BB; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Smith AW; Outcomes Research Branch, National Cancer Institute, Bethesda, MD, USA.
Hahn EA; Department of Medical Social Sciences and Center for Patient-Centered Outcomes, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Cella D; Department of Medical Social Sciences and Center for Patient-Centered Outcomes, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2017 Feb; Vol. 26 (2), pp. 259-271. Date of Electronic Publication: 2016 Jul 28.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Reported Outcome Measures*
Fatigue/*psychology
Neoplasms/*complications
Quality of Life/*psychology
Female ; Humans ; Middle Aged ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Reliability and validity of PROMIS measures administered by telephone interview in a longitudinal localized prostate cancer study.
Autorzy:
Quach CW; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
Langer MM; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; American Institutes of Research, Chapel Hill, NC, USA.
Chen RC; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Radiation Oncology, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Thissen D; Department of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Usinger DS; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Emerson MA; Department of Epidemiology, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Reeve BB; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Nov; Vol. 25 (11), pp. 2811-2823. Date of Electronic Publication: 2016 May 30.
Typ publikacji:
Journal Article
MeSH Terms:
Prostatic Neoplasms/*psychology
Psychometrics/*methods
Aged ; Humans ; Longitudinal Studies ; Male ; Reproducibility of Results ; Telephone
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) in adolescents and young adults with special healthcare needs.
Autorzy:
Howell CR; Department of Epidemiology and Cancer Control, MS 735, St. Jude Children's Research Hospital, 262 Danny Thomas Place, Memphis, TN, 38105, USA.
Gross HE; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Reeve BB; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
DeWalt DA; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Medicine, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Huang IC; Department of Epidemiology and Cancer Control, MS 735, St. Jude Children's Research Hospital, 262 Danny Thomas Place, Memphis, TN, 38105, USA. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Jul; Vol. 25 (7), pp. 1815-23. Date of Electronic Publication: 2016 Feb 12.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural; Validation Study
MeSH Terms:
Health Status*
Patient Reported Outcome Measures*
Surveys and Questionnaires*
Health Services Needs and Demand/*statistics & numerical data
Quality of Life/*psychology
Adolescent ; Adult ; Female ; Humans ; Male ; Middle Aged ; Pediatrics ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Mode effects between computer self-administration and telephone interviewer-administration of the PROMIS(®) pediatric measures, self- and proxy report.
Autorzy:
Magnus BE; Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
Liu Y; School of Social Sciences, Humanities, and Arts, University of California, Merced, Merced, CA, USA.
He J; Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Quinn H; Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Thissen D; Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Gross HE; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
DeWalt DA; Division of General Medicine and Clinical Epidemiology, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Reeve BB; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Jul; Vol. 25 (7), pp. 1655-65. Date of Electronic Publication: 2016 Jan 02.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
MeSH Terms:
Patient Reported Outcome Measures*
Proxy*
Depressive Disorder/*psychology
Parents/*psychology
Adolescent ; Adult ; Child ; Computers ; Depressive Disorder/nursing ; Female ; Humans ; Interviews as Topic ; Male ; Pediatric Nursing ; Psychometrics ; Telephone
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
An item-level response shift study on the change of health state with the rating of asthma-specific quality of life: a report from the PROMIS(®) Pediatric Asthma Study.
Autorzy:
Gandhi PK; Department of Pharmacy Practice, School of Pharmacy, South College, Knoxville, TN, USA.
Schwartz CE; DeltaQuest Foundation, Concord, MA, USA.; Departments of Medicine and Orthopaedic Surgery, Tufts University School of Medicine, Boston, MA, USA.
Reeve BB; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
DeWalt DA; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.; Department of Medicine, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Gross HE; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Huang IC; Department of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, 262 Denny Thomas Place, Memphis, TN, 38105, USA. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Jun; Vol. 25 (6), pp. 1349-59. Date of Electronic Publication: 2016 Apr 09.
Typ publikacji:
Journal Article
MeSH Terms:
Health Status*
Pediatrics*
Sickness Impact Profile*
Asthma/*psychology
Quality of Life/*psychology
Adolescent ; Bias ; Child ; Female ; Humans ; Male ; Surveys and Questionnaires
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Linkage between the PROMIS® pediatric and adult emotional distress measures.
Autorzy:
Reeve BB; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, 1101-D McGavran-Greenberg Hall, 135 Dauer Drive, CB 7411, Chapel Hill, NC, 27599-7411, USA. .; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
Thissen D; Department of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
DeWalt DA; Division of General Medicine and Clinical Epidemiology, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Huang IC; Department of Health Outcomes and Policy, College of Medicine, University of Florida, Gainesville, FL, USA.; Department of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN, USA.
Liu Y; School of Social Sciences, Humanities, and Arts University of California, Merced, USA.
Magnus B; Department of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Quinn H; Department of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Gross HE; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Kisala PA; Center for Assessment Research and Translation, Department of Physical Therapy, College of Health Sciences, University of Delaware, Newark, DE, USA.
Ni P; Health and Disability Research Institute, Boston University School of Public Health, Boston, MA, USA.
Haley S; Health and Disability Research Institute, Boston University School of Public Health, Boston, MA, USA.
Mulcahey MJ; Department of Occupational Therapy, School of Health Professions, Thomas Jefferson University, Philadelphia, PA, USA.
Charlifue S; Craig Hospital, Englewood, CO, USA.
Hanks RA; Wayne State University School of Medicine, Detroit, MI, USA.
Slavin M; Health and Disability Research Institute, Boston University School of Public Health, Boston, MA, USA.
Jette A; Health and Disability Research Institute, Boston University School of Public Health, Boston, MA, USA.
Tulsky DS; Center for Assessment Research and Translation, Department of Physical Therapy, College of Health Sciences, University of Delaware, Newark, DE, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Apr; Vol. 25 (4), pp. 823-33. Date of Electronic Publication: 2015 Sep 30.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
MeSH Terms:
Self Report*
Quality of Life/*psychology
Stress, Psychological/*epidemiology
Adolescent ; Adult ; Child ; Female ; Forecasting ; Humans ; Male ; Models, Theoretical ; United States/epidemiology ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Evaluation of pedometry as a patient-centered outcome in patients undergoing hematopoietic cell transplant (HCT): a comparison of pedometry and patient reports of symptoms, health, and quality of life.
Autorzy:
Bennett AV; Department of Health Policy and Management, University of North Carolina at Chapel Hill, Campus Box 7411, Chapel Hill, NC, 27599, USA. .; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA. .
Reeve BB; Department of Health Policy and Management, University of North Carolina at Chapel Hill, Campus Box 7411, Chapel Hill, NC, 27599, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA.
Basch EM; Department of Medicine, University of North Carolina at Chapel Hill, Campus Box 7305, Chapel Hill, NC, 27599, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA.
Mitchell SA; Division of Cancer Control and Population Sciences, Outcomes Research Branch, National Cancer Institute, 9609 Medical Center Drive, East Tower, Room 3-448, Rockville, MD, 20850, USA.
Meeneghan M; Department of Medicine, University of North Carolina at Chapel Hill, Campus Box 7305, Chapel Hill, NC, 27599, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA.
Battaglini CL; Department of Exercise and Sports Science, University of North Carolina at Chapel Hill, Campus Box 8700, Chapel Hill, NC, 27599, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA.
Smith-Ryan AE; Department of Exercise and Sports Science, University of North Carolina at Chapel Hill, Campus Box 8700, Chapel Hill, NC, 27599, USA.
Phillips B; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA.
Shea TC; Department of Medicine, University of North Carolina at Chapel Hill, Campus Box 7305, Chapel Hill, NC, 27599, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA.
Wood WA; Department of Medicine, University of North Carolina at Chapel Hill, Campus Box 7305, Chapel Hill, NC, 27599, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Campus Box 7295, Chapel Hill, NC, 27599, USA.
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Mar; Vol. 25 (3), pp. 535-46. Date of Electronic Publication: 2015 Nov 17.
Typ publikacji:
Comparative Study; Evaluation Study; Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:
Accelerometry*
Activities of Daily Living*
Health Status Indicators*
Hematopoietic Stem Cell Transplantation*/psychology
Motor Activity*
Patient Outcome Assessment*
Quality of Life*
Adolescent ; Adult ; Aged ; Cross-Sectional Studies ; Female ; Follow-Up Studies ; Humans ; Male ; Middle Aged ; Self Report ; Young Adult
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
International Society for Quality of Life Research commentary on the draft European Medicines Agency reflection paper on the use of patient-reported outcome (PRO) measures in oncology studies.
Autorzy:
Kyte D; Primary Care and Clinical Sciences, School of Health and Population Sciences, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK.
Reeve BB; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, NC, USA.
Efficace F; Italian Group for Adult Hematologic Diseases (GIMEMA), Health Outcomes Research Unit, Rome, Italy.
Haywood K; Royal College of Nursing Research Institute, Warwick Medical School, Warwick University, Coventry, UK.
Mercieca-Bebber R; Psycho-oncology Co-operative Research Group, School of Psychology, University of Sydney, Sydney, Australia.; Sydney Medical School, University of Sydney, Sydney, Australia.
King MT; Psycho-oncology Co-operative Research Group, School of Psychology, University of Sydney, Sydney, Australia.; Sydney Medical School, University of Sydney, Sydney, Australia.
Norquist JM; Merck Sharp & Dohme, Corp., North Wales, PA, USA.
Lenderking WR; Evidera, Lexington, MA, USA.
Snyder C; Johns Hopkins School of Medicine, Baltimore, MD, USA.
Ring L; Department of Usages, Medical Products Agency, Uppsala, Sweden.
Velikova G; Leeds Institute of Cancer and Pathology, University of Leeds, Leeds, UK.
Calvert M; Primary Care and Clinical Sciences, School of Health and Population Sciences, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Feb; Vol. 25 (2), pp. 359-362. Date of Electronic Publication: 2015 Aug 15.
Typ publikacji:
Journal Article
MeSH Terms:
Patient Outcome Assessment*
Quality of Life*
Medical Oncology/*methods
Neoplasms/*therapy
Europe ; Humans ; Research ; Self Report
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
Tytuł:
Estimating minimally important difference (MID) in PROMIS pediatric measures using the scale-judgment method.
Autorzy:
Thissen D; Department of Psychology, University of North Carolina at Chapel Hill, 358 Davie Hall, CB #3270, Chapel Hill, NC, 27599, USA. .
Liu Y; Department of Psychology, University of North Carolina at Chapel Hill, 358 Davie Hall, CB #3270, Chapel Hill, NC, 27599, USA. .
Magnus B; Department of Psychology, University of North Carolina at Chapel Hill, 358 Davie Hall, CB #3270, Chapel Hill, NC, 27599, USA. .
Quinn H; Department of Psychology, University of North Carolina at Chapel Hill, 358 Davie Hall, CB #3270, Chapel Hill, NC, 27599, USA. .
Gipson DS; Division of Nephrology, Department of Pediatrics and Communicable Diseases, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA. .
Dampier C; Department of Pediatrics, Emory University College of Medicine, Atlanta, GA, USA. .
Huang IC; Institute for Child Health Policy, University of Florida, Gainesville, FL, USA. .; Department of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN, USA. .
Hinds PS; Children's National Health System, Washington, DC, USA. .; The George Washington University, Washington, DC, USA. .
Selewski DT; Division of Nephrology, Department of Pediatrics and Communicable Diseases, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA. .
Reeve BB; Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
Gross HE; Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
DeWalt DA; Division of General Medicine and Clinical Epidemiology, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. .
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Źródło:
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2016 Jan; Vol. 25 (1), pp. 13-23. Date of Electronic Publication: 2015 Jun 29.
Typ publikacji:
Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:
Health Status*
Judgment*
Depression/*psychology
Fatigue/*psychology
Pain/*psychology
Quality of Life/*psychology
Adolescent ; Adult ; Aged ; Aged, 80 and over ; Child ; Humans ; Male ; Middle Aged ; National Institutes of Health (U.S.) ; Parents ; Pediatrics ; Self Report ; Surveys and Questionnaires ; United States
Czasopismo naukowe
Pełny tekst  Link otwiera się w nowym oknieSzczegóły
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