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Tytuł :
Nurse Sensemaking for Responding to Patient and Family Safety Concerns.
Autorzy :
Groves PS
Bunch JL
Cannava KE
Sabadosa KA
Williams JK
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Źródło :
Nursing research [Nurs Res] 2021 Mar-Apr 01; Vol. 70 (2), pp. 106-113.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Nurse-Patient Relations*
Nurse's Role/*psychology
Nursing Staff, Hospital/*psychology
Patient Safety/*statistics & numerical data
Empathy ; Family/psychology ; Female ; Grounded Theory ; Humans ; Male ; Qualitative Research
Czasopismo naukowe
Tytuł :
A grounded theory of creating space for open safety communication between hospitalized patients and nurses.
Autorzy :
Groves PS; University of Iowa College of Nursing, Iowa City, IA. Electronic address: .
Bunch JL; University of Iowa College of Nursing, Iowa City, IA.
Sabadosa KA; Cystic Fibrosis Foundation, Bethesda, MD.
Cannava KE; San Jose State University, San Jose, CA.
Williams JK; University of Iowa College of Nursing, Iowa City, IA.
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Źródło :
Nursing outlook [Nurs Outlook] 2021 Feb 09. Date of Electronic Publication: 2021 Feb 09.
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
Formative evaluation of a dashboard to support coproduction of healthcare services in cystic fibrosis.
Autorzy :
Van Citters AD; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, USA.
Gifford AH; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, USA; Dartmouth Hitchcock Medical Center, One Medical Center Drive, Lebanon, NH 03766, USA.
Brady C; Children's Minnesota, 2525 Chicago Avenue S, Minneapolis, MN 55404, USA; Children's Respiratory and Critical Care Specialists, 2530 Chicago Avenue S, Suite 400, Minneapolis, MN 55404, USA.
Dunitz JM; Division of Pulmonary, Allergy, Critical Care and Sleep Medicine; Department of Medicine; University of Minnesota; 420 Delaware Street SE, MMC 276; Minneapolis, MN 55455, USA.
Elmhirst M; Patient partner, Minneapolis, MN, USA.
Flath J; Patient partner, Minneapolis, MN, USA.
Laguna TA; University of Minnesota Masonic Children's Hospital; 2450 Riverside Avenue, Minneapolis, MN 55454, USA.
Moore B; Children's Minnesota, 2525 Chicago Avenue S, Minneapolis, MN 55404, USA; Children's Respiratory and Critical Care Specialists, 2530 Chicago Avenue S, Suite 400, Minneapolis, MN 55404, USA.
Prickett ML; Northwestern University, Feinberg School of Medicine, 676 N Saint Clair Street, Suite 1400, Chicago, IL 60611, USA.
Riordan M; Parent partner; Chicago, IL, USA.
Savant AP; Northwestern University, Feinberg School of Medicine, 676 N Saint Clair Street, Suite 1400, Chicago, IL 60611, USA; Ann & Robert H. Lurie Children's Hospital of Chicago; 225 E Chicago Avenue; Chicago, IL 60611, USA.
Gore W; Children's Hospital Los Angeles, 4650 West Sunset Boulevard, Los Angeles, CA 90026, USA.
Jian S; UT Southwestern Cystic Fibrosis Clinic, 5939 Harry Hines Boulevard; POB 2, Suite 334, Dallas, TX 75390, USA.
Soper M; University of Virginia Medical Center, 1221 Lee Street, Charlottesville, VA 22908, USA.
Marshall BC; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814, USA.
Nelson EC; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, USA.
Sabadosa KA; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, USA. Electronic address: .
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Źródło :
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2020 Sep; Vol. 19 (5), pp. 768-776. Date of Electronic Publication: 2020 Apr 27.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
Czasopismo naukowe
Tytuł :
A qualitative study of design stakeholders' views of developing and implementing a registry-based learning health system.
Autorzy :
Dixon-Woods M; THIS Institute, Department of Public Health and Primary Care, University of Cambridge, Cambridge Biomedical Campus, Clifford Allbutt Building, Cambridge, CB2 0AH, UK. .
Campbell A; The NIHR Health Protection Research Unit in Healthcare-Associated Infections and Antimicrobial Resistance, Imperial College, Hammersmith Campus, London, W12 0NN, UK.
Chang T; Stanford Law School, 559 Nathan Abbott Way, Stanford, CA, 94305, USA.
Martin G; THIS Institute, Department of Public Health and Primary Care, University of Cambridge, Cambridge Biomedical Campus, Clifford Allbutt Building, Cambridge, CB2 0AH, UK.
Georgiadis A; ICON plc, Cambridge Biomedical Campus, Clifford Allbutt Building, Cambridge, London, CB2 0AH, UK.
Heney V; Wellcome Centre for Cultures and Environments of Health, University of Exeter, Queens Drive, Exeter, EX4 4PZ, UK.
Chew S; Social Science Applied to Healthcare Improvement Research (SAPPHIRE) Group, Department of Health Sciences, University of Leicester, George Davies Centre, University Road, Leicester, Leicester, LE1 7RH, UK.
Van Citters A; The Dartmouth Institute for Health Policy & Clinical Practice, Dartmouth College, Level 5, WTRB, 1 Medical Center Drive, Lebanon, NH, 03756, USA.
Sabadosa KA; Cystic Fibrosis Foundation, 4550 Montgomery Ave., Suite 1100 N, Bethesda, MD, 20814, USA.
Nelson EC; The Dartmouth Institute for Health Policy & Clinical Practice, Dartmouth College, Level 5, WTRB, 1 Medical Center Drive, Lebanon, NH, 03756, USA.
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Źródło :
Implementation science : IS [Implement Sci] 2020 Mar 06; Vol. 15 (1), pp. 16. Date of Electronic Publication: 2020 Mar 06.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Stakeholder Participation*
Cystic Fibrosis/*therapy
Learning Health System/*organization & administration
Quality Improvement/*organization & administration
Decision Making, Shared ; Humans ; Information Technology ; Interviews as Topic ; Patient Participation/methods ; Qualitative Research ; Social Environment ; United States
Czasopismo naukowe
Tytuł :
Patients and families experience with pharmacist care at cystic fibrosis foundation accredited clinics.
Autorzy :
Young DC; University of Utah Adult Cystic Fibrosis Center, University of Utah College of Pharmacy, Salt Lake City, Utah.
Autry E; University of Kentucky HealthCare Pharmacy Services, Lexington, Kentucky.; Department of Pharmacy Practice and Science, University of Kentucky College of Pharmacy, Lexington, Kentucky.
Zobell JT; Intermountain Cystic Fibrosis Pediatric Center, Salt Lake City, Utah.
Kormelink L; University of Kentucky HealthCare Pharmacy Services, Lexington, Kentucky.
Homa K; Cystic Fibrosis Foundation, Bethesda, Maryland.
Sabadosa KA; The Dartmouth Institute for Health Policy & Clinical Practice, Lebanon, New Hampshire.
Kanga J; Department of Pediatric Pulmonary Medicine, University of Kentucky College of Medicine, Lexington, Kentucky.
Anstead M; Department of Pediatric Pulmonary Medicine, University of Kentucky College of Medicine, Lexington, Kentucky.
Kuhn R; University of Kentucky HealthCare Pharmacy Services, Lexington, Kentucky.; Department of Pharmacy Practice and Science, University of Kentucky College of Pharmacy, Lexington, Kentucky.
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Źródło :
Pediatric pulmonology [Pediatr Pulmonol] 2019 Aug; Vol. 54 (8), pp. 1216-1224. Date of Electronic Publication: 2019 May 07.
Typ publikacji :
Journal Article
MeSH Terms :
Patient Care Team*
Pharmacists*
Professional Role*
Cystic Fibrosis/*drug therapy
Accreditation ; Family ; Female ; Foundations ; Health Facilities ; Health Facility Administration ; Humans ; Male ; Pharmaceutical Services ; Surveys and Questionnaires
Czasopismo naukowe
Tytuł :
Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative.
Autorzy :
Sabadosa KA; The Dartmouth Institute for Health Policy & Clinical Practice, Williamson Translational Research Building, One Medical Center Drive, Lebanon, NH, 03756, USA. Kathryn.A.Sabadosa@dartmouth.edu.
Godfrey MM; The Dartmouth Institute for Health Policy & Clinical Practice, Williamson Translational Research Building, One Medical Center Drive, Lebanon, NH, 03756, USA.
Marshall BC; Cystic Fibrosis Foundation, 4550 Montgomery Ave. Suite 1100 N, Bethesda, MD, 20814, USA.
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Źródło :
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2018 Feb 08; Vol. 13 (Suppl 1), pp. 13. Date of Electronic Publication: 2018 Feb 08.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Cystic Fibrosis/*physiopathology
Humans ; Quality Improvement ; United States
Czasopismo naukowe
Tytuł :
End-of-life practice patterns at U.S. adult cystic fibrosis care centers: A national retrospective chart review.
Autorzy :
Chen E; Rush University Medical Center, Chicago, IL, United States. Electronic address: .
Homa K; Independent Consultant, Orford, NH, United States.
Goggin J; University of California, San Diego, CA, United States.
Sabadosa KA; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, NH, United States.
Hempstead S; Cystic Fibrosis Foundation, Bethesda, MD, United States.
Marshall BC; Cystic Fibrosis Foundation, Bethesda, MD, United States.
Faro A; Cystic Fibrosis Foundation, Bethesda, MD, United States.
Dellon EP; University of North Carolina School of Medicine, Chapel Hill, NC, United States.
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Źródło :
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2017 Sep 13. Date of Electronic Publication: 2017 Sep 13.
Typ publikacji :
Journal Article
Czasopismo naukowe
Tytuł :
US Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus recommendations for the management of non-tuberculous mycobacteria in individuals with cystic fibrosis: executive summary.
Autorzy :
Floto RA; Cambridge Institute for Medical Research, University of Cambridge, Cambridge, UK Cambridge Centre for Lung Infection, Papworth Hospital, Cambridge, UK.
Olivier KN; Cardiovascular and Pulmonary Branch, National Heart, Lung, and Blood Institute, NIH, Bethesda, Maryland, USA.
Saiman L; Department of Pediatrics, Columbia University Medical Center, Pediatric Infectious Diseases, New York, New York, USA.
Daley CL; Division of Mycobacterial and Respiratory Infections, National Jewish Health, Denver, Colorado, USA.
Herrmann JL; INSERM U1173, UFR Simone Veil, Versailles-Saint-Quentin University, Saint-Quentin en Yvelines, France AP-HP, Service de Microbiologie, Hôpital Raymond Poincaré, Garches, France.
Nick JA; Department of Medicine, National Jewish Health, Denver, Colorado, USA.
Noone PG; Division of Pulmonary and Critical Care Medicine, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Bilton D; Department of Respiratory Medicine, Royal Brompton Hospital, London, UK.
Corris P; Department of Respiratory Medicine, Freeman Hospital High Heaton, Newcastle, UK.
Gibson RL; Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA.
Hempstead SE; The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Koetz K; Department of Pediatrics, Sahlgrenska University Hospital, Gothenburg, Sweden.
Sabadosa KA; The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Sermet-Gaudelus I; Service de Pneumo-Pédiatrie, Université René Descartes, Hôpital Necker-Enfants Malades, Paris, France.
Smyth AR; Division of Child Health, Obstetrics & Gynaecology, University of Nottingham, Nottingham, UK.
van Ingen J; Department of Medical Microbiology, Radboud University Medical Center, Nijmegen, The Netherlands.
Wallace RJ; Department. of Microbiology, University of Texas Health Science Center, Tyler, Texas, USA.
Winthrop KL; Divisions of Infectious Diseases, Public Health and Preventive Medicine, Oregon Health and Science University, Portland, Oregon, USA.
Marshall BC; Cystic Fibrosis Foundation, Bethesda, Maryland, USA.
Haworth CS; Cambridge Centre for Lung Infection, Papworth Hospital, Cambridge, UK.
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Źródło :
Thorax [Thorax] 2016 Jan; Vol. 71 (1), pp. 88-90.
Typ publikacji :
Consensus Development Conference; Journal Article; Research Support, N.I.H., Intramural; Research Support, Non-U.S. Gov't
MeSH Terms :
Antitubercular Agents/*therapeutic use
Cystic Fibrosis/*complications
Mycobacterium Infections, Nontuberculous/*diagnosis
Mycobacterium Infections, Nontuberculous/*drug therapy
Consensus ; Disease Management ; Europe ; Humans ; Societies, Medical ; United States
Czasopismo naukowe
Tytuł :
US Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus recommendations for the management of non-tuberculous mycobacteria in individuals with cystic fibrosis.
Autorzy :
Floto RA; Cambridge Institute for Medical Research, University of Cambridge, Cambridge, UK Cambridge Centre for Lung Infection, Papworth Hospital, Cambridge, UK.
Olivier KN; Cardiovascular and Pulmonary Branch, National Heart, Lung, and Blood Institute, NIH, Bethesda, Maryland, USA.
Saiman L; Department of Pediatrics, Columbia University Medical Center, Pediatric Infectious Diseases, New York, New York, USA.
Daley CL; Division of Mycobacterial and Respiratory Infections, National Jewish Health, Denver, Colorado, USA.
Herrmann JL; INSERM U1173, UFR Simone Veil, Versailles-Saint-Quentin University, Saint-Quentin en Yvelines, France AP-HP, Service de Microbiologie, Hôpital Raymond Poincaré, Garches, France.
Nick JA; Department of Medicine, National Jewish Health, Denver, Colorado, USA.
Noone PG; The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Bilton D; Department of Respiratory Medicine, Royal Brompton Hospital, London, UK.
Corris P; Department of Respiratory Medicine, Freeman Hospital, High Heaton, Newcastle, UK.
Gibson RL; Department of Pediatrics University of Washington School of Medicine, Seattle, Washington, USA.
Hempstead SE; The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Koetz K; Department of Pediatrics, Sahlgrenska University Hospital, Gothenburg, Sweden.
Sabadosa KA; The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Sermet-Gaudelus I; Service de Pneumo-Pédiatrie, Université René Descartes, Hôpital Necker-Enfants Malades, Paris, France.
Smyth AR; Division of Child Health, Obstetrics & Gynaecology, University of Nottingham, Nottingham, UK.
van Ingen J; Department of Medical Microbiology, Radboud University Medical Center, Nijmegen, The Netherlands.
Wallace RJ; Department of Microbiology, University of Texas Health Science Center, Tyler, Texas, USA.
Winthrop KL; Oregon Health and Sciences University, Portland, Oregon, USA.
Marshall BC; Cystic Fibrosis Foundation, Bethesda, Maryland, USA.
Haworth CS; Cambridge Centre for Lung Infection, Papworth Hospital, Cambridge, UK.
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Corporate Authors :
US Cystic Fibrosis Foundation and European Cystic Fibrosis Society
Źródło :
Thorax [Thorax] 2016 Jan; Vol. 71 Suppl 1, pp. i1-22.
Typ publikacji :
Consensus Development Conference; Journal Article; Practice Guideline; Research Support, N.I.H., Intramural; Research Support, Non-U.S. Gov't
MeSH Terms :
Nontuberculous Mycobacteria*/isolation & purification
Cystic Fibrosis/*complications
Mycobacterium Infections, Nontuberculous/*diagnosis
Mycobacterium Infections, Nontuberculous/*drug therapy
Pneumonia, Bacterial/*diagnosis
Pneumonia, Bacterial/*drug therapy
Anti-Bacterial Agents/administration & dosage ; Anti-Bacterial Agents/therapeutic use ; Europe ; Humans ; Injections, Intravenous ; Mass Screening ; Mycobacterium Infections, Nontuberculous/complications ; Pneumonia, Bacterial/complications ; Pneumonia, Bacterial/microbiology ; Risk Factors ; Societies, Medical ; United States
Czasopismo naukowe
Tytuł :
International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety.
Autorzy :
Quittner AL; University of Miami, Coral Gables, Florida, USA.
Abbott J; School of Psychology, University of Central Lancashire, Preston, UK.
Georgiopoulos AM; Department of Child and Adolescent Psychiatry, Massachusetts General Hospital, Boston, Massachusetts, USA.
Goldbeck L; Department of Child and Adolescent Psychiatry/Psychotherapy, University Hospital Ulm, Ulm, Germany.
Smith B; Division of Child and Adolescent Psychiatry, State University of New York, Buffalo, New York, USA.
Hempstead SE; The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Marshall B; Cystic Fibrosis Foundation, Bethesda, Maryland, USA.
Sabadosa KA; The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Lebanon, New Hampshire, USA.
Elborn S; Queen's University, Belfast, UK.
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Corporate Authors :
International Committee on Mental Health
EPOS Trial Study Group
Źródło :
Thorax [Thorax] 2016 Jan; Vol. 71 (1), pp. 26-34. Date of Electronic Publication: 2015 Oct 09.
Typ publikacji :
Consensus Development Conference; Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Practice Guidelines as Topic*
Cystic Fibrosis/*psychology
Mental Disorders/*prevention & control
Mental Disorders/*psychology
Caregivers/psychology ; Humans ; International Cooperation ; Quality of Life/psychology ; Societies, Medical
Czasopismo naukowe
Tytuł :
Advance care planning in cystic fibrosis: Current practices, challenges, and opportunities.
Autorzy :
Dellon EP; University of North Carolina School of Medicine, Chapel Hill, NC, United States. Electronic address: .
Chen E; Rush University Medical Center, Chicago, IL, United States. Electronic address: .
Goggin J; University of California San Diego Health System, La Jolla, CA, United States. Electronic address: .
Homa K
Marshall BC; Cystic Fibrosis Foundation, Bethesda, MD, United States. Electronic address: .
Sabadosa KA; Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Lebanon, NH, United States. Electronic address: kathryn.a.sabadosa@dartmouth.edu.
Cohen RI; Hofstra North Shore, Long Island Jewish School of Medicine, Hofstra University, Hempstead, NY, United States. Electronic address: .
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Źródło :
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2016 Jan; Vol. 15 (1), pp. 96-101. Date of Electronic Publication: 2015 Sep 08.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Advance Care Planning*/organization & administration
Advance Care Planning*/statistics & numerical data
Cystic Fibrosis*/diagnosis
Cystic Fibrosis*/psychology
Cystic Fibrosis*/therapy
Health Personnel*/education
Health Personnel*/psychology
Terminal Care*/methods
Terminal Care*/psychology
Adolescent ; Adult ; Attitude of Health Personnel ; Female ; Health Knowledge, Attitudes, Practice ; Humans ; Male ; Needs Assessment ; Professional-Patient Relations ; Surveys and Questionnaires ; United States
Czasopismo naukowe
Tytuł :
Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery.
Autorzy :
Abbott J; School of Psychology, University of Central Lancashire, Preston PR1 2HE, UK. Electronic address: .
Elborn JS; School of Medicine, Queen's University, Belfast BT7 1NN, UK.
Georgiopoulos AM; Department of Child and Adolescent Psychiatry, Massachusetts General Hospital, Boston, MA 02114, USA.
Goldbeck L; Child and Adolescent Psychiatry, University Ulm Medical Centre, D-89075 Ulm, Germany.
Marshall BC; Cystic Fibrosis Foundation, Medical Department, Bethesda, Maryland, MD 20814, USA.
Sabadosa KA; The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH 03766, USA.
Smith BA; Department of Psychiatry, University of Buffalo, NY 14202, USA.
Quittner AL; Department of Psychology, University of Miami, FL 33146, USA.
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Źródło :
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2015 Jul; Vol. 14 (4), pp. 533-9. Date of Electronic Publication: 2015 Jan 12.
Typ publikacji :
Journal Article
MeSH Terms :
Attitude of Health Personnel*
Cystic Fibrosis/*psychology
Cystic Fibrosis/*therapy
Health Services Accessibility/*organization & administration
Mental Health Services/*organization & administration
Humans ; Surveys and Questionnaires ; United Kingdom ; United States
Czasopismo naukowe
Tytuł :
Experience of care from the perspective of individuals with cystic fibrosis and families: Results from 70 CF Foundation accredited programs in the USA.
Autorzy :
Homa K
Sabadosa KA; The Dartmouth Institute for Health Care Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Hanover, NH, United States.
Marrow LC; Cystic Fibrosis Foundation, Bethesda, MD, United States.
Marshall BC; Cystic Fibrosis Foundation, Bethesda, MD, United States.
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Źródło :
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2015 Jul; Vol. 14 (4), pp. 515-22. Date of Electronic Publication: 2015 Jan 30.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Patient Satisfaction*
Quality Improvement*
Cystic Fibrosis/*psychology
Cystic Fibrosis/*therapy
Family/*psychology
Adolescent ; Adult ; Age Factors ; Aged ; Child ; Child, Preschool ; Female ; Health Care Surveys ; Humans ; Infant ; Male ; Middle Aged ; Socioeconomic Factors ; United States ; Young Adult
Czasopismo naukowe
Tytuł :
Longevity of patients with cystic fibrosis in 2000 to 2010 and beyond: survival analysis of the Cystic Fibrosis Foundation patient registry.
Autorzy :
MacKenzie T
Gifford AH
Sabadosa KA
Quinton HB
Knapp EA
Goss CH
Marshall BC
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Źródło :
Annals of internal medicine [Ann Intern Med] 2014 Aug 19; Vol. 161 (4), pp. 233-41.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Longevity*
Cystic Fibrosis/*mortality
Adolescent ; Adult ; Age of Onset ; Child ; Child, Preschool ; Cystic Fibrosis/ethnology ; Cystic Fibrosis/genetics ; Cystic Fibrosis Transmembrane Conductance Regulator/genetics ; Female ; Humans ; Infant ; Infant, Newborn ; Male ; Mutation ; Prognosis ; Registries ; Sex Factors ; Survival Analysis ; United States/epidemiology ; Young Adult
Czasopismo naukowe
Tytuł :
Infection prevention and control guideline for cystic fibrosis: 2013 update.
Autorzy :
Saiman L; Department of Pediatrics, Columbia University Medical Center, New York, New York; and Department of Infection Prevention and Control, NewYork-Presbyterian Hospital, New York, New York.
Siegel JD
LiPuma JJ
Brown RF
Bryson EA
Chambers MJ
Downer VS
Fliege J
Hazle LA
Jain M
Marshall BC
O'Malley C
Pattee SR
Potter-Bynoe G
Reid S
Robinson KA
Sabadosa KA
Schmidt HJ
Tullis E
Webber J
Weber DJ
Pokaż więcej
Corporate Authors :
Cystic Fibrous Foundation
Society for Healthcare Epidemiology of America
Źródło :
Infection control and hospital epidemiology [Infect Control Hosp Epidemiol] 2014 Aug; Vol. 35 Suppl 1, pp. S1-S67. Date of Electronic Publication: 2014 Jul 01.
Typ publikacji :
Guideline; Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms :
Aspergillosis/*prevention & control
Bacterial Infections/*prevention & control
Cystic Fibrosis/*complications
Disease Transmission, Infectious/*prevention & control
Bacterial Infections/transmission ; Burkholderia Infections/prevention & control ; Burkholderia cepacia complex/genetics ; Hospitalization ; Humans ; Molecular Typing/methods ; Mycobacterium Infections/prevention & control ; Population Surveillance/methods ; Staphylococcal Infections/prevention & control
Czasopismo naukowe
Tytuł :
The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement.
Autorzy :
Sabadosa KA; The Dartmouth Institute for Health Policy and Clinical Practice at the Geisel School of Medicine at Dartmouth, , Lebanon, New Hampshire, USA.
Batalden PB
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Źródło :
BMJ quality & safety [BMJ Qual Saf] 2014 Apr; Vol. 23 Suppl 1, pp. i90-4.
Typ publikacji :
Journal Article; Review
MeSH Terms :
Interdisciplinary Communication*
Quality Assurance, Health Care*
Cystic Fibrosis/*therapy
Delivery of Health Care, Integrated/*organization & administration
Adolescent ; Adult ; Child ; Child, Preschool ; Cystic Fibrosis/physiopathology ; Female ; Humans ; Interpersonal Relations ; Male ; Nurse-Patient Relations ; Physician-Patient Relations ; Professional-Family Relations ; Quality Improvement ; Role ; United States
Czasopismo naukowe
Tytuł :
Key findings of the US Cystic Fibrosis Foundation's clinical practice benchmarking project.
Autorzy :
Boyle MP; Department of Medicine, Johns Hopkins University School of Medicine, , Baltimore, Maryland, USA.
Sabadosa KA
Quinton HB
Marshall BC
Schechter MS
Pokaż więcej
Źródło :
BMJ quality & safety [BMJ Qual Saf] 2014 Apr; Vol. 23 Suppl 1, pp. i15-i22.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't; Review
MeSH Terms :
Benchmarking*
Outcome Assessment, Health Care*
Registries*
Cystic Fibrosis/*therapy
Patient Care Team/*organization & administration
Adult ; Child ; Female ; Foundations ; Health Planning/organization & administration ; Humans ; Male ; Patient Care/standards ; Patient Care/trends ; Quality Improvement ; United States
Czasopismo naukowe
Tytuł :
Development and validation of a cystic fibrosis patient and family member experience of care survey.
Autorzy :
Homa K; Leadership Preventive Medicine Residency Program, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire 03756, USA. />Sabadosa KA
Nelson EC
Rogers WH
Marshall BC
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Źródło :
Quality management in health care [Qual Manag Health Care] 2013 Apr-Jun; Vol. 22 (2), pp. 100-16.
Typ publikacji :
Journal Article
MeSH Terms :
Family*
Cystic Fibrosis/*therapy
Health Care Surveys/*standards
Adolescent ; Adult ; Aged ; Child ; Child, Preschool ; Cystic Fibrosis/psychology ; Female ; Focus Groups ; Humans ; Infant ; Male ; Middle Aged ; Patient Satisfaction/statistics & numerical data ; Pilot Projects ; Psychometrics ; Reproducibility of Results ; Surveys and Questionnaires/standards ; Young Adult
Czasopismo naukowe

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