Temat: "Sickness Impact Profile" - OpacWWW

Skocz do pozycji: 1.

Tytuł:: Visual perception problems and quality of life in young adults with foetal alcohol spectrum disorders.
Autorzy:: Gyllencreutz E; Department of Ophthalmology, Region Västra Götaland, Skaraborg Hospital, Skövde, Sweden.; Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Aring E; Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.; Department of Ophthalmology, Region Västra Götaland, Sahlgrenska University Hospital, Mölndal, Sweden.
Landgren V; Department of Psychiatry, Region Västra Götaland, Skaraborg Hospital, Skövde, Sweden.; Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Gothenburg, Sweden.
Landgren M; Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Gothenburg, Sweden.; Department of Pediatrics, Region Västra Götaland, Skaraborg Hospital, Mariestad, Sweden.
Grönlund MA; Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.; Department of Ophthalmology, Region Västra Götaland, Sahlgrenska University Hospital, Mölndal, Sweden.; Pokaż więcej
Źródło:: Acta ophthalmologica [Acta Ophthalmol] 2022 Feb; Vol. 100 (1), pp. e115-e121. Date of Electronic Publication: 2021 May 06.
Typ publikacji:: Journal Article
MeSH Terms:: Population Surveillance*
Quality of Life*
Sickness Impact Profile*
Fetal Alcohol Spectrum Disorders/*physiopathology
Visual Perception/*physiology
Adult ; Female ; Fetal Alcohol Spectrum Disorders/psychology ; Follow-Up Studies ; Humans ; Male ; Retrospective Studies ; Surveys and Questionnaires ; Young Adult

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Skocz do pozycji: 2.

Tytuł:: Properties of Patient-Reported Outcome Measures in Recessive Stargardt Disease.
Autorzy:: Terheyden JH; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany, .
Finger RP; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.
Wicharz F; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.
Herrmann P; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.; Center for Rare Diseases, University Hospital Bonn, Bonn, Germany.
Holz FG; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.; Center for Rare Diseases, University Hospital Bonn, Bonn, Germany.
Tufail A; Moorfields Eye Hospital NHS Foundation Trust, London, UK.; Institute of Ophthalmology, University College London, London, UK.
Müller PL; Department of Ophthalmology, University Hospital Bonn, Bonn, Germany.; Center for Rare Diseases, University Hospital Bonn, Bonn, Germany.; Moorfields Eye Hospital NHS Foundation Trust, London, UK.; Macula Center, Südblick Eye Centers, Augsburg, Germany.; Pokaż więcej
Źródło:: Ophthalmologica. Journal international d'ophtalmologie. International journal of ophthalmology. Zeitschrift fur Augenheilkunde [Ophthalmologica] 2022; Vol. 245 (6), pp. 546-554. Date of Electronic Publication: 2022 Sep 21.
Typ publikacji:: Journal Article
MeSH Terms:: Sickness Impact Profile*
Quality of Life*
Male ; Female ; Humans ; Adult ; Middle Aged ; Visual Acuity ; Stargardt Disease ; Reproducibility of Results ; Surveys and Questionnaires ; Patient Reported Outcome Measures

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Skocz do pozycji: 3.

Tytuł:: Impact of glaucoma on vision-specific quality of life in monocular glaucoma patients using the Indian vision function questionnaire.
Autorzy:: Maheshwari D; Glaucoma Services, Aravind Eye Hospital, Tirunelveli, Tamil Nadu, India.
Ingle I; Glaucoma Cosnsultant at WYW Center, University Pittsburg Medical Center, Pittsburg, Pennsylvania, United States.
Tara TD; Glaucoma Services, Aravind Eye Hospital, Tirunelveli, Tamil Nadu, India.
Ramugade-Shinde S; Glaucoma Services, Aravind Eye Hospital, Tirunelveli, Tamil Nadu, India.
Pillai MR; Glaucoma Services, Aravind Eye Hospital, Tirunelveli, Tamil Nadu, India.
Kader MA; Glaucoma Services, Aravind Eye Hospital, Tirunelveli, Tamil Nadu, India.
Rengappa R; Glaucoma Clinic, Tirunelveli, Tamil Nadu, India.
Uduman MS; Glaucoma Services, Aravind Eye Hospital, Tirunelveli, Tamil Nadu, India.; Pokaż więcej
Źródło:: Indian journal of ophthalmology [Indian J Ophthalmol] 2023 Jul; Vol. 71 (7), pp. 2760-2766.
Typ publikacji:: Journal Article
MeSH Terms:: Quality of Life*/psychology
Glaucoma*/diagnosis
Humans ; Female ; Cross-Sectional Studies ; Prospective Studies ; Sickness Impact Profile ; Surveys and Questionnaires

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Skocz do pozycji: 4.

Tytuł:: Threat to fixation and vision-related quality of life in early open-angle glaucoma - results from the Glaucoma Intensive Treatment Study.
Autorzy:: Peters D; Lund University, Department of Clinical Sciences Malmö, Ophthalmology, Lund, Sweden.; Department of Ophthalmology, Ophthalmology, Skåne University Hospital, Malmö, Sweden.
Heijl A; Lund University, Department of Clinical Sciences Malmö, Ophthalmology, Lund, Sweden.; Department of Ophthalmology, Ophthalmology, Skåne University Hospital, Malmö, Sweden.
Andersson-Geimer S; Lund University, Department of Clinical Sciences Malmö, Ophthalmology, Lund, Sweden.; Department of Ophthalmology, Ophthalmology, Skåne University Hospital, Malmö, Sweden.
Aspberg J; Lund University, Department of Clinical Sciences Malmö, Ophthalmology, Lund, Sweden.; Department of Ophthalmology, Ophthalmology, Skåne University Hospital, Malmö, Sweden.
Lindén C; Department of Clinical Sciences, Umeå University, Umeå, Sweden.
Jóhannesson G; Department of Clinical Sciences, Umeå University, Umeå, Sweden.; Wallenberg Centre for Molecular Medicine, Umeå University, Umeå, Sweden.; Department of Ophthalmology, University of Iceland, Reykjavik, Iceland.
Bengtsson B; Lund University, Department of Clinical Sciences Malmö, Ophthalmology, Lund, Sweden.; Pokaż więcej
Źródło:: Acta ophthalmologica [Acta Ophthalmol] 2023 Feb; Vol. 101 (1), pp. 74-80. Date of Electronic Publication: 2022 Jun 23.
Typ publikacji:: Journal Article
MeSH Terms:: Glaucoma, Open-Angle*
Glaucoma*
Humans ; Quality of Life ; Sickness Impact Profile ; Intraocular Pressure ; Visual Acuity ; Prospective Studies ; Visual Field Tests ; Surveys and Questionnaires

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Skocz do pozycji: 5.

Tytuł:: Psychometric validation of the Moroccan version of the EORTC QLQ-C30 in colorectal Cancer patients: cross-sectional study and systematic literature review.
Autorzy:: El Alami Y; The Surgical Department, National Institute of Oncology, Rabat, Morocco.; Faculty Of Medicine Of Rabat, Mohammed V University, Rabat, Morocco.; The Doctoral School of Life and Health Sciences, Mohammed V University, (CEDOC SVS), Rabat, Morocco.
Essangri H; The Surgical Department, National Institute of Oncology, Rabat, Morocco.; Faculty Of Medicine Of Rabat, Mohammed V University, Rabat, Morocco.
Majbar MA; The Surgical Department, National Institute of Oncology, Rabat, Morocco.; Faculty Of Medicine Of Rabat, Mohammed V University, Rabat, Morocco.
Boutayeb S; The Surgical Department, National Institute of Oncology, Rabat, Morocco.; Faculty Of Medicine Of Rabat, Mohammed V University, Rabat, Morocco.
Benamr S; The Surgical Department, National Institute of Oncology, Rabat, Morocco.; Faculty Of Medicine Of Rabat, Mohammed V University, Rabat, Morocco.
El Malki HO; Faculty Of Medicine Of Rabat, Mohammed V University, Rabat, Morocco.; The Surgical Department 'A', Ibn Sina Hospital, Rabat, Morocco.; The Laboratory of Clinical Research and Epidemiology of Mohammed V University, Rabat, Morocco.; Abulcasis International University of Health Sciences, Rabat, Morocco.
Souadka A; The Surgical Department, National Institute of Oncology, Rabat, Morocco. .; Faculty Of Medicine Of Rabat, Mohammed V University, Rabat, Morocco. .; Pokaż więcej
Źródło:: BMC cancer [BMC Cancer] 2021 Jan 27; Vol. 21 (1), pp. 99. Date of Electronic Publication: 2021 Jan 27.
Typ publikacji:: Journal Article; Systematic Review; Validation Study
MeSH Terms:: Psychometrics*
Quality of Life*
Sickness Impact Profile*
Colorectal Neoplasms/*psychology
Adult ; Aged ; Aged, 80 and over ; Colorectal Neoplasms/epidemiology ; Colorectal Neoplasms/pathology ; Cross-Sectional Studies ; Female ; Follow-Up Studies ; Humans ; Male ; Middle Aged ; Morocco/epidemiology ; Prognosis ; Retrospective Studies ; Surveys and Questionnaires

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Skocz do pozycji: 6.

Tytuł:: Women with atrial fibrillation undergoing pulmonary vein isolation are more symptomatic but improve more in health-related quality of life and symptom burden than men.
Autorzy:: Carnlöf C; Karolinska Institutet and Heart, Vascular & Neurology Theme, Karolinska University Hospital, Stockholm, Sweden.
Iwarzon M; Department of Neurobiology, Care Sciences and Society, Huddinge, Sweden.
Jensen-Urstad M; Karolinska Institutet and Heart, Vascular & Neurology Theme, Karolinska University Hospital, Stockholm, Sweden.
Gadler F; Karolinska Institutet and Heart, Vascular & Neurology Theme, Karolinska University Hospital, Stockholm, Sweden.
Insulander P; Karolinska Institutet and Heart, Vascular & Neurology Theme, Karolinska University Hospital, Stockholm, Sweden.; Pokaż więcej
Źródło:: Scandinavian cardiovascular journal : SCJ [Scand Cardiovasc J] 2022 Dec; Vol. 56 (1), pp. 316-324.
Typ publikacji:: Journal Article
MeSH Terms:: Atrial Fibrillation*/diagnosis
Atrial Fibrillation*/surgery
Catheter Ablation*/adverse effects
Catheter Ablation*/methods
Pulmonary Veins*/surgery
Aged ; Female ; Humans ; Male ; Middle Aged ; Quality of Life ; Recurrence ; Sickness Impact Profile ; Treatment Outcome

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Skocz do pozycji: 7.

Tytuł:: The Quality of Life of Medically Versus Surgically Treated Primary Open-angle Glaucoma Patients at a Nigerian Hospital.
Autorzy:: Oduneye FC; Department of Ophthalmology, Prince Abdulaziz Bin Musaad Hospital, Arar, Northern Border region, Saudi Arabia.
Musa KO; Department of Ophthalmology (Guinness Eye Centre), Lagos University Teaching Hospital, College of Medicine of the University of Lagos, Lagos, Nigeria.
Agboola SA; Department of Ophthalmology (Guinness Eye Centre), Lagos University Teaching Hospital, Lagos, Nigeria.
Idowu OO; Product Development Clinical Science, Genentech Inc. South San Francisco, CA, USA.
Onakoya AO; Department of Ophthalmology (Guinness Eye Centre), Lagos University Teaching Hospital, College of Medicine of the University of Lagos, Lagos, Nigeria.; Pokaż więcej
Źródło:: Middle East African journal of ophthalmology [Middle East Afr J Ophthalmol] 2022 Nov 23; Vol. 29 (1), pp. 7-14. Date of Electronic Publication: 2022 Nov 23 (Print Publication: 2022).
Typ publikacji:: Journal Article
MeSH Terms:: Glaucoma, Open-Angle*/surgery
Glaucoma*
Humans ; Quality of Life ; Sickness Impact Profile ; Cross-Sectional Studies ; Visual Acuity ; Nigeria/epidemiology ; Intraocular Pressure ; Surveys and Questionnaires ; Hospitals

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Skocz do pozycji: 8.

Tytuł:: Item nonresponse on the Myeloproliferative Neoplasms Symptom Assessment Form (MPN-SAF): a comparison of missing data strategies.
Autorzy:: Mazza GL; a Mayo Clinic , Health Sciences Research , Scottsdale , AZ , USA.
Kunze KL; a Mayo Clinic , Health Sciences Research , Scottsdale , AZ , USA.
Langlais BT; a Mayo Clinic , Health Sciences Research , Scottsdale , AZ , USA.
Kosiorek HE; a Mayo Clinic , Health Sciences Research , Scottsdale , AZ , USA.
DeWees TA; a Mayo Clinic , Health Sciences Research , Scottsdale , AZ , USA.
Geyer HL; b Mayo Clinic , Internal Medicine , Phoenix , AZ , USA.
Scherber RM; c Mays Cancer Center , University of Texas Health San Antonio , San Antonio , TX , USA.
Mesa RA; c Mays Cancer Center , University of Texas Health San Antonio , San Antonio , TX , USA.
Dueck AC; a Mayo Clinic , Health Sciences Research , Scottsdale , AZ , USA.; Pokaż więcej
Źródło:: Leukemia & lymphoma [Leuk Lymphoma] 2019 Jul; Vol. 60 (7), pp. 1789-1795. Date of Electronic Publication: 2019 Jan 17.
Typ publikacji:: Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:: Quality of Life*
Severity of Illness Index*
Sickness Impact Profile*
Myeloproliferative Disorders/*diagnosis
Research Design/*standards
Surveys and Questionnaires/*standards
Symptom Assessment/*statistics & numerical data
Adolescent ; Adult ; Aged ; Aged, 80 and over ; Female ; Follow-Up Studies ; Global Health ; Health Surveys ; Humans ; Incidence ; Male ; Middle Aged ; Myeloproliferative Disorders/epidemiology ; Prognosis ; Prospective Studies ; Young Adult

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Skocz do pozycji: 9.

Tytuł:: Understanding the socioeconomic costs of dystrophic epidermolysis bullosa in Europe: a costing and health-related quality of life study.
Autorzy:: Angelis A; Department of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, London, UK. .; Department of Health Policy and LSE Health, Medical Technology Research Group, London School of Economics and Political Science, London, UK. .
Mellerio JE; St John's Institute of Dermatology, King's College London and Guy's and St Thomas' NHS Foundation Trust, London, UK.
Kanavos P; Department of Health Policy and LSE Health, Medical Technology Research Group, London School of Economics and Political Science, London, UK.; Pokaż więcej
Źródło:: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2022 Sep 06; Vol. 17 (1), pp. 346. Date of Electronic Publication: 2022 Sep 06.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Epidermolysis Bullosa Dystrophica*
Quality of Life*
Adult ; Child ; Cost of Illness ; Cross-Sectional Studies ; Europe ; Health Care Costs ; Humans ; Patient Care ; Sick Leave ; Sickness Impact Profile ; Surveys and Questionnaires

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Skocz do pozycji: 10.

Tytuł:: Artificial vision: the effectiveness of the OrCam in patients with advanced inherited retinal dystrophies.
Autorzy:: Nguyen XT; Department of Ophthalmology, Leiden University Medical Center, Leiden, The Netherlands.
Koopman J; Royal Dutch Visio, Centre of Expertise for Blind and Partially Sighted People, Amsterdam, The Netherlands.
van Genderen MM; Department of Ophthalmology, University Medical Center Utrecht, Utrecht, The Netherlands.; Bartiméus, Diagnostic Center for Complex Visual Disorders, Zeist, The Netherlands.
Stam HLM; Bartiméus, Diagnostic Center for Complex Visual Disorders, Zeist, The Netherlands.
Boon CJF; Department of Ophthalmology, Leiden University Medical Center, Leiden, The Netherlands.; Department of Ophthalmology, Amsterdam UMC, Academic Medical Center, Amsterdam, The Netherlands.; Pokaż więcej
Źródło:: Acta ophthalmologica [Acta Ophthalmol] 2022 Jun; Vol. 100 (4), pp. e986-e993. Date of Electronic Publication: 2021 Sep 26.
Typ publikacji:: Journal Article
MeSH Terms:: Quality of Life*
Retinitis Pigmentosa*
Humans ; National Eye Institute (U.S.) ; Sickness Impact Profile ; Surveys and Questionnaires ; United States ; Vision, Ocular

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Skocz do pozycji: 11.

Tytuł:: Vision-related quality of life in patients with glaucoma: the role of illness perceptions.
Autorzy:: Zhang Q; School of Optometry and Ophthalmology, Wenzhou Medical University, Wenzhou, Zhejiang, China.
Zhou W; The Eye Hospital, Wenzhou Medical University, 270 Xueyuan West Road, Lucheng District, Wenzhou, 325000, Zhejiang Province, China.
Song D; Huzhou First People's Hospital, Huzhou, Zhejiang, China.
Xie Y; The Eye Hospital, Wenzhou Medical University, 270 Xueyuan West Road, Lucheng District, Wenzhou, 325000, Zhejiang Province, China.
Lin H; The Eye Hospital, Wenzhou Medical University, 270 Xueyuan West Road, Lucheng District, Wenzhou, 325000, Zhejiang Province, China.
Liang Y; The Eye Hospital, Wenzhou Medical University, 270 Xueyuan West Road, Lucheng District, Wenzhou, 325000, Zhejiang Province, China.
Ren Y; Chicago Medical School, Rosalind Franklin University of Medicine and Science, North Chicago, IL, USA.
Liang Y; The Eye Hospital, Wenzhou Medical University, 270 Xueyuan West Road, Lucheng District, Wenzhou, 325000, Zhejiang Province, China. .
Chen Y; The Eye Hospital, Wenzhou Medical University, 270 Xueyuan West Road, Lucheng District, Wenzhou, 325000, Zhejiang Province, China. .; Pokaż więcej
Źródło:: Health and quality of life outcomes [Health Qual Life Outcomes] 2022 May 12; Vol. 20 (1), pp. 78. Date of Electronic Publication: 2022 May 12.
Typ publikacji:: Journal Article
MeSH Terms:: Glaucoma*/diagnosis
Glaucoma*/psychology
Quality of Life*/psychology
Cross-Sectional Studies ; Humans ; Sickness Impact Profile ; Surveys and Questionnaires ; Visual Fields

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Skocz do pozycji: 12.

Tytuł:: Correlation between morphological characteristics in spectral-domain-optical coherence tomography, different functional tests and a patient's subjective handicap in acute central serous chorioretinopathy.
Autorzy:: Gerendas BS; Department of Ophthalmology, Vienna Reading Center, Vienna Clinical Trial Center, Medical University Vienna, Vienna, Austria.
Kroisamer JS; Department of Ophthalmology, Vienna Reading Center, Vienna Clinical Trial Center, Medical University Vienna, Vienna, Austria.
Buehl W; Department of Ophthalmology, Vienna Reading Center, Vienna Clinical Trial Center, Medical University Vienna, Vienna, Austria.
Rezar-Dreindl SM; Department of Ophthalmology, Vienna Reading Center, Vienna Clinical Trial Center, Medical University Vienna, Vienna, Austria.
Eibenberger KM; Department of Ophthalmology, Vienna Reading Center, Vienna Clinical Trial Center, Medical University Vienna, Vienna, Austria.
Pablik E; Center for Medical Statistics, Informatics and Intelligent Systems, Section for Medical Statistics, Medical University of Vienna, Vienna, Austria.
Schmidt-Erfurth U; Department of Ophthalmology, Vienna Reading Center, Vienna Clinical Trial Center, Medical University Vienna, Vienna, Austria.
Sacu S; Department of Ophthalmology, Vienna Reading Center, Vienna Clinical Trial Center, Medical University Vienna, Vienna, Austria.; Pokaż więcej
Źródło:: Acta ophthalmologica [Acta Ophthalmol] 2018 Nov; Vol. 96 (7), pp. e776-e782. Date of Electronic Publication: 2018 Jan 16.
Typ publikacji:: Journal Article
MeSH Terms:: Quality of Life*
Sickness Impact Profile*
Central Serous Chorioretinopathy/*physiopathology
Retina/*physiopathology
Acute Disease ; Adult ; Central Serous Chorioretinopathy/diagnostic imaging ; Female ; Fluorescein Angiography ; Humans ; Male ; Middle Aged ; Retinal Pigment Epithelium/physiopathology ; Retrospective Studies ; Subretinal Fluid/physiology ; Surveys and Questionnaires ; Tomography, Optical Coherence ; Visual Acuity/physiology ; Visual Field Tests ; Visual Fields/physiology

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Skocz do pozycji: 13.

Tytuł:: Coping mediates the relationship between sense of coherence and mental quality of life in patients with chronic illness: a cross-sectional study.
Autorzy:: Kristofferzon ML; Department of Health and Caring Sciences, Faculty of Health and Occupational Studies, University of Gävle, Kungsbäcksvägen 47, 801 76, Gävle, Sweden. .; Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden. .
Engström M; Department of Health and Caring Sciences, Faculty of Health and Occupational Studies, University of Gävle, Kungsbäcksvägen 47, 801 76, Gävle, Sweden.; Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.; Nursing Department, Medicine and Health College, Lishui University, Lishui, China.
Nilsson A; Department of Health and Caring Sciences, Faculty of Health and Occupational Studies, University of Gävle, Kungsbäcksvägen 47, 801 76, Gävle, Sweden.; Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.; Pokaż więcej
Źródło:: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2018 Jul; Vol. 27 (7), pp. 1855-1863. Date of Electronic Publication: 2018 Apr 05.
Typ publikacji:: Journal Article
MeSH Terms:: Sickness Impact Profile*
Adaptation, Psychological/*physiology
Chronic Disease/*psychology
Sense of Coherence/*physiology
Adolescent ; Adult ; Aged ; Aged, 80 and over ; Cross-Sectional Studies ; Female ; Humans ; Male ; Middle Aged ; Surveys and Questionnaires ; Young Adult

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Skocz do pozycji: 14.

Tytuł:: Impact of Visual Impairment on Vision-Related Quality of Life in Parkinson's Disease.
Autorzy:: Pengo M; Department of Molecular and Translational Medicine, University of Brescia, Brescia, Italy.
Murueta-Goyena A; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.; Department of Neurosciences, University of the Basque Country (UPV/EHU), Leioa, Spain.
Teijeira-Portas S; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.
Acera M; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.
Del Pino R; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.
Sáez-Atxukarro O; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.
Diez-Cirarda M; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.
Tijero B; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.; Department of Neurology, Cruces University Hospital, Barakaldo, Spain.
Fernández-Valle T; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.; Department of Neurology, Cruces University Hospital, Barakaldo, Spain.
Gómez Esteban JC; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.; Department of Neurosciences, University of the Basque Country (UPV/EHU), Leioa, Spain.; Department of Neurology, Cruces University Hospital, Barakaldo, Spain.
Gabilondo I; Neurodegenerative Diseases Group, Biocruces Bizkaia Health Research Institute, Barakaldo, Bizkaia, Spain.; Department of Neurology, Cruces University Hospital, Barakaldo, Spain.; Ikerbasque: The Basque Foundation for Science, Bilbao, Spain.; Pokaż więcej
Źródło:: Journal of Parkinson's disease [J Parkinsons Dis] 2022; Vol. 12 (5), pp. 1633-1643.
Typ publikacji:: Journal Article; Research Support, Non-U.S. Gov't
MeSH Terms:: Parkinson Disease*/complications
Quality of Life*
Humans ; Sickness Impact Profile ; Surveys and Questionnaires ; Vision Disorders/etiology ; Visual Acuity

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Skocz do pozycji: 15.

Tytuł:: Health-related quality of life in mothers of children with epilepsy: 10 years after diagnosis.
Autorzy:: Puka K; Department of Epidemiology & Biostatistics, Western University, London, ON, Canada.; Children's Health Research Institute, Lawson Health Research Institute, London, ON, Canada.
Ferro MA; School of Public Health and Health Systems, University of Waterloo, Waterloo, ON, Canada.
Anderson KK; Department of Epidemiology & Biostatistics, Western University, London, ON, Canada.; Children's Health Research Institute, Lawson Health Research Institute, London, ON, Canada.; Department of Psychiatry, Western University, London, ON, Canada.
Speechley KN; Department of Epidemiology & Biostatistics, Western University, London, ON, Canada. .; Children's Health Research Institute, Lawson Health Research Institute, London, ON, Canada. .; Department of Paediatrics, Western University, Children's Hospital, LHSC, Room E2-602, 800 Commissioner's Road E., London, ON, N6A 5W9, Canada. .; Pokaż więcej
Źródło:: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2018 Apr; Vol. 27 (4), pp. 969-977. Date of Electronic Publication: 2018 Jan 05.
Typ publikacji:: Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't
MeSH Terms:: Sickness Impact Profile*
Epilepsy/*psychology
Health Surveys/*methods
Mothers/*psychology
Adolescent ; Adult ; Child ; Cohort Studies ; Female ; Humans ; Male ; Prospective Studies ; Surveys and Questionnaires ; Time Factors

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Skocz do pozycji: 16.

Tytuł:: Utility of a patient-reported outcome in measuring functional impairment during autologous stem cell transplant in patients with multiple myeloma.
Autorzy:: Shah N; Department of Medicine, University of California San Francisco, 400 Parnasus Ave, 4th Floor, San Francisco, CA, 94143, USA. .
Shi Q; Department of Symptom Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Giralt S; Department of Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY, USA.
Williams L; Department of Symptom Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Bashir Q; Department of Stem Cell Transplantation, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Qazilbash M; Department of Stem Cell Transplantation, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Champlin RE; Department of Stem Cell Transplantation, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Cleeland CS; Department of Symptom Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Wang XS; Department of Symptom Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.; Pokaż więcej
Źródło:: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2018 Apr; Vol. 27 (4), pp. 979-985. Date of Electronic Publication: 2017 Dec 19.
Typ publikacji:: Journal Article; Research Support, N.I.H., Extramural
MeSH Terms:: Patient Reported Outcome Measures*
Sickness Impact Profile*
Hematopoietic Stem Cell Transplantation/*methods
Multiple Myeloma/*therapy
Transplantation Conditioning/*methods
Adult ; Aged ; Female ; Humans ; Male ; Middle Aged ; Multiple Myeloma/pathology

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Skocz do pozycji: 17.

Tytuł:: The impact of advanced age-related macular degeneration on the National Eye Institute's Visual Function Questionnaire-25.
Autorzy:: Patnaik JL; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.
Lynch AM; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.
Pecen PE; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.
Jasso M; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.
Hanson K; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.
Mathias MT; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.
Palestine AG; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.
Mandava N; Department of Ophthalmology, University of Colorado School of Medicine, Aurora, CO, USA.; Pokaż więcej
Źródło:: Acta ophthalmologica [Acta Ophthalmol] 2021 Nov; Vol. 99 (7), pp. 750-755. Date of Electronic Publication: 2020 Dec 30.
Typ publikacji:: Journal Article
MeSH Terms:: National Eye Institute (U.S.)*
Registries*
Surveys and Questionnaires*
Visual Acuity/*physiology
Wet Macular Degeneration/*physiopathology
Aged ; Aged, 80 and over ; Cross-Sectional Studies ; Female ; Follow-Up Studies ; Humans ; Male ; Prospective Studies ; Quality of Life ; Sickness Impact Profile ; Time Factors ; United States ; Wet Macular Degeneration/diagnosis

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Skocz do pozycji: 18.

Tytuł:: Participation and autonomy in the first 10 months after diagnosis of ALS: a longitudinal study.
Autorzy:: Kruitwagen-Van Reenen ET; Department of Rehabilitation, Physical Therapy Science & Sports, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
Scholten EWM; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
van Groenestijn A; Department of Rehabilitation, Amsterdam Movement Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.
Van Den Berg LH; Department of Neurology and Neurosurgery, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands, and.
Post MWM; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; De Hoogstraat Rehabilitation, Utrecht, The Netherlands.; Department of Rehabilitation Medicine, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands.
Visser-Meily J; Department of Rehabilitation, Physical Therapy Science & Sports, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands.; De Hoogstraat Rehabilitation, Utrecht, The Netherlands.; Pokaż więcej
Źródło:: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2021 Nov; Vol. 22 (7-8), pp. 459-466. Date of Electronic Publication: 2021 Mar 08.
Typ publikacji:: Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't
MeSH Terms:: Amyotrophic Lateral Sclerosis*/diagnosis
Disease Progression ; Humans ; Longitudinal Studies ; Self Report ; Sickness Impact Profile ; Surveys and Questionnaires

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Skocz do pozycji: 19.

Tytuł:: Impact of monitoring health-related quality of life in clinical practice in children with type 1 diabetes mellitus.
Autorzy:: Murillo M; Pediatric Service, University Hospital Germans Trias i Pujol, Ctra de Canyet s/n, Badalona, Barcelona, 08916, Spain.; Autonomous University of Barcelona, Barcelona, Spain.
Bel J; Pediatric Service, University Hospital Germans Trias i Pujol, Ctra de Canyet s/n, Badalona, Barcelona, 08916, Spain.; Autonomous University of Barcelona, Barcelona, Spain.
Pérez J; Department of Pediatric Endocrine, Hospital of Sabadell, Corporació Sanitària Parc Taulí, Parc Taulí s/n, 08208, Sabadell, Spain.; University Institute Parc Taulí-UAB, Autonomous University of Barcelona, Campus d'Excelència Internacional, Sabadell, Spain.
Corripio R; Department of Pediatric Endocrine, Hospital of Sabadell, Corporació Sanitària Parc Taulí, Parc Taulí s/n, 08208, Sabadell, Spain.; University Institute Parc Taulí-UAB, Autonomous University of Barcelona, Campus d'Excelència Internacional, Sabadell, Spain.
Carreras G; Pediatric Endocrinology, Hospital Sant Pau, Autonomous University of Barcelona, c/Sant Quintí 89, 08026, Barcelona, Spain.
Herrero X; Corporació de Salut del Maresme i la Selva, Sant Jaume, 209-217, 08370, Calella, Spain.
Mengibar JM; Corporació de Salut del Maresme i la Selva, Sant Jaume, 209-217, 08370, Calella, Spain.
Rodriguez-Arjona D; Catalan Agency for Health Quality and Assessment, Roc Boronat 81-95, 08005, Barcelona, Spain.
Ravens-Sieberer U; Department of Child and Adolescent Psychiatry, Psychotherapy, and Psychosomatics, University Medical Center Hamburg- Eppendorf, Martinistr. 52 (W29), 20246, Hamburg, Germany.
Raat H; Department of Public Health, Erasmus MC - University Medical Center Rotterdam, 3075 EA, Rotterdam, The Netherlands.
Rajmil L; Health Services Research Unit, IMIM-Hospital del Mar Institute of Medical Research, Barcelona Biomedical Research Park (office 138.03), Dr Aiguader 88, 08003, Barcelona, Spain. .; Pokaż więcej
Źródło:: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2017 Dec; Vol. 26 (12), pp. 3267-3277. Date of Electronic Publication: 2017 Aug 12.
Typ publikacji:: Journal Article; Multicenter Study
MeSH Terms:: Sickness Impact Profile*
Diabetes Mellitus, Type 1/*psychology
Adolescent ; Female ; Humans ; Longitudinal Studies ; Male ; Spain ; Surveys and Questionnaires

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Skocz do pozycji: 20.

Tytuł:: Maternal mental quality of life mediates the associations between intimate partner abuse against mothers and their children's behaviours and quality of life in low-income Chinese families.
Autorzy:: Guo VY; Department of Family Medicine and Primary Care, The University of Hong Kong, Ap Lei Chau, Hong Kong.
Yu EYT; Department of Family Medicine and Primary Care, The University of Hong Kong, Ap Lei Chau, Hong Kong. .
Wong RSM; Department of Family Medicine and Primary Care, The University of Hong Kong, Ap Lei Chau, Hong Kong.
Ip P; Department of Paediatrics and Adolescent Medicine, The University of Hong Kong, Pok Fu Lam, Hong Kong.
Tiwari AFY; School of Nursing, The University of Hong Kong, Pok Fu Lam, Hong Kong.
Wong CKH; Department of Family Medicine and Primary Care, The University of Hong Kong, Ap Lei Chau, Hong Kong.
Fung CSC; Department of Family Medicine and Primary Care, The University of Hong Kong, Ap Lei Chau, Hong Kong.
Wong WHS; Department of Paediatrics and Adolescent Medicine, The University of Hong Kong, Pok Fu Lam, Hong Kong.
Lam CLK; Department of Family Medicine and Primary Care, The University of Hong Kong, Ap Lei Chau, Hong Kong.; Pokaż więcej
Źródło:: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2017 Dec; Vol. 26 (12), pp. 3297-3306. Date of Electronic Publication: 2017 Jul 24.
Typ publikacji:: Journal Article
MeSH Terms:: Sickness Impact Profile*
Child Behavior/*psychology
Intimate Partner Violence/*psychology
Mental Disorders/*psychology
Mothers/*psychology
Adult ; Child ; China ; Cross-Sectional Studies ; Female ; Humans ; Male ; Poverty ; Surveys and Questionnaires

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