The TeleKidSeq pilot study: incorporating telehealth into clinical care of children from diverse backgrounds undergoing whole genome sequencing.
Autorzy:
Sebastin M; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. Odgis JA; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Suckiel SA; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Bonini KE; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Di Biase M; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. Brown K; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. Marathe P; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Kelly NR; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. Ramos MA; Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Rodriguez JE; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Aguiñiga KL; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Lopez J; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. Maria E; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. Rodriguez MA; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Yelton NM; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Cunningham-Rundles C; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Gallagher K; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. McDonald TV; Department of Medicine (Cardiology), Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY, USA. McGoldrick PE; Department of Pediatrics, Division of Child Neurology, New York Medical College, Valhalla, NY, USA.; Pediatric Neurology, Boston Children's Health Physicians/Maria Fareri Children's Hospital, Hawthorne, NY, USA. Robinson M; Bethel Gospel Assembly, New York, NY, USA. Rubinstein A; Department of Allergy and Immunology, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY, USA. Shulman LH; Department of Pediatrics, Division of Developmental Medicine, Rose F. Kennedy Children's Evaluation & Rehabilitation Center at Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY, USA. WolfSM; Department of Pediatrics, Division of Child Neurology, New York Medical College, Valhalla, NY, USA.; Pediatric Neurology, Boston Children's Health Physicians/Maria Fareri Children's Hospital, Hawthorne, NY, USA. Yozawitz E; Isabelle Rapin Division of Child Neurology of the Saul R Korey Department of Neurology at Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY, USA.; Department of Pediatrics, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY, USA. Zinberg RE; Department of Genetics and Genomic Sciences , Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Obstetrics, Gynecology and Reproductive Science, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Abul-Husn NS; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Genetics and Genomic Sciences , Icahn School of Medicine at Mount Sinai, New York, NY, USA. Bauman LJ; Department of Pediatrics, Division of Ambulatory Pediatrics, Albert Einstein College of Medicine, Bronx, NY, USA. Diaz GA; Department of Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Genetics and Genomic Sciences , Icahn School of Medicine at Mount Sinai, New York, NY, USA. Ferket BS; Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Greally JM; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. Jobanputra V; Molecular Diagnostics, New York Genome Center, New York, NY, USA.; Department of Pathology and Cell Biology, Columbia University Medical Center, New York, NY, USA. Gelb BD; Department of Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Genetics and Genomic Sciences , Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Horowitz CR; Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai, New York, NY, USA. Kenny EE; The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.; Department of Genetics and Genomic Sciences , Icahn School of Medicine at Mount Sinai, New York, NY, USA. Wasserstein MP; Department of Pediatrics, Division of Pediatric Genetic Medicine, Children's Hospital at Montefiore/Montefiore Medical Center/Albert Einstein College of Medicine, 3411 Wayne Ave, 9th Floor, Bronx, NY, 10467, USA. .
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Źródło:
Pilot and feasibility studies [Pilot Feasibility Stud] 2023 Mar 22; Vol. 9 (1), pp. 47. Date of Electronic Publication: 2023 Mar 22.
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