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Tytuł :
GenoShare: Supporting Privacy-Informed Decisions for Sharing Individual-Level Genetic Data.
Autorzy :
Raisaro JL; Lausanne University Hospital, Lausanne, Switzerland.
Troncoso-Pastoriza JR; EPFL, Lausanne, Switzerland.
El-Zein Y; CSEM, Neuchâtel, Switzerland.
Humbert M; Armasuisse, Lausanne, Switzerland.
Troncoso C; EPFL, Lausanne, Switzerland.
Fellay J; Lausanne University Hospital, Lausanne, Switzerland.
Hubaux JP; EPFL, Lausanne, Switzerland.
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Źródło :
Studies in health technology and informatics [Stud Health Technol Inform] 2020 Jun 16; Vol. 270, pp. 238-241.
Typ publikacji :
Journal Article
Journal Info :
Publisher: IOS Press Country of Publication: Netherlands NLM ID: 9214582 Publication Model: Print Cited Medium: Internet ISSN: 1879-8365 (Electronic) Linking ISSN: 09269630 NLM ISO Abbreviation: Stud Health Technol Inform Subsets: Health Technology
MeSH Terms :
Genetic Privacy*
Informed Consent*
Databases, Genetic/*ethics
Genomics/*ethics
Information Dissemination/*ethics
Confidentiality ; Disclosure ; Genome ; Humans ; Medical Record Linkage
Czasopismo naukowe
Tytuł :
Sport and exercise genomics: the FIMS 2019 consensus statement update.
Autorzy :
Tanisawa K; Faculty of Sport Sciences, Waseda University, Tokorozawa, Japan.
Wang G; Collaborating Centre of Sports Medicine, University of Brighton, Eastbourne, UK.
Seto J; Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Paediatrics, University of Melbourne, Parkville, Victoria, Australia.
Verdouka I; Collaborating Centre of Sports Medicine, University of Brighton, Eastbourne, UK.
Twycross-Lewis R; School of Engineering and Materials Science, Queen Mary University of London, London, UK.
Karanikolou A; Collaborating Centre of Sports Medicine, University of Brighton, Eastbourne, UK.
Tanaka M; Department for Health and Longevity Research, National Institutes of Biomedical Innovation, Health and Nutrition, Tokyo, Japan.
Borjesson M; Department of Neuroscience and Physiology, Center for Health and Performance, Goteborg University, Göteborg, Sweden.; Sahlgrenska University Hospital/Ostra, Göteborg, Sweden.
Di Luigi L; Unit of Endocrinology, Department of Movement, Human and Health Sciences, University of Rome 'Foro Italico', Rome, Italy.
Dohi M; Sport Medical Center, Japan Institute of Sports Sciences, Tokyo, Japan.
Wolfarth B; Department of Sport Medicine, Humboldt University and Charité University School of Medicine, Berlin, Germany.
Swart J; UCT Research Unit for Exercise Science and Sports Medicine, Cape Town, South Africa.
Bilzon JLJ; Department for Health, University of Bath, Bath, UK.
Badtieva V; I.M. Sechenov First Moscow State Medical University (Sechenov University), Ministry of Health of Russia, Moscow, Russian Federation.; Moscow Research and Practical Center for Medical Rehabilitation, Restorative and Sports Medicine, Moscow Healthcare Department, Moscow, Russian Federation.
Papadopoulou T; Defence Medical Rehabilitation Centre, Stanford Hall, Loughborough, UK.; British Association of Sport and Exercise Medicine, Doncaster, UK.
Casasco M; Italian Federation of Sports Medicine (FMSI), Rome, Italy.
Geistlinger M; Unit of International Law, Department of Constitutional, International and European Law, University of Salzburg, Salzburg, Salzburg, Austria.
Bachl N; Institute of Sports Science, University of Vienna, Vienna, Austria.; Austrian Institute of Sports Medicine, Vienna, Austria.
Pigozzi F; Sport Medicine Unit, Department of Movement, Human and Health Sciences, University of Rome 'Foro Italico', Rome, Italy.
Pitsiladis Y; Collaborating Centre of Sports Medicine, University of Brighton, Eastbourne, UK .
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Źródło :
British journal of sports medicine [Br J Sports Med] 2020 Aug; Vol. 54 (16), pp. 969-975. Date of Electronic Publication: 2020 Mar 22.
Typ publikacji :
Consensus Development Conference; Guideline; Journal Article
Journal Info :
Publisher: BMJ Publishing Group Country of Publication: England NLM ID: 0432520 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1473-0480 (Electronic) Linking ISSN: 03063674 NLM ISO Abbreviation: Br J Sports Med Subsets: MEDLINE
MeSH Terms :
Genetic Privacy*
Genomics*
Exercise/*physiology
Sports/*ethics
Sports/*physiology
Health Policy ; Humans
Czasopismo naukowe
Tytuł :
Contact Tracing to Manage COVID-19 Spread-Balancing Personal Privacy and Public Health.
Autorzy :
Kapa S; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN. Electronic address: .
Halamka J; Mayo Clinic Platform, Mayo Clinic, Rochester, MN.
Raskar R; MIT Media Lab, Massachusetts Institute of Technology, Cambridge, MA.
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Źródło :
Mayo Clinic proceedings [Mayo Clin Proc] 2020 Jul; Vol. 95 (7), pp. 1320-1322. Date of Electronic Publication: 2020 May 03.
Typ publikacji :
Journal Article
Journal Info :
Publisher: [Oxford, England] Country of Publication: England NLM ID: 0405543 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1942-5546 (Electronic) Linking ISSN: 00256196 NLM ISO Abbreviation: Mayo Clin. Proc. Subsets: Core Clinical (AIM); MEDLINE
MeSH Terms :
Betacoronavirus*
Contact Tracing*
Privacy*
Public Health*
Coronavirus Infections/*epidemiology
Coronavirus Infections/*transmission
Pneumonia, Viral/*epidemiology
Pneumonia, Viral/*transmission
Coronavirus Infections/diagnosis ; Humans ; Pandemics ; Pneumonia, Viral/diagnosis
SCR Disease Name :
COVID-19
SCR Organism :
severe acute respiratory syndrome coronavirus 2
Czasopismo naukowe
Tytuł :
Incorporation of Multiple Sources into IT - and Data Protection Concepts: Lessons Learned from the FARKOR Project.
Autorzy :
Lindoerfer D; Institute for medical Information Processing, Biometry and Epidemiology, Ludwig-Maximilians-Universität München, Munich, Germany.
Mansmann U; Institute for medical Information Processing, Biometry and Epidemiology, Ludwig-Maximilians-Universität München, Munich, Germany.
Reinhardt I; Institute for medical Information Processing, Biometry and Epidemiology, Ludwig-Maximilians-Universität München, Munich, Germany.; Medical center of the university of Munich.
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Źródło :
Studies in health technology and informatics [Stud Health Technol Inform] 2020 Jun 16; Vol. 270, pp. 262-266.
Typ publikacji :
Journal Article
Journal Info :
Publisher: IOS Press Country of Publication: Netherlands NLM ID: 9214582 Publication Model: Print Cited Medium: Internet ISSN: 1879-8365 (Electronic) Linking ISSN: 09269630 NLM ISO Abbreviation: Stud Health Technol Inform Subsets: Health Technology
MeSH Terms :
Computer Security*
Confidentiality*
Medical Record Linkage*/methods
Medical Records Systems, Computerized*
Privacy*
Germany ; Humans ; Insurance, Health ; Patient Rights
Czasopismo naukowe
Tytuł :
Personal data usage and privacy considerations in the COVID-19 global pandemic.
Transliterated Title :
Preservação da privacidade no enfrentamento da COVID-19: dados pessoais e a pandemia global.
Autorzy :
Almeida BA; Centro de Integração de Dados e Conhecimentos para Saúde, Fiocruz Bahia. R. Mundo, Trobogy. 41745-715 Salvador BA Brasil. .
Doneda D; Instituto Brasiliense de Direito Público. Brasília DF Brasil.
Ichihara MY; Centro de Integração de Dados e Conhecimentos para Saúde, Fiocruz Bahia. R. Mundo, Trobogy. 41745-715 Salvador BA Brasil. .
Barral-Netto M; Centro de Integração de Dados e Conhecimentos para Saúde, Fiocruz Bahia. R. Mundo, Trobogy. 41745-715 Salvador BA Brasil. .
Matta GC; Escola Nacional de Saúde Pública Sérgio Arouca, Fiocruz. Rio de Janeiro RJ Brasil.
Rabello ET; Instituto de Medicina Social, Universidade do Estado do Rio de Janeiro. Rio de Janeiro RJ Brasil.
Gouveia FC; Casa Oswaldo Cruz, Fiocruz. Rio de Janeiro RJ Brasil.
Barreto M; Centro de Integração de Dados e Conhecimentos para Saúde, Fiocruz Bahia. R. Mundo, Trobogy. 41745-715 Salvador BA Brasil. .
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Źródło :
Ciencia & saude coletiva [Cien Saude Colet] 2020 Jun; Vol. 25 (suppl 1), pp. 2487-2492. Date of Electronic Publication: 2020 May 01.
Typ publikacji :
Journal Article
Journal Info :
Publisher: Associação Brasileira de Pós-Graduação em Saúde Coletiva Country of Publication: Brazil NLM ID: 9713483 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1678-4561 (Electronic) Linking ISSN: 14138123 NLM ISO Abbreviation: Cien Saude Colet Subsets: MEDLINE
MeSH Terms :
Betacoronavirus*
Global Health*
Health Records, Personal*
Pandemics*
Privacy*
Coronavirus Infections/*epidemiology
Pneumonia, Viral/*epidemiology
Population Surveillance/*methods
Confidentiality ; Contact Tracing/methods ; Data Anonymization ; Humans ; Social Media
SCR Disease Name :
COVID-19
SCR Organism :
severe acute respiratory syndrome coronavirus 2
Czasopismo naukowe
Tytuł :
Looking beyond Privacy Shield, how likely is a post-Brexit data adequacy deal? The striking down of Privacy Shield has been hailed as a victory for digital rights and privacy campaign groups, but it will have consequences that go beyond transatlantic data transfers
Autorzy :
Scroxton, Alex
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Źródło :
Computer Weekly. 8/4/2020, p7-10. 4p.
Temat :
RIGHT of privacy
COMPUTER privacy
INTERNET privacy
TREATY on European Union (1992). Protocols, etc., 2007 December 13
GENERAL Data Protection Regulation, 2016
EMAIL
Periodyk
Tytuł :
Privacy-preserving statistical analyses in Learning Health Systems.
Autorzy :
Gardner W; University of Ottawa, Ottawa, ON, Canada. .; CHEO Research Institute, Ottawa, ON, Canada. .
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Źródło :
Pediatric research [Pediatr Res] 2020 May; Vol. 87 (6), pp. 978-979. Date of Electronic Publication: 2020 Mar 14.
Typ publikacji :
Journal Article; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, P.H.S.; Comment
Journal Info :
Publisher: Nature Publishing Group Country of Publication: United States NLM ID: 0100714 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0447 (Electronic) Linking ISSN: 00313998 NLM ISO Abbreviation: Pediatr. Res. Subsets: MEDLINE
MeSH Terms :
Learning Health System*
Privacy*
Child ; Humans ; Regression Analysis
Czasopismo naukowe
Tytuł :
Digital Contact Tracing, Privacy, and Public Health.
Autorzy :
Martinez-Martin N
Wieten S
Magnus D
Cho MK
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Źródło :
The Hastings Center report [Hastings Cent Rep] 2020 May; Vol. 50 (3), pp. 43-46.
Typ publikacji :
Journal Article
Journal Info :
Publisher: Wiley-Blackwell Country of Publication: United States NLM ID: 0410447 Publication Model: Print Cited Medium: Internet ISSN: 1552-146X (Electronic) Linking ISSN: 00930334 NLM ISO Abbreviation: Hastings Cent Rep Subsets: Bioethics; MEDLINE
MeSH Terms :
Privacy*
Contact Tracing/*ethics
Contact Tracing/*methods
Coronavirus Infections/*epidemiology
Pneumonia, Viral/*epidemiology
Smartphone/*ethics
Betacoronavirus ; Humans ; Mobile Applications ; Pandemics ; Public Health ; Risk Assessment
SCR Disease Name :
COVID-19
SCR Organism :
severe acute respiratory syndrome coronavirus 2
Czasopismo naukowe
Tytuł :
Privacy and genetic genealogy data.
Autorzy :
Greytak EM; Parabon NanoLabs, Inc., Reston, VA 20190, USA. .
Kaye DH; Penn State Law, Pennsylvania State University, University Park, PA 16802, USA.
Budowle B; Center for Human Identification, University of North Texas Health Sciences Center, Fort Worth, TX 76107, USA.
Moore C; Parabon NanoLabs, Inc., Reston, VA 20190, USA.
Armentrout SL; Parabon NanoLabs, Inc., Reston, VA 20190, USA.
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Źródło :
Science (New York, N.Y.) [Science] 2018 Aug 31; Vol. 361 (6405), pp. 857.
Typ publikacji :
Letter; Comment
Journal Info :
Publisher: American Association for the Advancement of Science Country of Publication: United States NLM ID: 0404511 Publication Model: Print Cited Medium: Internet ISSN: 1095-9203 (Electronic) Linking ISSN: 00368075 NLM ISO Abbreviation: Science Subsets: MEDLINE
MeSH Terms :
Genealogy and Heraldry*
Privacy*
Genetic Privacy ; Genetic Testing ; Pedigree
Opinia redakcyjna
Tytuł :
Human-embryo editing, genetic privacy and Ebola returns.
Źródło :
Nature [Nature] 2018 Aug; Vol. 560 (7717), pp. 146-147.
Typ publikacji :
News; Comment
Journal Info :
Publisher: Nature Publishing Group Country of Publication: England NLM ID: 0410462 Publication Model: Print Cited Medium: Internet ISSN: 1476-4687 (Electronic) Linking ISSN: 00280836 NLM ISO Abbreviation: Nature Subsets: MEDLINE
MeSH Terms :
Genetic Privacy*
Hemorrhagic Fever, Ebola*
Ebolavirus/genetics ; Gene Editing ; Humans ; Mutation ; Privacy ; Viral Proteins/genetics
Periodyk
Tytuł :
'There's nothing really they can do with this information': unpacking how users manage privacy boundaries for personal fitness information.
Autorzy :
Zimmer, Michael (AUTHOR)
Kumar, Priya (AUTHOR)
Vitak, Jessica (AUTHOR)
Liao, Yuting (AUTHOR)
Chamberlain Kritikos, Katie (AUTHOR)
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Źródło :
Information, Communication & Society. Jun2020, Vol. 23 Issue 7, p1020-1037. 18p.
Temat :
*Information policy
*Privacy
*Information theory
Internet privacy
Computer privacy
Physical activity
Geographic boundaries
Czasopismo naukowe
Tytuł :
Privacy-enhanced multi-party deep learning.
Autorzy :
Gong M; School of Electronic Engineering, Key Laboratory of Intelligent Perception and Image Understanding of Ministry of Education, Xidian University, Xi'an, Shaanxi Province 710071, China. Electronic address: .
Feng J; School of Electronic Engineering, Key Laboratory of Intelligent Perception and Image Understanding of Ministry of Education, Xidian University, Xi'an, Shaanxi Province 710071, China.
Xie Y; School of Electronic Engineering, Key Laboratory of Intelligent Perception and Image Understanding of Ministry of Education, Xidian University, Xi'an, Shaanxi Province 710071, China.
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Źródło :
Neural networks : the official journal of the International Neural Network Society [Neural Netw] 2020 Jan; Vol. 121, pp. 484-496. Date of Electronic Publication: 2019 Oct 11.
Typ publikacji :
Journal Article
Journal Info :
Publisher: Pergamon Press Country of Publication: United States NLM ID: 8805018 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1879-2782 (Electronic) Linking ISSN: 08936080 NLM ISO Abbreviation: Neural Netw Subsets: MEDLINE
MeSH Terms :
Computer Security*
Privacy*
Deep Learning/*standards
Humans
Czasopismo naukowe
Tytuł :
Alone But Supported: A Qualitative Study of an HIV Self-testing App in an Observational Cohort Study in South Africa.
Autorzy :
Janssen R; Department of Health, Ethics & Society, Research School for Public Health and Primary Care, Maastricht University, Postbus 616, 6200 MD, Maastricht, The Netherlands. .
Engel N; Department of Health, Ethics & Society, Research School for Public Health and Primary Care, Maastricht University, Postbus 616, 6200 MD, Maastricht, The Netherlands.
Esmail A; Division of Pulmonology, Department of Medicine, Centre for Lung Infection and Immunity, UCT Lung Institute, University of Cape Town, Anzio Road, Cape Town, 7925, South Africa.
Oelofse S; Division of Pulmonology, Department of Medicine, Centre for Lung Infection and Immunity, UCT Lung Institute, University of Cape Town, Anzio Road, Cape Town, 7925, South Africa.
Krumeich A; Department of Health, Ethics & Society, Research School for Public Health and Primary Care, Maastricht University, Postbus 616, 6200 MD, Maastricht, The Netherlands.
Dheda K; Division of Pulmonology, Department of Medicine, Centre for Lung Infection and Immunity, UCT Lung Institute, University of Cape Town, Anzio Road, Cape Town, 7925, South Africa.; Department of Immunology and Infection, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, Keppel St, Bloomsbury, London, WC1E 7HT, UK.
Pai NP; Division of Clinical Epidemiology, Department of Medicine, McGill University and Research Institute of the McGill University Health Centre, 5252 de Maisonneuve W, Montreal, H4A 3S5, Canada. .
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Źródło :
AIDS and behavior [AIDS Behav] 2020 Feb; Vol. 24 (2), pp. 467-474.
Typ publikacji :
Journal Article; Observational Study
Journal Info :
Publisher: Springer Science + Business Media Country of Publication: United States NLM ID: 9712133 Publication Model: Print Cited Medium: Internet ISSN: 1573-3254 (Electronic) Linking ISSN: 10907165 NLM ISO Abbreviation: AIDS Behav Subsets: MEDLINE
MeSH Terms :
Counseling*
Mobile Applications*
Privacy*
Smartphone*
AIDS Serodiagnosis/*methods
HIV Infections/*diagnosis
Self Care/*methods
Telemedicine/*methods
Adult ; Cohort Studies ; Delivery of Health Care ; Female ; Humans ; Male ; Mass Screening/methods ; Qualitative Research ; Rural Population ; Serologic Tests ; South Africa
Czasopismo naukowe

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